Optic neuritis symptoms and conditions

I was diagnosed with Optic Neuritis in my left eye, at the time of diagnosis, I felt fine. Had an MRI to check for lesions on the brain, there were none. I was put on IV solu-medrol for 3 days, then 90 mg of prednisone for one week, with a rapid taper the second week. 6 days into the prednisone, I started have shortness of breath, etc. Went to the ER and my white count was 22,000. Had bronchitis and the beginnings of pneumonia. Because of the breathing problems, I only did 2 days of taper (doctor's advice). I have lost site completely in the left eye and now I have blurred vision in my right eye. Extreme fatigue, and a mental fog I just can't explain. A "twitch" in my left left hand and muscle weakness. I just don't feel "right". How long does it take for this drug to leave your system? Has anyone had a similar experience? My eye doctor was considering another round of prednisone for the optic neuritis, but I am not so sure I can survive it.

What side effects should one expect who has been prescribed 1000mg (one thousand) oral Prednisone.

As a Doctor myself I think drugs are NEVER the answer except in EMERGENT issues in Heroic life saving... YOU however and all individuals are and should be MORE accountable for your own health and STOP DEMANDING the Drugs and look to LIFESTYLE changes in DIET and EXERCISE to achieve the GOALS so necessary for quality and quantity of life.... The tools are at your fingertips ... The almighty internet ... And your OWN imaginative mentation is your TRUE limitation... So TAKE control of yourself and BE accountable .... Sorry so blunt but MORE tough love and Educating people is whats needed.... NOT more drugs....

MDG

Hello everyone,

My name is Tina and I am a mother of 5 children and I was diagnosed with a very rare disorder called "VKH" It is a rare eye disorder that only strikes like 1 in 1,000,000,000 people. I was put on Prednisone to help with this condition and to reduce the swelling in my eyes. I was put on 70mg initially and was tapered down to 40mg. then things did not go as well as to be expected and I was bumped back up to 60mg. I am so happy to read these stories but also saddened at the same time. I have been on Prednisone for 5 months and have gained 20 pounds and have the moon face, the acne, the hair growth and the horrible mood swings. My husband and I had our 10 year anniversary last week and I spent it all alone because of my moods.......
It has destroyed my relationships and my self esteem. I don't like leaving the house barely because I hate how I look and I am so depressed I am not the same person as before. I cry all the time because sometimes I wonder if taking this drug is worth it!!! What makes things worse is I wonder if things will ever go back to normal for me or my family again.................

I have been on Prednisone for about two weeks now! I hate it!!! I have never liked medicine, i don't even like to take Advil. They gave it to me for something called a idiopathic pseudo-tumor behind my eye, thought that it was an infection at first but the antibiotics didn't work.. I'm on a pretty high dose, i was on 80mg for 9 days and now I'm on 60mg so far has been 3 days. I have had all sorts of bad side effects from it! WAY bad anxiety attacks, heart palps, bad night sweats, dizzy, confused, like everyone else the brain fog feeling, bad knee aches, hungry all the time but i haven't really gained wait but am bloated in the stomach. After taking it for only 4 days i almost went to the ER i felt like i was going to have a stroke or something, my legs felt like they were turning into jello, and i got really light headed, I was about to freak out! I think that it dropped my potassium levels or something, i ate a few bananas and that made me feel better. It is starting to get better now that i dropped to 60mg but i still hate it, and I'm starting to get really bad chest pain (heartburn or gas?!?) not too sure but its starting to become unbearable.. I get to go down to 40mg next week and then 30mg for a week then to 20 for a week and so on! I'm a bit nervous now cuz i thought that depressing would make it better but everyone is saying that it get worse. I hope that it don't get much worse cuz i don't know how much more that i can take! My eye looks great so the meds did the job, but i still don't know if i would ever take this again knowing this much about it! I'm glad that I'm only going to be on it just a little over a month but even that seems way too long! good luck everyone take care of your selfs! oh yeah I'm only 23 and this stung really makes you feel old, i feel at least 40 it hurts to get up or sit fast!

Today i was proscribed with 50 mh prednisone ,5 tablets .4 times a day so that is 1000mg of prednisone a day has anyone had same thing .i was dyagnosed with optic nuritiritis.i am really scared to take this medicine and so many mg a day. please help!

I have not been diagnosed with MS yet but have had 3 bouts of Optic Neuritis and this is the second time they are putting me on 3 day iv 1g solumedrol. I had to taper with prednisone last time and it caused a lot of pain in my knees and alot of anger/crying. I'm on day two of the solumedrol and feel very anxious, strange, crying, leg pain, crazy? I wish I could find an effective way of lessoning these side effects...i'm trying Chamommile tea & vitamins B's at 3am hopefully it will help.

I just recently found this site and am very thankful I did. Has anyone ever even heard of someone being prescribed 1000mg oral prednisone for 7 days, followed by 500 mg oral prednisone for 7 days for a one day occurance of optic neuritis. It happened to my father and he died 3 weeks later. I would appreciate hearing from anyone who can help me make sense of this dosage.

I used nasonex for a month feb 2006 and experienced terrible insomnia and palpatations at night and i also had optic neuritis in my left eye. Is the ON to do with tiredness from not sleeping. All stopped once nasonex stopped. Taken beconase since, however i have had a sinus infection and optic neuritis again april 2007. Is there a relationship between corticosteroids and optic neurits?

For optic neuritis, and arm and shoulder pain: I had a combo of 3 days of Solu-Medrol infusion (steroid via IV) and then went on the following regimen of Prednisone: 5 days 60 mg; 3 days 40 mg; 2 days 20 mg.
Side effects have been terrible with the WORSE CASE OF FACIAL ACNE I have ever had. I'm 28 - I have my 10th high school reunion, weddings, and more -- and it may sound vain, but if you saw this acne (hundreds of tiny pimples all over my cheeks; sides; chin; and upper neck) you'd feel my pain. Also, got shoulder, arm, back, and chest acne -- which I can take b/c I can find ways to cover that up. But face! It's terrible. I'm using Pro-Activ and see minimal improvement. The #2 problem has been SEVERE heartburn during the tapering off phase. I have never felt that much pain and it only went away after I completely went off the drug - I treated this with ginger drink (a hot tea sold in international food stores) and Pepcid AC. Also, due to my original symptoms I can do virtually no exercise when I used to exercise 6 days/week. I'm really worried about weight gain which I already see in my arms and face. My appetite has been through the roof. Irritability was the worst but I forewarned my family. My original symptoms have greatly improved, but I'd honestly rather fight through that original pain than endure the craziness that is prednisone.

i used nasonex as needed for alergies for about six months. i was having migranes for about two weeks. i dont think i used nasonex the whole two weeks. one morning i woke up and i couldnt see out of my right eye and my head fealt terrible. i hadnt been sleeping well, so i took an ibuprophen and had a cup of coffee and 20 minutes later, my sight had come back. the next morning i had the same problem, so i took and ibuprophen and waited. i waited all day and finaly at about 8 at night i went into the emergency room. i have been tested for every disease out there and i had no answers for why i lost my vision in the right eye. about six months later (when i very rapidly lost most of my vision in the left eye) i was diagnosed with chronic steroid dependent autoimmune optic neuritis. i have wondered thinking back if the nasonex was responsible for the steroid dependancy, but i guess there is no way to be sure. if anyone has anything to tell me or a simmilar story to tell me email me at ******