Organs symptoms and conditions

I took aldactone (50mg / day) for a little over 6 years for the excess hair growth associated with PCOS. It did make the hair issue much better. About a year into taking it I wasn't sure it was working, so I stopped taking it. All my old facial hair grew back while off of it, so I started back up again.

I had no problems with the medication at all - or so I thought. I have had dizzy spells for years, especially after standing up from sitting or squatting, to the point where I would almost fall over or black out. For 6 years I went on like this, thinking it was no big deal until I went to a new doctor and he mentioned that my blood pressure was low 90/60 (Usually the nurse would say "you're BP is low, that's good") and he asked me if I ever got dizzy spells and I said yes all the time. He told me to stop taking the spironalactone NOW because REALLY LOW bp can cause damage to your organs. Now that I have stopped, my face is more hairy but I'm not dizzy anymore.

It works for PCOS, but keep an eye on your BP.

Only on it for 1 month so far and already having issues. I apparently have the worst case of endometriosis all my doctors have seen, including a cancer specialist that had to do all my surgeries because of the severity. Granted, I am only 31 years old and have had a full hysterectomy. So, after 3 surgeries I am still having severe abdominal pain and bleeding (don't know where that is coming from since I don't have a uterus anymore) so they said try Lupron and I finally gave in. Now I started getting such severe pain in my lower back that I can't stand for longer than 15 minutes and terrible side aches. I started getting headaches (which I already take pills for for years now),and have gotten the hot flashes as well. What are we to do ladies? I am so sick of complaining to the doctors about pain. You feel as if you are a big cry baby. What are my options here and does this ever stop?

Update on my post of Aug. 11th. I did see a neurologist who was a bit skeptical, but after looking it up did acknowledge that this drug can cause tendon ruptures, etc. Later that week he did a nerve conduction study, both the one with the needles and the one where they shock the muscles. He was happy to report that I did not have any "nerve" damage. I had already told him that I did not think I had neuropathy as the numbness had gone away and was just replaced by the constant pain in my joints, etc. I then went to see my rheumatologist who was also just as skeptical that the drug could be causing all the pain I was describing. She said she had had three patients with tendon ruptures, but nothing else. I really don't care what she believes, and I told her so. I know what happened and what horrible pain I have been in ever since. I hate to report that the pain in my feet, knees, hands, hips, back and now my neck are not any better. My insomnia is some better, but I am taking more Lyrica. I tried a different antibiotic yesterday for the sinus infection called Clindamycin. OMG! I took one pill and within a few minutes had unbelievable heartburn. That lasted for 12 hours, along with reflux, burping, weird stomach noises. Now, I can't take that. Doctor called in a prescription for Augmentin this morning. Afraid to try anything now, but guess I will give it a shot. Is anyone getting any better from their joint or muscle pain? Some encourgement would be good. Thanks.

I have had mirena since Mar 07 and I also have pain during intercourse, sharp pains in my pelvic area, my face started breaking out (never had ache) and horrible discharge gummy and clear. Has anyone else experienced the discharge. It is so uncomfortable for me I do not want to have intercourse with my husband of 6 years. I think I will have this removed on my 8/25 appointment. Any advice in regards to the discharge would be great. Thanks!

I had the Mirena put in May'08. I've noticed increased acne, cramping in my legs, and spotting. I am also dealing with symptoms of bladder infections, however, there is no infection. My OBGYN says there is no correlation between the Mirena and my bladder problems, however, the urologist said that the Mirena could cause problems to other organs around the uterus (including the bladder). He stated it could be traumatic to our bodies, causing muscles in our pelvic area to tighten, nerve damage, etc. My OB diagnosed me with Interstitial Cystitis, a disease of the bladder lining that is without a cure, but my urologist didn't buy off on this and so now I'm having other tests done to make sure it's not bladder cancer, etc. Again, my urologist believes it's related to the Mirena. All I know is that I didn't have bladder problems until I had the Mirena inserted, which was the most painful experience aside from giving birth to my children! After reading the postings on this website, I'm definitely removing this device from my body ASAP! Good luck to all of you women who have had similar experiences. I pray that our bodies will return to some sense of normalcy.

