Personality symptoms and conditions

I was literally in tears when I found this site and read all of your posts. It was as if I was reading something I HAD WRITTEN. Having just returned from getting a CT scan of my head, I started researching "causes of severe headaches not related to migraines" and lo and behold this site popped up in my search. What caught my attention was the word "Mirena". Up until today I had never even considered that all of the issues I have been having since the birth of my daughter in August 2008, were in any way related to Mirena. When my daughter was about 2 months old (after my 8 week check up and insertion of the implant) I became extremely moody, sad, social anxiety kicked in, I cried for no reason, had no desire to talk to anyone, not even my husband - VERY unlike my personality. After talking to my doctor it was determined I had post partum depression so I was prescribed zoloft. Didn't work. Was still irritable and lethargic but maternity leave was up so I went back to work. I was exhausted, couldn't process my thoughts, was constantly dizzy and had blurred vision and it was all attributed to the "baby schedule (nightly feedings, no solid sleep, adjusting to schedule, etc.). My mood swings were out of control and it got to the point that I even through a knive (albeit a butter knife) at my husband. I began seeing a psychiatrist who determined I had mild bipolar disorder so he put me on medication for that. It has helped some but still doesn't control my crying spells or occasional outbursts. Recently I was so dizzy that I saw my ENT doctor who said I had vertigo. I was prescribed something for that. Still, I am dizzy and feel off balance. Most recently, I have had severe, severe, severe headaches and though there is a great possibility it is a viral issue, I was ordered to have blood drawn and to obtain a CT scan. Nothing much revealed so we set an appointment to see an neurologist next week. So, because of the worry over it, I started doing an internet search and her I am. Reading these posts brought on an overwhelming sadness because my poor family has had to endure my wrath for past 12 months. I am so angry that I didn't see this sooner and moreso that their !@#@#$% side effects didn't list ANY OF THESE discussed here. Additionally, my hair has been falling out in clumps and I can't seem to lose weight despite my 1500 calorie diet and exercise.
I made an appointment TODAY to have it removed. If I could yank it out myself I would. Thank you all for your posts. You may have just saved my marriage and my life.

I stared Topamax about a month ago and at first I was completely out of it. I couldn't remember anything to save my life, my speech was slurred and my brain was just in a fog...and I'm only 25. After about 2wks that eventually went away, however, I still cannot drink carbonated drinks, that taste flat and have a tangy taste to them as well, its gross. The one side effect that really bothers me about this medication as well is that I'm always nauseous. I haven't weighed myself lately but I definitely have lost weight because I never want to eat anything. The nausea seems to be more of an issue than the migraines. I was getting them about 3-4 times a week, now I get them about 1-2 times a week. By week 4 on the medication I started to break out on my face/chest/back really bad too, and I haven''t had acne since I was a teenager. The other odd thing is I feel like I've constantly had my period while on this medication too. Has anyone had any of these side effects as well? It's only been a month so I figure I will try a little bit longer and see if it helps or if I have to go up a little bit more in dosage if it helps but at this rate I'm thinking I may just need to try a different medication. The other bad thing is that I have become extremely agitated lately, which I'm sure my poor boyfriend can agree with because he gets the worst of it. I feel like my personality definitely has changed on this med...

I'm 24 and was switched from Yaz to Loestrin. My doctor indicated that this medication was around for awhile and would be similar enough to Yaz while being different enough to stop my spotting. Within the first few weeks, I noticed myself becoming dazzed and disoriented - like in the middle of the mall, I would forget where I was or what I was doing there, though only for a split second, and I forgot to take basic turns while driving to a familiar place and this NEVER happens. I also noticed immediate 5-10 lb weight gain, though I was eating healthier and exercising the same. And somehow I just did not want to be social at all (which is not like me). All of this freaked me out so I quickly got off.

After after a few months on topamax I went on lexapro for my mood change. I lost weight, had the metallic taste, loss of words , stumbling and more. I have weaned off because I could not stand the side effects. I still have migraines frequently. I truly believe the topamax has permanently changed my personality. I cannot get off the lexapro. Also I believe I have some kind of kidney problem left from it. Is all this possible?

