November 14th
2008
6:42 PM
My wife had 2 shots in Nov and Dec of 2007 and has all of the side effects listed here. She has seen 3 neurologist, 1 hematologist, 1 pain management doctor, and has an appointment with a Rheumatologist. No medical treatments seems to help (Cymbalta, Lyrica, Topamax, fentanyl for pain) the symptoms continue to get worse. Has anyone found anything to be helpful?
-- By adlo | Reply | Private Message me
September 29th
2008
4:09 PM
Will turn you into an emotionless, lethargic, drunk, apathetic zombie that has no more creative or human spark than a turnip does. Throw this crap in the garbage - NOW! I was prescribed this devil spawn drug from a PAIN MANAGEMENT doctor who told me it would help potentiate the Tylenol 3's he gave me. Drink a case of whiskey and smoke a crack rock the size of a buick and you'll essentially reach the point I was at after one of these pills. I started saying crazy things to my Girlfriend, started rearranging the refrigerator, slept for 10 hours (and I normally only sleep 4-6 hours) and woke up with these thoughts in my head like "What am I doing with my life? Nothing is going right, Everything I touch turns to hell". By about 10:30 in the morning at work, it finally started coming out of me and I started waking up and realized just how bad it was. DO NOT take this medication unless you are so severely psychotic that you simply can't make yourself stop killing squirrels. Why the hell a DOCTOR would prescribe this evil in pill form for Pain Management is so far beyond me, it's like wiping before you poop, just don't make no sense.
-- By zen5012 | Reply | (2) replies | Private Message me
September 15th
2008
12:41 AM
In the past five years I've gone through two six month Lupron treatments. The first Lupron treatment was given without a Laparoscopy. After being told for ten years that I was one of the unlucky few who have "bad periods", I finally found a doctor who would listen. She diagnosed Endometriosis after I listed my symptoms and put me on a Lupron treatment plan. I had one one-month injection and two three-month injections. Most of my side effects were tolerable; weight loss (almost sixty pounds but I was over weight to begin with), hot flashes, night sweats and memory loss. However, I experienced horrible back and hip pain...to the point of following up with a pain management doctor who insisted there was no reason for me to be in pain.
About four years later I found a really great doctor who performed a laparoscopy to diagnose my endo. She removed fibroid tissue from both ovaries and my colon. My next period was just a horrible so she suggested we follow up with another Lupron cycle. I expressed my concerns with the pain I experienced the first time and she suggested I have add-back therapy. She prescribed a regimen of Estradiol and Norethindrone along with six monthly Lupron injections. The side effects were worse this time around. My depression kicked into overdrive, I was constantly struggling to keep my anger in check, I would wake up dripping from night sweats, hot flashes were bad, blurred vision, memory loss, insomnia and the pain in my back and hips was excruciating. She prescribed Celebrex for my back and hip pain, which didn't help too much. I have a three year old son and had to use a wheel chair when we went to the museum because being on my feet for more than fifteen minutes was impossible.
I've now been off the Lupron for about six months and I have yet to regain any sort of short term memory. My vision is much worse than before I started the second cycle and has yet to reverse. My depression is still bad, as well as anxiety and irritability. However, as soon as the last month of Lupron started to wear off, my back pain did dissipate. I'm still having trouble sleeping but have found solace in Ambien...which could be a bad thing. I don't want to depend on chemicals to help me sleep at night. I just had my yearly exam with my doctor and she apologized for all the pain I experienced. She told me that in all the years she's given Lupron treatments, she had never seen a patient in as much pain as I was in. I don't think I'll be undergoing the Lupron treatments again in the future. I'm currently starting Yaz as a way to keep my periods at bay and only have three or four a year. I'm not real sure if that's a good thing either but we'll see. I have sympathy for all the other Lupron patients out there who experience the bad side of the drug. I don't understand how a medication such as this, which has such drastic side effects, can be marketed to people who are already suffering from pain in the first place.
-- By jackie_vandyke | Reply | (3) replies | Private Message me
July 22th
2008
9:31 AM
On lipitor for 1 1/2 years.... starting taking yoga a month ago. Had ache in knee and leg which then went to toe on other leg. Thought it was overstretching from yoga. Pain moved to hips and lower back. All very painful but worst was yet to come. Pain moved to neck and shoulders. Could not move head. Excruciating SOBBING pain. I was in so much pain for weekend. Everyone wanted me to go to emergency room but I wanted to stick it out til Monday.
PS... went on web. Saw this is lipitor side effect. never would have expected that after 1 1/2 yrs on a 10 mg dose.
Went to pain management doctor ... got Soma (muscle relaxant), an oral steroid and Percoset. Relief was almost instant.
Called my cardiologist. He says it is the Lipitor.
No more statins for me.
And back to yoga.
