October 15th
2009
5:47 PM
I've been on and off singulair for several years. I had a horrible bout of bronchitis that then triggered bronchial reactive disease and I now have allergic reactions to certain chemicals (some spray deodorants, etc.) Singulair worked so much better for me than advair, I was thrilled to be able to talk and breathe. As a teacher I would sometimes have to stop the lecture to get my breath again and drink some water if I inhaled the slightest amount of chalk dust or something.
After reading the comments on this website I am going to discontinue taking singulair. I used to be this skinny person and never, ever worried about my weight. At the age of 37 I had a rip-snortin' major depressive episode with insomnia that had me miss 3 days of sleep (this is on no medication of any kind) and panic attacks and suicidal thoughts and impulses that I'd never had before. Imipramine was my first prescribed med (in 1991) and worked like magic. It cheered me up, calmed me down and made me sleep. I went from 135 pounds to 155 pounds in just several months. I finally got switched to effexor and trazodone, but there's really not been much weight loss. I'd hover around 150-160, but then with singulair added in the last several years I am 170 lbs. I can't believe I am a fat person now and do not over eat. I can't go off my psychiatric medication because it runs in our family and if I taper off I am...uh...crazy. My insomnia is tenacious when I am without medication and then that makes depression and anxiety worse. I never want to have a panic attack again.
I just ran out of my singulair prescription about a week or two ago. I am breathing and speaking fairly normally and my husband and I now have to pay for our own health insurance which is exorbitant and I just didn't feel like renewing the prescription in order to save money. I was pondering my weight gain today and just decided to google singulair and weight gain and I just can't believe it.
I have also experienced hair loss, but my hair is so thick it still looks basically the same. My husband and I have noticed over the last several years that I lose lots of hair after I wash it and there is a mass of hair in the shower stall.
My memory may have been adversely affected by taking singulair. I thought it's just getting older. I am 55. It's been the last several years that I have started to have problems remembering things. I have always had to work with my husband in helping him remember things (it's been life long with him: he is an absent minded professor. He has a genius IQ, is an M.I.T. grad, is an excellent engineer and can't remember his mother's birthday, what plans we have for the week-end, no matter how major, etc. to save his life.) I feel like I am becoming more like my husband in being hopeless and helpless about remembering what's happening from one day to the next. It could very possibly be the singulair. There has been a marked difference in my memory over the last several years. It is embarrassing. I sub for the school district and once showed up on the wrong day at a school and another time didn't show up and they had to call me up and get me out of bed to go to work. I also teach piano and never used to forget who was coming when. Again, I don't know if I can blame this on singulair causing memory loss, but there would be times when someone would knock on the door and I'd be surprised to find a piano student standing there. I feel like I am getting Alzheimer's. My grandmother had it for 17 years. My mom has always been afraid of getting it but she is 80 and is just now starting to show signs of real forgetfulness. I explained to her what my lapses in memory are like and she is shocked to hear that they are similar to hers. My mind just will completely go blank. I will have this thought, get distracted, and just a moment later will struggle to remember the previous thought and there is just a void, peace, blankness, white screen in my mind. Maybe it is getting older, but maybe it's the singulair. Since I'm just recently off it I'm going to pay attention and see if my memory improves or if it is just old age.
Also, my joint problems have been nearly ruining my life the last several years. I don't know if this is exacerbated by my singulair use or not. Bursitis in the hips runs in my family like crazy. We re-sided and painted our house several years ago and my bursitis started to flare up and has been bad since then, but it's also about the time I started taking singulair. I had to quit a sales job this summer because my bursitis has become so bad. Sometimes I can hardly walk. It is nearly unbearable. I get cortisone injections every 6 months, but need it every 2 months. I wonder if my discontinuation of singulair will ease my joint pain? I'm going to track that as well.
For me: weight gain, hair loss, joint pain, some dizziness are possible side effects from singulair.
Thank you to everyone who has contributed to this site. I am never taking singulair again.
-- By maman3330 | Reply | Private Message me
August 30th
2009
11:40 PM
I've had my mirena for almost 3 years. I decided to get one when my last child was 6 months old, in Oct. of 2006. My CNM assured me that it was a good choice for me, even though I was breastfeeding. For the past year, I have not been able to find the strings. I read that sometimes they can soften up and curl around the cervix, but they are NOT there. I imagine they must have moved up into my cervix or uterus. This scares me a lot. Along with that, I have had many side effects, and I've noticed they have gotten worse as of late....
