Personal experiences symptoms and conditions

Wow it's amazing how at this time there is forty seven pages of people making this up! I really think the maker of this drug should be burned at the stake, I still have palpitations after taking this drug for about 8 months . I have been off of this drug for about 8 months now and feel way better then I did while taking it. I have started a diet and exercise plan and now my bp is normally 117 over 70 , I'd say thats pretty good for still being over weight (I have lost forty two pounds so far) I am not taking any meds right now because diet and exercise has worked so far for me . And I went through hell thinking I was dying while taking this med with the palpitations , chest pain , dizziness , fatigue , tingling in my hands and feet , burning sensation in my feet , and depression . Is anyone suing the maker of this drug ? I think we should all get together and get this off the market so nobody else has to go through this !

I decided to use this form of birth control because of convenience and in order to stop my periods. I have been on the shot for about 10 months, and have only had 3 months without a period. For the past 4 months, I have had non stop bleeding, and occasional clotting. I haven't experienced weight gain or hair loss, just absolutely no sex drive. I also noticed that during intercourse, it was extremely painful each time. I am so upset about this birth control, that I am changing to Loestrin. I really wouldn't recommend Depo Provera to anyone because of my personal experiences. However, I know many girls that use the shot and their periods have gone away completely, and have been happy with it.

After I got my IUD removed 2 mos ago, my male obgyn showed no empathy so I changed to a female obgyn and saw her yesterday for an annual checkup. I explained to her what had happened and she gave me the same dumb straight face look - "No, I wasn't aware of weight gain or other side effects from Mirena". I bet you she won't get my co-pay again. Back to the drawing board, searching for someone to believe my misery. Is there anyone out there who has a doctor who believes them????????

I had minor cramping when I first got the Mirena put in. But, it was much milder than when I get period cramps. I didn't have any trouble with it (unless you count extremely light periods as a bad thing) until I did air travel (cross country airplane flights). Now, keep in mind, I travel a fair amount by car & have had zero Mirena issues from sitting in a cramped position for hours in car travel. Flying on the airplane caused really weird lower back cramping that put my out of a lot of activities. It was quite definitely core muscles cramping severely, to the point of pulling my lower back vertebrae & tailbone slightly out of alignment. After 3 weeks of pain, I finally went to a chiropractor & got realigned. This has happened with 2 flights thus far out of 4 (it doesn't seem to happen on short 1 hour or less flights). I have NO idea why this happens. I normally have no issues when flying. The mirena is the only thing that's changed. I can only assume it's the combination of the position when in a plane seat for so long & the mirena. Maybe it's poking one of my fibroids in that position?

Mirena has had zero effect on my PMS. PMS is just as bad as without any BC. My acne is just as bad as it is w/o BC. I guess I need Retin A & Midol. LOL

Things to keep in mind when reading the above: I've never had a child. I've been pregnant once & miscarried. I'm in my early 30s. I'm a light smoker. I have uterine fibroids. I rarely drink. I have lupus. Some of these things may or may not have an effect on what happened to me. So, keep that all in mind.
Also, as with all of these experiences, keep in mind it's personal experiences & we're all unique individuals. I'm keeping my Mirena because this is the only big issue I've had & I don't travel a lot.

I have been on Singulair for nine years and I thank Merck for discovering and manufacturing it. I also thank my doctor for prescribing it to me. I have my life back! I had asthma so bad I was on high dose inhaled steroids and Albuterol. I had a nebulizer on my kitchen table and a drawer full of Albuterol in my refrigerator. Like clock work I would wake up wheezing and gasping for air and have to administer myself a treatment at 4 am every morning. I would try to exercise and I would wheeze and cough. I then went on Singulair and my nebulizer has been in the basement for at least 9 years, I have the drawer back in my refrigerator too. I exercise now and even ran my first race last summer without needing an inhaler. Thank God for Singulair. I am not going to die from my asthma.

There are so few choices to treat asthma and allergies and all the medications have problems like an FDA black box warning for increased death on Salmeterol(I stopped taking that) which is in Advair and emotional disturbances with steroids and increased suicide risk with Zyrtec which is now over the counter.

I do feel sorry for Cody's parents. It must be tragic to lose a child. My heart does go out to them. However looking rationally at this story, there seems to be a whole side missing. The news story did not mention anything about Cody's past history on the news. Did he ever have signs of depression? Was there an interview with his doctor? Was he having problems with friends at school? Was he into any drugs or adolescent games? Teenage boys also have the highest rate of suicide, medicines aside.