I am 22, I started using the NuvaRing about 4 months ago. I took it out and I am not putting it back in. I HAD NO SEX DRIVE!!!! I also had really bad mood swings and got depressed really easily, which is not my personality at all. Especially the first couple days after I put it in I would be just crazy. I also had a lot of burning after sex and I could not keep it in to have sex because it hurt so bad. My doctor said most people can't feel it during sex, but for me it hurt. My biggest complaint is the total and complete loss of sex drive. I can't explain it. I have read other people's posts on here and I am glad to find out that it's not just me and it's not just all in my head.

after reading all of these posts it has made me feel ten times better. I have also had almost every symptom listed. I started taking this pill four months ago for the first time and for almost the entire first month I had spotting then when it was time for me to get my period it never came at all, although I did have cramping throughout. I have never been a very emotional person and since being on this pill I have cried almost every day and has had almost no patience for anything. Recently I have started having terrible nausea if I drink any alcohol at all. I have also had bloating and upper abdominal pain. My boyfriend has noticed a complete change in my personality since I have been on this pill. Although he is completely supportive and knows that it is just all the hormones I have realized that it is not worth feeling like this and I am going to have to change pills. I am constantly paranoid that I am pregnant because I never get my period and if I do it is so light I forget I even have it. If anyone has switched and has any recommendations for a better method please let me know.

This website is a joke! After I had my Mirena inserted 4 months ago I started reading on the internet about possible side effects. I was furious with myself that I hadn't Read up on this before the appointment. There were so many horrible reviews involving hair loss, weight gain, acne, and mood swings! I was so scared and actually thought about removing the Mirena that week. I then found multiple reviews on websites not owned and operated by other drug companies that are trying to scare people in order to prevent the sale and use of the Mirena and the side effects listed here were a 180 degree difference. I have not experienced any weight gain, in fact, I recently was able to shed 5 pounds from picking up running again (so it is possible to LOSE weight on the Mirena as well). I have had zero hair loss, have not had a pimple anywhere or any random hair growth. My live in boyfriend and I have discussed if we've noticed any mood swings or changes and my mood which is usually optimistic and positive has been the same since I had the Mirena inserted. My periods are much lighter and although they can last an extra day or two more than what I was used to, they are light and I have not had any cramping. I'm writing this review not because I absolutely love the Mirena, I think it's a fine form of BC but who LOVES their BC, isn't it all kind of a pain. The Mirena is by far the most convenient form of birth control and I don't worry at all about missing a day and the chance of getting pregnant. I'm writing this review because I encourage everyone to talk more with their doctors about the side effects and look around on the internet for REAL websites.

My son has been on singulair for 4 months now to control his asthma. It has done wonders in doing what it was intended to do, however, he's experiencing all of the side effects that the other parents are listing on this site. I threw his singulair in the trash a few nights ago after my son had a complete emotional melt down; which I could easily see he had absolutely no control over. I knew the drugs were changing his personality a bit, but I thought it was just the price we had to pay to keep him out of the hospital. My gut told me never to give him the meds because I had heard about the suicidal tendencies associated with the drug, I just knew I had to watch my son closely (plus he's only 3). I have 3 boys, and the one with asthma is my mild mannered, never gets in trouble, as close to perfect as a child can be. He's been saying "poop" and "pee" uncontrollably along with aggressive behavior toward his brothers and he would cry for no reason at all. His sleep patterns had changed as well, which I now know are due to nightmares - I even found him hiding under his bed a couple of times. I do not know why this drug is approved for children, but after reading the other stories I realize this seems to be the standard instead of the exception. I hope they pull this drug off the market before any more kids get hurt. I feel like I have poisoned my child - I will definitely be spreading the word on this. Anxiously awaiting for this medicine to leave my sons body so I can have my sweet little boy back.

I got the Mirena inserted when I was 19, had no children, but had had awful experiences on the Pill... I had tried a number of Pills, including Yasmin (became depressed and moody), Loette (spotting), Levlen ED (Crazy moods and insanely tender breasts)... etc etc.
When I am not on the Pill I am a fun loving, easy going girl with my head-screwed on, but when on the Pill I become so unreasonable and emotional.
After having Mirena inserted (so painful as I hadn't had children), I had bleeding for 3 months, cramping and bloating etc... BUT - I felt WONDERFUL for the 4 years following. NO moods, no cramps, my periods stopped completely after about 6 months, no other side effects at all.
I had to have it removed recently as I developed an Ovarian Cyst the size of a lemon and got a UTI that developed into pelvic inflammation.
I had a month with no hormonal contraception, then tried the NuvaRing (Moody and incredibly sore breasts), had another month off contraception and now im trying Yaz. It is indicated for PMDD, but I feel crazy, emotional, irrational and unreasonable on it.
I have no idea where to go from here. Mirena really suited me, but I cant have another one inserted because iv had the Inflammation. I cant stay on the Pill... I hate myself, I am a different person on the Pill.