-Hair loss, oily hair, dandruff, weight gain, oily skin/break outs (I stopped having breakouts once I hit my early 20's and I am 29 years old with pimples again). Terrible mood swings, nausea (as of late), fluttering/spasms in my uterus (as of late), heavy breasts (as of late). I'm actually thinking about taking a preg. test tomorrow to make sure I'm not preggo, that is how bad my symptoms are right now. I have not had a period in so long, I'm not even sure when the last time was.
I'm going in a few days to see about having the mirena removed. I'm very nervous because I don't even know if it's still where it should be. As far as BC is concerned, it's great, because I can't remember to take a pill, but it isn't worth all the other things that come with this IUD. It's mindless BC but it's also worrisome for my own health BC! At this point, I'm thinking about getting rid of hormonal BC all together and using a diaphragm and practicing Fertility Awareness. I'd rather take my chances with something that is not going to make me crazy, sick, or put me at the possibility of major surgery/loss of my womanly parts.
-- By culinarycutie09 | Reply | (2) replies | Private Message me
July 31th
2009
5:21 PM
I have been on this for 6 days for a UTI. I personally am not allergic to sulfa drugs and have had absolutely no problem while on it so I can't speak to specific side effects but I do have something to say about it. I'm a little confused as to why so many of you believe that this drug should be taken off the market. Surprise, a lot of people are allergic to sulfa drugs which accounts for the vast majority of adverse events described by nearly everyone on this post. And guess what, every single drug comes with side effects (Tylenol, Advil, Tums, etc. are no exception) and you accept the risk of those side effects when you put it in your body and weigh that risk against the possible benefits. It's not your doctor's or the drug company's fault you're allergic! Antibiotics, including this one, have saved millions upon millions of lives. It seems intuitive but it evidently must be said: if you're allergic to it STOP TAKING IT and call your doctor so he can prescribe a different antibiotic. Seriously people, it's not rocket science. Hives are a pretty straight- forward symptom of an allergy and one that can be diagnosed by the lay person. I am a medical professional, but even if I wasn't, you don't need an MD behind your name to figure that one out. Why would you continue to take it after having an obvious reaction? (a reaction that, by the way, is a well documented, clearly stated possible side effect of this particular medication if you'd taken the time to ask any questions whatsoever regarding your own health, not a surprise adverse event of a bad drug) It's not rocket science, it's common sense people. When I'm prescribed something I'm not familiar with, my first question is, "What do I need to know about this." Even after a satisfactory explanation, I look it up before taking it. In fact, that's how I found this post. Which brings me to my last point, why is it that people blindly put things into their bodies that they know nothing about. If the pharmacist doesn't explain drug information to you in person, that's what the little drug safety pamphlet attached to your Rx is for. Read it, that's why it's there. OR, there's always the option of using this wonderful resource called the internet. Use your brains for god sake and take a more active, responsible, and informed role in your own healthcare process. You are ultimately responsible for your own health, and to be completely honest, you're one of the only people who actually cares about it (guess what, your doctor probably isn't one of them because he has a hundred other pain in the ass patients with no common sense to keep track of). Think people...
-- By kiralyhne | Reply | (4) replies | Private Message me
July 25th
2009
2:59 AM
On May 8th 2009 I had my gallbladder removed. I have lupus, sjogrens disease, pulmonary hypertension, diabetes type II and coeliac disease. I was prescribed doxycycline as an antibiotic for post op infection. Within 2 days I was very ill - thought I was going to have a heart attack. The pain over my heart was alarming. Also, I found it very difficult to breath. I did some reading and found out that Lupus patients should not be given doxycycline. (The hospital and specialists knew my medical history and it should have been an easy thing to check for contraindications of medications - I had never had doxycycline before)A day after I stopped the antibiotic things improved dramatically. At the post op visit to the specialist, I was told that this was 'all in my head' and it was a lot of nonsense. However, I stuck to my story and finally the specialist conceded that even the best doctors do not know everything!!!!???
One really has to be VERY careful to look after one's own health.