August 23th
2007
9:21 AM
I have been taking Neurontin for 2 months. I didn't think it was really helping because I still couldn't function normally. I have had 3 disk surgeries on L4/5, and still have severe pain in my right hip and down my right leg all the way to my foot. I am told there is scar tissue build-up in the area causing the nerve pain. I started taking Neurontin in small doses and have built up to 1200mg 3 times a day. I still couldn't walk more than 20 feet without leaning on something, but the pain was noticably less severe. My doctor put me on Trileptal instead, and the first day off the Neurontin was a nightmare...the pain was worse than ever. I went back to the Neurontin immediately. I have experienced some weight gain, but have attibuted that to no exercise. It does seem to make me forgetful, tired and somewhat depressed, but without it, the pain is completely debilitating. I want my life back, but I don't know what to do from here. Neurontin has helped the pain to a more tolerable level, but if I still can't even walk, I'm not even close to functioning normally. If anyone has a suggestion, I would love to hear it...thanks.
-- By helloitsme | Reply | (3) replies | Private Message me
April 2th
2007
7:46 AM
I was given an injection of Kenalog one week ago. By the time I got home I felt extreme fatigue and was forced to go to bed. I had not been nervous about the injection & it was pretty much pain-free. The injection was given for two herniated discs & sciatica. Within the next couple of days new symptoms appeared -- fast & irregular heartbeat, headaches and excessive urination. I also feel unusually anxious. I suffer from chronic fatigue syndrome and wonder if that condition had something to do my onging symptoms. My medical knowledge is very limited, but I wonder if this medication could cause changes in my adrenal function. When I saw my orthopaedic physician assistant on Friday I mentioned the symptoms and she didn't seem concerned & said maybe I had been retaining fluid --- which is not the case. I am 59 years old & I know my body! Although I have been eating well, I have lost three pounds. I am so confused. I have also had sweats, similar to hot flashes. Do you all think these symptoms could be related to the injection. I have a call in to the pain management doctor who did the injection, but I guess he will just blow me off, too. This is awful. He wants me to have another injection next Monday. Right now, I do not think I am going to follow though -- but will just deal with the pain the best I can. !
-- By eastcoastgirl | Reply | Private Message me
September 20th
2006
3:51 PM
I just got my first prescription for Neurontin. When the pain management doctor told me he wanted me to try this, I asked him if there wasn't anything on television regarding this drug & suicide? He said he wasn't aware of anything. No sooner do I get home & the commercial for a law firm says if you or anyone you know has commited suicide while taking this medication contact 1-800 so & so..I am terrified of trying it! What do you recommend? I am truly afraid of that particular side-effect, the one where you get so depressed that all seems hopeless & commit suicide. Can anybody advise me?????Thanks, Margarita
-- By ynkmargarita | Reply | Private Message me
June 13th
2006
10:12 AM
HELLO, I WAS IN A TERRIBLE CAR ACCIDENT. NEVER DID HERION ANYTHING HARDER THAN PRCOCET BEFORE THE CAR ACCIDENT AND NEVER I REPEAT NEVER DRANK AN ALCOHOLIC BEVERAGE IN MY LIFE. I AM HAVING A EXTREMELY HARD TIME WITH THE METHAODSE PROGRAM MY PAIN MANAGEMENT DOCTOR PUT ME ON. I WAS NEVER HEAVY IN MY LIFE. ACTUALLY ALWAYS A LITTLE TOO SKINNY FOR MY 5FT 9 INCH FRAME THE ONLY TIME I EVER WENT ABOVE 145 PDS WAS WHEN IW AS PREGNANT WITH BOTH MY CHILDREN. NOW I HAVE BEEN ON METHADOSE FOR ALMOST 6 MOTHS AND HAVE WENT FROM 136 TO 177 HELP ME AND I ALWAYS FEEL BLOTED BAD BAD CRAVING FOR ONLY SWEETS BUT, I DO NOT UNDERSTAND THE WEIGHT GAIN I ONLY EAT ONE MEAL A DAY HELP
-- By densgirl | Reply | Private Message me
June 3th
2006
10:16 PM
I suffer from Fibromialgya and I had other shots from a different medicine in then past which aliviated the muscle pain in the past. On Jan I changed pain management doctors and i started my set of shots. I ONLY GOT a total of 10 in three diferent visits. My last set of shots were in January 27 -2006. I thought that I was goung crazy. My face look like a big ballon, my arms look like "popeye" so big that I jumped three sizes. I got my period for over 50 days straight, I had a big lump as big as a orange by my neck. I saw hair in my face and shoulders that I never had before. From my weist up I growth three sizes up, I have red marks around my nipples and my back. My pain management doctor that I am the ONLY patient that had all these side effects and I CAN ONLY DRINK WATER TO CLEAN MY SYTEM!!! I feel horrible with all of this. My blood pressure is unestable. I am only 36 and I don't know what else to do. Does any body else had all these side effects togheter at the same time like me?? please advice
-- By rlberrocal | Reply | Private Message me
March 13th
2006
7:56 AM
I have a prescription for topamax now for 3 weeks and I have been scared to death to start it just because of the side effects of nurontin. Those were nothing compared to what I have been reading for topamax!! I have badly damaged nerves, plus I take many other meds such as oxycontin, norco, soma, baclofen, phernergan, levid and xanax. I am waiting on my nuro doc to tell me if taking topamax is ok. My memory is my life....I have a great ability to multitask about 12 things at once and do them all at 100% and have a memory like an elephant...I dont want to lose that and from what I have read, topamax will do it to me. I can handle the nausea and anxiety because I have meds for that. I wear strong glasses already because of my bad eyesight...I am afraid of making it worse. Please give me your opinions. I have a home to take care of and a husband and 2 young daughters...my husband does so much for me and the thought of this drug making me hate him or treat him bad is more than I can handle. He does it all for me, get me out of bed, take me to the bathroom, get me dressed sometimes..I am scared. Someone please give me some advice.
