November 18th
2008
10:34 PM
So happy to find this site. I never noticed My son never had an eye tick until last month, ironically we started giving him Singular on a daily basis about the same time. My son just turned two and is has also been waking up screaming 3 times every night. Have others reported this same problem...also he is on Pulmicort too, have you read that it is linked to Glaucoma and Cataracts? Do you think that this could be causing the tick? Please HELP! I want a parent's opinion before bringing this up to the doctor...they are so quick to jump to more drugs it makes me sick! Thank you! Any other children with eye "ticks" like really quick consecutive blinks?
-- By nhplaydates | Reply | (7) replies | Private Message me
November 26th
2007
5:40 PM
My son is 14 years old and was given two rounds of this drug for an infection (two weeks and one week respectively). Last round in the middle of September. The pain started with the first round and got worse the second time. Real bad. We had him tested for a multitude of diseases and x-rayed the knees - all came back normal. We finally stumbled onto the fact that the joint pain coincided with the drug - WE WERE NEVER WARNED!
Well, he's a heck of an athlete/student/good kid...and has been wrestling since he's 5 years old, has competed nationally and this sport is "his thing." Well, now he's finally in high school and can barely make it through practice - can't go live at all. The pain and stiffness ain't going away even though he's been off it since September!
What in the world can we do to treat this effectively (or t all)? Doctor prescribed anti-inflammatory meds and they did nothing. Physical therapy is doing nothing. Ultrasound treatment on knees is doing nothing.
How long will it last?
Help please anybody with any information - we're disparate.
Prayers are welcome too.
Thanks.
Craig V. (Dustins Dad)
-- By dustinsdad | Reply | (4) replies | Private Message me
September 21th
2007
7:47 AM
I am having horrible hair loss too. I always had thick, helthy hair. Now my pony tail is about half the diameter...I have to twist the hair band 3 times instead of 2 and it still slides off. And I barely have any bangs left at all.
My doctor said it doesn't matter, (in fact, he wouldn't even acknowledge it as a side effect) since my levels are now fine. Easy for HIM to say!!
I'm considering getting the thyroid surgery now, so I can get off methimozole, but I'm afraid what the side effects for the OTHER medicine will be. Since that's permenant, I don't want to take that step too soon...but I also don't want to go bald!
-- By hypergirl | Reply | Private Message me
September 4th
2007
8:18 PM
Hi, I was injected with you guessed it Kenalog 4 months ago for neck and shoulder pain. I now have a dollar sized indent beside my left shoulder blade that is purpish in color and ugly as hell to look at. It has also caused increased shoulder pain, shoulder winging as well as bicep and tricep weakness in addition to shoulder drop. I am so pissed because if I would of been informed that any of this could of been a possibility I would of never of elected to have this done. (And think I actually paid for it) I have spoken to many Neurosurgeon as well as Neurologists and they all seem puzzeled by my outcomes and have scheduled me for an EMG NCS test to try to rule out nerve damage. I have also been told that this could be permenant and could continue to get worse. I am so saddened by everyone's post yet relieved that I am not the only one out there. I was beginning to believe that I was alone. Oh, I almost forgot... I also had my period for 22 days straight which caused me to think that there was a problem and had to go through a series of tests through my OBGYN to rule out potential problems which just ended up leading back to this drug. :(
-- By myssi08 | Reply | Private Message me
May 12th
2007
12:23 PM
My husband was given a sample of this for a month-long bout of bronchitis and we are now thinking it has done permanent damage to his vocal chords. He only used it 5 times, got thrush (yeast infection) in his throat and is still hoarse after a week of being off of it. Does anyone know the history of this drug and has the word "class action lawsuit" crossed anyone's mind besides mine? I am amazed at the way pharmaceutical companies run the healthcare business in this country!
I don't want to go off on a rant here, but are people aware that a large portion of the FDA's operating budget is provided by pharmaceutical manufacturers? This isn't our first experience with this type of thing and I'm about to launch a grassroots campaign to educate the public. Maybe they'll stop believing all the marketing hype.
I'm thinking that the pharmaceutical companies ought to heed the Hippocratic oath - FIRST, DO NO HARM. Wouldn't it be a remarkably different world if they would take all the money they're spending on marketing and use it to lower the price of orphan and AIDS drugs? They keep saying that research is expensive - and advertising on every possible television show, radio and magazines is cheap? Hello? Are we going to be sheep or are we going to be citizens and hold these companies responsible for what they're doing. Thanks for letting me vent. Please contact me if you want to do something about this. And no, I'm not an attorney, but I'm a writer and I think I just found out what my first book is going to be about...