June 24th
2009
9:51 PM
This is a follow up to a previous post on May 26th when I vowed to stop taking the Femcon FE pills as I was worried it was the cause of my twitching eyelid and heart palpitations. Here I am, a month later, and no twitching eyelid or heart palpitations. I can even enjoy a caffeinated drink now and then without worrying about if it would cause another palpitation.
I would also like to take this opportunity to commend all women to continue to be your own health advocate. It is up to each of us as individuals to be responsible for our own health. Doctors have medical degrees, but we know our bodies. As stated in a previous post by another user, it is untrue that you have to "sign off" when you want to stop medication. This is birth control, not life saving medication like insulin is for diabetics. And, as in my case, your doctor is difficult to reach to discuss symptoms, find a new one.
-- By kfarrell1 | Reply | Private Message me
May 27th
2009
1:28 PM
After reading other people's experiences with Norvasc, I realized that my symptoms are almost identical. I thought it was rheumatoid arthritis and asked my doctor to give me some tests and all came back negative. I started 5mg of Norvasc about 10 months ago and about 6 months in I started to get muscle spasms in my feet, then spasms and muscle twitching in legs, arms and hands. Extreme flushing in feet, small freckle-like rash on feet, lower legs and ankles. Also have what I would call chronic fatigue and just cannot get myself up and down stairs well. I'm 57 and feel like 100. All over body pain is very debilitative. I've gone from an active, happy person to a cranky person in pain 24 hours a day. So, now I have taken myself off Norvasc and am waiting to see if there is an improvement in my health. I'm still on coversyl for my blood pressure and will talk to my doctor again. It is so true that you must be your own health advocate and try to stay on top of all your health issues.
-- By esquimalt | Reply | (1) replies | Private Message me
May 25th
2009
10:54 PM
About a month ago I was given Levaquin, for Pneumonia. After about 5 days my face and neck swelled up, Then came the Prednisone at the hospital. I have never in my 38 years not been able to control my own body. I do take Zoloft,and Xanax for anxiety. No one said I would have a problem walking (legs are not working properly) eating,sleeping, Buzzing in my head. Unable to lift my 3 year old let alone care for her, I get extremely fatigued easily. My Husband has missed a week of work, and if your like us....NOT GOOD. Even trying to type is hard I must look at every letter, It's like I REALLY have to think to make my body move.My kidneys feel like balloons in my back when I lay down,Uncontrollable crying. I can't believe this has happened. We have been going through this the whole month of May.Is anyone able to control the shakes? Even my head is shaking??? I suppose if I had tried hard drugs ever, this might be what it's like. I Pray someone can help me. I am so afraid of what is happening to my body. By the way, when they put me on the Prednisone they did not give me a taper... Had to see another Doctor for that. So as I sit here today, hands shaking, head shaking, knees feeling to loose to walk on them, Hard to breathe, or even to think the way I could a month ago. SOMEONE PLEASE HELP ME...
-- By angie1026 | Reply | (1) replies | Private Message me
May 20th
2009
5:46 AM
I've been reading some of the responses of you ladies on the NR, and I just don't understand it at all. I'm 29 years old, and I've been on it for over 6 years-ish, and I absolutely love it. It took me many years to find a BC method that I liked, and I'm so sorry you all have had such horrific experiences, all I can say, is keep looking for one that you like, something is bound to work for you, but keep tabs on your own health. Remember that NOBODY knows your body like you do, and if a doctor thinks you're crazy, go to a different doctor.
-- By thatredheadinphoenix | Reply | Private Message me
February 11th
2009
2:28 PM
muscle aches and cramps in calves of my legs
-- By sbradley | Reply | (2) replies | Private Message me
January 24th
2009
12:43 PM
My side effects: Humiliation and Anger.
