March 31th
2008
5:18 PM
My son is 10 years old and has severe allergies and asthma. He was hospitalized when he was 5 for asthma and at that time put on Flovent 110 mg twice in the morning and twice at night for awhile this seemed to work around the age of 7 he was put on Singular 5 mg to help with asthma and also his allergies. After a short period of time he began to complain of stomach pain he would get nauseated and sick with a 10 minute car ride, we took him in to the pediatrician and was told that there was no obvious cause and to basically deal with it. Around this same time he also began to have trouble in school he was not able to pay attention and was falling far behind we tried tutoring, extended day classes anything to keep him up with his other classmates. Needless to say all our efforts did not work and he got worse he was now moody and withdrawn. We thought it was his frustration with school that made him short tempered and emotional. At every parent-teacher conference it was the same report; being told how bright our child could be but his lack of focus and emotional state prevented this. My husband and I decided that we needed to be proactive and made an appointment with the pediatrician again we discussed all the issues and told the pediatrician that his mood has changed and he could not focus that homework was a battle each night usually resulting in a major meltdown. The pediatrician diagnosed my son with ADHD with ODD. Never would I have thought that my child with have behavioral or anger problems and I had a hard time coping with the idea at first but tried to make it okay for my son I did not want to make him feel like he did something wrong or that he was broken. The pediatrician prescribed Adderrall 5 mg at first and after three months we revisited and the dose was adjusted to 10 mg. School made a dramatic turn around and we were hopeful, however his mood was still all over the place he would get angry over small things, have a meltdown, and at some points would just wake up in a fowl mood and when asked what was wrong he could not explain it he just was not happy with anything. In the background of all of this was his asthma he was hospitalized again in when he was 8 after being discharged he was put on Zyrtec as well. So now his meds were Flovent 110 mg, Singular 5 mg, and now Zyrtec 10 mg. It was all overwhelming for all of us but we were trying to make it okay for him. He began to complain of restless nights, headaches and would get dizzy for no reason. Here we go again back to the doctor they attributed everything to the Adderrall. He passed out one day at daycare and we rushed him to the ER they did an EKG and found nothing and told us he was probably dehydrated. He constantly had a fowl smell coming from his mouth we asked his dentist they found nothing no cavities we asked the pediatrician no reason; no matter what we tried we could not get ride of it and he brushed, flossed and rinsed with mouthwash everyday three times a day. I was not making any connection on the side effects I guess you could say the left hand was not talking to the right. After we had wildfires that burned almost the entire city he had another asthma attack that lead us to the ER again after being treated we were assigned to a pediatric pulmonologist that added Nasonex to the regiment. Then in January we had him tested to learn what exactly his allergies were and was advised they wanted him to come in for allergy shots one in each arm once a week. In March 2008 we went in for his first set of allergy shots and right after had an appointment with his pulmonaligist he had a bad reaction to the shots and they changed his meds again. Now he is on Advair 250/50, Singular 5 mg, Zyrtec 10 mg, Nasonex, and Adderrall 10 mg. We decided to hold off on the allergy shots until he can better tolerate it. This entire time there has been little improvement on his attitude and he is withdrawn and seems disconnected now. When we try to talk to him he simply says he doesn't know what is wrong. It is all a roller coaster ride. Then on March 26, 2008 it all changed for me, I had put the kids in bed as normal and about an hours later heard someone up and in the bathroom I went to go check to make sure no one was sick and found my son in the bathroom and it appeared he was washing his hands and I asked if he was okay. He told me he was washing a cut, I looked at it and asked what happened he was hesitant and then pointed to his arms; he had bitten up and down both arms and on his hands to the point of bleeding I was shocked and did not really know what to say. We talked about it and he told me he could not control himself and even when he wanted to stop biting himself because it hurt could not resist the urge to to it over and over again. We talked calmly and after a long conversation he told me he needed to talk to someone about his problems. The next morning I called the pediatrician he said he could see him on March 30, 2008. On March 29th I heard about the side effects of Singular and was so shocked and angry how come no one told me what this could do to my baby; I wondered if he had never started this stupid drug if he would have been put on Adderrall. I would not let him take Singular that night or any night after. I will never let my son take this drug ever again. The following day I took him in for his appointment and after discussing everything the pediatrician agreed that it is best to leave him off Singular. I am taking my son to see a child physiologist as well. I am so upset that I did not make the connection myself.
-- By jimandjeni | Reply | (1) replies | Private Message me
March 10th
2008
2:16 PM
My daughter has been taking Singulair for almost 2 years now. She's 71/2 years old now. It seems like she's very hard to wake in the mornings and complains that she's still sleepy despite 10 hours of sleep. Also she makes a very strange sound during the night like she's scratching her throat and complains of sore throat in the mornings. Has anyone else had this experience with Singulair? I want to take her off. Is it safe to stop this drug without weaning it?
-- By millenka | Reply | (3) replies | Private Message me
April 17th
2008
8:59 PM
Hello to everyone, I just came home from a parent teacher conference for my son who is 7 yrs. old, and heard the same old thing, "he is restless, impulsive and has a short attention span". He has been taking Singulair for about 3 yrs.. Since he has started school I have had these complaints and have also been told he displays symptoms of ADHD, which ironically has been for the last 3 years. Like any parent, I question" if I am doing something wrong with my parenting, is his diet good, etc. etc.", I am also a nurse, I realize that medications are needed and beneficial in some circumstances, however I firmly believe and was taught in nursing school that medication is last resort. That being said, I have been very adament about NOT giving my son ADHD medication after doing alot of research on the different meds and their side effects. So, we started him on all natural vitamins, changed his diet some ( kids got to have candy once in a while) and started a more structured routine( the best we can since we both work) and also enrolled him in Sylvan. The teacher says there is a 50% improvement but he is still impulsive and still does not pay attention like he "COULD", again suggesting he needs ADHD meds. I came home in tears and started to do more research online to see what else can I do besides putting him on psych meds?....Then I came accross this site, I just want to cry after reading all these posts. I wonder, could this be his problem, the Singulair?.. About a year ago he use to get up in the middle of the night, 5 out of 7 complaining of nightmares, hearing things at times, headaches, decreased appetite, stomach upset, all AT TIMES, not all the time so I never thought alot about side effects of Singulair. When the school started complaining I did look at side effects of Singulair and seen HYPERACTIVITY and mentioned it to his pediatrician and she shrugged it off saying she never heard of it being a problem. She's a great MD so I listened to her because his asthma was bad when he was younger and it is now under control. But then I think maybe he is outgrowing the asthma. I am afraid to stop Singulair and him have breathing problems again but then I can't help this strong feeling in my heart that says this may have been his problem with everything else all along. We are going to stop the Singulair tonight and see what happens. If anyone else has a child with asthma any suggestions for alternative treatment would be appreciated. I already know what's out there but sometimes it's nice to hear from another parent going through similar situs. Thanks for reading, Bobbie
-- By bobbiejo | Reply | (5) replies | Private Message me