August 17th
2008
10:00 PM
I am a 72 year old white female who has been on Fosamax over 5 years for osteoporosis which runs in my family. In December, I had severe discomfort in the thigh area of my right leg. X-rays ordered by my GP showed nothing. Sent me to orthopedic surgeon whose x-rays also showed nothing. He ordered bone dye test which showed stress fractures of BOTH femurs. No one, NOT EVEN THE ORTHOPEDIC SURGEON, could figure out how it happened since I had not fallen or had other trauma. When I began to do my own research, I found answers to other problems I had been experiencing, for which no one had answers.....bone and muscle pain, hair loss, depression. I realize doctors are overwhelmed with info but I am especially disappointed in the orth. surgeon who should have known this was a possibility since the study came out in The Orthopedic Journal. As I continued my research, I find that women have been experiencing these side effects for years. I was previously very active and a dedicated walker, but this has robbed me of my confidence since I fear breaking other bones. The femur is the largest and strongest bone in the body and if I broke both of those with no trauma, what else could happen? I want to get the word out to women but am not sure the best vehicle for that. Any suggestions? There are Fosamax lawyers anxious to jump on this but I am more interested in spreading the word, not litigation, however I think there are possibly many unreported cases of the Fosamax side effects just because people don't know where to turn.
-- By sandyj1936 | Reply | (1) replies | Private Message me
July 27th
2008
2:22 PM
I started using lipitor from my doctor, it lowered my cholesterol all around but I started to have lower back pains. At first I thought it might be prostate cancer, but after having to MRI's done they found no cancer, thank god. But I went to an orthopedic surgeon to see what the problem was. He looked at the mri's and saw lower dics hitting my nerve endings. He also thought that it might be muscle problems so he gave me 3 epidurals and that helped for a while took away about 50% of my pain, but I still have the pain, It is hard for me to get comfortable when I sit or even when I am sleeping. I don't want to think that it is the lipitor that is doing it to me but after talking with others I feel it is time to talk to my doctor about it. My doctor said that lipitor is the safest one that will do very little harm to my liver. I am not a doctor so I would not know.. My cholesterol level was 246 at one time now it is 175. I am now facing possible spine fusion to help correct my disc problem. But will also ask doctor to prescribe something else.
Alan
-- By asperling | Reply | (7) replies | Private Message me
May 1th
2008
2:31 AM
After visiting this web site everyday for the past four weeks, I feel the need to share my daughter's (and my families') experience with singulair. My 8 year old daughter was put on singulair aprx. 2 years ago in addition to zyrtec to treat her allergies. Shortly after starting the drug, she developed stomach pain. After a few weeks of chronic pain, I pursued help from our pediatrician. After visits to two different pediatric GI doctors, an allergist (to test for food allergies), and an orthopedic surgeon ( because of sudden leg pain), the results were inconclusive. During this time my daughter also became very sad, angry and fatigued. She also completely lost her appetite and refused to eat much of the time. I attributed all of these symptoms to her stomach pain . In addition, she developed difficult sleep patterns and would often wake-up exhausted in the morning. Over time she also began to have more and more "melt-downs", breaking into crying spells over the smallest provocation or challenge. I recently contacted my daughters pediatrician to discuss what other testing or direction we could take to help my daughter. In the interim of making that contact, a friend told me about this web site. As I read page after page of other parent's experiences, I was in tears. I felt as if I was reading about my own family for the past two years. I say "family" because when one child is living through this kind trauma, everyone in the family is negatively affected in some way. My husband and I felt completely frustrated and unable to help our daughter. Our older children began to resent the great amount of time and energy I spent on behalf of our daughter. My younger daughter who had always looked up to and loved her older sister was sad and confused by her sister's anger and impatience.On March 29th I took my daughter off singulair. Unbelievable. Within 2 days, my daughter's appetite returned. On the second day, she came home from school and requested a corn dog and then some ice cream. She suddenly wanted to eat breakfast again. She started smiling and laughing again. She has suddenly become capable and responsible for doing her homework and chores. She is going to sleep more quickly and waking up happy. The best part is having our daughter back...the sweet, wonderful, happy six year old who I feel like I lost for two years of her life! As a side note-the return call I got from my pediatrician was that he wanted my daughter to see a psychiatrist. That's how close we were to taking another (completely unnecessary) path to helping my daughter. I also recently spoke with my daughter's allergist about our experience. At first he was somewhat dismissive. I asked him to listen to me parent, to parent for just a moment. He seemed to soften and said he would take a second look at singulair and its side effects. I encourage every parent who's child has been so adversely affected by this drug to be proactive. First, please contact the FDA to report your experience. Second, talk to your children's physicians and share, with confidence your experience. Third, share this web site or a similar one with everyone you know. I have been astounded how many children are on singulair just within my own small circle (school, church and play group). I really believe one voice can make a difference. I have to believe that for the sake of all the children still suffering.
