May 9th
2008
7:33 PM
I had the Mirena put in six weeks after having our daughter, on June 30th, 2006. I never was able to loose weight, and felt very bloated, moody, with pains in my sides (ovary level), and then in the Fall of 2007, I noticed a significant loss of vision in my left eye. I went through $40,000 worth of hospital visits, and one 8-day stay, to figure out that the Mirena had caused a rather large blood clot to form on the outside of my brain in the main vein that crosses over the top outside brain. I have suffered from multiple ER visits with migraines lasting up to 72 hours, even after shots and meds. I have been going to the University of Colorado Hospital for treatment and it has taken over six months to get me on a medication regiment that will hopefully alleviate my debilitating headaches and now am living with the possibility that my vision may never get better in my left eye. The Dr.'s I have seen: an eye surgeon, a Neurologist, a Neuro-ophthalmologist, a Retinal Specialist, and the multiple local MD's. The tests run on my body and head have been very extensive, including blood tests, multiple MRI's and the final MRVenagram that tests the flow and drainage of and around my brain that found the blood clot and have ruled out everything from MS, to Pseudotumor Cerebri (which is a lifelong disease offering only pain management for the most part), as well as a macular deterioration related with people over fifty, not 24, they have also ruled out any pre-existing tendency for being prone to blood clots . This has been the scariest thing of my life and so consuming and debilitating, that I would never recommend the Mirena to anyone. I have missed so much work and the traveling to doctors have been a drain on our financial situation. This kind of information needs to get out there because Dr's are denying any relation to the Mirena. My Dr's have definitely diagnosed my problem as the Mirena. The swelling of spinal fluid was my body trying to protect itself and that swelling caused such great pressure on my optic nerve that my macula, where a person has central and fine detail and focusing, wrinkled in a layer of my eye that cannot be operated on. I can no longer read out of my left eye and the stress that created for my right eye is a contributor to the migraines. I also see double at night, when lights or signs are illuminated by the headlights of my car. I am seeing two images! This is very hard to accept and not being able to read for very long also upsets me. The likelihood of my vision repairing on its own is slim to none. Thanks Mirena. SO please, please help the word get out!!!! Also caution anyone you know who is planning on getting the Mirena, or who has one in to be aware of any changes. My experience has been very extreme but maybe women out there are going through the same things I have been and no one will recognize the relation to the Mirena. I am only glad my Dr. was willing to admit the Mirena was the cause.
-- By mamarose | Reply | (1) replies | Private Message me
March 30th
2008
5:41 AM
Blurred vision: I can only focus to read for 10 minutes at a time. I went to the optician and was given the all clear and told that it could affect vision.
Lyn
March 6th
2008
3:05 PM
Hi everyone,
I had the Mirena fitted in May 2007 whilst under general anesthetic for an operation for an Ovarian Cyst. I have endometriosis so my GP fitted me with the coil as a way to control this disease. Having not had children i am really glad i was unconscious when it was fitted as it sounds painful.
I had started looking into side effects of the Mirena a few weeks ago as I have noticed that my libido is very low, and I wondered if it could be connected to the coil.
I have had a headache nearly every day for the last 3 months and have recently started feeling very dizzy. Today I have had to take time off work because I feel as if I am on a boat. It is like a spinning sensation really strange not something i have had before.
I am also experiences a sort of blurred vision, like a black shimmering over everything I look at. I have had my eyes tested by an optician and there is nothing wrong with them. The gp is at a loss because I do not have anything wrong with my ears. He basically has said live with it.
So I have made a decision to have the coil removed. I would be interested to know what that is like as i am quite nervous about that?
thanks
August 16th
2007
7:03 AM
Just one question I have been on this stuff at the beginning dose for less than a week. My eyes hurt, my head is about to explode, I am sick as a dog, I lost 5 pounds, I can't eat, constipated, can't sleep, can't function, ringing in my ears, and the ADD is unbelievable. I am a medical transcriptionist I kind of need to be able to work, no work, no pay. Topamax is going bye-bye for sure but how long till the side effects go away?
