June 17th
2009
3:46 PM
I'm 15 years old and i've been taking prednisone for a few months, and from what i've read i'm on a really high dose. i was diagnosed with rheumatoid arthritis and another autoimmune disorder concerning my muscles at the same time. my doctor told me prednisone was my only choice; it was either that or i would lose the ability to walk. he told me there'd be side effects, but i had no idea it'd turn out like this or i would have fought harder for another course of action. i started out on 30mg twice a day, and since then was weaned down to 20mg twice a day and now i'm down to 30mg once a day. i've been looking up a bunch of information trying to figure out if there's a way to lessen the side effects or any hope at all that they will get better. apparently there isn't much. after reading a bunch of these stories i gotta say i'm not feeling great about this. i totally understand everything everyone is going through. i'm sure you can imagine what it's like being smack in the middle of high school with a huge puffy face, acne so bad on my face, chest, back, neck, and shoulders that wearing a bra could put me in tears, and mood swings so bad i've lost friends over it. everyone knows how brutal high school can be, where appearance and attitude are everything. and i try to tell my doctor about it and he literally looks at me like i'm a whiny teenager and says "you're just going to have to deal with it." and people like my mom and my closest friends don't get it either. nobody understands how beyond frustrating it is. i'll get into the worst moods and not have a reason for it, but i'll stay angry for hours or burst into tears over someone looking at me the wrong way. it'll get to the point where i have to isolate myself from other people because the abrubt mood changes get so bad. as bad as i hate to admit it, the pain from the arthritis is gone now and supposedly my muscles are doing better too. developing arthritis caused me to have to quit cheerleading, something i've loved doing for 6 years, because the pain got to the point where i couldn't get my arms above my head or bend my knees. however, i'd almost rather deal with the horrible joint pain than deal with the side effects of prednisone. if your doctor gives you and alternative method, take it. i've always been confident in the way i look and really outgoing and happy and now i sometimes catch myself thinking about suicide. that's shocking to me because i've got so much going for me, but this medicine makes me miserable. and when i complain about it, anyone i'm talking to just looks at me like i'm being a cry baby. my mom does too, she'll say things like "you just have to do this. i know it's not what you want but to be honest i'm sick of hearing you bitch about it."
i feel a little better knowing other people feel the same way - like nobody gets whats going on with them. the prednisone does give me days of really great euphoria and days when i feel like i could run a marathon, but waking up in the morning to the acne and huge face puts me to tears every day. i have to pee all the time, usually getting up at 2 or 3 am. i don't sleep well anymore and i do sweat all the time. which also sucks being a teenage girl. i'm always hungry, and when i eat i never feel full so i don't know when to stop. my neck and face have put on so much weight that when people see me in the halls or out and about they ask me what happened. mind you these are people i don't talk to, just ones i know from classes or whatever. and it's pretty bad when teenage boys i've never really talked to ask what happened to your face. kind of a blow to the ego, or whatever is left of it at this point.
i'd like to know if, as my dosage gets lowered, the side effects will diminish and when i'm off the prednisone completely if they will disappear altogether. any help there?
or if there is any way to help the acne or puffy face
my doctor just put me on something called methotrexate or something like that to help wean me off the prednisone, and does anyone know what those side effects will do? or if they'll affect the prednisone side effects?
i'm constantly obsessing over gaining weight and what my skin looks like and what i eat and how heavy my face feels and the occasional pressure in my eyes to the point where i just want to be put out of my misery.
and after reading other people's stories i really don't understand why this drug is still given out as freely as it is. but maybe all doctors are like mine, they just don't get it.
best of luck to anyone who's on prednisone, my heart goes out to you; i'm right there with you
sorry this became like a book it wasn't meant to be this long
May 19th
2009
11:21 PM
I was diagnosed with Rheumatoid arthritis at the end of 2007 and have been on prednisone since then. I started on about 105mg a week and am currently trying to reduce it but it is really hard as the moment the dosage goes down I lose all mobility and cannot even get out of bed. I am only 23 years old and really feeling the disease to the extent that I cannot even cope with my life. The prednisone has really taken its toll on me and the side effects are crazy! I just want to go back to my old self as I am finding it sooo hard to get through a single day. My side effects include:
Insomnia, tooth sensitivity, depression, anxiety, mood swings, moon face (my face is so swollen that I cant stand looking in the mirror anymore, dizziness, temper, feelings of uselessness, nightmares, night sweats, water retention, and to top it all off the arthritis is getting worse and I am in constant pain. Is there anything anyone can suggest then please help me!
-- By rowrow | Reply | (6) replies | Private Message me
May 13th
2009
12:22 PM
I have been on advair for 2 years and am starting to experience headaches that last the entire day. It helps with my breathing difficulties and I am unsure if I can just stop taking the medication. Its really difficult for me right now and I'm starting to feel depressed about it. I'm not sure how I'll get through this.
-- By conqueran | Reply | (4) replies | Private Message me
May 8th
2009
3:02 AM
I have been on prednisone for 11+ years due to having had a heart transplant. The prednisone keeps my heart from rejecting.
I have not taken it for 2 days and I am in the process of passive suicide.
I am driving out west into the desserts to sit and die. I can no longer
be around people for I am afraid I may kill someone or at least significantly hurt them. I have been homicidal and suicidal for 11 years due to this med. I would enjoy killing everyone and everything. I hate myself and I want to die.