-- By cleocatra | Reply | (9) replies | Private Message me
July 8th
2006
3:37 AM
Do not take Lupron. This drug has given me so many problems. I dont even know where to begin. The side effects are not going away and im worried that i may have permenant damage from this med. Acupunture is the only thing that has helped my endo. Also moxi rolls which is a burning herb. Anything would be better than lupron.
-- By erica680 | Reply | Private Message me
January 25th
2006
2:48 PM
My son of 5 started taking Singulair in fall of 2005. It was a wonder drug in that the use of inhaler ended and we where using the neb it at least once per day. He is a typical boy but after a month of use his aggresion and anger level started to rise. He threw toys, crawled under a table at school and not come out, and cursed his teacher. After other month the aggrssion grew worse. Soon throwing toys was not enough, he started to go after others with hitting, biting, kicking. Today he had to be pulled from school for he destroyed his classroom and outright attached the teacher.
We went to the doctoer a few days back about his increased anger issues only to be told its not normal and he should see a mental health worker. Now today I find this website and wonder why the doctor did not mention this potential side effect as a possible cause.
So he is off the drug as of right now and I am only hoping no perment damage is done and I prey that I get my son back. I will put up with inhalers and the the like and lord help the manufacturer if permenant damage was done.
-- By peggy.weber | Reply | Private Message me
January 23th
2006
12:37 PM
My wife was put on Lithium about 2 years ago for only about 6 months and frankly I saw no improvement or change.
We were assured that any decrease in thyroid activity would only be temporary however despite never having any thyroid problems before she was started on 25 micrograms of thyroxine to compensate for lack of thyroid activity.It is now up to 100 micrograms with no anticipation of any improvement.
Although there seems to be no evidence of it causing permenant damage I wish now that she had never been started on it.
October 19th
2005
8:11 AM
I am a 45 year old female in generally good health. I took Levaquin for 15 days for chronic sinus infection. I was also prescribed prednisone. I felt sick to my stomach, hertburn, bad taste in my mouth, flu like symtoms, headach, leg pain, pain in general from my hip to my toes, foot pain, hand pain, wrist pain, malaise, knee pain. The first 10 days I felt mostly flu like symptoms but when I begain the second five days I immediately felt the muscle and joint pain to the point of not being able to sleep. Levaguin was prescribe for 45 days but after laying awake most of the night trying to figure out why my legs hurt so bad it finally hit me that I had read in the possible side effects that levaquin could cause pain. As painful as it is the flu like symptoms may be more troublesome because all I wanted to do was sleep...but I couldn't and when I did I would have very strange life like dreams....I could not do anything I almost felt like I had a major hangover times 100...When i would move my head it felt like there was a stribe light on in the room and I felt trembling sesations in my head. Do I need to be checked out some way like blood test or something to be sure there is no permenant damage?
-- By emaher | Reply | Private Message me
June 5th
2003
12:37 PM
I'm suffering with severe knee pain since starting to take Yasmin six weeks ago. I'm stopping it from tomorrow and hoping no permenant damage has been caused...
-- By alicat | Reply | Private Message me
Singulair (3) Levaquin (2) Advair HFA (1) Yasmin (1) Lithium Carbonate (1) Lupron (1) Methimazole (1) Kenalog (1)
August 6th
2009
9:47 PM
My son was on singulair for most of his infancy (11 mos- 22 mos old) we took him off of it when I started staying home with him. He was in daycare and was having breathing issues. We would give him the singulair and Zyrtec every morning. He became a very despondent baby. He would spend the ENTIRE day in the rocking chair at the daycare. After months and months of the teachers telling me this we decided it was best I stay home with him. He came off of the singulair and things got so much better for a while, he began to interact with us and others, not fearful anymore, and slept through the night. However other things have grown to be worse, as he has been developing...every day he seems more difficult to deal with. Now, 5, he is angry, fits of tantrums and rage, can't cope with his emotions, he actually kicked me today during one of these fits. He has been peeing in his room when he is sent there because he has been punished for one of these outbursts. What are the long term after effects of Singlair? Has anyone had this experience? Could the singulair have been given to him too early and now caused some sort of permanent nero or psychiatric condition? PLEASE ADVISE!!!! This Mom is really frightened.
-- By nhplaydates | Reply | (6) replies | Private Message me