August 31th
2008
12:06 PM
60 YO male: three weeks on .4 Flomax
I went on it because after Parathyroid surgery for kidney stones, I was still having symptoms. Mostly a painful urgency to pee, with only tablespoons coming out. That would last for 3-6 hours. I started out with pyridium (the pill that turns your urine orange). That seemed to help, but I was still having some lower-right abdomen KS pain events with the urgency. The urologist suspects I still have some stones that have yet to come out.
My prostate exam and PSA were good. No signs of cancer. I don't think the size of the prostrate was measured or whether BPH was an issue because of the obvious Parathyroid issue.
I started taking .4 Flomax, got the lightheadedness that evolved into a feeling of being slightly high most of the time. And feeling mildly relaxed.
Flow was improved, maybe a few less pees per day. Still peeing at least twice a night; good stream, good quantity.
Not a runny nose, but a thicker discharge. This week (3 weeks in) the nose is better.
Lower volume and clearer ejaculate. After the last ejaculation, I went right into an urgency and lower right KS pain event that lasted 6 hours. I was uncomfortable, but OK on Tylenol and pyridium. My events frequently happen on Saturday/Sunday. I have tried to figure out what, if anything I might be doing to cause or break this cycle, but there seems to be no correlation. I was hoping to get rid of the painful and disruptive urgency episodes, but so far they are still here every week or so.
Dreams have been a bit weird.
I have a swollen knee and toe, but this could be due to some hiking while on vacation. I saw the posts about painful joints, but can't make a direct connection yet.
Since Flomax three weeks ago, there seems to be a low level feeling in my lower abdomen. Not a pain as much as a presence, a tension. I think it's in the testicles, but you know how that is; accidentally smack one and the pain feels like it's inside the body.
-- By baltimore | Reply | Private Message me
August 30th
2008
10:03 AM
I've never responded to a site like this, but now feel compelled to. I had my Mirena fitted 13months ago, after a friend recommended it on the strength of her excellent experience with it. I was on anti-depressants already, so haven't felt an overwhelming sense of depression, but have been thinking for the past 10 months or so, that I get way more tired, have an overall achy body often, painful joints and swollen ankles. All stuff I never experienced before. But the thing that really did it for me was the weight gain. I was only slightly over normal weight at the time of insertion but have been gaining weight steadily. Initially I thought it was just a bit over over-indulgence, but after weighing myself last week, I've made the horrifying discovery that I've gained 13kg in 13 months!!!!!!!! I've never fluctuated more than about 4 kg in my whole life, eat healthily and am normally active. Nothing has changed to what I was eating/doing before. I specifically searched the internet today to see if weight-gain is a problem. It's not listed as a major side-effect on the 'official' sites, yet I see it on many of the postings on this one.
And for those of you who are into alternative therapies, I had myself checked with a kinesiologist for dietary intolerances/allergies that could have caused this weight issue, and what came up is that the problem is progesterone. When she checked if my Mirena was a problem for me, it came up VERY positive. When checked if I should have it removed, the response was equally positive.
It's a pity, as I had none of the other problems mentioned and it's such a convenient method of bc. But in my case it's coming out, before I have to come out as a seriously obese 41 yr old!!!!!
August 13th
2008
12:27 PM
Hi All - I have been off prednisone for one week and I am not doing as well as I thought I would be at this stage. My symptoms are not flaring, which is a very good thing but I am so tired and feeling very depressed and low energy. I thought I'd feel great once I was off the evil prednisone but so far I am feeling almost as bad as when I was on it. My moon face has not started to go away, which sucks, but I guess I have to be patient. I am so tired of this situation as it feels never ending. Part of the problem is I have continued to work throughout my ordeal, and it's been very hard at times to carry on like a normal person who is not sick. I have been sick since last November (with an autoimmune disorder) and I had really hoped by this time that I'd be on my way to being better :( Prednisone saved my life but the side effects are horrendous, as are the after affects of it. Good luck to all who are taking it. I share your pain and frustration.
-- By catzmommy | Reply | (6) replies | Private Message me
June 2th
2008
5:26 PM
Well, I took Levaquin 500 once a day for 14 days for an inflamed lower bowel. It cured that. But, I got a blood test back today saying I am positive in my ANA pattern? Also states it is "A nucleolar pattern is associated with systemic sclerosis." Probably Drug induced Lupus.
My symptoms have been painful joints, muscle weakness to the nth degree pain and weakness in shoulders, panic attacks, fainting spells, headaches, finger pain! Depression, happy, depression, happy. Strong, weak.
