October 29th
2009
9:27 PM
I have had rheumatoid arthritis for 20 years,controlled reasonably well with a combo of methotrexate, naproxen and enbrel. I do a 10 day course of prednisone several times a year for bad flares. I absolutely hate taking prednisone because it turns me into a crabby, edgy, insomniac who can't stop eating. It makes me bloat and that REALLY makes me nuts because I've done so well at weight watcher's, I don't need that nasty, upset stomach over full bloat feeling. And the "roid head" headache thing ? I'm on the phone all day at work so that's bad, too. The insomnia is the worst, really, because I just lie there awake. When I stop taking it I return to normal within 2 days. I only do it when I am absolutely desperate - I already lost some tendons in my left hand to arthritis related damage so I tend to use the prednisone when the fluid builds up in the right hand or if I'm really too sore. I'm also aware that long term prednisone usage is a one way ticket to osteoporosis / osteoarthritis, so I really have to feel like I cannot deal before I take it. It's a hate/hate relationship.
-- By carribeth | Reply | (3) replies | Private Message me
October 7th
2009
10:31 PM
My daughter just turned 19 years old yesterday. She is a Christian and has kept herself pure and plans to until marriage. She attends a Christian University. She had her last gardisil shot in May. Since this shot she has been complaining of severe fatigue, dizziness and has had no menstrual cycle. My first thoughts were concerns that this was caused by the gardisil shot.She just saw a doctor at her University last week. All the test run were negative and the doctor wants to further test for osteoporosis and place her on birth control pills to regulate her periods. She does not want this.The doctor did not perform a pap smere due to her being a virgin.I have contacted our local doctor and was informed that there was no way to tell if any of her symptoms could be side affects of the gardisil shots she received. My husband decided to investigate the side affects of gardisil and came upon this web-site. I am just wandering if this should be legally investigated and how could someone find out if there are legal ratifications for this problem. I am just praying that these are temporary symptoms and my daughter will recover and be able to have a children after marriage. Please pray with me and I will for each of you as well.
-- By mmrice | Reply | (1) replies | Private Message me
September 25th
2009
4:31 AM
I was on Coumadin and Lovenox. I went to the Coumadin site here and realized most of the problems I've been having were from the Coumadin.
I made a copy, took it to my doctor along with a copy of my symptoms and he took me off Coumadin but kept me on Lovenox.
All the symptoms went away...except for one. An overwhelming tiredness that takes over after I get my shot.
I found that it's best to get the shot at night and take advantage of the tiredness then. I sleep for hours after a shot and if I get it in the daytime I won't sleep at night,
My doctor also told me that I would now have to watch out for Osteoporosis, because one of the side effects of Lovenox is Osteoporosis. Nice to know since I already have Osteoporosis. Now what? Oh. well....
By the way the little lumps and bumps under your skin are small hematomas. I asked my nurse.
-- By ellaclark | Reply | (1) replies | Private Message me
September 24th
2009
7:02 PM
I have been taking prednisone for three years now and I love it. When I am off of it I cannot breath and I get fluid in my lungs and my arthritis comes back and I ache all over. I could not live without it. The only side effects I have is a little weight gain, sweating, and moon face but the side effects are better than the all over acheing and not being able to breath. This drug has been very good to me.
-- By foxylady628 | Reply | (2) replies | Private Message me
July 31th
2009
11:57 AM
I love It! I have been experiencing low back pain when standing for over a year. I could hardly walk when I crawled out of the bed in the mornings. I was diagnosed with one point away from osteoporosis. The supportive tissue between my discs was deteriorating. I was given Evista to drive the calcium into the bone along with Limbrel 500 mg twice a day for the arthritic pain. My nails have become stronger which to me indicates my muscular structure must be getting stronger. I took Naproxen and Arthrotec previously to Limbrel and experienced severe stomach distress. I am 65 and I see a daily improvement from my previous condition. I have never experienced fever or chills. I am almost totally pain free and look forward to the future continuing to take Limbrel!
