July 26th
2008
3:49 AM
hi,daer777 i like to know the natural product that lower cholesterol.also since you stop the medication any changes or not if you don't mind?I took my father to many neurologist and they test many Parkinson medication and my father did not respond to any medication but he got worsed,yesterday he had another appointment to another neurologist he said if it is not Parkinson disease then must be genetic disorder witch is we never had in our family history and also doctor noticed that many my patient who are using lipitor responding very well with Parkinson medication ,and when i said about lipitor he got mad on me and very rudely said medication never doing this and don't blame medication,so every doctor that i saw never believed us that lipitor or ezetrol (zetia)is that cause.also doctor said if it is the medication then he must be symptom free by now ,he quit ezetrol just three months ago and lipitor 2 years ago.
-- By hasina | Reply | (4) replies | Private Message me
July 5th
2007
1:14 PM
2 weeks on Topamax and really ill with the fact beer tasted like liking metal. So I drank a few liquor drinks for the fourth of July- I only drink probably once every three to four weeks when we get together with friends. Got violently sick after four drinks- throwing up. Never done that before- so I guess soda, alcohol and food are out of my life- Wonder if I can tell my husband NO SEX is a side-effect because it will cause violent bouts of vomitting. Smile- what a trade off- migraines daily or side effects?????? Damned if you do- damned if you don't- but on a brighter note- these are things I can live with unlike cancer, parkinson disease etc. Just wondering if anyone else having marked side effect from drinking alcohol while taking the topamax?
-- By mhj | Reply | (2) replies | Private Message me
April 23th
2006
3:24 PM
I thought this stuff was going to kill me! Sure I could live with the bad taste and the feeling like I was going to hurl, I could even handle the thrush. But then it started to effect my mind. It made me feel so ill. I had confusion, I would get disoriented. Then it got to the point my arms head and neck would have uncontrollable jerky movements. Then it messed with my speech. It was hard to get the words out. While trying to talk I would just start to cry, all the while my arms are flaring. Some thought I must have had a stroke. I looked like I had Parkinson Disease. I took this for about a total of 5 days. The first 2 days were okay, just felt pressure in my head behind my eyes and in my ears. By day three I felt like someone slipped me something bad. That was when the jerks and speech problems started. Once the medication was stopped, it was 72 hours later that the jerking movements stopped and I could speak normally. I was prescribed this for c-diff. The c-diff was a walk in the park compared to what this drug did to me. The doctor says those side effects can happen but it was VERY rare. I guess I was the rare one. So I say it is a VERY bad drug. But it is hard to say if I may have an underline condition that is not known and this drug just brought it to the surface. Either way I would avoid this like drug, that is just my opinion. I now know what hell must be like.
-- By johnna | Reply | Private Message me
November 2th
2008
10:18 PM
I commenced Lipitor 14 years ago at age 47. At that time I was a regular tennis player, walker and generally fit for my age. No problem with Lipitor for the first couple of years until I began to experience hip and low back pain. My GP diagnosed arthritis. Gradually became worse and I started to gather injuries (over stretched ligament in right knee which refused to heal, plantar fasciitis twice) My back pain became far worse, I persevered with tennis believing that exercise would help. I began to "trip" on the carpet and going up stairs (foot drop). I was sent for a CT scan in 2002 which showed spondylolisthesis and root canal stenosisss. On advice from doctor I stopped tennis. Referred to a neurosurgeon who after several months carried out a laminectomy in July 03. Cleared to recommence exercise in December 03 which is when my nightmare commenced. I developed bursitis in one hip, stopped walking until it settled, then excruciating pain in feet, and then bursitis in the other hip and continuing foot pain. I developed rib/back pain, again diagnosed as arthritis even though I felt the pain was muscular. I had one session of aqua aerobics and woke the next morning with plantar fasciitis which continued for 3 months even with doctor, physio and acupuncture treatment. I was then referred to a Spots Medicine Dr who ordered bone scans/x-rays which revealed a stress fracture in my foot. In 2006 I began to notice that my right arm had a tense feeling all the time, I had a loss of dexterity in my right hand which assumed a claw like appearance and my normally neat handwriting became practically illegible. My physio recommended I see a Rheumatologist who said I had "no more arthritis than I would see in any 62 yo", he sent me to a Neurologist who after 5 mins diagnosed Parkinson's Disease. Within 7 weeks of commencing the PD medication I was experiencing Restless Leg Syndrome every night. The neurologist said that my condition had "progressed" and increased the medication - twice. I was then getting RLS DAY AND NIGHT and getting no relief OR SLEEP!!! Finally after 12 months misery my GP suggested that I try coming off Lipitor to see if that was causing my body pain. Within 6 days I felt better, my muscles became less stiff and relax. I went back to my Neurologist who refused to accept my claims, he insists I still have atypical PD (because I do not have tremors). I told him the cure is worse than the complaint and against his advice I weaned myself off PD medication and Lipitor. It was hard going but I NO LONGER SUFFER FROM RLS AND MY DEXTERITY IS SLOWLY IMPROVING. I still have dexterity problems with my right fingers but the tense feeling in my right arm has gone and my "claw" hand is starting to relax My muscles feel bruised all the time. I am still taking my blood pressure tablets and 150mg of Co-Q10 a day. I have been off Lipitor 9 months. It has been a painful journed for the last 8 years and a nightmare for 12 months. My GP has marked my records as "allergy to statins" but says she just doesn't know if I have Parkinson's. I know that I will never take this awful drug again. My cholesterol has skyrocketed but I will have to try and lower it naturally and take the risk. I constantly feel like I have worked too long and hard in the garden, all my muscles are so sore. I really need to know if this damage is permanent and if this drug has caused Parkinson's Disease itself or just PD like symptoms. I guess I will just have to wait and see. I don't think doctor's believe us when we say Lipitor is doing damage to thousands of people. They love it!! When we are aging we are not surprised to get diagnosed with arthritis and this is why we take this medication unwittingly for so long.
-- By kirsty1 | Reply | (4) replies | Private Message me