-- By concernedmomof4 | Reply | (2) replies | Private Message me
April 17th
2008
3:52 PM
I've never written on a blog in my life, and now that I've just read this, my stomach is doing flip flops and my blood is runnung cold. I have an 11 year old son and a 9 year old daughter. They have both been on singulair for quite a few years. My son has been on ADHD meds now since about a year and a half after starting Singulair because we tried to avoid them. Every few weeks he tells me he has this empty feeling inside him that makes him really sad and he doesn't know what it is. It just feels empty. I'll usually read with him or play a game or walk our dog with him to help him feel better.
As for my daughter, she exhibits all of the symptoms I have read about. She talks about life being terrible( trust me, she has it pretty good), she has been diagnosed with an anxiety disorder, OCD and Tourette Syndrome. Every psychiatric medication we have tried has made her worse. She was always a confident, outgoing little girl, and then she just changed. She's had stomach aches, which the docs always thought were in her head. She gets headaches. She is extremely sensitive, won't let me even brush her hair or touch her. She has extreme mood swings and gets upset over the most miniscule things, then writes about them, even saying she realizes her anger was too much for what the situation was! I will stop Singulair immediately and see what happens. What a miracle it would be if all of their symptoms disappeared.
February 15th
2008
4:02 PM
I had a mild heart attack 14 months ago (aged 56). A stent was inserted in an artery. I was put on four medications (Lipitor was at 40mg) so what caused what is up for grabs.
Friends told me I was slurring my words - which I experienced as an inability to find words and hence I could not talk at talking speed. The Metoprolol was reduced and I also started taking Co Q 10 as I had read that Lipitor reduces both cholesterol and Co Q10. The slurring reduced. I also had sudden pains as if a sharp object was being pressed hard on the ends of my fingers and toes at random. The doctor shrugged.
Since my heart attack my memory has been poor and I have been noticeably clumsy.
About 6 months ago I started to get left knee discomfort - I can relate this to water on the knee from an impact at age 11. It hardly ever caused a problem since. I went to Physical therapy and had ultra sound and it seemed to take ridiculously long to improve. And at that time I was becoming increasingly aware of a "bruise" to my left elbow (I am left handed). I felt like a complainer! I had bruised my left elbow but could it hurt 3 months later. I had an X-Ray and the elbow was fine. I was getting similar sensations on the other side of my body (knee and elbow) but at like 10% of the intensity so I dismissed it as nonsensical.
Then I awoke at 3.00 a.m. one night with incredible pain in my lower left arm.
The orthopedic surgeon I saw said I had tennis elbow and I got a cortisone injection. I was beginning to feel as if my body was decaying and getting torn internally.
I then read a blog and a disability insurance assessor said she always asks if people who have been diagnosed with tennis elbow are taking Lipitor. Ping!
I quit Lipitor. Two nights later I had unbelievable cramps in my lower left leg. I have had the pins in the end of the fingers and toes again and the inability to find words appears momentarily.