I've taken Ultracet for about 4 years almost every day, morning and night time and sometimes in the afternoon depending how severe my pain is. I take 2 pills each time. It does help take the edge off my pain. My doctor said my Fibromyalgia is as bad as it can get, plus I have severe arthritis through my whole body. I can hardly stand up straight and trouble walking. Ultracet seems to help better then Ultram for me. I'm concerned about how long I've taken Ultracet and damaging my liver or other organs. Does anyone know how long you can continue using Ultracet before it does damage. I'm very concerned about that issue because it does somewhat help with pain. I haven't noticed any side effects using Ultracet. If anyone knows how long you can stay on Ultracet without any harm, please post your knowledge or experience. Should I also have my blood monitored periodically?

I suffered with pre-menopausal symptoms for 2 years before having the Mirena inserted in May 2007. My symptoms included bad menstrual cramping, heaving bleeding, hot flashes, night sweats, moodiness and lack of libido. But since having the Mirena all those symptoms have gone away. My OBGYN is using it for Hormone Replacement because I am too young (34 yrs old) to have menopause. I felt a lot better after about 3 months, I still have some side effects like hand numbness (mostly when I wake up in the morning or at night). Every couple of months I have some mild break through bleeding and I have PMS symptoms before it happens. I would have gone crazy without Mirena. I do have 1 symptom that I haven't heard anyone mention. Increased bladder infections, I don't know if this is caused by the Mirena or maybe its something else. If anyone has had this symptom can you post it?

My father had such severe mouth sores that he could not eat for 2 weeks which eventually led to his organs shutting down which in the end led to his death in 2 weeks time. Please make sure to insist your doctor does something to help with the mouth sores before they get so bad that you cannot eat! Actually, if any loved one of mine gets cancer, next time we are heading to Mexico to the Hoxsey Clinic. I will never again subject a loved one to the poison of chemo again!!!

I started on 40mg of simvistatin 3 and a half months ago,after being on them for a week i started to get bad headaches and felt really fatigued,so when i told my gp she said its just a matter of your body getting used to them,so i continued taking the pills i seemed ok for a while but 5 weeks ago i started with palpitations,then i got indigestion, and general discomfort in my chest,weakness in my arms and legs, headaches and the fatigue came back worse than ever,i haven't been back to see the doctor,i stopped the pills yesterday,the indigestion has gone already,i want to lose about a stone and try to lower my cholesterol myself ,but how can you exercise when you feel so weak and tired,my cholesterol level is 5 but because i suffer high blood pressure the doc said it needs to be 4.3,does anyone else suffer from the same and is on this medication?

I had my Mirena inserted about 4 months ago and I have felt like I'm falling apart ever since. I have experienced the following symptoms: numbness/tingling in arms and legs, EXTREME fatigue, depression, anxiety, acne on back, my hair is thinner, bloating, sore stomach, lower back pain, etc. Most recently, I have had a lot of heartburn and my voice is kind of hoarse. Also, when I went to the doctor, they did a urine test and found that I have a trace of blood in my urine. Along with this I feel like I need to pee all the time, but I seem to have no bladder infection. I am fed up with this device and feeling like total crap all of the time. I have no energy and can't seem to get enough sleep. The only thing good about this thing is that I don't have a period. Of course, my doctor swears all of these symptoms can't possibly be due to the Mirena, but I don't see how it could all be coincidental. Please let me know if anyone else is experiencing these weird symptoms like the bladder issue or the heartburn/hoarseness.

I had the Mirena put in in Feb 07 and while at first it was all great and a great thought of not having to take a daily pill and such a good form of bc I thought why not? I have adenomiosis which is in the inner lining of the uterus (like endometriosis but inside instead of outside) which causes many issues like extra pain/cramping, my body bloating even more during ovulation, and then irritating all of the other organs in there since the uterus is irritated which leads to more swelling and discomfort, as well as pain during intercourse. This was prior to my last pregnancy which was in May 06. I've been pregnant 6 times and have 4 children. We aren't in a position to have anymore right now. Since Oct/Nov 07 I have begun gaining weight - mainly at the times I am probably 'ovulating' and the bloat can last about 3 weeks out of the month - I'm talking 15+ pounds. Mood swings out that wazoo and pain during intercourse which I think is what has led to my very low sex drive. Also, and I don't know where this is coming from or if there is any normalcy to it, but my breasts are leaking (I haven't breastfed since Dec 06). My GP put me on Prozac and I tried them but didn't find myself any better, just more tired. Now I'm taking some vitamins, but don't know what else to do. I had an ultrasound last week that showed all is fine and that the Mirena is in its right position. I re-meet with my Ob/Gyn the 19th to see where to go next. This sucks.

i was on the mediactions for less 7 days. during this time i developed the cough and in addtion had muscle aches. it appears it also effect my kidney fuction . my doctor did a blood test after a few days of therapy and my doctor said get off the medication immediaelty as i was unable to tolerate the therapy. it has now been 5 days since i stopped the treatment and only now in the afternoon of the 5th day is some semblance of normacly coming back to my body. this has effected me exactly like lippitor only i hope as a result of my doctor's careful monitoring perhaps not as much damage has been done to the interal muscles and other organs.