I take the generic form of Ritalin. I started taking it in 5th grade. Then decided that I was too embarrassed to have to go to the nurse to take my meds at school and stopped. I had a C average and teachers constantly complained of my lack of attention all through my elementary, middle and high school years. My parents allowed me to choose for myself whether I wanted to be medicated or not and I thank them for that. Wanting to ready myself for college and real life I again began taking Ritalin my senior year of High School and achieved my first ever straight A report card. At that time I had a conservative doctor who seemed convinced all I wanted Ritalin for was for recreational use, she was not an ADD specialist and only prescribed it to me after insisting I try various other drugs including Prozac! Eventually she gave in and prescribed it for me since I had been diagnosed by a specialist in the past. She was not happy to help me and I was always made to feel extremely untrustworthy and insignificant by her. Needless to say once I graduated college and got a job with my own health insurance I got my own doctor and haven't had a problem with any of my doctors since her. However, the stigma of taking this drug and the shame which comes with it is something I have never been able to escape. Regardless, I have been taking it ever since my senior year of high school at the same dose. 15mg in the am and 15mg at noon. I am 31 now and the only side effects I have had is a feeling of anger anytime people who don't know what it is like to have ADD voice their "expert" opinion or insinuate that it doesn't exist. I also get frustrated with people who like to say "Oh I am so ADD" after they do something dumb. I am humiliated by these types of people and afraid to let anyone know or see me take my medicine to this day. I understand that the same treatment for every person is never the correct treatment and some people may have negative physical side effects from this drug. For this reason everyone should be treated as an individual and a diagnoses of ADD should not be handed out by anyone but a specialist over a long period of study. My teachers and doctors began taking notice of my problems in Kindergarten and I was sent to many doctors and psychologists before they finally came to a diagnosis in 5th grade. It isn't easy to walk around with your head in the clouds only hearing the random insults tossed your way in moments of painful clarity when your inattention has drawn so much attention. It is equally painful to walk around knowing that in order to perform at the level at which you are expected to you must take a drug so stigmatized that you choke on the bitter pill every time you have to lie and tell some one it is just Claritin, when you would much rather tell the world that what you are really allergic to is their intolerance and insensitivity.
January 19th
2009
2:34 PM
I started Yasmin 9 weeks ago and within the first week I noticed lower sex drive and vaginal dryness. I have been on lots of different contraceptives such as ortho tri cyclen, alessa, ortho cyclen and even depo provera, I have always had these same side affects. I now have a dull headache almost every day. My biggest problem lately is within a few days after my period I experience extreme vaginal discomfort- itchy, painful and a white discharge. Last month I had a yeast infection after my period and I think its happening again. My menstrual cramps are almost non existent but I have had some mood swings but they are not as bad as when I was on other pills. We all should know that all medicine have side effects and the pills side effects are stated very clearly in the book you get with them. I know everyone feels the it won't happen to them but all medications have side effects and some unfortunately are way more severe then others, but there are obviously millions of women that love this pill. If you are having any of these horrible side effects, be your own health advocate and talk to your doctor and get off this pill immediately, so you can avoid any of these incredibly sad experiences. I am pretty sure that all birth control has uncomfortable side effects, I think that it is all trial and error until you find the one that is right for you or just use the old fashion method of counting your days and taking precautions around the time of ovulation.
-- By ktmac1208 | Reply | Private Message me
December 22th
2008
7:12 PM
Hello I'm a 41 year old female, and I took Lipitor 20 mgs for 6 months about two years ago. When I called my doctor's office to complain about side effects they told me it couldn't be the Lipitor because I had been taking it for a month already, and would have had problems before that. I eventually took myself off of the drug 5 months later. Here are some of the side effects I experienced:
Itchy fingertips, increased blood pressure, 30lb weight gain, shaky hand writing, acne, poor driving skills, poor memory, hair loss, "frozen joints", IBS, incontinence, low grade fever, itchy feet, numb toes, numb hands, foggy brain, joint pain, muscle pain, foot pain, plantar pain, dizzy, jaw pain, back and neck pain, week ankles and wrists, nasal allergies, skin rashes, migraines, heartburn, Increase in Astham, heart palpitations, knee pain, difficulty standing up from sitting position, difficulty climbing stairs, water retention alternating in feet, hands, arms and legs, almost constant taste of bile in my mouth.