-- By afriend65 | Reply | Private Message me
June 5th
2009
5:05 PM
i've been on loestrin24fe for about 8 months now, and most of my periods have been annoyingly unique. the first period was normal, the next only lasted a day or two, the following lasted 5 or 6 days with bad cramps...the fourth month i bled about 19 days total, mostly breakthrough...the fifth and sixth months were pretty much norma, lasting about 4 days, but accompanied by horrible cramps. the seventh was several days late....now im in the second week of month 8's pack and am having heavy breakthrough bleeding and bad cramps...is this normal at all? i also get horrible body aches during my period.
should i switch to something different? i went on birth control mostly to regulate my period and ease up on the debilitating cramps, but it has only made both problems worse! please please give me adviceeeee! i used to take depot provera, and i didn't have a period or anything for almost 3 years...however, i got osteoporosis from the damn thing, so i don't think i should go back. advice?!!?
-- By incenseofinsomnia | Reply | Private Message me
May 27th
2009
5:12 PM
I have been on prednisone since I was two years old (I am now sixteen) because I have Autoimmune Hepatitis IIa. I would like to point out that there is still a life worth living being on prednisone, maybe I say this because I do not know life without it, but at least we're alive! Last year I had a flare up of the AIH and had to 6x my dose of prednisone. It sent me into a spiraling depression of constant sleep, crying, hopelessness etc....but I made it through. Just PLEASE keep hope that things would get better, because I know what it's like being on the dreaded drug better than most.
-- By xxanonymousxx | Reply | (13) replies | Private Message me
May 7th
2009
11:47 AM
Metallic taste, loss of taste: A few weeks after beginning my once/month Boniva dosage, I lost my full sense of taste. I now continuously have a sort of metallic taste in my mouth, a combination of salty/bitter tastes, and have lost the 'sweet' tastebuds. Further on the back of the tongue I still have some taste, but it is not what it was before. It's a personal loss, as I used to have very sensitive taste buds, this loss handicaps my ability to cook well, and I had been a very good home cook. I still retain a full sense of smell.
I have been on Boniva for about a year and a half, my doctor says she's never heard of anyone losing taste sensations as a side effect of this medication. I'm too concerned about possible osteoporosis, as I have osteopenia, to discontinue the drug for this alone. Has anyone experienced this side effect, is it permanent, or does it disappear if the drug is discontinued?
-- By cobbchar2 | Reply | (2) replies | Private Message me
April 15th
2009
8:17 AM
Hi: Every patient who have been on Omeprazole are describing many side effects, however none of them have not mentioned osteoporosis. Since I started to take this drug, I was diagnosed with osteoporosis, but I have not experienced any other side effect. I am searching for more information about Omeprazole in order to find out if this drug is the culprit to my osteoporosis. If any one knows about this let me know and if you have information regarding omeprazole/osteoporosis, let me know.
-- By islander2009 | Reply | Private Message me
April 9th
2009
3:02 AM
I am 46 years old. I first started taking Levothyrox 11 years ago during a pregnancy. Now I currently take 200 a day. I have been suffering chest pains. I also suffer bone pain. My hair has not grown in nearly 3 years. I am borderline diabetic and each day when I take the drug, I immediately sleep due to the immediate sugar elevation I feel.
Six months ago my femur broke. It seems due to a Vitamin D deficiency. Now I discover that a few of the nasty side effects that no one ever told me about is Vitamin D Deficiency and also Osteoporosis. Due to the strict bed rest that I have been on from my fractured femur, located near my pelvic, I have suffered muscle atrophy. I am too weak to even stand. So for 6 months now I have not even been able to leave my bed.
Now the only solution I feel in order to possibly save my life is to immediately discontinue the use of Levothyrox. My boyfriend is a little concerned for me doing this but I see no other way. Any feedback appreciated. Thank you.
-- By desperatetolive | Reply | Private Message me
April 8th
2009
1:12 PM
Hey all. I have had asthmatic bronchitis for about 6-7 weeks now and I have never had asthma or bronchitis before. It started off as a normal flu for 3 days with fever. Then when the flu went away, I started having trouble breathing and shortness of breath. It felt like I ran a marathon walking to the bathroom. I never had that before. The doctor told me it was bronchitis. All tests were fine. I was taking azithromycin (took 3 paks of them) and that was the only thing that made me feel normal, but it did not get rid of the infection. Then I was placed on cipro and steroids. Now I'm not on any antibiotics. I'm taking prednisone and just started the advair inhaler. I was having asthma attacks that I never had before. Very scary. Did anyone have asthmatic bronchitis before??? What did you do to get over it and how long??? Please help!!!