My next step is to go to a specialist (Rheumatoid)
I'm leaving for Costa Rica for 6 days. I am going to be positive and get over this! I hope nothing happens over there. I will not let it get me!
-- By cardoza1 | Reply | Private Message me
May 11th
2008
6:55 PM
Hello ladies. I have had the Mirena removed now for about 2 months and i feel a lot better. I am not sure if i posted here or another forum but i have experienced terrible side effects from this thing being in my body. my side effects included
painful joints( i felt like a 80 something year old)
lower back pain
Chest pain ( which i still experience on and off now)
numbness on my fingers and toes ( which i still have to some degree)
sharp abdominal pains
extreme anxiety
tired all the time
spasms in my hands and legs especially my left side
headaches and the list can go on and on.
My doctor did not believe the mirena was causing all of this even though i had been a very healthy person with no medical complaints at all before the mirena was inserted.
Did i read somewhere about a class action lawsuit? Because i will definitely look into it for all the suffering this thing has put me through.
Thanks everyone for posting. Information is power!
April 13th
2008
5:48 PM
Hi everyone,
I am a 25 year old female who was diagnosed with Crohn's disease one year ago. I stumbled on this website and wanted to share my experiences to let others know they are not alone and that their side effects due to Prednisone are completely normal.
In Nov of 2007, I was in the hospital for a Crohn's flare up and was put on prednisone through IV (240mg/day). After a three days I was released, but one week later, had another flare up and was back in the hospital in December of 2007. This time, I stayed for 6 days and was on 240mg/day again through IV, along with taking Flagyl and fluids for my flare up and infection.
At first, I lost about 10 lbs due to the flare up and all of the medication I was on. However, within 3 weeks time, I gained 28 lbs and was a complete mess. I looked different, felt different and was emotionally and mentally drained.
My side effects included: Severe moon face, buffalo hump, increased appetite, hair thinning and severe hair loss, night sweats where I would have to change pajamas 3-4x a night, OCD to the point where I would have to clean my entire apartment (even if it was already clean), restlessness, anxiety, no sleep and sometimes I would go days without sleeping, increased thirst and dehydration, swollen eyes and headaches, depression and mood swings, upper and lower abdomen swelling and weight gain (28 lbs in 3 weeks), suicidal thoughts, unbearable muscle and joint swelling and aching, forgetfulness and memory loss, blurred vision and dark hair growth on my face near my sideburns and underneath my chin and on the bottom portion of my face. Bottom line: it was unbearable and nobody warned me about the harsh side effects of the drug.
When I left the hospital, I was put on 60mg/day and eventually weaned off Prednisone over the course of 2 1/2 months and took my last 5mg dose in mid- February 2008.
It is now 2 months since I have been off Prednisone and as of now, I have only lost 7 lbs, but much of the moon face has gone away and I don't seem as swollen in my chest. My appetite returned to normal the day I stopped taking the drug and my mood swings subsided one week after stopping Prednisone. I still have the buffalo hump, but it stopped hurting and I am now able to sleep through the night. The fluid retention seems to have moved south towards my legs, arms, and lower abdomen. My doctors say that within about 6 months after stopping Prednisone, most of the fluid retention should go away and they recommend walking for 45-60 minutes/day to help with the fluid/weight gain.
Overall, prednisone helped to save my life and put my Crohn's into remission, but is one of the WORST drugs I have ever taken. My heart goes out to anyone who has had to take this drug and trust that you are not alone--and the side effects are real and they are harsh. I am slowly seeing that it takes time for the prednisone to leave your system and my doctors say that every day there is less and less in my body.
Stay positive, stay active & stay Healthy!!
-- By vanygirl | Reply | (5) replies | Private Message me
February 19th
2008
2:59 PM
Hello all. I was wondering if any of you who have been on Yasmin for a few years experienced any joint pain or swelling in your hands/feet because of this. I notice that it is a side effect, but was wondering when it developed for people who have been on it a while. I have swollen, painful joints in my hands, but the blood tests turn up negative for arthritis and my docs (primary and neuro) have quizzed me about Yasmin - the only prescription med I take.
Also, I had terrible migraines upon starting Yasmin but those subsided. I also experience the sex drive/dryness/increased UTI frequency issues others of you describe.
I am 32 and have not been pregnant before. Have been on Yasmin for three years.
