Pitting edema symptoms and conditions

SIX HOURS POST REMOVAL- I had my mirena removed today after 3 years and nearly 3 months. My side effects included headaches, sore breasts, weight gain, nausea, severe hair loss, depression, severe pitting edema of my right foot, cramping, hip pain, exhaustion, severe mood swings, and acne. During the first six months I had constant bleeding, which I had been told to expect. I took regular pills everyday and the bleeding stopped. Then the hair loss started. My hair came out in clumps and was EVERYWHERE. I lost about 15 inches of my hair in spots. I went to the salon and got a fantastic hair cut, I attributed my hair loss to stress. Now I'm not too sure. I also didn't feel like I was myself with the odor that I developed. No matter how many times I showered I felt not regular. Slowly but surely over the past three years I have gained 30 lbs. I worked out to try to get the weight off, I lost nothing and in fact gained weight! The pitting edema of my left foot started in July of 08. I have been tested for everything including diabetes, heart problems, clotting disorders, pregnancy, high blood pressure, kidney problems, and the list goes on to the tune of $6,000. I went to my OB back in the spring and was told if they could find nothing else then they would remove the IUD. In the interim I lost my job and subsequently my insurance. I luckily was able to get coverage again and immediately set an appointment for the removal. Insertion hurt like nothing I have ever experience, removal was quick and almost painless. I also ended up with BV (bacterial vaginosis). I feel and look as though I am about 6 or 7 months pregnant. My belly is actually the same size as it was when my son was born. I weight about 15 lbs more. My breasts were extremely swollen and sore.

I instantly felt better after removal. My hip immediately stopped tingling. I have no back pain. It felt almost like a lifting if that makes sense. I am curious to see what the next few weeks will bring and I will definitely keep you all posted.

Hi there
Apart from all the above mentioned,
Pitting Edema in arms and legs
Headaches
Severe abdominal pain
Severe backache
Heart palpitations
Constipation
Lack of appetite
SEVERE WEIGHT GAIN (how can this be, I have been a diet for three years...and I am sticking to it) MY PANTS won't fit anymore.
NO energy
Fatigue
Nightmares
Nausea
Dizziness
Unable to concentrate
Slight double vision (right eye only)
Anger
Depression
Fainting followed by temporarily blindness (my studies n that scary matter came up with an explanation that this only occurs when your body organs are switching off. Scary thought.
I have also developed Polycycstic Ovarian Syndrome very serious case
I only had it for 6 month and would recommend to ant woman to take in out NOW!!!!!!!!!!!!!!!!!!!!!!!!!! I hope the manufacturer will pay for slowly killing us or making a whole generation of females sterile, let's face it who like to have their health tempered with?
M. AM
Australia

I've been on doxy for about 10 days. I've never had problems with "photosensitivty" when it had been listed as a side effect on other medications. Totally disregarded the warning. I was put on it for some problems that might arise with acne due to a hormonal injection. I was going to the Florida keys in a few days and thought I should go to a tanning bed to get a little color so I wouldn't burn down in the Keys. Within a couple of days my hands began to tingle, burn with warm water, freeze with cool water. It was like my skin was burnt off and my nerve endings were exposed to the elements. While in Florida with my feet and hands in bandages to keep the heat/sun from causing pain I noticed blistering and still have them. I thought I had shingles, even though I had it on both sides of my body! Had an increased heart rate and 2t pitting edema in my feet and calves when flying home and increased itching on feet and hands. Very nervous at this point! I massaged my calves to increase the flow back towards my heart and it seemed to help. I am also experiencing GiI problems as well, severe heartburn and bloating. My son said I looked like I was pregnant! I can't wait to talk to my Dr. tomorrow and will stop taking this medicine. Thanks to all of you for your information. I'm relieved to find out what is causing all of this. I only hope my symptoms will go away sooner than later!

I've had the Mirena since Oct. 2008. It was recommended by my doctor who stated that it would be great for me since I had PMS, heavy periods, cramping and I needed birth control. I told the doctor I didn't want anything with hormones due to side effects I've had before and the fact that my mother died from breast cancer. My doctor assured me that the progesterone would not be systemic, it would only be in the uterus. So I had it inserted. It was great for about 4 months, then I started to get the bloating, sore and swollen ankles (pitting edema), irritability. Same symptoms I had when I took the Mini Pill (which is progesterone). And now I'm getting cramps! I just made an appointment to get this thing out of my body! No more hormones!

