June 26th
2009
11:51 PM
I am 50 years old. Two years ago was diagnosed with very high LDL and low HDL. I told my doctor then that I did not want to go on statin drugs, but 3 months of Niaspan didn't help the cholesterol, and I hated the hot flashes and flushing that could come at any time after taking a dose. So my doc put my on Zocor.
Two years later I my bad cholesterol is within normal limits but my good cholesterol is still too low, even with fish oil and borage oil taken regularly. Almost immediately after starting the Zocor I started experiencing light-headedness and dizziness that would last for up to a minute--even lying down in bed! My doctor prescribed Meclizine for the dizzy spells--more stinking drugs! I get migraines at least twice a month. For the last six months now I have been experiencing increasing muscle pain, joint pains in the knees, elbows and fingers, and now have been having stabbing pains in lower back around the kidneys. I would wake up in the middle of the night with shooting pains and stiffness in my left knee and cramps in my calf muscles. The first joint of my middle finger had become extremely soar so that I could not make a fist or grip tightly. I have had a recurring stabbing pain in my chest under the left pectorals muscle. My feet and toes are soar--especially my left foot. When I exercise even the slightest or do some long walking or outside work, my muscles in the arms and legs get very soar and tender, then stiffen up. I had to see a massage therapist to loosen up my legs last week! Six months ago I would be up at the crack of dawn, ready to start my day, but recently I have become very lethargic and tired with little zeal for any physical activity. I have had intermittent pain in my left testicle. We recently moved and I started seeing a different doctor. After a physical exam, he brushes off these symptoms.
Well, I stopped taking the Zocor a week ago, and already my fingers are much better, although my knees and elbows are still soar. The dizziness has gotten worse but I'm hoping that after my body re-adjusts and flushes the simvistatin that that will subside, too. I have drastically changed my diet to drop 15 to 20 pounds and lower the cholesterol with better eating habits and swimming exercise; hopefully that will help alleviate the pain, too.
-- By pianoman2 | Reply | (2) replies | Private Message me
October 31th
2008
10:59 AM
Hi, my name’s M. and I posted my story on here about a month ago. Unfortunately, I’ve made no progress. I was hospitalized again mid-October for numbness and tingling sensations in my legs, which is a symptom of guillian-barre syndrome and supposedly needs to be treated very carefully. I had an mri of my brain again, this time including my spine to check for possible tumors. I was sent home the next day, negative for guillian-barre, but having received no answers. I was crawling up the stairs by this time, and was too weak to walk without holding on to furniture to support myself. My legs felt like cement blocks, and the neurologist specifically said, “I don’t know why you can’t walk.”
Since then, I’ve developed acute mononucleosis, which increases my fatigue and muscle pain, and causes me to sleep about 15 hours a day. Recent blood work also showed I was positive for an autoimmune disorder called Myositis, which is a painful disorder that causes the body’s immune system to attack its muscles and connective tissue. I was referred to a rheumatologist, who was the least sympathetic person I’ve met in my life, and told me my physical exam was perfect, so she felt the Myositis must have been a false positive. She re-ran the blood work, and the Myositis was negative. This is of course a relief, but how we’ll ever know which test is correct, I don’t know. The rheumatologist did notice the weakness in my legs and my difficulty walking, and suggested physical therapy to help gain my strength back. She also prescribed an anti-inflammatory medication that took away almost all of my pain. Thank God, something finally worked for me. We then saw the physical therapist who said, “We can probably make you stronger, but I’ve never seen anything like this before.”
I’m seeing an osteopathic specialist who is convinced my illness is directly related to Gardasil. Through ancient medicine methods, she introduced a vile of Gardasil to my system and noticed an immediate weakness. I’m not sure if I totally believe in her practice, but the fact that she noticed a rejection to Gardasil the minute she introduced it is enough to convince me. She believes that my immune system was basically poisoned by the vaccine, which is causing it to fight off things I need. She also said it probably doesn’t recognize the mono as an infection, and decides not to fight it. For a normal, healthy person, mono can last up to 3 months. For someone like me, no one knows how long it could last. It was my immune system’s weakness that allowed me to develop mono, and it was the Gardasil that weakened it in the first place. So thank you Merck, for yet another thing I have to deal with.
And that brings us to today. I’ve missed about 30 days of my freshman year, so I’m assuming summer school will be necessary. My high school won’t provide a tutor, so I can only take my core curriculum classes, and am having difficulty keeping up with just those few. I’ve gained some strength in my legs, and it’s a little easier to walk with the anti-inflammatory, but I still can’t walk very far without resting. I’m also taking an anti-depressant to help me focus-hopefully it’ll lift my spirits. Since I received the vaccine, my periods have been painful and irregular. The constant nausea, headaches, and occasional stomach pain/joint pain continues, along with extreme fatigue.