These are only the ones I can remember. Two years down the road everything but the muscle and joint pain and weakness is gone. even those have improved a lot. I stopped taking the Lipitor and lost all 30lbs I had gained on it, without dieting, in a months time. I still have two toes on each foot that are partially numb. I have trouble climbing stairs, and getting up from a sitting position. I can do both, but I move slowly while doing them. The pain in my muscles and joints drives me crazy, but I'm grateful that the rest of the symptoms have cleared up. My doctor never believed me about my symptoms, and neither does my new doctor really. Went to the emergency room for asthma that was not responding to my inhaler, and they were about to let me go home when I mentioned to the doctor that I had been on Lipitor. Suddenly a huge battery of tests were ordered including a CT scan and a stress test. When I asked the doctor why he said that they just wanted to be sure that it wasn't something other than asthma. Why did they do that after hearing about the Lipitor? Do they know something? Are there doctors who believe that statins are killing and seriously injuring people? I'm so angry. Even as I sit here typing I know when I stand up I will have massive amounts of pain that I will have to "walk off". My quadriceps have not recovered, and remain ridiculously weak.
If I can stop one other person from going through this I will be happy. Thanks everyone for taking the time to list your symptoms. It makes me feel better to know that someone believes me, and knows what I am going through.
December 10th
2008
11:42 AM
I have been on Yasmin since April of this year, 2008. My doctor put me on Yasmin because of a hormonal imbalance caused by PCOS. At first, all I noticed was my periods had become regular and my skin had cleared up. About 4-6 weeks later, I started experiencing EXTREME pain in my right breast. After the onset of the pain, just my right breast became enlarged. A few weeks later I started having chest/heart pains at random times. It started occurring when I would run and that made me really scared. I had the feeling of having a heavy rock on my chest and wasn't able to get a real breath. After an EKG my doctor confirmed that my heart was healthy. Here is a list of some of the other side effects that I noticed: no sex drive, weight gain, TIREDNESS, forgetfulness, cramps in my legs, but only while sleeping, extreme thirst.
I am so grateful that I found this website. It's just awful to hear some many other women complaining of the same symptoms.
-- By trace02 | Reply | (4) replies | Private Message me
November 15th
2008
7:00 PM
I have been on this medication for 3 months now. I am a 28 year old male, 6'2", weigh 211lbs, and in overall good health. My blood pressure average is 144/72 without the medication, but on the medication it seems to stay around 136/66. It took about one week for the blood pressure medicine to start working and when it did I felt very tired (which is normal). Now, in my third month I have started to notice new symptoms like severe headache in the right front lobe, severe tiredness, cold fingers and toes (in warm conditions), severe lower back pain, mood swings, blurred vision in the right eye (same location as headache), and a occasional twitch in my right thumb (probably not related to the medicine). When I first started this medication I did read all of these post and figured that everyone was crazy and/or nuts, but know I am thinking that I would rather stop the medication
and start seeking out for a better medication.. I know medicine has side effects but damn!!! Anyone else have cold fingers and toes while they have been on the medication..thanks
October 18th
2008
8:44 AM
For Medications.com October 18th
Earlier this past summer I took this drug for ninety two days after I was prescribed this medication when I visited the doctor for a bladder infection and I was told I also had high blood pressure. No tests were done except for a urine test at that time and no follow up tests were done later. This drug not only gave me a slew of other side effects but pushed my simple bladder infection to where I no longer urinated in a normal manner regardless of the amount of fluid I added. Only after discontinuing this drug did normal urination return after a few days.
Allergic reactions were as follows. Severe debilitating stomach cramping resulting in swelling of the abdomen, and all digestive organs. Angioedema. (no pre history of this) Urine flow continued to lessen even with increased fluid intake, resulting in bladder pain and a sensation of bladder being pushed from the body. Lack of energy, flu like symptoms, insomnia, leg cramps, many bouts of rapid heart beat, some lasting for awhile, even after stopping the drug. Lack of appetite and a change in taste buds. I had several bouts of angioedema but thought it was 'something I ate, stress etc', as within a month of my diagnosis, my daughter had an extreme reaction to Ciprofloxin (see floxintoxin under that medication) and anything that was going on with me was put aside. She was debilitated by her drug reaction and was unable to walk etc, so I thought I wasn't handling stress too well as I was getting older. Each bout increased in severity leaving me lying debilitated on the couch for four days, eventually for a full week until luckily by that time my daughter was able to take care of herself and began thoroughly investigating this drug only to discover that Lisinopril was the true cause. The warnings with this drug are not very explanatory and leave so much out that should be for patients to read and digest to make their own health decisions and it takes a lot to dig deeper on the Internet to find the true adverse reactions.
