September 17th
2009
11:25 AM
I took my daughter (14yrs old) off of Singulair 2 nights ago after being in the ER. She's been taking this drug for 3 years off and on. We were told she had asthma 3yrs ago and now yesterday after taking the Methacholine challenge test, she doesn't have asthma. Talk about being confused and angry. Over the last three years my daughter changed into a very anxious person, couldn't sleep at nights, very vivid dreams that made her surround herself with pillows thinking her dreams were real, sadness, chest pains, tingling in hands, arms & legs, knee pain (could be sport related?) and a very short fuse. I came across another website and then this one about the side effects of this drug and immediately took her off. She has slept better the last two nights but still has a little chest pain (indigestion), which I hope subsides soon. This has been a terrible stress for her and the whole family and I'm praying being off this drug will help my daughter restore her self confidence and happiness in her life.
A.
January 18th
2009
2:19 PM
I am recently out of the hosp after 9 days with COPD exas, pneumonia, flu. I have been on heavy antibiotics, steroids--home now for 1st time with oxygen---I feel GREAT.First time in years I feel like I have a life to live. Like a veil has been lifted. I'm scared for this feeling to go away--what is it? the steroids?? the oxygen?? Whatever it is I need to know so I can fight for it and stop just waiting to die.
-- By dlb816 | Reply | (9) replies | Private Message me
May 20th
2008
3:09 AM
Makes my stomach hurt like a gas feeling and burning really bad.
Night sweats are horrible. I have to change my PJs about 5 times a night and the bed is soaking wet. It really messes up my sleep. It is helping with my anxiety I think. I'm just not sure if it's worth it with all these bad side effects.
Now I am getting tingling on the tops of my feet and tops of my toes.
It's all so strange. I also have depression and this is helping a little.
I feel unmotivated lately and tired...oh did I mention weight gain because it makes me eat more? What a mess I am.
April 4th
2008
12:42 AM
Update: Our son has been off of singulair since the 28th of March.....he had experienced most of complaints and ailments that affect other children. Since then, he is still tough to get to sleep - probably a 3 year old thing - but is better that before. He is also sleeping much more soundly and waking on the right side of the bed. He is still complaining of the leg cramps and sometimes still limping around for a while, and also complaining of stomach aches... I suspect those too should disappear after some time, however, he is no longer complaining that the lights and sun hurt his eyes. It is as though a major fog has been lifted - he is listening to us more the first time we speak rather than having to fight over things such as cleaning, or behaving. He is not as physical with us or his brother as before. And, the most important thing....he seems truly HAPPY - he has been napping all week at day care, and is proud of his accomplishment! He is focused in Karate class - listens to his Sir - engages in the activity with the other children - is more vocal and energetic....and once again PROUD! His Karate teacher - Sir - noticed an immediate difference in our beloved son - he was so surprised that Singulair is to blame - he said that our son is a complete different child without a trace of the drugged, insecure, and quiet boy he knew a week ago.
This Saturday our little boy will be testing for his yellow belt and he is so excited that he can hardly contain his HAPPINESS!!!!!
One last thought though.....I am extremely worried of any lasting mental or physical implications this drug could have on him - what does the future hold for our son - could this drugs nasty side effects cause some crazy long term side effect we have yet to see???