Prednisone made me become "Evil"; Hell incarnated. I don't want to live
in a mental institution and my doctor will only give me Seroquel thinking this will help me. I tell him it doesn't help me but he thinks it does. Stupid fucking doctor. My transplant docotrs won't even listen to me when I talk about "mental" issues. Everything pisses me off. It is raining outside and this makes me so mad and stressed.
I have been in this psychotically angry and agitated state of mind for 11 years. I have punched myself many times in the head and banged my
head against walls trying to get homicidal and suicidal thoughts out of my mind to no avail.
I would like to try ECT (electro-convulsive-therapy) but I won't even
mention this to my doctor because he will literally laugh at me and make me so god dam mad that I would enjoy killing him right then and there. I'm sick and tired of living in hell everyday.
Do not take prednisone no matter what, unless your life depends on it. And then what type of life will you have? Maybe a life full of hate, rage, anger, homicidal and suicidal thougts even when you dream.
Fuck life!
Arthur X 1968-2009
May 3th
2009
6:07 PM
I am a part-time professional singer and attorney. I developed an odd cough-variant asthma this winter at age 42 -- it had scary breath shortness and wheezing plus lots of phlegm coughed up. I had never before had the shortness/wheezing/asthma, though I have always had allergies and occasional bronchitis following a cold. The asthma/allergy specialists put me on Advair 500 twice a day with each attack, plus an oral prednisone burst/short taper, nebulized (not just rescue inhaler) albuterol (beta 2 agonist), and antibiotics (a different one each time). I also take Claritin, Rhinocort and Astelin for my allergies. I had four attacks of asthma this winter that were treated this way; after the fourth, they put me on Advair 250 maintenance for a month. With each attack, I would get hoarse, have trouble sleeping, and get odd muscle cramps I never had had. The hoarseness was worse each time, but I was able to sing through it at my regular gigs. I attributed the side effects to the prednisone. With my fifth attack, they told me to ramp up the Advair to 500 and do all else the same, but as an experiment to see how this would alter those side effects, I decided to treat it with everything but the prednisone. The hoarseness, sleep trouble, and muscle cramps were all much worse. I found this site, noted the recommendation of several other singers to try Asmanex instead of Advair, and asked the docs about it. They agreed that all these symptoms could be related to the Advair and gave me Asmanex 250 twice/day instead instead of the Advair, plus all the other meds for the attack. The symptoms went away within a week, although it took a little longer for me to get over the asthma attack this time. I am extremely grateful to this site and all the users posting comments. I can sing again, sleep again, and exist without weird muscle cramps during treatment of my asthma. Thank you very much.
-- By jgoldsbo | Reply | (5) replies | Private Message me
March 12th
2007
7:39 PM
Hi,My biggest side effects are the hair loss,limb swelling,insomnia,halucinations(unless my dead dog really is a ghost),memory loss,numbness in legs and arms,tingling in arms and hands expecially when I cough or sneeze,sinus stuffiness and infections and cronic bronchitis.Allthough I have these side effects I personally think that I am better off taking the singulair for my asthma(does not help my allergy symptoms at all) than when I was on all the allergy meds and streoids.I used to have a bag load of those and I was allways having attacks,was depressed and thought of suicide but then I did the study for singulair about 15 years ago and thought it was a miracle cure so I waited for it to come out on the market.I know it is not a miracle cure but I don't have to take those other meds anymore and I only use my fast acting inhailer mabee once a month now.I am now 6 months pregnant and will be looking for an alternative treatment from a hollistic/natural Dr. after I have the baby.There has got to be a better way to control this disease,I hope,naturally through diet and other remadies with less or no side effects to treat my allergies and asthma.If anyone knows of such tratments,please post it.Thanks.LR
-- By nomoretruckn | Reply | (2) replies | Private Message me
July 9th
2004
11:17 AM
I have been put on five different drugs for my cholesterol. I react within a week of taking these....... I wake at night with my hand cramped and loose the power of my hand temporiarily .. then my feet go ice cold .. then get great sharp pains in feet....... aches in neck and back.....I stop the statins right away and the Dr insist we try another. Now I have said NO MORE........... this has beenover a period of three years. I am shocked at the sudden and quick problems of the drugs. I have stiff joints and swollen fingers sice the last trial of two one week......... any cholesterol lowering drug affects me....I keep telling them I can not use statins and they say this is a new drug it will be different. Nothering is different.
I have not brought my cholesterol down to normal with diet and non flush niacin...... plush omega -3 oils.
I asked the Dr why they do not try the natural route first?? He said " patients do not like the side effects!!!!" I said have you not heard of NON FLUSH NIACIN. Have just had blood tests done for rhemoid factor......... all because of my swollen joints and aches .. as a result of statins.
DO NOT TAKE THESE DRUGS...... TAKE CONTROL OF YOUR HEALTH... DIET EXERCISE AND TAKE NATURAL PRODUCTS
WE ARE NOT EXPERIMENTIAL OBJECTS FOR THE PHARMACEUTICAL COMPANIES......
THEY DO NOT HAVE OUR HEALTH AT HEART .. IT IS ALL ABOUT PROFITS AND MORE AND MORE MONEY
-- By nulagh | Reply | Private Message me
September 19th
2009
3:32 PM
ive been on prednisone and cortisone..2 doses i woke up and couldn't move my legs at all. the more i walked the more it hurt..the more i sat the worse it was to stand up and walk..idk what to do..i have to take this for the rest of my life..its just terrible to move.and my doctor wont be around for 3 days.
-- By scarlette | Reply | (2) replies | Private Message me