We thought by stopping the drug I would get back to normal quickly and I did with the help of a herb called marshmallow which reduced the swelling after a couple of days. However after I thought I was cured I stopped marshmallow and within a couple of days had another angiodema reaction and I thought it was because there must be traces of this drug left in my system. I then took marshmallow for over two weeks and feeling fine I stopped again. Then another episode hit me with not only the stomach problems but a severe bout of coughing that lasted a couple of hours and trickled into a few days. It was then I began digging on the Internet to find the words I wanted to hear, that this drug caused long term problems. I found it by adding UK after other words and found this and much more.
ACE-INHIBITORS
A particular group of heart pills called ACE-inhibitors (the chemical names end in -pril, e.g. enalapril, lisinopril, ramipril) can occasionally cause urticaria, although they more commonly cause angioedema; about one person in 100 who takes an ACE inhibitor is likely to get this problem.
The reaction is not caused by true allergy, allergy skin and blood tests do not show it, so why does it happen? Reactions are thought to occur because an unwanted pharmacological effect of the drug causes the release of compounds similar to those released in an allergic reaction. The only way of showing that a regular medication is the true cause is by stopping or changing the treatment.
To complicate matters, the angioedema attacks may not start until the individual has been taking the ACE inhibitor for months or even years making it difficult to spot the relationship. Also, attacks may continue for several weeks after the drug has been stopped.
I could not find anyone doing following to patients with adverse reactions and I think that is a very bad problem. We are on our own. I do hope this helps others and if you want copies of all my research let me know.
Now I am hoping there won't be any more bouts but I'm still taking marshmallow and when I think I have the courage I will wean myself off it slowly and watch for signs. Believe me angiodema isn't fun and you can't see it on the outside of the body which makes it difficult to understand.
October 4th
2008
3:00 PM
As a Doctor myself I think drugs are NEVER the answer except in EMERGENT issues in Heroic life saving... YOU however and all individuals are and should be MORE accountable for your own health and STOP DEMANDING the Drugs and look to LIFESTYLE changes in DIET and EXERCISE to achieve the GOALS so necessary for quality and quantity of life.... The tools are at your fingertips ... The almighty internet ... And your OWN imaginative mentation is your TRUE limitation... So TAKE control of yourself and BE accountable .... Sorry so blunt but MORE tough love and Educating people is whats needed.... NOT more drugs....
MDG
-- By traumaerdoc | Reply | (28) replies | Private Message me
August 29th
2008
2:04 AM
I had some really odd-ball side effects from Lyrica. I was on 150mg twice a day for fibromyalgia, and it seemed to work initially. I was feeling pretty good, and thought I, too, had found an answer to my aches and pains. After about two months, I noticed that my hair was falling out and turning gray (I was 39 at the time). I hadn't had a menstral period that second month, either. I told every doctor I saw about these strange symptoms, but was prompty ignored.
The third month, I began to gain weight like crazy. I ended up gaining a little over 20lbs during the year-long treatment. My skin was dry and thickening around my thumbs and heels. My energy level began to really go down (it was never that high to begin with). My fingernails became brittle and broke with the slightest provocation. The grayer and falling out hair was coarser, too. I also was either sleeping all the time for days, or then couldn't sleep at all for days.
By the sixth month, I noticed that my wounds were also taking longer to heal. Being diabetic for the last 29 years, I thought that maybe neuropathy was starting to set in. Up to that point, I had never had any signs of neuropathy, and always was in good control of my blood sugar levels. Now, I was beginning to get worried.
The eighth month forward brought cracked heels, cracked toes, cracked fingers and thumbs. I began to have pitting edema, which I immediately informed my Rheumatologist about. I have chronic renal insufficiency, though not diabetic related. It was a gift from my OB/GYN during pregnancy when I became eclamptic. The edema was so bad that blisters appeared on my ankles and would not go away, no matter how high up I rested with my legs. My skin hurt all around my legs, and soon started to notice my face also swelling. Still, no comments from any of my numerous doctors.
After a year of all this strange stuff, I took myself off of the Lyrica. It was a hard choice, as the meds helped to silence the strangling pain in my muscles. Within a month after discontinuing the drug, my period came back. Three months later I noticed that both my hair and nails were stronger, and my hair wasn't falling out as much.