The doctors make me feel like a crazy person who faked this to get out of school. How could I possibly fake nausea for thirteen weeks straight, and pain that kept me up crying almost every night? How could I fake my difficulty walking while it’s causing me to miss both of my volleyball seasons? Before this, I had hardly missed a day of school in my life, and refused to stay home whenever I got the flu because I hate falling behind. I’ve played volleyball tournaments with sprained ankles and chipped elbows, I can handle pain, and I’m not a baby. If the doctors would take five minutes out of their time to try to get to know me, maybe they would see that. And the few who actually take the time to be pleasant don’t listen. They tell you they know, that they understand, but they don’t. They won’t drag themselves out of bed in the morning feeling nauseous and half asleep; they’ll be able to walk into their office without feeling like they want to collapse, and they’ll go home to the people who care about them and will actually be awake long enough to enjoy their company. No one will tell them they’re insane, and the worst part is that most of them won’t take the time to realize how blessed they are just to have the ability to do those things. How can the doctors not have sympathy when they’re the ones who put this poison inside of me?!
I know I’m very lucky compared to girls who have experienced more serious side effects, and am thankful that we were able to make a connection between my illness and Gardasil after the first shot. But I’m living proof of what just one stupid shot can do to you-how can you put yourselves or your daughters at risk of what I’ve gone through? The benefits are not just worth the risk..
My 15th birthday is coming up in just a few weeks, and all I want is to be normal again.
October 16th
2008
1:20 PM
Like many patients, I started out on a low dose of Lamictal. Eventually, I was taking 300 mg. This seemed fine for awhile. Then, I started feeling a bit down, so the doctor increased the dose to 400 mg. Increased dosage does not necessarily mean improvement in mood (bipolar). I began to experience a good number of the adverse side effects reported here, including excessive fatigue, gastrointestinal disturbances, cotton mouth and very bad taste in my mouth, muscle tension (particularly in my legs), forgetfulness and confusion, and sinus and chest congestion. At one point in time, I even had difficulty articulating words.
Though I did not suffer from rash, I have been up in the middle of the night with itching all over my body. I had a few episodes of mouth sores and one pimple on my chin. Many of these have improved since the doctor brought me back to 300 mg. However, they have not entirely disappeared. I continue to suffer from the excessive fatigue many of you have reported here.
I recently had a blood test and learned I have very low levels of Vitamin D and Vitamin B-12. I do not know if there is any relationship between long-term use of Lamical and these test results. However, I do know that low levels of Vitamin D can cause fatigue.
Though I am willing to follow through with further blood tests, I am beginning to understand why some people are tempted to discontinue their medications. I am so tired of being so tired and sleeping so much. When I finally get up, I am still tired and drag through the day.
Sometimes, I think I'd rather have a down day or two than take this medication. I should add, though, that my bipolar is not severe, and that I am only reporting how I feel. I'm certainly not recommending anyone discontinue medications for this or any other condition they may be suffering from. If I were to recommend anything, it would be to get a second opinion if one is concerned about his or her treatment.
If I were to make any suggestion to doctors, it would be this: more is not necessarily better. Send your patients for blood tests (mine were ordered by my M.D. and not by my psychiatrist). Increasing the dosage--at least of Lamictal--might result in a host of negative side effects. Your patients might then become disillusioned with their treatment and give up.
If anyone out there has suffered from B-12 and D deficiencies, let me know. I'll let you know what I find out.
And remember, most doctors are really trying to help us.
June 30th
2008
12:30 PM
I have been on loestrin 24 fe now for 6 months. it is the only birth control I have ever tried. For the first 2 months, I had a continual period. Once the bleeding stopped I noticed that I had UTI's weekly which have declined but I still have regular uti's. In the 4th month of taking the pill I started to notice the mood swings that have been with me since. Crying for absolutely no reason. The feeling of being unable to control my emotions. DEPRESSION! which I have never experienced in my life. Anxiety and wanting to be alone and yet sad because I am lonely....Inability to concentrate and reason with myself. Inability to be my normal positive self. Needless to say I am getting off this pill. I have already spoken with my doctor and received a new prescription today. All I can say is that if this is what birth control is like........ Forget it! I will try this one other pill, but if I still have symptoms like these, I am switching to condoms.
-- By lcstudent | Reply | (1) replies | Private Message me
Rythmol (1) Zocor (1) Loestrin 24 Fe (1) Lamictal (1) Gardasil (1) Simvastatin (1)
September 19th
2009
10:58 AM
What brought me to this site is the fact that I have a bitter taste in my mouth that gradually occurred since I have been on Simvastatin 40 mg for about three weeks. I have also noticed a strange burning/numbness in my heels only, which has also been gradual. I feel more sleepy most days and not what I would call fatigued, but just like I don't feel like doing anything. I eat more just to try to get the taste out of my mouth and don't feel like exercising. I also finally went back to my Pilates class and felt unbalanced when trying some simple stretches. I usually have excellent balance. I guess my question is: Are these things related, and are they going to just get worse?
-- By curioustoo | Reply | (7) replies | Private Message me