With all due respect, I never saw any of Cody’s friends or teachers be interviewed. Maybe this did happen and I missed this but I watched the news cast videos. Could there be more to this story that is purposefully being edited out or just not asked?

I never believe the media fully. They are very irresponsible and inaccurate at times.
If you read the product information of any drug including aspirin you would never want to take it. The truth is that many times the benefits of drugs out weigh the risks. I know I will keep taking my Singulair because I do not want to die of asthma sucking on inhalers like my mother did.

Last week, I was prescribed to take Lasix, along with Klor-Don (potassium supplement) for Congestive Heart Failure. Also Levaquin for pneumonia.

I returned to doctor, to state that the Lasix was not having an effect on my urinary habits at all.

SO, the doctor prescribed 60mg Lasix per day, 30mg Klor-Don per day, with an additional 5mg og Lisinopril per day.

Now, everything I read about Lisinopril, is that it should not be taken with Lasix, or any potassium additive stuff.

Plus all the side symptoms that lead to my first prescriptions, are exactly the side effects of Lisinopril. How in the world would I ever know anything was working?

Also, my BP is 108/81. Doesn't look high to me.

Any thoughts? I watched my Dad wither away after being presented additional prescriptions when ones weren't working. To me, it complicated his problems. I'm not about to get into the same piss*** contest with doctors & prescriptions.

I had the Mirena put in when my son was a year old....i have had it now for over 2 years...i experienced the cramping, bloating, bleeding, etc.....i did not know that i would probably gain weight.....i chose the mirena because i was already 30 years old, a smoker and was previously on birth control for ten+ years before stopping it to conceive my son. I slowly began to gain a few pounds, but always put it off to work, my routine changing, etc. We moved to Alabama 6 months later and I noticed that I kept packing on the weight. I contributed it to the lack of an exercise routine that i could be consistent with. I realized this , so i began getting back into the gym, eating right and drinking my water. Still no weight loss. I have since started school again and gained more weight. Again, i blamed it on the stress of school and trying to take care of a three year old. But, after a while, I started to question whether it is really those things, or is it the Mirena. No Doctor has ever suggested that it could be the Mirena. My internal medicine doctor even noticed the weight gain and she doesn't even mention the possibility of it being from the IUD. I know that I am not making this up.....something is not right. NO matter what i do, the weight will not come off......and now, because of the extra weight, i have blood pressure problems. I am 5'9 and weigh 185 pounds.....I have only weighed that one time in my life, and that is when i was pregnant with my son.....I am so discouraged , depressed and just totally give out......I hate the way I look and feel. I used to be tall and slender with a few curves, but GEEES.....now i just have curves and alot of them!!! I think that i have decided to get the Mirena removed , also......and i will just have to stay hopeful that the weight will come off, eventually. Any comments, words of encouragement , personal experiences would be appreciated.....thanks .....lmc31

ANY ONE COMING TO THIS WEBSITE SHOULD READ AS MUCH INFO AS YOU CAN ON WOMENS PERSONAL EXPERIENCES WITH THIS HELL PILL, I CAN ASSURE YOU THAT SPOTTING WILL BE THE LEAST OF ANYONES PROBLEMS.
I TOO WAS ON THIS PILL FOR 2 YEARS UNTILL MY LIFE WAS ALMOST DESTROYED.
PLEASE GET OFF THIS PILL, I AM AWARE OF MANY DOCTORS THAT ARE REFUSING TO PRESCRIBE THIS PILL TO WOMEN BECAUSE THEY ARE AWARE OF THE DAMAGE IT DOES.
IF YOU HAVE MADE IT TO THIS SITE YOU ARE ONE STEP CLOSER TO RELIZING THAT THIS PILL IS HELL
GET OFF OF IT NOW, THE MAKERS OF THIS PILL DONT CARE ITS ALL ABOUT THE MONEYYYYYYYYYYYY.
GET OFF THIS PILL IMMEDIATELY!!!!!!!!!!!!!!!!!!!!!!!!!!!!!1

i think what we need to understand is that all of the posts provide information. maybe its not the information you want to hear but all this information will maybe help us come up with some answers and although one person might feel like certain posts are unnecessary others might find it valuable. i understand its frustrating what we are all going thru, but if you thought you were going to find an answer here you wont, what you will find is thousands of women on yasmin for months or years who have all delveloped serious side effects while on the yasmin, coming off the yasmin and after yasmin even months later. if you are new to this site please take the time to read the posts skip over the ones that dont give you the information your looking for and realize you are not alone and even though the doctors tell you its not the yasmin over 2000 users tend to disagree. we do not have the answers as to why this hell pill put our bodies through such havoc we just are here to communicate about our personal experiences and update others on any progress or any tips as we continue to become more knowledable and refuse to give up one day we might have answers.