But I have far more energy. My biggest surprise is that I am breathing more deeply. Spontaneously I am taking really deep breaths. I started at the gym within a week of quitting. However I am being careful. I will take a cholesterol test in a month, and have gone almost dairy free, and am vegetarian every other day and will continue with CoQ10
February 3th
2008
12:14 AM
Thank-you for this site! After reading all the testimonials I was greatly helped in realizing I was not alone in the terrible side-effects I was having since being on Fosamax for the past 5 months. A week ago the pain got so crippling I could barely walk,---left hip was awful, pain going right down the leg. It was hard to even sit without pain... X-Rays ordered by our internist revealed no new fracture or injury. I was on 70 mg tablets once weekly. Fortunately a lobotomist lady told me while taking my blood that the pain she had when on a Biphosphate medication (Boniva) crippled her with such pain she had to stop working! My internist is unable to accept the fact that Fosamax is the culprit causing the horrible pain...and although he has asked me to continue it, and use acupuncture to alleviate my pain, I HAVE TAKEN THE LAST DOSE Of IT AND HAVE INFORMED THEIR OFFICE...Many of the postings reiterated what I have suffered the last few months. The capstone came yesterday when an adult doctor-student of mine told me he would not take any Biphosphate drug and feels that like Vioxx the FDA in time will HAVE TO TAKE IT off the market. In the meantime, you folks are doing a wonderful service in helping your fellow-beings make wise decisions! I feel doctors prescribe these drugs in good faith,---after all their training is drug-oriented...I am thankful there are also Natural Alternatives and this is the route I plan to take! Blessings on all you dear folks out there who are victims of drug-reactions....The good news is that I understand most symptoms will be relieved when we stop taking the drug....Also, aural surgeons will not do surgery on any patient until they have been off Fosamax or any Biphosphate drugs FOR SIX MONTHS.....THANKS AGAIN FOR THIS SITE AND ALL OF YOU WHO POSTED ON IT....You have all helped me make a wise decision...Thanks again and God bless!
-- By musiclover8 | Reply | (2) replies | Private Message me
October 25th
2007
7:34 AM
I started taking Levaquin for a sinus infection. On the 3rd day I started getting heart palpitations and felt very tired. By the fifth day I woke up with excruciating pains in both shoulders and very limited movement of both arms. I went to my primary care Dr. He stopped the Levaquin and gave me pain pills and an anti-inflammatory. I was sent to an Orthopedic Surgeon who injected both shoulders with steroids. I then went through a series of acupuncture treatments which helped somewhat, but finally admitted that I needed more help. I went back to the Orthopedic Surgeon and had surgery on June 11, 2007 on my right shoulder. At first this Dr said that there was no possibility that this could have been caused by the Levaquin, but after the surgery he admitted that he was starting to see other patients with the same problems from Levaquin. I can’t afford to have the left shoulder operated on but the pain has lessened and I still have limited movement of both arms.
-- By hb3369 | Reply | (1) replies | Private Message me
August 18th
2007
10:51 PM
I recieved this shot on July 2, 2007 for a frozen right shoulder and on July 9th a period began that lasted a total of 4 weeks, if was the most unusual period I have ever experienced. It would be heavy for 4 days taper off and then begin heavy again, it was like I was having several periods within a 4 week period. I ended up in the Dr's office because it was such a scary experience, I have never had a period for more than 5 days. I had several tests and ended up in the emergency room 2 days before the period ended because I was passing huge clots. I now have to make a decision on whether to have a D&C. I worry each day that I will begin bleeding again and not stop. I also experienced an extreme depressed feeling the next day after the shot and was unable to sleep soundly for about 2 weeks, I have also had headaches charley horse pains in my right calf, and pain in my left jaw. I am also having at least two to three heart palpitations each day. Of course today I cannot prove that the shot has caused all of these symptome and my OBGYN seems to know nothing about the effects of steroid shots, I have not spoken to my ortho dr. about this but they never mentioned any side effects with this drug, I was only asked whether I had diabetes or not before the shot was given. I would strongly recommend that if anyone is contemplating on having this shot to please do your research. After reading all of the comments here and hearing that alot of the symptoms that everyone has had mimic mine, I am convinced that the shot has probably created these adverse efffects which has lead to alot of worry and expensive tests to rule out cancer and other diseases that could have been prevented had I not taken this drug. Whether or not this drug created these effects will lead me without hesitation to never take this drug again and pray that the side effects that I am having are only temporary.