-- By elaina7 | Reply | (1) replies | Private Message me
March 21th
2009
12:53 PM
I must admit I am very surprised by all of the side effects of Advair. I have been taking Advair 250 for years and have NEVER had any problems. I'm 28, healthy, thin, and happy. I exercise several times a week. ALL drugs have side effects. I don't think it's fair for anyone to say "don't take Advair, it's a horrible drug" because it works for some of us. I was taking Flovent before but it didn't work for me. I needed a rescue inhaler several times a week. Since I've been taking Advair I don't even fill my prescription for my rescue inhaler! All drugs have side effects, but they don't effect all people!
-- By boardpunkchic | Reply | (7) replies | Private Message me
February 4th
2009
8:35 AM
Depo seemed to be the best thing ever for me when I was on it 4 years ago. When I decided to get the shot the only side effects were weight gain and hair loss. I didn't gain any weight, lose any hair and I had no more periods. After four years of being on the shot I learned that I had Osteoporosis due to the lack of estrogen. I had bones of a 65 year old and I was only 24. Its four years later and my bones have increased somewhat because I take Vitamin D pills and two calcium chews a day. Now I have Osteopenia and hopefully by the end of this year my bones will be back to normal.
I think the Depo is a good birth control method if you don't stay on it for more than two years. Good luck!
-- By ieashajames | Reply | (1) replies | Private Message me
January 18th
2009
8:03 PM
I am a 44 year old male. I was on Advair for 7 years. I had Cataract surgery at 42 in both eyes. I was just diagnosed with Osteoporosis in my lumbar spine and osteopenia in my legs. Has anyone has these side effects? And has anyone been able to prove a link to Advair and these side effects? Please email me at ****** and thank you in advance.
-- By tlccro | Reply | (1) replies | Private Message me
January 18th
2009
12:50 AM
hi everyone i am B. I had mirena put in in march of 07, At first i thought it was a great idea. But then i started gaining weight it was like over night. 20 lbs and i cant get rid of it. Then i always have migraines. I try taking Tylenol and nothing works. I look four months pregnant and im not, i cant have sex one i don't feel like it anymore and two it hurts. I always want to sleep., i have bad pain in my uterus that just wont go away. I have always been a nice person and i am sooo mean now its unreal. I lose focus always very forgetful, and thats just some things, It was a big mistake to get this put in and im getting it token out this Friday coming up wish me luck and i will let you no what happens
-- By bsanders001 | Reply | (2) replies | Private Message me
January 15th
2009
2:54 PM
I have been weaning off Prednisone for sometime, from 50mg down to 5mg in two week steps, 5mg at a time. I've had quite a few of the physical side effects of Prednisone, though none so severe that I would have considered not taking the drug, as it is helping the neuropathy that it was described for. When I hit the 5mg dose, I really seemed to be having trouble with my mental state. I seemed to switch back and forth from knowing what was going on to wondering if I was starting to go insane or losing touch with reality. Hard one to explain. It seems to occur later in the day when I am fairly tired. Back on 10 mg for the last three days and seem to be tired but not so mentally confused. Don't know if this is all from the Prednisone, though. Has anyone out there had any seemingly similar mental things happen on this drug. Thanks in advance for answering if you have had these experiences, they are scary and am hoping that it is the drug and not something else.
-- By roberto | Reply | (4) replies | Private Message me
December 6th
2008
10:45 PM
It's been about 10 years since I took one shot of Lupron Depot after my surgery for Endometriosis and it was a huge mistake. I am now 39 years old with Osteopenia and the verge of Osteoporosis. Many of my joints hurt, but mainly my hips. I had the worst flare of my life a couple weeks ago and couple barely walk for two days due to the pain. I feel like I'm 90 years old! It's not fair, I was always active and in good shape. The slight amount it helped with my Endo will never be enough to make up for how it's ruined my joints! Just wait for a few years and have a bone scan - you'll see!
