March 24th
2009
12:40 PM
OK LADIES,
I had my mirena removed today!! I am doing to keep you updated on how I am feeling and anything else that goes on!!!! and Regarding the blood with the scent of death, go to your doctor!!! It could be a extremely bad infection!!!
-- By sweetnums86 | Reply | Private Message me
March 17th
2009
12:46 PM
I am so glad I heard about this site. I have had the mirena for almost 4 years. I thought I was doing great until reading all of these symptoms from other people. I have noticed a lot of weight gain, anxiety, swollen ankles and hands, very low sex drive, pain after intercourse, heart palpitations and stomach problems. On March 23, 2009 I was scheduled for gallbladder surgery, which I have canceled. I believe all of my gallbladder symptoms are related to the mirena. I have experienced pain in the ribcage, cold sweats, fatigue and even the butterfly feeling in my stomach. No matter how hard I try to get the weight off, it will not budge. I thought this was just because I have reached my 30's. The mirena is coming out in April, thank goodness for this website.
-- By knk | Reply | (2) replies | Private Message me
November 5th
2008
10:02 AM
Ok ladies! I got my mirena out a little over a week ago and I can't even believe the difference. My acne is GONE! My moodiness has almost dissappeared & I'm starting to feel like my normal self again.
I've still got the weight to loose but of course that will take more time to loose than it did to gain. I'm looking at doing another full body cleanse to finish clearing out my system of all the little extra toxins that the Mirena might have left in my body. I am SO happy that I opted to have mine taken out. I no longer have terrible cramping. THe bleeding has stopped, I feel normal again. It's amazing what a difference it made in me.
Again, Ladies follow your bodies, if you stop feeling like yourself PLEASE follow your instinct. Don't let your doctor decide what you should do with your body and well being.
-- By slroache52 | Reply | Private Message me
June 27th
2008
9:57 PM
Ok ladies, I'm not even sure where to start today. I posted earlier this month (June 8th) and finally got in for an appointment to get this thing removed 2 days ago. I refuse to refer to it by its name on this website anymore since whenever you do it is put in bold as if it is special so, from here on out I choose to call it that Evil Thing or ET. I have been so depressed since my appointment that I haven't felt like talking to anyone about anything much less about this, but I'm starting to come out of it today so, here goes. Things did not go well from the start since my doctor wasn't available for my appointment as she had been called away to the hospital to deliver a baby. Well, I'm a pretty flexible gal and I understand that although I don't want kids other people do so, I can share my doctor. I was OK with seeing someone else as long as they would remove this ET. Initially, it sounded like it would be no problem from what the nurse was saying, but then in walks this Mother Goose looking lady who starts in on me about how I haven't had it very long (3 months) and why would I want it out. So, I start to tell her all the problems I'm having. (Small recap: extreme daily cramps, increased appetite, decreased energy, significant mood changes, decrease interest in sex as well as uncomfortable/painful sex, acne, plus others) She proceeds to tell me how strange that it is that I'm having problems with cramps since this ET is supposed to make you have fewer cramps. So, I'm all well that's nice, but I never ever had cramps when I took pills (for 14 years) and I have literally had cramps every single day for the past 3 months. Based on that one thing alone I wanted the ET gone. Despite her skepticism she was agreeable to removing it, but then she asked me the question. The question I couldn't answer and the question that turned me upside down. Maybe I should have known this before going, but I didn't and certainly no one bothered to tell me. She asked when was the last time I'd had sex because it was very important that it had been more than a week ago due to the possibility of getting pregnant. Well despite my complete lack of interest in sex, at some point last week I threw my poor husband a bone and we had sex. Since I can no longer concentrate or focus or remember anything that goes on in my life because I have this ET in my body I couldn't remember exactly when that was. I even called my husband as sat there naked from the waist down and in a complete panic desperately hoping he could remember, but men don't remember ANYTHING!!!! Mother Goose said she thought I would be OK based on the time frame I had it narrowed down to, but tells me she had removed one