February 10th
2008
6:29 PM
I've been taking medication for hypothyroid since 1987 with some changes of dosages and brands based on lab tests and, I suppose, doctor preferences. Until 2 days ago I was taking 112mcg Levoxyl, with no side effects, I thought. Recently, my pharmacy ran out of the usual brand and substituted another brand with 7 pills until their shipment came in. No problem. Without medication my throat and tongue starts to swell within 3 days and in 10 days I'm sitting around trying to see how little I can breath. Even that wasn't so bad but the heart beat slowing and then quickening gives an unsettling adrenaline type feeling. OK back to the switch. I retrieve my usual brand when it came in and was 5 days into that when BAM!. intense chest pain woke me up 2:30 in the morning. I took aspirin and TUMS, thinking I covered everything. The pain radiated from the center of my chest to my back, continued tingle sensation down the undersides of my arms, and achy ears. It even hurt to breathe. 30 Minutes later, and after unsuccessfully trying to minimize symptoms using WebMD, I decided to go to the ER. Lots of test later that rule out heart they said I was taking way too much Levoxyl and wrote a prescript for .75mcg. Since researching I've notice other symptoms I attributed to age (am 52) painful joints especially hands, wrist, feet, ankles, and knees that I've been popping Tylenol for 2 years. Stiffness. I'd like to blame the 20 pound weight gain in 8 months on it too but seems like I should have lost weight.
Since I can't go without medication it seems like I'm but to the hunt and peck method of finding the right dosage and brand. Any recommendations on which direction to take?
December 7th
2007
4:00 PM
I have been taking Yasmin since November 2006, since July this year I have been suffering from a condition called Chronic Urticaria. This involved a very itchy nettle rash, painful joints, swelling on my hands and feet, so much that I cant walk. My eyes swell up so much that I cant open them, my lips swell up, tightness in my chest almost so much that I can not breathe. I have been to the hospital loads of times, seen about 20 different doctors, been put on 5 different steroids, anti leprosy pills, antibiotics, post transplant pills, anti histamines and many more. I am just wondering if anyone else has suffered from any of these side effects whilst taking Yasmin?
-- By evaleeve | Reply | (3) replies | Private Message me
November 28th
2007
4:07 PM
I am a 48 y/o Caucasian male and am writing to describe the terrible effects Lipitor had on my health. These side effects gradually worsened over years of use. I did not associate my symptoms with Lipitor use until I depleted my supply for about a week...until my mail order prescription was renewed. I began feeling better after just a few days, but the symptoms recurred when I resumed its use. I questioned this link and discontinued its use after a few weeks to determine if the symptoms would subside, and they did. I then conducted another trial, taking Lipitor for a few weeks. The symptoms appeared once again, so I have stopped taking Lipitor and will not use it again.
My symptoms have been well documented over the years by my physician, who did not indicate a relationship between Lipitor and these side effects. Accordingly, you might understand my surprise when I started reading about Lipitor's significant side effects in recent published news articles.
I have suffered from dizziness, confusion, depression, memory loss, painful joints and muscles and severe prostate pain, and I could not determine a cause for these for years. I have been free of all these symptoms since I stopped taking Lipitor about 6 months ago, except for a few recusing leg pains.
You can't imagine the money I have spent on doctors trying to determine the cause of my ailments, confusion and depression, not to mention money lost due to resulting poor work performance.
As far as I am concerned, Lipitor should be totally discontinued. If it isn't, then the side effects, of which there appear to be many, should be fully documented and disclosed to everyone to whom this medication is prescribed.
-- By stoptakingstatinsifyoufeelbad | Reply | Private Message me
November 20th
2007
4:29 AM
Here’s a little update from my last post, I hope it may be useful. The reference to snake venom set me thinking, as around six years ago I suffered anaphylaxis after being stung by a wasp on the end of my tongue. I was rushed to casualty as my head and ears swelled up. I was coved in a red spotty rash and although the major symptoms subsided after a day or so after treatment , it after several weeks before I was back to normal. I now carry adrenaline in case of a similar incident. Many of the symptoms were similar to what I have experienced over the last month, the shortness of breath, the red spotty rash ( forgot to put that in the last post. I still have the spots on my arm and back!) , painful joints, blurred vision etc….
So it got me thinking, is there a connection? It would be interesting to note if any of those posting here have similar intolerance to insect venom.
A quick Google brought up a reference to a paper by Janice L Stumpf, Nadine Shehab and Anish Patel in the Annals of Pharmacotherapy Vol 40 No 4 p699-703 titled ‘Safety of Angiotensin-Converting Enzyme Inhibitors in Patients with Insect Venom Allergies’
In the conclusions it states ‘….it seems prudent that patients with document allergic reactions to insect venom avoid ACE inhibitor therapy, if possible..’