-- By havepulse | Reply | Private Message me
December 5th
2008
1:02 PM
I am a 46 year old male. I have taken Nexium for 5+ years. I thought I had no side effects. I was diagnosed with osteoporosis this week. I have been breaking bones occasionally over the past 3 years. A bone density scan revealed a sever bone loss. Apparently the Nexium prevents the intake of vitamin D which is required for calcium intake and bone health. I need to get off of the Nexium.
-- By pocatello | Reply | Private Message me
December 4th
2008
10:53 AM
I have been on prednisone continuously now for 15 years. I was put on it in March of 1995 for a lung condition called chronic eosinophilic pneumonia. I was 122 pounds when I first started prednisone. Now 15 years later I am 197 pounds. I am 35 years old with osteoporosis. I have dealt with depression, terrible headaches, stomach ulcers, hormonal imbalance, hair loss, swollen feet and ankles, I now wear glasses when I didn't before, I have thin skin now that looks older than my 35 years, I deal with night sweats, and in the summer out in the heat my very round moon face turns red as a beet. But, no one can get me off the prednisone. I have seen many specialists, and within 1-2 days of starting to wean past 10mg I get so sick I have to be hospitalized, I literally can't breathe or live without it. I hate this stuff and what its done to me, but I have no choice but to take it or I will die. Doctors have tried alternate medications, nothing but prednisone works. If there is ANYONE who has had to be on it as long as I have or have had success in getting off it after being on it for so long, I would love to hear from you.
-- By belladonna15533 | Reply | (4) replies | Private Message me
November 8th
2008
1:40 PM
I am writing on behalf of my elderly parent, Carmela, who has been diagnosed with Lupus since 1991. She has been on a small dose of prednisone since her diagnosis in 1991. In the last several months she has developed very many odd hazey type grey spots all over her body. Dermatologists and doctors are not giving her any answers. They took her off predisone because they THINK this may be the cause. She is on an inhaler and does not like it. She wants to go back on the prednisone as she is feeling chest congestion and lethargy. I read an article on the internet that describes prednisone may cause unusual bruising. I'm not sure if this is what her spots are. They are only the color grey and appear to be beneath the skins surface. They are soft or hazy looking. They are small, about the size of a dime. Has anyone heard of this before in Lupus (prednisone) patience. Any info you have is sure appreciated. S. ******
-- By suebinsted | Reply | (1) replies | Private Message me
November 2th
2008
12:48 PM
I have been on Prednisolone about 4 times in recent years. the highest dose was last year when i was on 80mg reducing weekly by 5mg. I have had most of the side affects you all talk about above. I have severe colitis so the side-effects of this drug are something i have to put up with. at the moment i have all the classic side-effects i usually get, rapid hunger, swelling to my face (moon face), neck has layer of fat, swollen back (buffalo hump), bruising easily, horrible taste in my mouth, swollen stomach. the one good side effect is it gives me lovely smooth skin lol. anyway the point of my post isn't to rip this drug appart as i have to say for me its a wonder drug and this time has prevented me from having my bowel removed! from personal experience once you finish the steroid treatment after a few weeks you'll notice the swelling go, my hunger usually fizzles out quite quickly (altho i have a large appetite in the first place!!) none of the side effects are permanent, so please all rest assured you will go back to normal just try not to put on too much weight while on the drug.
-- By shrinkinviolet | Reply | (2) replies | Private Message me
October 31th
2008
10:08 PM
Started with a Pred pak for a sinus infection. Made my heart race and had tach and early heartbeat, which kept me from sleeping. Went to Cardiologist. Several doctors denied that the Pred would cause the rapid heartbeat. Then the Cardiologist did an echo and found a pericardial effusion and some weird spots on my lungs. They suspected lung cancer which may cause the effusion, so I had surgery to do a pericardial window and a lung biopsy. Then a pulmonologist decided to put me on Pred again...steady dosage...because she didn't know what else to do. (Didn't have lung cancer) I didn't have any more funny heartbeats, so maybe the pred didn't cause it after all. But I've gained 40 pounds. My hair has grown faster, and I've gotten some facial hair (not supposed to have that, being a female)...which I call fur. Moon face with cheeks that are hard, muscle cramps, can't sleep, but once I do go to sleep, I can't wake up. Tired all the time, headaches, joint pain-sometimes severe, dry skin, generally bad attitude, with very little patience, low potassium levels which add to my muscle cramping problems, difficulty swallowing, indigestion which I've never had, with painful and burning reflux. And occasionally when I eat, I have the rapid heartbeat again. I go in search of food like I'm going to store it in my thighs for winter. Anything you eat will turn to fat, including protein. Can't wait to get off this stuff which will take until June of next year. Then my doctor says it will be 3 months before all these effects wear off. No one told me I would get fur.