Six months later, and I notice now that my wounds heal like they used to. My hair isn't as coarse, and my nails are much stronger. My sleep schedule is still not right, and I still have the deep cracks and crevices to my thumbs and heels, but it is much better than it had been. I have also since tried Lamictal, but am having tachycardia and shortness of breath, along with a marked rise in my blood pressure. This, too, I discontinued and am feeling somewhat better. The muscle aches and pains and fatigue are back with a vengeance, but I will put up with them as long as I can. I am on so many meds anyway, that my body is probably kissing my toes in thanks!
Luck to all who are on this drug, and hope it works for you without all the weird side effects I put up with!
-- By mitc9180 | Reply | (1) replies | Private Message me
July 26th
2008
9:50 AM
I am a 39 year old white male that had aortic valve replacement surgery five years ago. About three months after the surgery (which went off without a hitch) I had a tremendous spike in my BP that went on for a few days (200/100 - enough so I could see my heartbeat in my eyes!). My Dr started me on Toprol XL 75 and while it brought my BP down some, it didn't bring it down a lot. He moved me to 200 mg a day and now my BP is around 105/55 with a resting pulse around 50.
While I experienced many of the side effects listed here (feeling groggy, confused, etc) they only lasted a few months. I must admit that I did pack on about 20 lbs over six months. However, unlike so many who choose to blame drugs (or lack thereof) for their problems, I took it upon myself to start exercising and guess what?!? The weight comes off! I now weigh less than when I graduated high school, I am in better shape than any time in my life and I believe that exercise helps me sleep better at night. All of this even though I still take 200mg a day. Given that some of you say that you're practically dead at taking 25, I should be 6 feet under or weigh 400 lbs.
I guess what I want to say is that perhaps instead of jumping on the bandwagon here that Toprol causes all of your problems, perhaps you want to take your own health into your hands and begin to eat a little better and exercise (and don't give me "but my ankles are swollen!" excuse - there is something called water aerobics). I don't deny that it can cause some side effects, but it can work wonders with your BP. You just have to DO SOMETHING to help keep the weight off (which then help with the sleep problems, mental clarity, etc).
-- By thom228 | Reply | (4) replies | Private Message me
July 24th
2008
8:37 AM
Levaquin is a wonderful drug and one of a very few that help men with prostatitis. If you have ever suffered with a prostatitis infection you know what i mean. No problems here with Leviquin.
-- By guy123 | Reply | (9) replies | Private Message me
April 22th
2008
8:11 PM
Hi all.
I am really dis-heartened right now. I cannot seem to get this thing taken out yet. My husband and I are self-employedso we have to take out our own health insurance. Our ins. company said that side-effects are a "disorder of the reproductive system" and there is a six-month waiting period to have anything done and we have just gotten it. So I went to an after hours clinic that I called waited until today thinking I could get it removed. WRONG!!! :( Today they said they could not remove it. More over, naturally the doc there said that there was no way all these side effects were from the mirena. I was so upset.
To anyone who has had this taken out, how many of your symptoms have gone away? How long has it taken?
Please e-mail me at ****** or private message me and let me know your experiences with post-removal and side-effects that cleared up. I am ready to take action on this mirena as women need to be informed of the possible side-effects of this drug. I have been suffering for 1 year and 10 months.
Thanks for reading!
March 14th
2008
4:15 PM
amber here again... It's only been one day since removal and my stomach feels like a balloon that's been popped. It's unbelievable. The doctor I saw is totally full of CRAP!
-- By amberc831 | Reply | (1) replies | Private Message me
February 29th
2008
8:42 PM
Wow. Thank god for this Bulletin! I was diagnosed with hypertension at age 28
and tried a variety of drugs with no control over the BP. So, about 2 1/2 - 3 years ago, I was prescribed 100MG of Toprol XL which seemed to control it well, but with debilitating long term illness. I had no idea until today that Toprol XL was causing similar grief to others. The horrible symptoms that I have been experiencing now for several years are Extreme Chronic Fatigue, Profuse Cold Clammy Sweating, Dizzy spells, weight gain, seeing specs of light and thousands of eye floaters, severe depression, muscle aches, headaches.