This is my second pack of Loestrin 24, and I am not sure if I like it..Last month was very light spotting, but not a TRUE period, and this month I didn't even get my period. I was on ortho low before, and my period was light as it is. My gyno recommended that I be put on Loestrin, as I was having a lot of stomach problems. NOW, I'm not even getting my period. Should I be worried? Reading everyones posts makes me feel a little better that we are sharing similar symptoms. I am cramping, and I feel like my period should be here, but it's not!

My son was put onto 4mg Singulair when he was three years old. He is now six years old. For the past three years he has been a very quiet child, to the point that people commented on how shy and withdrawn he was. He never wanted to go anywhere or do anything. His favorite activity was lying on the couch watching tv. He was always thirsty, frequently went to the toilet,often complained of a sore stomach & had several bowel movements every day, did not sleep well at night, was often grumpy, could not concentrate for very long, was frequently ill with cold-like symptoms and did not really like you to touch/hug him. At the beginning of the year he was diagnosed by an occupational therapist as having low muscle tone. In March of this year, his pediatrician increased his singulair to 5mg. He began having terrible pains in his legs, to the point that he would cry and be unable to walk to the toilet at night. I took him to my GP who did every blood test under the sun and x rays of his pelvis and legs. He could find nothing wrong. The only thing that had changed was the increase in Singulair. I had a look on the internet and found this website. I immediately decreased his dose to 1/2 a tablet for a week and then 1/4 tablet for a week before taking him completely off it. Within a few days our whole family and his teacher and therapist noticed a huge change in his personality! He talks all the time now, he laughs a lot, he loves playing outside and has lots of energy. He teacher says he is much more receptive at school. His occupational therapist says his muscle tone has improved. He has not had one single leg pain since coming off the medication. He is sleeping well at night, his stomach is never sore and he has not been sick at all. Not even one little sniffle!! Best of all he is a normal, affectionate little boy. I feel very angry with the manufacturers of Singulair and with his pediatrician, it feels as though my son has lost three years of being a child. He felt terrible all the time and I had no idea! I have told everyone I know who has a child on singulair to look at the side effects.

Hi. Im a nurse who was put in Topamax for mood stabilization in January of this year. Tapered up from 25 mg a night and now am on 200 mg a night. I have lost ZERO pounds although I have no appetite and cant stand the taste of a soda. I just wanted to share my nightmare. I have not had any tingling or numbness, which is a main side effect.

I do have a terrible metallic taste in my mouth and my mouth never feels clean. YUCK. Sodas flat. My personality is flat.. I am exhausted. My friends say the person they knew is gone, my appetite is gone.

My back hurts all the time like it's very tight in the kidney region....I cant spell, I cant remember yesterday, I sleep all the time when Im not working...I drop things, I don't remember what I was doing 10 minutes ago, I feel like I am on the outside of my body looking in.

My vision is blurred somewhat at times.

I work for a neuro-psychiatrist. I have decided to taper myself down. I don't think it has done anything but made me so flat I am not here anymore. Who wants that? Looking back, I was not in need of mood stabilization but a vacation.

The only thing it has helped me with is it has stopped the desire for Klonopin which is normal for Topamax. It works on the receptors in your brain that make you crave benzo's. I took my Klonopin as prescribed.

Im thinking I want my old self back. I miss laughter. :(

My 13 year old daughter has been taking singulair for 8 months, and started suffering from severe depression 6 months ago. We intervened and prevented her from committing suicide, but barely. We never correlated it with the Singulair until a visit with her pediatrician today. I am so sad I want to cry. I am the one that suggested to her asthma specialist that she be put on Singulair. I am so fortunate her pediatrician caught this. We couldn't figure out why her personality suddenly changed.

My wife has been on it and Seroquel and Lamictal for about 2 years. The longest on Geodon. Up to 80MG per day and as low as 20. She started having muscle cramps in her legs after about 2 weeks on 80 mg. Doc put her on Benztropine to counter act the cramps. Then Seroquel at night. (she had bad psychosis). Then later the Psychiatrist would not treat her and we switched to another doc. She was on Seroquel. He increased it to 600 mg at night. Then her throat felt like it was locking up at 2am She quit Seroquel immediately. Then back to 20 mg Geodon... Zyprexa for a trial.. 2 doses and she had a seizure. Invega... akathesia and heart rate up after one dose.
Now she has been off of Geodon for 5 weeks and has SEVERE gi upset. She is having ERCP and Pancrea ultrasound tomorrow. But I think it is ALL gi upset caused by Geodon. She took ONE 20 mg Geodon Saturday and EVERYTHING went away. GI normal... but I will NOT let her stay on this drug. I WANT MY WIFE BACK! It has destroyed her personality. HOW LONG WILL IT TAKE? Is the permanent?