-- By mommybaby | Reply | (3) replies | Private Message me
August 28th
2007
7:00 PM
Hello all, after reading all of your messages I am convinced now that the Lipitor is to blame on my symptoms as well. I began 10mg of Lipitor about 3 years ago and this past February was increased to 20mg, my cholestral readings was at 98 and now at 90. I also quit smoking in February. In April started to experience extreme pains in my arms and back, thought it was the mattress or pillows have replaced every pillow in the house, and have begun pricing mattresses. Have extreme bloating, gas and constipation. Went to the Drs. and was told its a reaction to quitting smoking as nicotine is a natural laxative. Sounds beleivable, never though of the Lipitor increase. Breast extremely tender and sore, went to the OB, had a mamograpghy everything fine, OB suggested researching Lipitor and bingo I'm a believer. Called cardiologist today and she has immeditaly lowered it to 10mg, and wants to see me in 3 weeks as a follow and possible wean off all together. I need to research the cholestral numbers and see how good or bad mine are at the moment. Again thanks everyone for taking the time and writing about your experiences and reading everyone elses. Good luck to all
-- By irishmomoftwo | Reply | Private Message me
August 18th
2007
5:03 PM
Hello everyone. Thank you for sharing your stories. I no longer feel so confused as to what I am experiencing while on Prednisone. I was prescribed this medication for my back (I have a ruptured disc). I am 24 years old. I took a short five day treatment of prednisone about three weeks ago. I was very foggy and forgetful. I was tired and bloated. The worst side effect I have noticed is ACNE! Oh my gosh, I haven't ever experienced a breakout like this before. This breakout is a continuous side effect long after I stopped taking the drug. I went to the doctor again yesterday for a check up on the status of my back injury. He has prescribed a THIRTY day treatment and even more aggressive approach with prednisone!!!! I am so scared to start this treatment because of what I have already experienced. HELP! Does anyone know if the acne will clear up? Will it scar? Does anyone have any tips on this?
Thanks.
January 1th
2007
11:26 PM
I have been taking Lisinopril for approximately 2 weeks and have found that after taking it I become extremely tired, and nauseated. The strangest effect is that after taking it, I feel like I am falling. It is hard to explain, but when laying down for example, I find I need extra support of pillows because I feel like I am going to fall. Anyway, I am newly diagnosed with high blood pressure and will definitely be asking my doc if there is another option for treating me.
-- By dtdillard | Reply | Private Message me
July 16th
2005
5:59 AM
I am 61 years old, very fit and I exercise rather vigorously 2-3 times a week. I was given a free sample and a 7-day prescription for Levaquin by an urgent care physician. By the third day I was unable to pick up my coffee mug with one hand and had difficulty even using two hands due to weakness, muscle pain and joint stiffness. Since my PCP was out of town, I cut the pills in half. By the 6th day my heart was skipping every 4th or 5th beat and I had mild chest pain and gout-like symptoms in both big toes. I did not complete the last dose, as I was afraid it would kill me. Two weeks later, I continue to experience difficulty going from lying to standing and from sit to stand. I have to stand for a moment and then as I begin to walk, I am so bent and stiff that I look like something out of a nursing home. Once I begin walking, the pain and stiffness dissipates considerably, but the weakness is intermittent. I walked through Lowe's yesterday and wasn't sure I was going to make it to the other end of the store. I am having difficulty opening jars and bottles and even lifting pillows to make beds seems to be difficult. My hands are hot and swollen for a considerable time after getting out of bed. I am a medical transcriptionist, so this interferes with my typing. The pain, stiffness and weakness appear to be worsening and I am very concerned.
Caveat emptor! Apparently, big pharmacies make billions and then find it more profitable to pay a few law suits than to pull such poison off the market.
-- By typo.negative | Reply | Private Message me
May 10th
2004
10:32 PM
I've never had any problems with the specific pain behind the ears, but I do wake up often with a variety of headaches, mostly at the nape of my neck. I've blamed it on the pillows until I have read your complaint. As well as headaches, i've also noticed a drastic change in my appetite. After taking the pills, i rarely find myself hungry anymore, is this normal?
I've recently noticed almost an over-sensitivity during sex with my husband. Neither of us have changed drastically, and sex is becomming to be very painful to the point of tears now. I'm wondering if this is due to my pills, which I am on my 4th pack, or if this is due to something entirely different. Is anyone else feeling this as well?