Tinay from Houston
-- By tymadden | Reply | (2) replies | Private Message me
August 1th
2005
2:08 PM
In January, I slipped on the ice and hurt my back and right hip. My family medical doctor took some xrays and did and mri. Could see nothing. He then sent me to about six weeks of physical therapy. No relief so he sent me to a pain management doctor. The first visit with him, he examined me, looked over the mri and xray film, and read the reports from the radiologist. He started me back in physical therapy. The second visit, he injected my facets...still no relief. Back to therapy. The third visit, he injected my SI joints...still no relief. Back to therapy again. My fourth visit, he injected my hips...and it hurt like heck. At that time I was told to walk a lot. The pain in my back and my hip, caused by the accident, was so profuse, I could hardly stand it. But, I went to the mall and walked for about an hour. When I got home, I had to go straight to bed. For three nights and four days, I couldn't get out of bed. I had to keep myself knocked out with pain pills and muscle relaxors. On a scale of 1-10, the pain was a 20. It was terrible. The man kept sending me to therapy though. On my fifth, and final visit to him, he sent me for another mri. Guess what? My back is broken. 16 weeks of therapy and now it is too late to do anything about it. But I am noticing my blood surfacing under my skin in red blotches. My case worker says it could be caused by the kenalog injections. My question is, did anyone else who had kenalog injections experience the pain I had from them...or the red blotches under the skin? Thanks.
-- By memaw_2003 | Reply | Private Message me
April 2th
2004
10:11 AM
I am one of those who take Effexor XR 150mg as part of a pain management regimen, as opposed to depression. I've had two major back surgeries that left me with arthritis and some internal scarring that causes acute, long-term back pain. Apparently, certain ani-depressants are also starting to be used to treat pain in combination with drugs like Vioxx and Ultram.
I have been on Effexor for nearly two years now. I never noticed any side effects until about a year ago when I thought I was coming down with the flu. My symptoms got steadily worse until I started to fear meningitis or even West Nile virus. I had terrible head and neck ache, neausea and dizzyness. It wasn't until I went to my pain management doctor that we figured out my symptoms started about the same time I had forgotten to take my Effexor and when I started taking over the counter cold medicine I had decided to stop taking some of my meds since I was unsure of the interactions. This turned out to be the wrong idea with the Effexor.
I was suffering from seratonin withdrawals and by the time I saw my doctor I was nearly passing out on the floor. They had neglected to tell me NOT to stop taking the Effexor. Now, I notice that if I miss a dose by even a couple of hours, I start to get dizzy and a headache.
Conversely, on a recent international trip, with jet lag I made a mistake in the time difference and took two doses within 12 hours of each other. Again, I had many of the same symptoms, but this time, even when I waited an entire 24 hours to let the extra drug exit my system, the symptoms pesisted for nearly a week before I stabilized again. Turns out the chemical(s) in Effexor have a half life of 7 days. Consequently, I had a hard time getting back on it without throwing everything out of balance.
I plan to have myself weaned off during my next visit with the doctor. I just feel fortunate that I have that option when so many others do not.
-- By grublee | Reply | Private Message me
Kenalog (3) Neurontin (2) Lupron (2) Topamax (1) Ultram ER (1) Methadose (1) Lipitor (1) Seroquel (1) Effexor (1)
November 25th
2008
5:19 PM
I am in worse pains since I am taking Ultram Er 100 mgs. The pain Management Doctor can not understand that I am having those lower back pains if I am under the medication for three Weeks already.
-- By hadiaz | Reply | Private Message meThe Doctor, who is on vacations, suggested that I should go to the emergency room of any Hospital. I will finish the story later.