before and a lady got pregnant who had had sex 3 days prior to removal. (I did know I was past 3 days, but the story did its job and scared me.) I asked her if she could give me a 100% certainty that I would not get pregnant if she removed it and she couldn't. Well, needless to say I still have the damn thing because I just can't take that risk. I have already had one accidental pregnancy while taking the pill and I just can't go through that again. I broke down. I had a complete meltdown in the office because it was supposed to be over. That day was supposed to be it. I was supposed to be rid of this ET and start to get on with my life and I felt like it was my fault because I couldn't remember, but NO it's not my fault because if it wasn't for the ET I would be able to remember things! Anyway, that's how my thoughts were going round and round. So, I start to explain more to Mother Goose about how this is a perfect example of how the ET has affected my moods. Well, once she sees this display she gets all concerned and starts asking me more questions and over and over again "so, this JUST started 3 months ago?" As if I was making it all up. As if I'm really depressed and have probably been so for some time and I'm using the ET as an excuse. WHATEVER!!! So, at this point I'm not sobbing anymore and I've flipped to really angry b****h mode because she was seriously pissing me off. She goes on and on with these depressive symptom questions and asking how stressed I am and finally I'm just like, look I'm a normal person with normal problems who knows how to deal with things, but I can't now because of this ET!!! She didn't say the word out loud, but I know she was on the verge of prescribing me an anti-depressant. She did say she had NEVER heard of the ET causing this (or any of the symptoms I listed for her) to happen but I could be her first. I was so worn out at this point I didn't even have the energy to educate her even though I felt like it was my job to do so for the sake of other women who might cross her path. She finally quit grilling me and then my absolute favorite part of the whole visit came when she leaned forward, patted my knee and said, "now, you know you're going to have to keep your sweetie off you for awhile." I'm 31 for goodness sake and married--I think my "sweetie" and I can abstain for a few more days. Plus, did you not just witness the meltdown I had when you told me you couldn't remove it today because we DID have sex--do I look like a moron to you? Good grief!!! Mother Goose lady had no idea how much danger she was in at that point, but I did well and restrained myself--mostly because I was just beat, I had nothing left. I go back for Take 2 on Monday. That appointment is again with my doctor--I hope she is actually available this time. Thanks for letting me vent--I needed it. Most importantly, if you are getting your IUD removed do not have sex a week prior to removal. Mother Goose says most doctors are good with no sex 5 days prior, but she feels safer with 7 days, personally I think they are all idiots! Take care everyone.
-- By cray | Reply | Private Message me
May 8th
2008
4:57 PM
Ok ladies...day two since removal. Still no major relief of symptoms...but I did start a period...pretty moderate flow. I'm exhausted and my emotions are all over the place. (I have cried about 4 different times today...and yes I've been at work for most of it. Nice.)
I found a posting on here earlier...can't remember whose it was (Sorry!) about checking out a site from "nerdnuggets" where it posted a product monograph which is the informative packet released by Bayer Corp. in Canada. If you can find that posting, do it! Pull it up and print it out...it's a 46 page description of the medication. Page 10 specifies all of these side effects...even the tendinitis I've been treated for! Page 33 lists the absorption and distribution of the medicine into our bodies and specifically discusses how the medicine becomes systemic in our bloodstream within 15 minutes of insertion! So what I did was printed out several copies, attached letters, and sent it out to all my doctors and specialists, including my EX-gynecologist asking him to use the information to educate not only himself, but his staff as well so they do not grossly discount another patient's side-effects they way they did mine. Keep in mind that this information is not readily available to us here in the US...this is a Canadian report.
Hence my other phone call made today to attorney Justin Wikin (out of Florida I believe...thank you, Amayaa, for this info) at 850-916-7450 regarding a possible class action suit. They took my story down and recorded names of all my physicians and told me I should hear back from them within 7-10 days.