My son was on singular about 4 years ago and i thought i noticed irratability, lack of interest and depression, but he was only 4 1/2 at that time and i couldn't tell. It did relieve his allergy symptoms. We took him off at that time. Now, again put him back on it this past year (he is now 9 years old) and i see again a lack of interest, depression, mood swings, irritability and his teacher just told us that as this year has increased he has changed in his school work as well. As of last night we will be taking him off of this medication for good and will continue to manage his seasonal allergies with an emergency inhaler and zyrtec/claritin type meds. He is sluggish on the baseball field and not as alert (he unusually a natural athlete!) and he seems depressed and withdrawn - which is not his personality. I thought maybe because he was getting older he was changing but now I realize it is again the medication. It is okay for a week or two to get through a cold or high allergy week, but long term I will not have him on this any longer and wish that Merck would make the long term effects clearer to the doctors, patients and public in general. We are fortunate that his allergy symptoms are not as severe as other children and we can go lightly on medications.

I've had similar experiences to many of the other posters. I've been on some form of birth control since I was in my teens. I've always had acne and was very concerned about weight gain, so I switched between the ortho's quite a bit. I used to take a shot (Lunelle) that was perfect, but its been discontinued. Anyway, about 3-4 years ago my doctor put me on Yasmin. I thought it was great! Skin cleared up, moderate weight fluxuation, which I attributed to inconsistent diet/exercise habits. I was so happy with it I pushed it on my girlfriends when they were looking for a pill.

But then about a year ago, it all started to change. I became WAY emotional out of the blue. I would cry over the smallest things. I had suicidal thoughts, totally lethargic and "hazy." My sex drive reduced to 0 - I love my BF, but we stopped having sex for nearly 6-8 months because I had no drive and would pick fights for NO REASON. Awful.

In March I got busy at work and stopped taking it by accident. I felt so good, so NORMAL, that I just discontinued use. The first month was great. My personality re-adjusted over night, I have more energy, I'm genuinely happy, my sex drive is through the roof. But now I am 1.5 weeks late on my second period since quitting. I am bloated and have noticed water weight gain. I hope that it can be managed with strict diet, exercise and anti-bloat pills. I am breaking out, but I expected that. It's bad, but I am hoping that Pro-Active will keep it at bay until my body regulates. But again, my mood is so much better that it seems like a small price to pay. So far anyway. I have not noticed the hair effects yet - I have always had very think, long hair. For those of you experiencing that side effect, there are vitamins you can take that may help you get through it. Ask your salon.

If anyone has any advice, or can share what happened after the 2 month mark, that would be great. I'm bracing for some tough moments.

I was on percocet for 8-mos. for chronic joint and back pain. The Doctors never found out what the cause was and piled on the percocet. I was in heaven. It made my pain go away and I felt like the old me, happy and super friendly. I laugh now because I did not know at the time that I was on opiates. One day I was explosively mad at some issue with the kids and my wife gently whispered, "...hon, maybe it is the pills that are making you this way.". I was floored. Mt beautiful wife lovingly stripped me of all doubt that I was addicted, and that they were changing my personality. I stopped "Cold Turkey" right at that instant. It was horrible. I was in such pain! Every fiber of my being wanted to ease the pain just a bit. A week into my withdrawals (perfectly described elsewhere), the pain was gone. I remember the original pain being much worse....I was wrong. It turns out that when I got honest with myself, I could live with the pain. It was/is far better than needing to "Dose-up" before getting out of bed. I still have chronic pain, but I lost the monkey.

I took Loestrin 24 for 5 months before I saw any side effects. I’ve always been a cheerful, healthy person. I’m healthy. I run track for my college. Everything was going great until for some reason I just didn’t want to see anyone anymore. I was constantly tired and lazy. My sexual drive became zero and I would fight with my boyfriend for no apparent reason. It was terrifying. Almost two weeks ago, I had a panic attack for the first time in my life. I thought I was having a heart attack. My left arm, chest, and back hurt. I couldn’t sleep. I had heartburn. So, I decided to go home and talk to my parents who comforted me. They also saw a change in my personality. My mother and I wouldn’t argue anymore. She would just say something and I would cry. I was depressed and kept on having anxiety attacks. At first I thought it was from caffeine but when the symptoms still persisted, I looked toward the birth control. I completely stopped it last Wednesday. Now, everyday is an improvement. I am much happier than I was. I felt a difference around 2 days after stopping the pill. Never take this pill. It’s terrible and no one should feel the way I have in these past two weeks.