Mon, 15 Jan 2007 17:03:10 -0600 by Guest, #36378

This is just plain rude and talk about petty. Please, raise your standards here and remember what this site is about for God's sake. I think that you should remember that when post things like this here, new folks coming in are likely completely confused or think that someone such as yourself has just plain lost it.

If you want to be supportive of other women like yourself, as you are clearly in a rant, than exercise less judgement and some kindness for goodness sakes. Everyone here is trying to be helpful. And I would definately say that your comments are about the least refined, helpful or thoughtful in months of coming to this site. If anyone is trying to get some help, it certainly helps for all of us to hear how long someone has been on, off or trying to come off. There is nothing "petty" about that and many women that do find it helpful.

I have no idea who you are, where you come from or what your "hell" has been like on yasmin but it certainly sounds like it is still taking its toll if the way you are coming across says anything. While personal experiences are helpful, so is information. I also don't even know who all the folks are who have been posting but I discovered that alot of what is there-highlights a good majority of the symptoms I experience and many of the other women here have.

While being more "touched" may help you, for others, havinng "information" to apply may be just as valuable to others. Ya follow?

Sarah, I think that making your own site is helpful and am consistently impressed by your level of maturity and kindness and wanting to reach out and help others.

Whoever this person is that made this post, I certainly hope that you get the help and support that you need as you sound rather crude and out of control. Good luck to you.

Its really so disappointing when women do this kind of thing with eachother. Really. Keep your chin up will you. For all of us, you set an example.

i think posting rude comments that can come across as personal attacks would make new comers confused immediately upon entering this site who ever is makeing such a big deal about so called personal chat is way off by this person concentrating so hard on this proves how bitchy this pill can make you also, so please stop the pety attacks talk about your symptoms, progress, and how long you were on how long off how old you are and whatever info you think is helpful i have been coming here since october and everyones posts have helped me if i hade a question everyone answered i think sarah did a good thing to create the forum for people to see YASMIN SURVIVORS is enough to make them think twice or do some more researching before continuing on with this pill so lighten up if the guest who is so appauled with the personal chat is coping websites and posting them here i hardly think that is helpful its not a personal experience. i have read all that stuff on the internet i was more touched from reading personal experiences. so please i dont want to here anymore bitchin about anyone on here and sarah god bless dont listen come here and the new site and post everyday the link dont let one or 2 peoples stupid comments let you feel like you did anything wrong you did something good.
f.h

hi guest 36372,
i set up the new forum precicely so that people could chat and carry on personal correspondance and leave this site for posting factual information and personal stories as well as seekng advice as i agree that the site has become very hard to find answers from if you are a newcomer. i have been "advertising" daily to keep the link where regular visitors and newcomers can see it because it was only set up on friday and many people are not aware of it yet,as time goes on it will not be necessary to post the link. we have quite a few members already. i am sorry if this has offended you in any way but a lot of ladies on here just need some support and understanding and maybe just someone else that understands how they are feeling to chat too. i do not make any money from the new site,it is not a business it is just something i wanted to do to help people who want help and understanding. i am glad that the information you have found in the guests long postings have helped you,that is precisely the point of this site,if you want to chat about what you have discovered then please come to the new site. i won't post the link as it is on this page already.
I thought that a new site was needed to share personal experiences instead of clogging up this page,kind of like a yasmin support group...as the TV advert says it's good to talk!
once again,i wish you all the best,if you find out anything that could help all the other ladies please post it here and the new forum,we should all be doing as much as we can to help each other get through this nightmare.
Oh and in answer to your question about the chest pain,i get that too,especially before my period,sometimes it goes into my shoulder too and i feltl i am having a heart attack! my pulse races for a while then calms down but skips a few beats here and there,i had an ecg done and was told everything was fine,it was just anxiety,but my doctor would say that as he does not believe that yasmin caused any of my problems anyway. There are lots of reasons why your heart may feel this way but no definative answers,it is all if's but's and maybe's. it could be to do with dehydration,could be to do with lack of magnesium or it could be a surge or lack of the correct hormone peaking at the correct time. the truth is only time will tell,hopefully it will start to improve soon.
best wishes.
sarah

Sorry, who does these weird posts?