-- By tbart123 | Reply | (1) replies | Private Message me
June 14th
2007
8:17 AM
I had my first MI at age 57 on Oct. 29th 2004. I was given Zocor 40 meg. and my problems started in the hospital. I had terrible leg aches and they even looked for clots. Finding nothing I was sent home after 5 days with two stents and told if I got tired just rest. I had to take two months off work. In January I returned back to work but the leg aches continued at night. In January I returned to the hospital with another episode and received three more stents. My cholesterol was at 110. The Dr. continued me with the Zocor 40 mg. twice a day now. I continued to have problems with clogging arteries and in the next four months I had another 4 stents. In the summer I walked a lot and still continued to have leg aches at night. After a year of complaining I was put on Vytorin and things really got worse. In six months I couldn’t walk right, kept falling, couldn’t sleep with the cramping, my joints all felt like they no longer supported my frame. I was put on Crestor, then Lipitor, then Zetia, and then I took matters in my own hands. I stopped the statin drugs. My cholesterol skyrocketed of course to 289. It was only 189 at the time of the first MI. I have slowly regained my ability to walk and joined Curves. This is about all I can do and am slowly getting better. I tell everyone I can about my horror story with statin drugs. I’ve been to an arthritis specialist, negative on all forms of arthritis causing this. I went to a gastric specialist and no stomach problems. I was sent to a neurologist who told my muscles were very weak and not to take statin drugs, but like all the Dr.’s I’ve been referred to none would touch the statin drug issue. My last referral was to an orthopedic surgeon because of my walking problems, and at first I was told that if my hips didn’t stop degenerating I would need them replaced to be able to walk. Last month after 9 months off statin drugs he retook x-rays and said my hips are looking fine. There is hope. I have been on a strict diet and exercise program and am ready to start stationary bicycling to try to rebuild muscle mass lost during the 2 years on different statin drugs. I also took C10 150 megs. after getting off statins to see if that would help and I don’t know, but I am told to keep doing what I’m doing. I hope the cholesterol will come down as I eat more oat bran or oatmeal. I hope my story helps some of you because I do believe I am getting well.
-- By swakasuperwoman | Reply | (2) replies | Private Message me
June 5th
2007
9:43 AM
I have been taking zocor for about 3 years. Started out with 10 mg every other day, then every day; for nearly the last year I have been taking 20 mg once a day. It did lower my cholesterol enough to suit the doc. Did not really notice any symptoms at first. It seems I have been noticing more and more problems recently. Especially after my husband decided to tell me that he thinks something is very wrong. Maybe my problems are just age related. Most recently I have had two falls brought on by a simple "toe stubbing". For the past 3-4 months I have had unrelenting lower back pain and hip pain. Both to the point that I can't sleep and am having trouble walking. All of that I attributed to arthritis which I do have in my hands. The tingling, pins/needles sensations and foot pain started over 2 years ago but my doc said that couldn't be the zocor. My liver function was normal every time he checked. Diabetes has been ruled out. I am overweight so I just wrote off the fatigue to that. But - three years ago I was walking daily on our farm - up and down hills for over one hour at a time - and teaching high school full time. I am retired now and I don't think I could do that much walking because of the pain and stiffness. Does any body know how long it will take me to get rid of the symptoms? I stopped the zocor without the doc's knowledge day before yesterday.