-- By jannski | Reply | (3) replies | Private Message me
October 20th
2008
4:58 PM
Hello . . . why do we continue to take medications that cause us such physical and mental anguish . . . we hope for a life . . . I am one of those who takes a cocktail containing . . . Lithium, Lamictal, Cymbalta, Sequel, Topamax and other medications for high blood pressure, low thyroid and osteoporosis . . . down four medications . . . because I have a good doctor . . . it is impossible to distinguish which one or the synergism of the medications . . . which do what . . . what I want to say . . . there are more medications now . . . more doctors . . . change doctors . . . change medications . . . you might not feel great . . . but you will feel better about taking control . . . it has happened to me . . . M.
-- By dmnoldan | Reply | Private Message me
October 9th
2008
9:31 AM
recently developed under skin "rash",from ankle and upward on legs, my dr. is now doing blood work for ecchymosis petechiae, I am curious if anyone has this experience while using Fosamax D 70 mg. I am in good health and it is possible that this symptom is not at all related to Fosamax, which by the way I have stopped now for a while and probably won't go back. Stopped due to severe ache/pain in shoulder area and lower, so bad it was difficult to walk properly. Since stopping it I am walking straighter and no ache/pain. Even though my latest bone scan showed my osteopenia was better, I am off the drug on my own.
-- By mcaleese | Reply | (3) replies | Private Message me
PredniSONE (26) Fosamax (21) Advair HFA (11) Kenalog (6) Levoxyl (4) Lupron (4) Mirena (3) Topamax (2) Loestrin 24 Fe (2) Boniva (2) Lisinopril (2) Yasmin (2) Warfarin Sodium (1) Forteo (1) Femcon FE (1) Eltroxin (1) Nexium (1) Lovenox (1) Zometa (1) Depo-Provera Contraceptive (1) Lamictal (1) Gardasil (1) Advair Diskus (1) Calcium Citrate 1500 mg with Vitamin D (1) Levaquin (1) NuvaRing (1) Limbrel (1) Omeprazole (1) Lipitor (1)
October 31th
2009
3:35 PM
I've been on Advair for 12 years.I'm 27 years old and fed up with all this medications that doctors prescribe.We are so brainwashed into thinking that we misbehave if we don't see a doctor.Let me tell you what: The majority of the doctors, only know to prescribe medication.They get bonuses from the pharma industries every time they prescribe their "new discovered"medicine.
-- By carzogliot | Reply | (6) replies | Private Message meAdvair is supposed to be preventive, what you don't know it's for how long.Exactly!!!.....'cause it's not meant to cure Asthma, it's meant to keep you hooked for the rest of your life.
My worse symptom is a very fast heart beating.I'm a martial artist and every time i exert a fast burst of energy(while i'm sparring for example), my heart goes into pumped up mode.It beats very, very fast and i have to stop because it hurts.Sometimes i keep going no matter what and feel like i'm exercising for two people.When i stop, i breath very deeply for 5 minutes and all of a sudden it stops and beats regularly.
It's not fun, and one more thing: I'm from Argentina and my mom sends me the medicine from there cause it's way cheaper, sometimes i run out(i procrastinate sometimes), i'm left off with no medicine for a few days and boy.....I'm a wreck.The time you stop you go right back to where you started.I've been researching about an alternative to this "S***".I'm afraid 'cause i don't want to feel discomfort with my lungs anymore, but i strongly believe that there should be a natural alternative to all this laboratory drugs and i'm on a mission to find it.