July 4th
2006
7:09 PM
I took topamax for about a year. I was slowly up to 200mg a day.I had a period for 28 days. I was 44 than, my normal cycle last 1 to 2 days.I ask my nero about it and he said it couldn't be the medicine. I talk to my family doctor, we lowered the does by 25 mg and my periods went back to normal. During this time, looking back now at what others saw I went through many personality changes. But I figured my headaches were gone, I was losing weight life was great. And than I started getting shortness of breath it was gradual and than it became severe. I seen so many doctors for almost a year. I had several test done was told I had pulmonary hypertension, told I had a Paient foreman ovale.
This was all new, I had an echo 3 years prior. I ask every doctor I seen could topamax cause this they said no. I finally got sick of going to the doctors , I quit going ,I also stopped taking topamax and guess what I can breath again. I have no pulmonary hypertension but the PFO remains. I am now afraid to take any new medicine. I would rather have headaches, my friends and family say I am back to myself and I feel so much better. I wish I would have listen to myself when I started questioning could it be the medicine. This medicine may work great for some, but my family and I went through hell. I truely thought I would not see my kids grow up.
August 27th
2008
12:00 PM
I am almost 41, and have had migraine headaches most of my life which I could manage with 800mg of Naproxen Sodium, or a Norgesic Forte, and when Imitrex came out, I could just administer that. Six months ago, my headaches got so frequent that I had to start taking my Relpax (similar to Imitrex) and/or Fioricet more than 2X per week. According to my neurologist, this is a no no, as both of those meds can couse rebound headaches. He started me on Topamax, 50mg per day. It did nothing. He bumped it to a 100, nothing. Now I'm a 200 mgs, I am still have a migraine in left temple as I write this. I have the tingling, the daytime sleepiness, but my mind is fine, and my appetite is just swell (regretfully). What the hell am I going to do now? Ask him to bump me up to 400 mg? Now I have these headaches every "F"ing day, and I can't take anything. I just have to suffer.
Topamax is NOT working!!!!!
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