-- By horselady | Reply | (1) replies | Private Message me
May 22th
2006
5:17 PM
It was used on my wife during a minor surgical procedure at an outpatient surgical clinic attached to a hospital. She had broken her arm and was having a pin removed from the arm. The orthopedic surgeon said they were going to give her a "light" anesthesia and the surgery would take 15 minutes and I could "take her home in an hour". After the surgery she was completely paralyzed for 3 hours. The nurses said she had a "negative reaction to MIVACRON". Several hours later the clinic released her. After 2 days at home she became very jaundiced. We took her back to the hospital where she was admitted to the ICU. She had an unknown hepatitus. Her liver failed and a few days later she was brain dead. She died on New Years Eve 2005. The Death Certificate lists the cause of death as liver failure and probable toxic reaction to anesthesia. The pathologist hasn't completed his report and his bottom line is my wife died from chronic liver failure. It is noted she was only 60 years old and in very good health. If anyone has had a similar or related experience please email me.
-- By danhoy | Reply | Private Message me
January 19th
2006
9:24 PM
I was given advair for asthma and it helped my breathing. I was experiencing alot of joint and hip pain, which I did not know at the time was caused by the advair.the pain was so bad I droped out of college and saw a orthopedic surgeon. I was convinced I would need surgery on my knee. I was diagnosed with chrondomylagia( spelling?) and was told to begin physical therapy. I never did the physical therapy, I did not really have the time and to be honest I was in so much pain I just did not want to go.I was also very irritable which I chalked up to be from being in so much pain and frequent headaches. My husband switched jobs so we had no health insurance for a couple of months. I ran out of the Advair during this time. all of my symptoms went away within that time period, still not realizing it was the advair. When we got our new insurance I began the Advair again within three days of taking 250/50 my knees were really hurting that same feeling of such pressure behind the knee cap and such pain bending and walking up stairs, etc. My hip started aching it was as though I had severe arthritis over night. my moodiness and headaches were back. Thats when it hit me its the Advair and I started to research it and found this site. I have not taken it today. I will call my DR. to see if there is something else I can take and hope for less side effects. well good luck to all of you. I hope this was helpful. Also, if anyone has a recommendation on a asthma medication that has been a success Please let me know so I can discuss that option with my physician. thank you.
Lois
August 4th
2005
8:25 AM
Had severe urinary tract infection. Doctor gave my 5 doses 750mg. Levaquin which rappidly cured infection but left both ankles swollen and I could barrily walk. That was 31 days ago. Ankles are still painful and MD is seeking advice from orthopedic surgeon. Tendons not ruptured, but Doctor says it is from crystals as a result of Levaquin
-- By grhmlh3 | Reply | Private Message me
January 2th
2005
1:29 PM
I have been on Lipitor for about two years. I am extremely stiff particularly my knees. I have been to a rhumatologist who injected my knees with cortizone and synvisc. Neither seemed to help. I walk with great difficulty and have to be extremely careful when going up or down stairs or just walking on flat surfaces. I just saw an orthopedic surgeon who recommended I go for physical therapy. Has anyone else suffered with these symtons?
-- By shopihony | Reply | Private Message me
September 10th
2004
10:49 AM
Kenalog 40% 2cc in shoulder. Depressed pituitary/adrenal function- cortisol levels went to nonexistent. ACTH levels non-existent. Neither adrenal nor pituitary funtioning- had to take small dose of prednisone (2 mg) for ten days to keep from going into adrenal crisis- never felt so exhausted, so weak in my life- and I have fibromyalgia. Moon face, FACIAL HAIR on the sides of my face (and loss of hair on scalp, under arms, legs)- and I am a very fair Caucasian FEMALE- will this hair GO AWAY- one endocrinologist says yes- in 1.5 years, another says no, the dermatologist has never heard of it, and the orthopedic surgeon who administered the shot into shoulder says he has never seen this reaction. MD'S ARE PATHETIC- 35% OF MEDICAL DIAGNOSES ARE INCORRECT.
Yes- it relieved the pain in my shoulder- torn labrum- temporarily, and it cleared up my facial eczema- temporarily- but at what COST. I have been an invalid for the three months since the injection, although my cortisol levels are starting to rise again. Also- had ALLERGIC reaction at time of injection- about two minutes after the shot, I had problems focusing my eyes, was nauseated, disoriented, had diarrhea- was told this was an ANXIETY reaction- even though I went to the ER later, they also told me "everything was fine."
