Osteonecrosis symptoms and conditions

I have Crohns and had a flare up so I'm back on 40mg of Prednisone. I've been on 40mg now for 3 weeks and I start to tapper off in another 3 weeks. Well every time I start the prednisone again I get new side effects. This time, my gum are bleeding all the time and the pain in my knees are horrible! I still get the regular side effects, ie: Mood swings, joint pain, sleeplessness, sweating, swelling of my legs and hands, wanting to eat everything under the sun, moon face and my hair falls out! I wish the drug manufactures could develop a drug that would not be so hard on our bodies. I have to struggle with the pros and cons with every flare up. Do I want the weight gain, mood swings and hair loss or do I want to look good and be very sick! I'm 37 and was 16 when I found out I had Crohns.

Hi there... I have just found this site and I'm very grateful to everyone who has taken the time to sit down and tell us their story mine is very similar. BELIEAVE me I feel like I am pushing my family away and I'm losing my relationship with the one person who used to make me feel like I was the most beautiful woman in the world.
I'm a 40 yr female have or maybe had a great job that I loved... On April 12 I noticed a small red rash on my lower right leg no big deal went to the Dr. gave me some cream and sent me home well I went to work and by the afternoon things just seem to get bad my legs began to swell and little blisters started to pop up so I went to the E.R. they had no Idea what was wrong with me got me an appointment to see a skin DR. so I went home but the pain from the swelling was so bad I could not walk any longer went back to the E.R. they gave me some pain meds and called in some other DR. things had gone from bad to worse my feet had gotten to big I could not put on shoes and I had bruised completely across the bottoms of my feet they put me on 30mg of PRED. and it seem to be under control sent me home after 3 day in the hospital things were good for about a day or so I thought I would go back to work well that was not a very good idea.... My sister had to come and take me back to the ER where they did 2 biopsies and still have no idea what is wrong with me. so now they put me on 60mg of PRED the rash has gone, lots of scaring on my feet because of the blisters once they broke and dried out but I can live with that....
It's the side effects that they don’t tell you about,
MOON FACE I can't look at myself cause really that’s not me anymore,
WEIGHT GAIN I have always been thick but I can't handle the extra 30lbs I've gained,
MOOD SWINGS are unbearable,
PAINFUL JOINTS, CAMEL HUMP, BLOODY NOSE, BRUSING, SORE TEETH/GUMS, DRY EYES, FAITIGE, and worsted of all
I don’t have a support systems in my life so I'm fighting this by myself everyday, I have 3 kids that I have tried to explain all this to but they don't get it and well my boyfriend he tells me he understands that its the meds pushing him away but if I can't figure away to control this I will lose every thing including my job. I cant even get the energy together half the time to make it up and down the stairs which also comes with the pain of just trying to lift each leg up to climb the stairs, I also have the camel hump which I find very painful, The acne and the hair growth that I have to get wax off once a month cause I feel like a man I feel like a loser and as of the last couple of days I just want to give up I am now down to 20mg per day but I find that I am feeling so sick I cant think straight I hope and pray for each and every person out there that has to take this MED that you get better and I do hope that my symptoms wont come back. Thanks for being here and I’m glad I found this site. I know now that I’m not losing my mind completely. Elizabeth.

Has anyone been diagnosed with Osteonecrosis (AVN) since they have taken Lupron? Please let me know if you have, thank you.

I have Grave's disease which effects your thyroid. I got radiation therapy for my hyperthyoidism.My numbers are still hyper and I'm taking Topral. I take 25 MG in the morning and 25 Mg at night. I have gained 8 lb's in 3 wk's.If you are familar with hyperthyroid, I should be losing weight.My face and ankles are puffy and my legs are crampy. I'm going to ck into other beta blockers until my thyroid gets regulated.

I was hospitalized in March of 2004 with pneumonia caused from household cleaning products. They put me on "mega doses of Prednisone" intraveneously. When I returned home I was taking 40 mg a day for approximately two weeks. I woke up one morning, unable to walk because my knees hurt so bad when I put pressure on my legs. I recently, after episodes of pain, weakness and inability to walk without crutches, have been diagnosed with osteonecrosis, death of bone tissue. I am confident in saying it was the Predisone that caused it. The moon face, weight gain, and muscle and joint pain was also a factor. The osteonecrosis is a lifetime disease. I cannot work or function in the way I did before being put on this steroid. I asked the doctor about side effects and he told me not to worry. If I had known I would have said no. I think this drug should be taken off the market. I will be effected negatively for the rest of my life now. I would have preferred to take my chance without the Prednisone to heal my pneumonia. I should have been informed and as I read this webpage about the side effects I believe many of us should have been told the many side effects and allowed to make a decision rather or not we wanted to take it. Quality of life is most important!