I like to live my life with facts, not speculation and drama. My child is on Singulair and doing fantastic. I remember the trips to the ER when I did not know if my child would live or die. Of course when I saw this report, it caused me some concern so I did some research on my own. Did you know that suicide is the leading cause of violent death in New York State, the United States and the world? In 2002 in New York State there were 1,292 suicides which exceeded homicides by 32%. The statistics show that 1 in 10 teenagers plans to commit suicide. The National Center for Health reports a 10% suicide rate in kids 15-24 years of age and 4 male suicides for every female suicide. Suicide is the third leading cause of death among those 15-24 years old.

So now we have 1 child in New York that has committed suicide that just happened to be on Singulair, and it is Singulairs fault? Show me the proof. All I see is one distraught mom who is trying to find blame for her son’s tragic death. Is there only half the story being told, a trend I have noticed in journalism these days. Let’s face it, life happens. I am NOT on Singulair and I have had melt downs, thrown things across the room, been depressed over things, cried, and even for the past week have been having some crazy dreams. I remember as a child putting notes on my room door telling my parents how much I hated them. I remember as a teenager thinking my life would be better if I were dead. I remember my child being cranky and fussy before she was on Singulair, gee maybe she was teething. The term “terrible twos” has been around a lot longer that Singulair. Let’s face it, we have turned into a society of people who always want something to blame. I think it is time people start taking responsibility for themselves and accept the fact that sometimes life just happens. Take accountability for your own lives, and stop trying to blame everything and anything.

I also live my life by reading internet blogs with a grain of salt. These blogs are public forums and places where anyone and everyone can post. How do you know that all these posts are real? Remember the day when kids made prank phone calls for fun? Now they have the internet and can post pranks on these blogs. How do you know that a competitor to Singulair is not posting in order to fuel the feeding frenzy? How about a registered sex offender or a felon in prison? There are a lot of “sick” people in the world and yes, they have access to the internet too. If you are hanging on every single one of these posts as being true and real then I feel sorry for you. The internet provides anonymity and it is easy to create a fictitious identity and a fictitious story. That is probably why if you do a search for “internet safety” you get 15,700,000 hits.

Until I see proof, I am not going to take my child off Singulair. The CDC reports that in 2002 there were 1.9 million visits to the ER for asthma and 4,261 asthma deaths. If I did stop my child’s Singulair, and she died in the ER from as asthma attack, whose head does that fall on? The media?

Wow. I have been reading all of your comments about Lupron and I am shocked. Here I am fighting with my insurance company to let me take a second course of Lupron. I only was given 6 months worth and FDA (according to my insurance) won't allow me anymore because of the dangers????

I have been in severe pain with accompanying problems from endo. Had a complete hyrsterectomy already years ago, but the endo came back (which I did not know it could) in various other organs that you can't operate on. My only choice was Lupron. I would be down in bed 2 or 3 times a week with the pain from endo, which irritated my bladder, my bowels, my sex life, you name it. Upon receiving the 2nd shot I felt so good I almost screamed! NO PAIN! It was the best 6 months of my life.

Now I am in total and severe pain everyday. Having fibromyalgia on top of it does not help either.

Anyway, I just thought I would voice my experience with Lupron.