Last Tuesday, my son was prescribed Singulair by our pediatrician. He was also prescribed Pulmicort by nebulizer at the same time. Within a couple of days, I was noticing a dramatic change in his personality. He's only 21 months old and normally a very happy, lovable, easygoing little boy. He did a complete 360. By Friday, I had to take a day off from work, as I was too scared to send him to daycare. He took his last Singulair chewable tablet on Friday night. Saturday was his worst day by far. I was in shock by his behavior. He was extremely aggressive, punching and slapping anyone who came near him, he was throwing things, throwing himself into walls, etc, just completely out of control. I contemplated even taking him to the hospital, but then started doing some research online. I had my mother contact a pharmacist whom we trust, who advised for us to stop the Singulair, as if he was having any side effect, it would more than likely be from that. On Sunday, I started to see some changes in him. Yesterday he was getting back to normal. Today, he's that much better. We actually went back to the pediatrician this morning and I'm actually thinking of filing a formal complaint against the dr. as he basically swore up and down that his side effects weren't from the Singulair. Well as a parent, does anyone really think I'd want to put my child thru this?? It may be different if he had behavioral issues prior to this, but this came completely from left field. I am beyond upset right now, pissed off that this drug can be on the market. How many children have to be affected??? This is very scary to me. My son was only on Singulair 4 days, and I feel guilty and angry that he had to go through even that short period of time on the drug. And then to have a pediatrician basically discount me and say that it has nothing to do with singulair is a complete slap in the face! I won't stop speaking out against this drug and hopefully it will inform other parents of these harmful consequences!!!!

Ok so...I started taking Loestrin 24 almost a year ago and I can't really complain too much. I've had a few pregnancy scares because of missed periods but they were just that- missed periods. And there's nothing wrong missing a period or two imo :D
About two weeks ago I ran out and couldn't refill so I neglected to take any pills for a week, figuring I would just pick back up when I could. I've since started taking them regularly again but in those two weeks my personality changed sooo much. In an attempt to describe myself I'd say I was...confused and depressed, for no real reason. My stomach was so messed up I don't even want to share the details. And the strangest thing... I've noticed two VERY SMALL spots (one on my upper thigh and one on my butt) that are slightly red and drier than the skin around it. I'm positive it's not an STD but I'm concerned nonetheless.
In conclusion, I'm gonna take my pills regularly from now on.

But seriously if anyone else has gotten weird small spots of dry skin, plz respond cause it's definitely worrying me a little.

I used Tri-Sprintec for three years for my skin. In those three years I didn't *notice* a change in my body or personality other than the fact that my boobs went up 2 sizes and I gained some weight. However, after I QUIT using this medication, I realized that my mind had not been my own for the three years I took it.

I quit in November 2008, and instantly lost 15 pounds and 2 boob sizes. I also came to the realization that in the three years I was on this medication, I was an emotional wall with no ambition and no sex drive (which sucks when you are (19-21 years old).

Now that I have been off it for almost 6 months, I haven't had a period in nearly 4 (going to the doctor next week) and I cannot focus at all. I literally cannot sit down and focus on a school assignment.

I used to write every day before I started Tri-Sprintec, and while I was on it I sort of lost that ability to express anything through words, so I started doing film in school to show what I couldn't tell. Now that I am no longer on the medicine I realize that it is the medicine that made me unable to write. It really screwed with my mind. I can write again! But I am so upset that I missed out on three years of it, because those were very crucial years.

I feel like I was on pause for three years. Does that make sense? Anyone have anything similar?

- NBM

My son is almost 3 and was on Singulair for about a year and a half. We adopted him at 6 months old and for the first year he had pneumonia nearly every other month. The doctor suspected asthma and put him on nebulizer treatments and as well as Flovent and albuterol through an aerochamber. Not long after that he added Singulair.

I remember as a baby how calm my son was but as he grew his personality changed. I chalked it up to the terrible twos - until I found this website. After reading all of the posts and talking to a friend whose son had taken it for a short time, we IMMEDIATELY took our son off of Singulair. That was 2 weeks ago.

This is a common thread, but the change in him is nothing short of dramatic. He is happier, says 'no' A LOT less, gets along with our 2 year old daughter much better, sleeps better at night and generally does not have the 'meltdowns' he used to have several times a day. It is AMAZING!! He did have some coughing within a few days of going off of Singulair but we also have him on Zyrtec along with his asthma medications and the cough went away.