-- By imbettathanur44 | Reply | Private Message me
March 25th
2003
12:38 PM
May name is Ana and I want to add a little more to the information I provided you all back in december. After December I had more infussions, I noticed that each time I had an infussion; I kept feeling worse side effects during and the day after the procedure. The doctor added steroids and benadryl to knock me out during the infussion, but even then I felt the chest pain and the head aches the day after. Finally the doctor decided that remicade wasn't for me, but I had to give him a scare; an even bigger one. 3 weeks ago I had my very last infussion. I went in 1 week earlier because I was in alot of pain (previous treatment didn't work) and I had been for 5 weeks, but now I could barely move. The nurse placed benadryl in my IV and it knocked me out, about 30 minutes into the infussion; I started getting chest pain and remember I was asleep. I tried to tell someone, but I could barely talk. The nurse noticed me turning red and shook me; asking if I was ok. I tried to tell her, I couldn't breathe; but I was struggling with the benadryl. I finally began to cough and it woke me up a bit, I then kind of told her that I had chest pain. She immediately stopped the infussion, called the doctor, got oxygen and helped me sit up. I was still fighting the benadryl. Finally the doctor came in and said, remove the IV; this isn't working for her. As soon as the nurse removed the IV, I couldn't stop shaking and I was getting a rash. I was kind of scared, but I tried my best to stay calm. But then I began to feel very cold and they noticed a tear in my eye. The nurse then asked why I was shaking and I told her I didn't know, but that I was very cold. Then one nurse took my blood pressure and noticed that it was sky rocket high. One nurse ran to get hot packs, blankets and pillows and she began to shove the hot packs under my clothes and cover me up; while the other nurse ran to get doctors again. Finally the doctors noticed that I was shaking off the chair and even though I tried to stay still I couldn't. One doctor said for the nurse to get a shot of something, I was too sleepy I can't remember the name of it (drug). It did help and it calmed me down and put me back to sleep. It was scary and until now, I still have a very sharp pain in the back of my neck that comes and goes. But I just want to think that it'll go away soon. So I finally got on Enbral and it works wonders with me and I feel no side effects (yet atleast).
-- By shy_peppy | Reply | Private Message me
Singulair (2) PredniSONE (2) Lipitor (1) Levaquin (1) Lisinopril (1) Zoloft (1) Remicade (1) Wellbutrin (1) Tri-Levlen (1)
November 15th
2009
10:03 PM
I have been taking the generic version of Wellbutrin, Bupropion, for almost 6 months. It has been the only thing to lift a bit of my chronic depression and anxiety. It gives me enough energy to navigate my day- I am not as tired all the time, nor do I feel so heavy and generally lethargic.
About 2 months ago, my hair started falling out. I have always had extremely thick, shiny hair. I started taking more vitamins to no avail. I couldn't figure it out because I didn't see anything about hair loss on the literature from the pharmacy that comes with my pills. Huge gobs of hair would come out in the shower or anytime I combed it. It got on my clothes, on the floor, on my pillows... It was horrifying! I believe I have lost about half of my hair, no kidding. I don't have any bald spots thank goodness, but that is because I started with so much hair in the first place. But if it keeps going at this rate, I can't imagine not being bald in the near future! Recently my friends have even commented on my thin hair. I try to not comb it unless it is just as the bottom, and even then I am pulling the hair up through the comb, not pulling the comb down through my hair. I wash it as infrequently as possible and even though I desperately need a trim, I will not go to the salon.
Just tonight I found this information and this very informative site. I am so mad though, because I never saw this as a possible side effect in any of the main literature- maybe I just missed it?
What is scary to me is to think about going off this drug...I'm afraid I won't be able to function as well with day to day living. My fatigue, depression, and anxiety are so immobilizing. I am going to try to go to a low dose and see if that helps, as well as continue to take the extra vitamins with biotin.
I really hope that's enough.
I didn't get much help in the past from any other antidepressants (I have tried 4). Almost as bad as the hair loss (although not visible to the entire world) was the total lack of sexual desire and ability to have sexual pleasure with the other drugs. That is part of the reason I loved Wellbutrin: no sexual side effects, a slight decrease in appetite/weight, increased energy and alertness, and a decrease in depression and anxiety (not completely, but the best I have had so far).
The only other side effect I have experienced is irritability and that has recently become worse. I notice I am much terser with my daughter and have less patience in general. I am likely to have angry reactions and at times I find myself feeling confrontational, whereas in the past I have always shied away from confrontation.
It is definitely a mixed bag with any of these drugs and very disappointing. Good luck to you all and thanks for sharing. . .
-- By sicklemoon | Reply | Private Message me