I've had my Mirena for about 15 and a half months and I am having it removed today at 2 o'clock. At first I had sharp pains when I would sit down and I felt like the cords were poking me and irritating me. My OB/GYN requires patients to come back one month after having it put in so he can check it and make sure it is still in place. At this visit he also trimmed the cords although he acted like he didn't believe me when I told him that I could feel them poking me when I sat down and that it hurt. At first I didn't notice any bad side effects, but I did have one good one: my periods stopped, but I still had occasional and sporadic spotting. I didn't think to look for any bad side effects because I got the device under the impression that it had no bad side effects. I thought it only had a rare complication of perforating the uterus, but since mine was in place at the one month check, I didn't think about anymore until I started thinking about having another baby recently. I went online to see if I had to have a doctor remove the Mirena or if I could do it myself, and I found out that it's best done by a professional because bad things can happen and then you'd have to go to the doctor anyway. Plus, I didn't want to hurt my chances of having another baby. While online I discovered this whole world of message boards where women were having a lot of the same problems I'd been having in recent months and they all blamed their Mirenas. Some claimed that their problems had gone away since having it removed. I never thought to link my circumstances to the Mirena, but when I saw how many women are having the exact same problems as me I knew that I needed to go ahead and get mine out ASAP. Here is a list of my side effects, and I've found other women have had them as well with Mirena: weight gain, bloated stomach, depression, short temper with husband and daughter, acne, low sex drive, spotting, cramps, constipation, and back pain. There may be more, but I can't remember them all right now. Some of them may not even be related to the device, but I've read of so many women with Mirena who are having or have had the same issues, so I suspect a link between my problems and Mirena. I hope this helps someone out there looking for answers. God Bless!

I also would like to encourage everyone with Prednisone issues. I met the creator of this site from postings and replies on medications.com. At the time I was researching Prednisone concerning dosage levels and how this drug effects all major organs. She done a fantastic job with assisting in this matter. This all came about after my father passed away after being prescribed a MASSIVE dose of this horrible drug.. It is my belief that it does not take massive dosages of Prednisone to cause organ damage. So please if you are suffering from any of the mile long list of side effects, check out 'Sirvovors of Prednisone' before it is too late.

Hello, I was put on Prednisone for 12 days and made it through 11. It's been about 11 days since I've taken it and I'm still having symptoms. I have such bad anxiety and depression, mostly after dinner. My heart rate and blood pressure shoot up, and I have to pee every 15 mins. I had gone to the ER on the last day I was on it because I was having evil thoughts and crying uncontrollably. They told me it was probably steroidal psychosis and sent me to a shrink who now has me on Ativan until the Paxil she also prescribed me kicks in. Does ANYONE know how long this drug will be in my system? I took a tappered 12-day dose starting at 60mg. This drug may save lives, but it's really put hard times in mine. Any response is*****

I have been on 50 mg. of prednisone for about 6 weeks. After 2 weeks, I became very dizzy, weak and have blurred vision. I am now tapering off by 5 mg. every 3 days. I am still experiencing dizziness, weakness and blurred vision. My doctor said by the time I'm down to 15mg. per day, I should start to feel better - not soon enough for me. It is one of the worst experiences I have every had. I have IBD and the prednisone did not help one bit.

I was a 2:42 marathoner. I used a synthetic varnish containing isocyanates, pentanedione, organic solvents, in one 7-hour session; the company-recommended respirator did not in fact prevent transmission: Severe chemically- induced asthma, plus neuropathy, plus, plus.

I've used Advair 500/50 for six years. There have been many diverse effects from the chemical exposure; I'd not questioned any being Advair side effects. But the raised blood pressure was not initial, and certainly not a priori. Diminished hearing, diminished eyesight, anxiety. Again, not to lump in, but these questions are new for me. But the point I'd like to bring before this group is this: In August I was diagnosed with ehlichiosis , and was prescribed 28 days on doxycycline. They recommend eliminating many possible antagonists to the doxycycline. My respiratory capacity had been continually diminishing. My ongoing physician said this was to be expected and recommended only the next more powerful steroid. Not a good solution. Before all this I was strong; repaired myself. In the absence of constructive answers, wondering if the Advair was weakening me, making me dependent, I quit the Advair as well on beginning the doxycycline. Today is eleven days post-doxycycline. Eight days ago there began with increasing severity, a terrible wracking deep cough producing dark yellow mucus. Painful. No fever. Grevious throat from the wracking, but I question whether this is a cold or infection. It's just in my lungs. Maybe it's as though I've thrown off an epithelial coating. These past two days the quantity of deep yellow mucus is not as ready, but the wracking and coughing is more severe. And my lung capacity, my respiratory capacity, is frighteningly diminished. Until these past two days I'd considered this an infection, especially post-doxy. But it doesn't feel like an infection. And I'm scared. Is this because I quit the Advair abruptly after long regular use? Have any of you had a similar experience. Can you discuss the effects of abruptly discontinuing Advair. Have you stayed off it. What's happened to your respiratory capacity. Have you any professional studies, trials or experience to recommend. Thanks.