It's obvious what this drug is doing to children....if you have any doubts talk to your child's doctor but I for one will NEVER use this drug again and will tell everyone I know!

I just wanted to post an update.

I took my son off singulair over a year ago. He was on since he was 2 yrs old and had started with chronic headaches at about 10 yrs old. He also had tantrums(I don't know how else to describe it), was upset and sad and basically disliked himself. He cried all the time. I had always thought it was just him. These symptom had come on slowly over the years.

The first week off this med, it was like he was freaking out and everything was 100x worse. But the headaches almost immediately disappeared.

Other parents were wondering how long it took for his personality to change.or if the kids would remain that way.

It took quite a long time. It was worse for weeks after we took him off. Then it slowly started to improve.

In the last 6-8 months, it's like living with a different child. There's no crying, he's happy, there's no tantrums anymore. Gets a headache maybe once a month instead of daily.

He still has allergies, he still has asthma. But for the first time in years he seems normal. I love that word, normal.

i am really glad i found this site, and got to really understand what may be my problem. its the SINGULAIR, i really believe. i will share my story so no one has to go through what i have been going through. (i just stopped my medicine a day or two ago, so i will repost and see if i start seeing changes in my behavior) well first off i am 19, and i started taking singulair when i was a senior in high school, so about 2 years ago. i didn't see any noticeable changes for awhile, except for probably a year now, a little more or a little less. for this whole time, i have not been sleeping, i wake up 3-4 times a night, fully awake and can never fall back asleep for hours. its almost like my body tries shutting down, but my brain never does, i have the craziest dreams, most of them are me suffocating or not getting enough air, which are really scary. I have been having really bad anxiety, panic attacks, basically i have been just feeling like i am going to die every second of the day. the feeling of being trapt inside my own body. it seems like every month it just gets worse and worse. i cant focus, i don't go to school, i don't work, and i believe its from the side effects of this medicine. i also always feel so tired, and so weak, i cant even look through a clothes rack without my arm aching. i have been having a hard time breathing, which is odd seeing its supposed to help me breathe, i have been sick at least once a month, through this whole time i have been going to my Dr. at least twice a month or more, telling her my symptoms, i even went in their one day crying i was so scared. and she just kept telling me, its probably all in your head, this, that and the other. she even put me on probably 10 different medicines trying to see which one would help. and of course none of them helped anything. I started thinking, and feeling like i was going crazy, what was wrong with me? i wondered constantly. For a couple months now, i figured i had to take it into my own hands to figure out what was wrong, seeing this Dr. doesn't seem to understand me. I looked up every disease or problem imaginable, and had blood tests done, but every thing came back normal. i didn't understand what was going on, every month i just feel worse and worse, lately i have been telling my mom i just want to die, that i cant keep living my life this way, of course i would not do this for the fact that i couldn't do that to my mom or my little sister, or anyone, but it feels like it would be easier then dealing with everything i have been. along with everything else i was/am feeling, i also feel a lot of hate toward myself, i feel like i am not good at anything, and i feel very ugly, sometime i don't even want to leave my house, because i just feel disgusting. Finally, a couple days ago, my little sister which is 10 and really smart i may add, was watching TV and they happened to have a commercial for SINGULAIR. she told me that everything i have been saying that was wrong with me (she hears me complaining a lot about all my problems to my mom) were all the side effects from SINGULAIR. of course i wanted to know more about this even though i have taken this medicine for awhile without any of these problems, i started researching and realized that all of my symptoms happened to be the side effects from singulair. and then i started reading other peoples stories about it, and about linking it to suicides and everything. i told my mom and i told her i wanted to stop the medicine right away, at least just to see if this is what it was all along. i haven't taken it for 3 days now i believe, and i already see a difference, i actually get tired now instead of staying up reading till 5 in the morning, and i haven't been waking up at all during the night. i am pretty angry that my dr. couldn't figure this out, or at least maybe even think about it. for awhile i thought i was honestly going crazy, i lived in fear for so long that something was extremely wrong with me, that i haven't lived my life the way i should of, or wanted to. i never thought that it was just the EXTREME side effects of this medicine. i am so thankful for my little sister listening to all my complaints and all my anger toward myself, and actually putting it together that it would be my medicine that was supposed to make my asthma better. as i said its only been a couple days and i already feel better, i will repost to tell you if im back to my "normal" self after being off this medicine for a longer period of time. i feel so grateful for my little sister, who would have guessed she would tell me what a Dr. couldn't even think about. i really feel that if i get back to my normal self, i really have her to thank for saving my life. <3