-- By d04pony | Reply | (5) replies | Private Message me
October 2th
2006
2:55 PM
Yes,
This was also a side affect for me too. Almost finished my marriage because i was no longer interested in sex. It was my husband who first suggested to me that the yasmin might be causing my problems.
The progesterone used in yasmin is similar to an anti-androgen. Could this be the reason it affects some womens sex drive?
If anybody has any answers i would love to hear them.
One month i did not start my pack on the correct day so i decided not to take any at all that month. The difference that month in the way i felt was huge. The cyst in my breast was not so painful and i was not angry with everybody that month.
However i still took it the next month and i went back to being paranoid, unwell and completely disinterested in sex. Finally my husband told me that i was unbearable to live with while on this pill.
Believe me the difference i feel since i stopped taking it is unbelievable. I feel normal again after being on it for three years. No more paranoia, healthy interest in sex and i lost 10 pounds in the first pill free month. All of the extra weight had gone on around my tummy and was completly uncharacteristic for me as i am a vegetarian.
I think i have mentioned this before but yasmin worked great for me at first. After about one year i started to experience problems like anxiety and breast cysts among other problems. I was prescribed xanax to help with my anxiety but realised that was not the answer.
I also noticed that my once perfect vision was starting to deteriorate. It got so bad that i could barely read. When i had my eyes checked the optician told me that i needed glasses. I have recently had my eyes checked again and my vision is perfect.
Nobody can tell me that this is a coincidence.
My biggest guilt trip is that i told my sister how great it was and she also started to take it. She has been taking it for about a year and is now starting to have anxiety problems too as well as her skin breaking out in the pill free week. This is an exact pattern of what happened to me.
My best wishes go to any woman who is going through this at the moment because it takes a while before you actually realise there is a connection between your problems and the medication you are taking.
Of course, as suggested by the person who replied to my post on steadyhealth.com, it will not have these effects on every woman.
But the fact that it has these extreme effects on some of us should surely mean that more investigation needs to be done.
Good luck to you all.
September 21th
2006
6:39 AM
hi jillian,
the answer to that question i'm afraid is like asking how long is a piece of string, some people recover as soon as they stop yasmin,some take,weeks,months or in extreme cases years. The eye problem is quite common with birth control pills,in fact i think it might be listed on theyasmin sire as a possible side effect,i know i have read it somewhere. have you mentioned the fact that you use birth control pills to your optician? best wishes to you and hope that you start to see an improvement soon.
December 4th
2008
9:46 PM
After being injected with lidocaine during a root canal procedure, the vision in one of my eyes was beyond distorted (the side they were working on). I had 3 injections prior to prep the tooth which is located upper right near the wisdom tooth. An hour into the procedure, I began to feel the doctor working on the tooth. So I wouldn't experience major pain, he then injected me one more time in the roof of my mouth. Within seconds, I noticed my vision was in that eye was beyond blurry. It was like I was seeing cross eyed, but my eyes were not physically crossed and my vision was distorted beyond belief. This totally freaked me out and lasted for a few hours until the lidocaine wore off. I have had a few root canals and dental work over the course of the years, but they used carbocaine instead, because I get too jittery with regular novacaine. Therefore no epi. What makes matters worse, is that they were unable to finish the root canal procedure, because it freaked me out so bad and my vision was messed up, that I was sent to the ER. I was told that he must have hit an optic nerve during the injection which most likely caused this situation and they were categorizing it as a possible allergic reaction, but again feel as though it was just the optic nerve that the lidocaine traveled to. Now I have to finish the rest of the root canal a week from now and will be having another dentist perform it. I'm so frightened that this will happen again. I honestly thought that my vision wouldn't be restored back to normal. Has anyone ever experienced anything like this?
Thanks.
-- By scorpion | Reply | (7) replies | Private Message me