I’m convinced that I was slowly going into a form of anaphylaxis brought on due to allergic reaction to linisopril, I now know what I will be telling my GP, as I’m sure many doctors will be unaware of this link. Make sure that if you suffer from the same intolerance that your doctor is made aware.
Hope this helps.
-- By dewi | Reply | (2) replies | Private Message me
October 26th
2007
4:53 PM
I was put on Lipitor in 2004 and didn't realize what was happening to me-I thought I was just getting old. (I'm now 66) I went from a very active person to one who struggled to get out of the car and my entire body ached. I was constantly tired, I had trouble putting thoughts together. I would sit at the kitchen table and cry because I felt so awful. I started losing my balance and falling down. In one of my falls in December 2006 I injured my left hip. I went to a chiropractor to see if he could help relieve the pain in my hip. While going over my symptoms and medications he pointed out that the Lipitor I'm taking could cause most of my symptoms. He suggested I call my doctor and talk to her. I did and she said that Lipitor could cause severe muscle aches-she wanted to do a blood test and said that I could just go off the Lipitor. My blood test was normal. That was in March 2007 and I have been off the Lipitor since. The fatigue and muscle aches have gone away. I still have the hip pain (bursitis) and have been going to physical therapy for that. My memory is improving but I still have to concentrate, repeat names and write things down trying to remember. I'm trying to lose weight (most of it gained around my middle). I go to the gym and exercise to try to build my muscle strength. I'm not tired all the time, I've read that the symptoms can last a long time and sometimes may never go away. I've been told by the doctor that if my cholesterol is up at my next visit that she wants me to go back on Lipitor. She also said that if it had been the Lipitor, the symptoms would have gone away right after I went off the Lipitor. I will absolutely refuse to go on any Statin-I cannot take the chance of feeling so badly again.
-- By althea88 | Reply | (1) replies | Private Message me
August 9th
2007
10:58 PM
Hi there... I have just found this site and I'm very grateful to everyone who has taken the time to sit down and tell us their story mine is very similar. BELIEAVE me I feel like I am pushing my family away and I'm losing my relationship with the one person who used to make me feel like I was the most beautiful woman in the world.
I'm a 40 yr female have or maybe had a great job that I loved... On April 12 I noticed a small red rash on my lower right leg no big deal went to the Dr. gave me some cream and sent me home well I went to work and by the afternoon things just seem to get bad my legs began to swell and little blisters started to pop up so I went to the E.R. they had no Idea what was wrong with me got me an appointment to see a skin DR. so I went home but the pain from the swelling was so bad I could not walk any longer went back to the E.R. they gave me some pain meds and called in some other DR. things had gone from bad to worse my feet had gotten to big I could not put on shoes and I had bruised completely across the bottoms of my feet they put me on 30mg of PRED. and it seem to be under control sent me home after 3 day in the hospital things were good for about a day or so I thought I would go back to work well that was not a very good idea.... My sister had to come and take me back to the ER where they did 2 biopsies and still have no idea what is wrong with me. so now they put me on 60mg of PRED the rash has gone, lots of scaring on my feet because of the blisters once they broke and dried out but I can live with that....
It's the side effects that they don’t tell you about,
MOON FACE I can't look at myself cause really that’s not me anymore,
WEIGHT GAIN I have always been thick but I can't handle the extra 30lbs I've gained,
MOOD SWINGS are unbearable,
PAINFUL JOINTS, CAMEL HUMP, BLOODY NOSE, BRUSING, SORE TEETH/GUMS, DRY EYES, FAITIGE, and worsted of all
I don’t have a support systems in my life so I'm fighting this by myself everyday, I have 3 kids that I have tried to explain all this to but they don't get it and well my boyfriend he tells me he understands that its the meds pushing him away but if I can't figure away to control this I will lose every thing including my job. I cant even get the energy together half the time to make it up and down the stairs which also comes with the pain of just trying to lift each leg up to climb the stairs, I also have the camel hump which I find very painful, The acne and the hair growth that I have to get wax off once a month cause I feel like a man I feel like a loser and as of the last couple of days I just want to give up I am now down to 20mg per day but I find that I am feeling so sick I cant think straight I hope and pray for each and every person out there that has to take this MED that you get better and I do hope that my symptoms wont come back. Thanks for being here and I’m glad I found this site. I know now that I’m not losing my mind completely. Elizabeth.
March 30th
2007
11:31 AM
My joints all over my body are painful. I don not know if it is a side effect of lithium because I take other medications. The drugs include femara, niravam, cymbalta, famvir, calcium 1000 mg., a multivitamin capsule, glucousimine, echinacea. please give me some advise as to why I get veryt painful joints and the back of my neck pops constantly throughout the day.