As someone a few days ago felt disturbed by our "personal chats" here, I feel, that THIS now is more disturbing, because it doesn't show personal experiences but only any copies out of the internet, written by whoever.

I think it would be enough to post the links to the sites where women can find those reports. It's gotten very difficult to search for the posts of women who perhaps are really in need of an advice of someone between all that "leaflet"-stuff.

No harm intended, but I think this had to be accosted...

At the end of Aug. I was diagnosed with an upper respiratory infection, in time it went away. About a week later I found out I had mono and spent two weeks resting, and not being able to exercise at all. Yesterday was the official end of my mono, and I was glad because I should be feeling better, but I had been coughing a ridiculous amount, so once again I visited my doctor. I was told I managed to get an upper respiratory infection again and she decided to put me in BIAXIN XL 500 mg. Last night I had nightmares and woke-up an hour after falling asleep feeling fully rested, but paranoid about it being dark in my room , after this weird experience I managed to fall back asleep. I woke-up in the morning feeling very depressed, but figured it would go away and was just due to a nightmare I had. So I got ready for school, and the day just got worse, I was extremely irritable. Nothing went wrong, I was even giving some surprisingly good news, but was still very depressed. I got home and just literally had a nervous break down. I cried for about an hour straight and just could not stand anything in my life. It was the worst I have ever felt. I finally got it together, and decided to come online and check personal experiences because my doctor had told me it was impossible one dose could do this to me. But, others have gone through what I have just experienced and I have realized it must have been the medicine, because I am generally and very cheerful purpose. Needless to say I will not be finishing my prescribed dosages.

Ladies(and some gentlemen!):

I'm sure many of you have seen my posts describing my personal experiences with YASMIN, so I won't fo through them all again. Sufice it to say, mine, like many of yours, has been a totally unpleasant and nervewracking experience. I am writing today to encourage ANY of you who have not to PLEASE call Berlex Labs and report your experiences with Yasmin. I spoke with a rep today and was told that until a certain number of complaints come in(she did not give me that number), then they would take no action. So, we need to GET ON THE PHONE! I made my report about 2 months ago and it was arduous, to say the least, to reach someone because of their corporate phone system. The person I spoke with this morning told me the reporting system has been STREAMLINED apparently due to the high volume of complaint calls they've been receiving. So, please, PICK UP THE PHONE AND CALL!

The number is 1-888-berlex4 . The prompt will then direct you to "report adverse event".

Also, I found it interesting that this person told me there was no way they could provide me assistance because I am no longer taking YASMIN. I INSISTED that the MAJORITY of my problems started after I stopped, which is why she encouraged me to get all of you on the phone. With enough complaints, including those with adverse effects AFTER coming off YASMIN, they will eventually be able to do something, if only to change the labeling.

So, I'm on a MISSION; how about YOU?

Rita
:-)

matt,
don't mean to be rude but, we don't want someone pointing out textbook facts, we need PERSONAL experiences and advice about prednisone. People can "research" all they want to, but if you don't go through it then it doesn't really matter.

Ultracet, if taken for short periods of time and if regulated by a Dr. is alright. I warn readers of potential dependency on this drug. For those of you who enjoy the energy or euphoric effects of this drug, the long term effects are negative. Personal experiences include: irratibility, sleeplessness, loss of sex drive, constant urge to take another pill, disregard of family concerns, etc.. Once you become accustomed to the way this drug makes you feel, normal doesn't feel so great anymore and the quick fix is another pill and another pill. If you have reached this level of dependency, please, for the sake of your loved once, stop.

Neurontin for IBS:
If "IBS" means "irritable Bowel Syndrome" I have some personal experiences to pass on --
I was already a userid of Neurontin for fibromyalgia -- a condition in which the muscles of the body ache like having the flu all the time -- and the Neurontin wasn't helping a bit with the gut-wrenching cramps and diarrea of IBS.
My doctor prescribed Lomotil --which I DO get in a generic called Lonox -- and only one pill at a time stops the IBS problems, even though at first I was up to 4 at a time (the instructions say to take one pill after every instance of cramps and loose bowels.)
Why don't you ask your doc about this, instead of upping the dose of Neurontin (which hasn't helped my IBS at all). Best wishes -- JanK