I'm a 37 year old female and have severe asthma and allergies and have used pregnisone on and off for 30 years. I believe I am the poster child for the long term side effects. My immune system is shot to the point that my normal medicines for asthma (ventolin, advair) and allergies (tylenol sinus, claritan, visine A) and ezcema (elidel, hydrocortisone, etc. - - NOTHING works!

In the past 6 months, I have developed various infections that the doctors have not been able to identify. My eyes are swollen and red with large amount of white/yellow secretions. Vaginal secretions. Face swollen. Skilled covered in a rash with ezcema out of control. Sharp pains in my back and stomach. Constant asthma. Abnormal hair growth. It is to the point that it is impossible to function and each doctor just wants to prescribe more pregnisone. I feel as if my body is a walking time bomb and it is so full of all the cortisone from over the years and has just decided no more.

I admit that I too readily believed in the doctors when they would rapidly prescribe the pregnisone. Only now am I paying attention to the long term side effects.

Has anyone had tests done to test their immune system and other organs for damage? Thanks and best to our pregnisone club.

I wanted to give an update. I'm the 31 year old cancer survivor who posted yesterday about my concerns with Toprol XL and some side-effects I was feeling. After a trip to the doctor, everything was made clear to me.

After having some bloodwork done and a chest x-ray, we determined that I, in fact, have congenital heart failure. This is when the heart is unable to pump blood fast enough to the body's organs. The result is weight gain due to fluid retention, shortness of breath, and especially trouble breathing when lying down. So, I imagine, the body's natural remedy to this is to speed up the rate in which the heart pumps, to compensate and get the needed blood to the body. That would explain my elevated heart rate.

Toprol XL did exactly what it was supposed to do: lower my heart rate. But, in my case (and, as it seems to me, might also be the case for many of the people posting here), that was not the right solution for me. Slowing the heart rate caused the natural side-effects of congenital heart failure to emerge. So, what I thought were side-effects of Toprol XL were in fact simply the my body's "normal" state, being someone with this heart condition.

As of today, I have stopped taking the Toprol XL and have been placed on a few new medications in its place. I have been correctly diagnosed now, and I look forward to feeling better soon.

i posted a few post down about the allergy doc telling me to stop taking it..

its been about 4 days im off lisinopril and I can finally sleep again (no more terrified heart attack feeling from my heart pumping so hard).. my blood pressure is perfect right now at 120/70 and my coughing is going away..

about atenelol post someone posted.. I heard that med absorbs into organs and will give you some serious problems later? isnt ACE inhibitors your best best at BP medicine in terms of long term effects?

Hi
I posted on this site in Jan 05, after my husband was rushed into hospital 3 days after multiple kenalog shots for his joints ( gout) He was told he was diabetic type 1 and would be using inuslin for the rest of his life. His body had started closing down his organs. He was on drip for 6 days, lost a stone in weight in 3 days prior to getting into hospital. I kept saying it was the injections, Cut a long story short he stopped using insulin injections within a month and his bloods have came to nearly normal. He is still treat as diabetic ( type 2) no medication, diet controlled. You cannot go from Type 1 to Type 2. We are in the process of going to court with the doctor who gave him the shots, we were not warned of any of this side effect. We have been told it will take a long time to sort out, but what really worrys me, if Kenalog came make the pancreas stop making insulin, and thank -god his started working again. What in the future if it is badly damaged and stops altogether? Can I thank the person who put the information on the site about dosage and side effects. Would you believe the hospital has lost my husbands records. I hope if this happens to any-one else this piece of informtation may help. Not only did Kenalog change my husbands life but 4 months later I had a heart attack and they have put it down to stress ( I am 44 and my husband is 45)We both had no serious illnesses ever but now!!!!! WHO KNOWS
Regards
TINA

Hi
I started taking Yamin 3 weeks ago because I have terrible cramps due to having endometriosis. My doctor said to take Yasmin continuously (without taking the placebo) so I don't have a period. I thought I was being a hypercondriac but I am suffering from headaches, nausea, I gag once in awhile and now I have calf pain. After reading these notes from all of you I am wondering is this going to get better once my body gets used to it or will I be feeling worse. Plus I am extremely tired and I was wondering if anybody feels that too. I am at a loss because without something I can't function with all my severe cramps. I am not sure to switch pills or keep going to see if things get better. Any suggestions?
Thanks!
Lynn