I was prescribed Paxil and started out at 10mg. then they gradually increased it up to 60 mg a day. Later on they added I think it was 200 mg of Wellbutrin. I was on Paxil for I think 2.5 to 3 yrs. What happened was I was so out of it I didn't know what day it was. The HMO would have to call me to remind me to come in that day for my doctor visits. I slept most of the time and was just worthless. I didn't care about anything much and didn't have the energy to do much of any thing. This was a drastic change in me and my family hung in there with all this. I actually drove which is not a good idea at all. But when they put you on this you don't realize how bad you are on this stuff and once you are on it for so long then you are either a captive at home not able to do anything or you try to take back some part of your life. You also can't just go off of it cold turkey at 60 mg. I tried and it got bad and went back on it. After I got really bad all I did really is drive to therapist appts or to nurse practitioner who managed the Paxil and Wellbutrin. After being on 60 mg of Paxil and Welbutrin for awhile/months and I was so out of it, that is when they said we need to back me off of it. I think it accumulates in your body and I think you can kind of have an overdose in a sense. They didn't really monitor it that well and took their sweet time recognizing it. But they didn't say anything about it. I think that is what happened to me but no one at the HMO said that. Instead they got me scared that I was going to run out of therapy sessions allowed while on Paxil and that is why they were going to back me off of Paxil. I guess another patient had that happen to her and they didn't want that to happen to me. I then say my therapist very rarely while I was backing off of the Paxil. She acted like I was ready to handle everything on my own. I had no idea that suicidal thoughts were in my future when backing off of this drug. But they sure knew it, a lawsuit in California had been filed the month after I started taking the drug and it was all about the lack of disclosure about the withdrawal issues. First I got off of Wellbutrin and then they slowly backed me off of Paxil. It was physically wrenching. Throwing up and diarrhea all at the same time. Painful is not the word. I have given birth to two kids and pneumonia and this was much worse! Chills, tremors, I felt sick all the time. This went on for months. When I talked to nurse practitioner they pretended that it was no big deal. I wasn't sure what was happening. I finally got pissed off about the whole thing and never called them back and they didn't follow up either. Not even therapist. They hoped I would go away quietly which I did. When you are in the throws of this and you know who did this to you, you really don't want any more of their harmful help. It took at least a year to feel better. There is this uneasy weird feeling and zinging noise that lingers for a long time. But my memory is a fraction of what it was. My short term memory is very difficult. I know that Paxil was responsible for this. How do I know? Well when you are on Paxil and if you have a recall on a bad incident and you start to emotionally react to it, Paxil will offset it by making you sleepy. It literally targets your emotional reactions and those thoughts connected to it. It tries to disconnect the feelings from the thoughts. These disconnects also disconnect your ability to remember other things. Even after I got off of Paxil I noticed that I would get sleepy when I thought of stressful things. It has taken me about three years and I am talking better and can remember many more words. I talked very simply for so long since I couldn't recall basic conversation. It targets emotional responses and I got to a point where I was really numb about a lot of stuff due to the constant tapping down by Paxil. I feel like it disconnected those connectors to your brain that talk to each other. My family made jokes about me and how simple I got and how I couldn't remember anything. They are worried that I have alzheimers disease or will get at this rate. I could not work on Paxil at those high doses I was on and while I was withdrawing. I found that afterwards my memory was so bad that I missed so many simple things that I would have never missed before. I am concerned that my memory lapse will cause a big mistake that may hurt someone. I was out of work for so long. I volunteered to keep myself busy until I got too bad. It would keep me busy. I also noticed that while on Paxil I was uninhibited and said things that hurt folks and I was unable to monitor myself like normal and couldn't determine what was not appropriate to say all the time. I had an emotional disconnect to myself but also to others. This hurt some folks and cost me a job. My memory is so bad that I have to write down important things if I really want to refer to it again. I also have given up on going back to school. I couldn't test well at all. I can not remember what I did 5 minutes ago let alone a chapter I have read. I am only 52 now and I feel so much older due to this. I suffer from Fibromyalgia and IBS. I was so upset with my doctors at HMO since they didn't warn me of the withdrawals. When they put me on Paxil I was adamant about not taking an addictive drug. My family has had a history of addiction and I was not going there. I know how bad it can get. Paxil's withdrawals is very much like the withdrawals that addicts go through. I was devastated by not only how doped up I was on Paxil but also all time I wasted on it and with the year just trying to withdraw from it. Then the time just trying to get some of my memory back to function. I am mad that there is no way I could go back to school to better myself. I am mad that no one warned me of any of this and if they would have I wouldn't have taken it. How many of you would take a drug knowing that you memory would be messed up? Not many. Certainly not me. My daughters know what a tyrant I am about drugs and alcohol. This is not something I would have opted for if the whole truth were known. They certainly don't warn you that your memory will be like swiss cheese afterwards. No one in my family has had such memory loss. No alzheimers disease. In fact quite the opposite is the case. My grandmothers were very clear at older age, so menopause can not be a big factor and beside this happened before menopause. Also grandfathers and father were very clear getting older. My family noticed a definite change while I was on and after Paxil. The irony was that when I started to go back to HMO for regular care which took me a long time to trust them enough for them to do even that, someone at HMO had put in my automated chart that I was allergic to Paxil. They won't say who put it in either. I was not allergic to it but they are now saying that I had a bad reaction. But what I say is after seeing so many "bad reactions" on websites like this I am convinced that this is more than isolated cases but rather the norm of what happens to patients who take it. HMO doesn't want to admit wrong doing. Paxil seems to have kept a lid on it. Besides how do you measure a bad memory and how do you prove it after the fact? You are getting older and who is to say it isn't genetic. But I was on it for maybe 2.5-3 years. I was so out of it I don't remember how long I was on it. I also was suicidal when coming off of it. I even called a crisis line since I couldn't trust the HMO. I was irrational. For those of you still on it I think you are doing more harm than good. I don't believe all the facts have come out about the side affects from these types drugs. Who would be doing the studies? Certainly not he drug companies, FDA is a joke and if you think the attorney generals are doing much think again. Yeah a couple states like CA an NY they did settle on suits about suicide for kids but they settled quietly. The doctors who prescribe these drugs also are in a catch 22 like my HMO. They don't want to be linked in this and will avoid it too. What attorneys can afford to go up against all those high powered attorneys for those loaded drug companies? Not many. No one is actually dying from this and that is another reason there won't be much done on this either. Fortunately today we can hook up online and share our stories and this is the first step in documenting what is really happening to patients.