After reading about others with similar side effects, I am confident that it's from this medication. I have had all kinds of testing done including T3 & T4 Throid levels and a full array of blood work with NO LUCK! Regardless of the consequences, I am going to quit this damn medicine today because it appears to take 5 weeks or so to get it out of the body to notice a difference. I am so desperate for change. It is ruining my life because I can
't wake up, I'm always tired even though I get 10-14 hours of sleep. My wife and kids are bummed because I have no energy to do anything, EVER!
If you have any other suggestions or would like to comment about this.
Sincerely,
Sean
-- By seand777 | Reply | (6) replies | Private Message me
January 19th
2008
1:49 AM
Wow, I'm so glad I found this site and now realize it's not "just me" as one doctor put it. I have had my Mirena in for 18 months. The first year was great, no side affects at all. 6 months ago I started getting bad allergies, the worst PMT symptoms ever starting three weeks before my cycle which I barley get anyhow. I continue to struggle for breath on a daily basis and I have never been this tired in my entire life. I have been in and out of doctors surgeries wondering what's wrong with me, even seeing a naturopathic. Nothing helped until I found this site, I have never had children and I don't plan to have any. I thought this would be a great 5 year at a time solution for contraception as doctors claim I am too young to be "fixed".
Now I truly believe I need to have this removed for my own health. When I do I will repost the outcome.
November 9th
2007
7:35 AM
I am a haelthy 50 year old that used to walk three miles three times a week and elliptical trainer another two days a week. I started taking Zocor about three years ago after Lipitor caused my hands to cramp. After a year of Zocor my doctor switched me to Vytorin. I have been on it for about two years. About a year ago I started having pain in my neck to the point that it would wake me up at night and I had trouble picking my head up off the pillow. I thought it was from sitting in front of the computer too long or just getting older. Then I started having tingling in my feet and weakness in my legs and some balance issues. Some problems concentrating and with memory. I told my doctor and he told me to stop taking the Vytorin. I stopped about 2 weeks ago and have had a little improvement. After reading all of these posts I am very worried about my own health and for the thousands (millions?) of others that are taking this poison. My prayer is that we will all get our "pre-statin" lives back.
-- By johnyp_2000 | Reply | Private Message me
Mirena (5) Lipitor (4) Levaquin (4) Lisinopril (4) Yasmin (2) NuvaRing (2) Toprol-XL (2) Singulair (2) Lyrica (2) SMZ-TMP DS (1) Ritalin (1) Metoprolol Succinate ER (1) Topamax (1) Femcon FE (1) Norvasc (1) Doxycycline Hyclate (1)
November 9th
2009
1:52 AM
I am 39 years old and work for an interventional cardiology medical device company in Tokyo, and so know the importance of controling one's cholesterol, keeping the LDL's low and the HDL's high. About two years ago, my doctor put me on 10 mg of Lipitor. Several months later I herniated a disc in my neck between C6&C7. From that point onward, I attributed all of my neck and back pain, and newly acquired total body muscle and joint pain, to the herniated disc, it made the most sense. Over the last seven months, I have really worked on my diet and began to exercise more (even though quite painful) and was able to lower my cholesterol. This resulted in my doctor lowering my Lipitor prescription from 10 mg to 5 mg. I noticed a slight alleviation of the pain I felt in my hip joints and calves. About two weeks ago I took myself off Lipitor completely and found further improvements in my total body muscle and joint pain. It's still there but greatly improved. In retrospect, I now believe the Lipitor may have been the culprit (or at least a contributing factor) to my herniated disc due to muscle degeneration in the neck, and all of the subsequent muscle pain, especially in my hips and calves. I fully understand I am not going to die from calf-pain, but may from heart disease. However, I have found my quality of life has improved tremendously over the last few weeks. Less irritability, better sleep, less pain, clearer head. I feel like I have lost two years of my life on Lipitor via personal suffering and lack of ability to do much of anything with my wife and two young daughters. We all need to take charge of our own health and therefore I encourage anyone who feels completely different after taking Lipitor to engage your physician, and make sure its the right option for you. If damage has been done to my musculature I hope I can reverse it. It is evident to me that some serious clinical studies should be done to investigate Lipitor's effect on muscle degradation and hope others will consider carefully whether or not do go on this drug. If you do, monitor yourself closely.
-- By thinner | Reply | (5) replies | Private Message me