ANY EXPERIENCE WITH FACIAL HAIR- is it reversible with time? In despair....
January 27th
2004
6:01 AM
I am(was) a healthy,very active 53 year old female who began taking lipitor on November 24th. After a week, I began to experience muscle spasms in my legs and contacted my doctor. She attributed it to panic. I had my husband take me to the emergency room because I was frightened that I had ms als or some other"s" All tests cane back negative. I started experiencing pain in my bicep calves and eye. I was constantly fatigued. My husband was talking with a friend who was having similar side effects who eventually stopped taking lipitor. I happened to speak with a well respected orthopedic surgeon who suggested that i go off lipitor. I went to a neuro who said spasms were benign. I have all sorts of tests(mri, mra,cat scan,cardio tests and numerous blood tests (all negative (cpk slightly high soon after i stopped meds.) I am off lipitor for over a month and began taking coq 10(by the way Canadians patients are told to take this with lipitor.I am still having spasms in my calves but energy seems to be back. I am documenting everything i have been through in case of a class action suit and i suggest you all do the same. if my symptoms are permanent my life is greatly impacted. I am so angry at my doctors for not knowing all the side effects of this drug.
-- By rsweeney | Reply | Private Message me
June 14th
2003
5:26 PM
Istarted my second round of Levaquin yesterday along with Metrodiazanole
for treatment of ongoing diverticulitis. I was hospitalized the first week in May, admitted via the ER. I spent 4 days on IV without food , liquids or solids. Upon discharge I was given prescriptions for the above drugs for a 14 day period. Finishing up the week before Memorial Day. I began to experience weakness and pain in my knees(I have had arthroscopic surgery in the past two years and was doing well. The pain progressd throughout my joints and into my lower back, Raising myself up off the bed and walking has been wery painful I was also told that I was now somewhat anemic. When checking with My gastroentrologist's physician asistant, my docter is never personally available, I expressed my concern, I was advised there was no incidence of pain or joint problems connected with this drug. I then contacted my orthopedic surgeon and after he looked it up told me my concerns were indeed valid. As you can imagine the other docter told me this was all my imagination and would not consider an alternate plan. This morning after my first dose of levaquin, I became extremely flushed. experienced pressure in my skull and sharp pain with dizziness. I have been unstable on my feet , dizzy nauseous and in pain that even Darvocet does not relieve since I first started this treatment last month. I feel as if I am between a rock and a hard place. I need to heal from diverticulitis but at what price? Three years ago I was treated for this same condition with metrodizanole and cipro, I felt nauseous and flu like, but not as bad as this time
Lipitor (6) Levaquin (4) Kenalog (2) Zocor (2) Singulair (2) Fosamax (2) Mivacron (1) Aleve (1) Advair HFA (1)
October 22th
2008
11:31 AM
I was put on Levoquin after 4 days of Bronchitis. My body was not responding to the antibiotic so they added Prednisone. I continued on both medications IV for 8 days. After the second day, I developed a severe pain in my groin. I mentioned it to the NP treating me and she said, "we will worry about that once we get the Bronchitis under control". The pain continued as the medication continued. After the Bronchitis was resolved, the pain in my groin was terrible. My doctor sent me for CT scans and and MRI. The next thing I knew I was in the Orthopedic Surgeon's Office talking to him about a total hip replacement. He said the test showed very mild degeneration and he was not sure a total hip replacement for me was the answer. I opted not to have the hip replacement. Diagnostic Testing continued. Finally, my doctor told me that the combination of Levoquin and Prednisone caused a tendon rupture in my groin. He said it would heal but would take a long time. It is now 8 months since I took those medications and my hip is more painful now than ever. I am on pain medication and it does not help. I see my doctor today and we will discuss other options to relieve this awful pain. I walk with a cane and I feel like I will never walk normally again. It has totally disrupted the activities of my life. My doctor tells me to stay off my feet as much as possible to rest the tendon, this is impossible as I am a registered nurse and I am on my feet constantly. This has destroyed my life!
-- By jhirel | Reply | (1) replies | Private Message me