Be so careful coming off of these drugs. Give yourself plenty of time to get normal. Make sure you are seeing a therapist you can trust and is trustworthy. It takes an alcoholic about a year to rid their bodies of the toxins that have built up in their tissues. I do believe that is also true of Paxil. Be kind to yourself and get good support while doing so. It can be a very lonely physcially and mentally anguishing time. Think of yourself like someone who has had a brain injury or stroke. You need to practice to get things to reconnected as best as possible considering. You will never be like before you took Paxil but with time and patience and hard work it can get better or you can develop ways to compensate or work around or cope with such memory loss. Financially this can be devastating and it was for us. The loss of income and finally a bankruptcy. We paid dearly for taking this drug. It can be very frustrating and you have to look long term. I think it is very easy and cheap for HMO's to pass out pills rather than schedule needed appointments for therapist and other alternatives. Before they started to take me off of Paxil I was warned by my HMO that I had exceeded my number of appts allotted for a 2 or 3 yr period. So I may end up without any therapy while on Paxil. That is the reason why they decided to back me off. I had apparently used something like 32 appts in two or three years and I was getting close to not being able to have any for a long while. This was interesting approach since by then they knew that suicide was linked with Paxil. They will put you on Paxil and they will leave you high and dry without at therapist if you actually use one regularly and use up a normal amount of visits. I have very little compassion for HMOs. What was amazing was listening to the nurse practitioner tell me if these drugs don't work there are lots of other ones we can use. These are the easy going drug pushers of today and they prescribe these drugs without much thought. They make it cheap and easy and they will swear to your face they aren't addictive but are basing it on very little research. They regurgitate what ever the drug companies tell them. The cost cutting with HMO's is almost frightening. I also have problems sleeping too. I wonder if the drug messes up your serotonin levels since it does make you sleepy so much of the time and when you are off of it the brain is fried from all that artificial serotonin that it no longer knows how to manufacturer it well. I think that is what maybe causing my Fibromyalgia since this is a condition where you muscles never repair themselves at night due to lack of sleep is one theory. I was always a deep sleeper before all of this. I think there maybe a connection.
Finally depression. When you can't remember what you did 5 minutes ago or simple things it gets more than frustrating, you get depressed at how limited you are now. The pain from the fibromyalgia is constant and that too is depressing. I wish someone could put together the data on this to prove the link to memory loss and how it has affected our serotonin levels.
The only way you can stop companies is to sue them. Government won't do it really. A class action suit might work.