-- By sjrdz954 | Reply | (1) replies | Private Message me
October 30th
2006
5:55 AM
I was admitted to the hospital with appendicitis 1 month ago. While performing routine tests it was discovered I also had a bladder infection. After surgery I was given Levaquin intraveinously for 3 days and sent home with a 5 day prescription. I have no idea why such a powerful antibiotic was prescribed when amoxycillin would likely have done the trick.
On the last of my 5 day course of Levaquin symptoms of inflammatory disease began appearing. swollen and painful joints. Stiffness everywhere. Has anyone found anything that brings relief?
-- By bettym | Reply | Private Message me
August 5th
2006
3:03 PM
Re: Mon, 24 Jul 2006 19:54:47 -0500 by olsen, #28334
RED YEAST RICE IS A STATIN--mevacolin K is the active anti cholesterol ingredient.
All statins, including RYR, cause "exercise intolerence". Quite ironic... our Dr's prescribe statins, then tell us to exercise... I'd like to see them do what they say.
As mentioned already (but just to tie things together),
CoQ10 deficiency is the reason for our painful joints & muscles, exercise intolerence and memory loss.
June 9th
2006
10:04 PM
painful joints
loss of hair
weight gain
bloating
irritiable
a bit of depression because of my weight gain
headaches
January 7th
2006
7:06 AM
extremely painful joints. within 20 minutes of taking. lasts for hours. severe aching in shoulders, elbows, wrists, fingers, hips, knees and ankles.
-- By klvandy11 | Reply | Private Message me
April 24th
2005
5:50 PM
I'm not the only one, great. I knew about the side effects that some drugs can cause, but I've been seriously thinking of alternative treatments. taking lisinopril and before 'zestril' for about 5 years. I also take bendrofluorazide. extremely painful joints, cough, dry mouth, dry eyes, insomnia., can have bouts of fast heartbeats, and I'm tired all the time.. there must be something better out there... need to detox!
-- By mateeuk | Reply | Private Message me
October 27th
2004
7:40 PM
You all need to read what has been written...those of you who have inflamed painful joints and memory loss need to go off the drug to see if they improve and ten return to the drug if you find the drug was not the cause. I can't believe so many of you aren't reading these side effects 80% of you all have the same ones (are you clueless)
-- By ker310ca | Reply | Private Message me
September 23th
2004
12:35 PM
I've been using Advair non-stop for about three years. At first, with the exception of a slight sore throat and raspy voice by mid-afternoon, I felt great, to the point where I forgot I was asthmatic. I developed several other symptoms very gradually, so gradually that I didn't associate them with the medicine. I've experienced the following symptoms, some worse than others:
Sore throat, loss of voice, fungal infections of the mouth (this is really getting out of hand!) and vagina, slight headaches, painful joints and feet (soles), muscle stiffness; muscle cramping(neck, abdominal, leg and feet), dental discomfort, red eyes, blurry vision and "floaters", dark circles; difficulty sleeping; weight gain, especially around the middle. Slight facial hair; sallow, dry skin, and poor healing (slow healing of wounds and scars). The latest :sudden bouts of weakness and sleepiness.
I think it's time to take a break and cleanse the system.
August 2th
2004
5:09 AM
Achey painful joints, periods of lightheadedness, and sometimes episodes of rapid heart rate.
-- By chezosheas | Reply | Private Message me
Lipitor (3) PredniSONE (3) Lisinopril (2) Yasmin (2) Levaquin (2) Mirena (2) Levoxyl (1) Wellbutrin (1) Lithium Carbonate (1) Aromasin (1) Aqua-Ban (1) Histex (1) Advair HFA (1) Flomax (1) Maxidex (1) Simvastatin (1)
September 25th
2008
11:46 AM
I suffer from chronic fatigue syndrome and fibromyalgia. I have problems with painful joints and have fluid on my knees. I tried Aqua Ban to try to relieve the fluid on my knees. I started by taking 2 tablets x 2 times on the first day, I was fine. The next day I took same dosage. In the afternoon I started feeling unwell. I went to bed as I had terrible tummy pains, felt sick and went downhill quite quickly. The next day I felt worse and had cramping pains all day. I stayed in bed with a hot water bottle. I had no energy at all. This went on for 4 days and eventually I ended up with a pain in my pelvic region. I can only think that the Aqua Ban had such an affect because of the chronic fatigue/fibromyalgia? Has anyone else had an experience like this?
-- By charlottebronte1 | Reply | (1) replies | Private Message me