In the report, I also found how it is excreted form your body once removed. It has a half life of about 20 hours. Layman's terms: After 20 hours, or approximately one day, only about 50% remains in your body. The next day, 50% of that is removed, leaving about 25% in your system. (So: Day 3, you should only have about 12% left, Day 4 = 6%, Day 5 = 3%, Day 6 = 1%.) Realistically, every day should get better and better...and I should start feeling some major relief when, after about 1 week, all this is out of my system.
Good luck to us all and for those of you who are having the same problems with their doctors as I have been...print out that report! (Plus, it's fun to see the look on their faces when you show them a medical report that they cannot dispute!)
-- By nyrek | Reply | (1) replies | Private Message me
April 6th
2004
4:06 PM
OK ladies (and gentlemen too), I have just completed my second 6-month course of Lupron. The first time I had some side effects while on the medication (mood swings, hot flashes, massive - 40 lbs! - weight gain, memory and concentration problems, aches and pains, etc) - but the withdrawal was worse. I was trying to plan my best friend's bridal shower and couldn't do it because I was mentally non-functional, and I had diarrhea and other unpleasant effects. Within six months, however, I was able to hold a full time job, take graduate level classes, and do all my other activities. And Lupron gave me 12 symptom-free years - I was sure my endo was cured.
After I found out otherwise last fall, that I had huge endometrial cysts again PLUS some small fibroids (the result of all the pills and progestins I'd taken trying to help the endo), I faced surgery and Lupron again. My doctor was extremely conservative and JUST took out the large cyst on one side - leaving several smaller ones on the other side as well as ALL the adhesions. He recommended Lupron again, and I decided to take the bull by the horns and to do what I could to help myself.
During the course of Lupron treatment, I tried to consume at least 40 mg of soy (soy only!) isoflavones per day. I avoided beer, yams and other phyto-progestins. I upped my consumption of milk and other calcium-rich foods; if I craved sweets, I binged on them. In other words, I listened to my body.
Recent research has shown that the hot flashes and memory problems associated with menopause are the result of changes in the processing of carbohydrates that causes too little glucose to reach the brain. Likewise, I have read that the joint pains associated with Lupron are caused by the drug's undermining the liver's ability to produce glucosamine, another glucose-derivative. I noticed that when I would have symptoms and would, for example, eat sweets (no, fruit won't do), my mental symptoms would subside and my joints would almost immediately feel better. I realize most doctors would stone me for this advice, and I have gained 15 lbs - but I have /only/ gained 15, whereas I gained 40 before while attempting to eat right and exercise.
I have also found that MSM, especially when combined with chicken collagen, almost instantly helps my joints. The glucosamine/chondroitin formulations I tried tended to make me dizzy - again, probably something to do with the Lupron's effects on the liver.
For my immune system I have been taking Coenzyme Q10 and Juice Plus, a fruit and vegetable blend available online (www.juiceplus.com).
I won't say I haven't had side effects either while on the Lupron or since going off, but I have been functioning much better thus far than I did while on or immediately after going off the Lupron before. Can't hurt to try it. Good luck!
-- By tyrrath | Reply | Private Message me
March 28th
2009
4:33 PM
ok ladies. THANKS! now I know I am not imagining things. I had Mirena inserted 9 days ago because I got tired of taking the pill. I have never had issues with the pill just wanted to try something new. Since having Mirena inserted I have had abdominal pain (not severe) just more like pressure on my left lower side. Which occasionally causes discomfort when I sit, walk or bend over. The pressure/discomfort almost feels similar to the discomfort I experienced when I had IBS years ago. In 2005 I had my Gall Bladder removed and since then IBS has disappeared and I have not had issues with IBS. But with Mirena...I have noticed that although I am regular..there is strenuous work (straining) involved (of which I have not had to do since having my Gall Bladder removed). In addition I am having this horrible smelly discharge of which I have never had before. And lastly I have noticed that my thighs are getting a little pudgy and my lower stomach is getting bigger. I feel bloated. Needless to say I am going to have this removed ASAP.
-- By zbiz2 | Reply | Private Message me