Been on Wellbutrin for almost 6 weeks now. Last week I started having a really itchy scalp, no flakes, just itchy and then bumps would appear where I had itched. My vaginal area was also itchy and I treated myself for a yeast infection unknowingly. This past weekend I broke out in what I now know was hives (urticaria angioedema). First my left ankle swelled (3 inches) and looked like it was sprained, but instead it was super itchy and then became achy and painful. Within 24 hours that ankle went down but the other side swelled up so badly that I had pitting edema in my ankle and could leave dents in it. The third day, still with constant scalp and ear itching, i developed hives and large welts on my inner thighs as well as a large welt on my shoulder. I have been taking benadryl, which seems to help the itching for a little, but not for long enough. Yesterday I was at work and my butt started to itch so badly I had to leave. I had developed huge welts in the creases between my leg and butt right were one sits on a chair! Huge 3-4 inches. I was so uncomfortable. My thumb also had swelled up and I could not move my left hand without burning itch and pain. I finally called the doctor and set up an appointment.
I was told to take benadryl 25-50mg, zantac 150mg twice a day, and Zyrtec once a day to control the hives. This has helped a bit.
When I saw the doctor today and we went over everything, the ONLY change in months has been the addition of the Wellbutrin. I am going to stop taking it today and since my story sounds much like the ones below hopefully this will improve before my eyes or throat swell! Thanks for all your posts.

I have pitting edema in my lower legs that will not go away with diuretics, two teeth broke off, enlarge abdomen, pain and tingling in hands, pain in my left knee, one sore throat after another, and I get a foul taste in my mouth without warning.

I WAS DIAGNOSED WITH ENDO ABOUT 10 YEARS AGO WHEN I WAS 21 YEARS OLD. I WAS TOLD I WOULD HAVE TO HAVE A TOTAL HYSTERECTOMY BY THE TIME I WAS 25. I LIVED OUT OF STATE AND DID NOT LIKE THE DOCTOR I WAS SEEING SO I JUST DISMISSED IT. YEARS LATER AFTER MOVING BACK HOME AND GETTING MARRIED TO A WONDERFUL MAN WHO DOES NOT HAVE CHILDREN ( I HAVE TWO) I WENT TO MY OLD DOCTOR THAT I WAS REALLY COMFORTABLE WITH. TOLD HIM ALL OF MY SYMPTOMS AND ABOUT MY PAINFUL PERIODS AND HOW ME AND MY HUSBAND HADN'T GOTTEN PREGNANT AFTER FOUR YEARS OF TRYING. HE SCHEDULED ME FOR A LAPROSCOPY TO LOOK AROUND AND SEE WHAT WAS GOING ON. HE IS ALSO A FERTILITY SPECIALIST SO I KNEW HE WOULD TRY TO DO WHATEVER POSSIBLE FOR US TO HAVE A CHILD. I HAD A CHOCOLATE CYST ON MY RIGHT OVARY, ENDO, AND THE ENDO HAD FUSED MY BOWELS TO THE LEFT SIDE OF MY ABDOMEN. I HAD ALWAYS HAD PROBLEMS WITH CONSTIPATION BUT I JUST THOUGHT I WAS LIKE ALOT OF OTHER WOMEN. HE TOOK CARE OF ALL OF THAT AND WHEN I WOKE UP HE TOLD ME HE WOULD LIKE FOR ME TO GO ON LUPRON ONCE A MONTH FOR THREE MONTHS. THIS WAS ON SEPT. 11TH. I HAD READ ALL THE BLOGS BEFORE HAND ABOUT LUPRON AND I WAS VERY SKEPTICAL AND JUST PLAIN SCARED ABOUT TAKING IT. MY DOC TOLD ME IT WOULD HELP W/ THE PAIN AND AFTER TAKING IT FOR THREE MONTHS IT WOULD HELP US GET PREGNANT. I TOOK MY FIRST INJECTION BEFORE I LEFT THE HOSPITAL THAT DAY. THE FIRST COUPLE OF WEEKS I REALLY COULDN'T TELL ANY SIDE EFFECTS EXCEPT FOR HOT FLASHES. THEN THE HEADACHES STARTED. I HAD ALWAYS GOTTEN MIGRAINES, BUT THESE ARE 100 TIMES WORSE. I COMPLETED MY THREE MONTH CYCLE OF TAKING LUPRON ON NOV 6TH. I HAVE TURNED INTO A MOODY, CRANKY, ANGRY PERSON. IT IS UNCONTROLLABLE. AFTER MY LAST SHOT BEGAN TO WEAR OFF I GOT A HEADACHE SO BAD MY HUSBAND HAD TO PICK ME UP FROM WORK AND TAKE ME TO THE E.R. THEY TOLD ME IT WAS HORMONAL AND THAT I WOULD JUST HAVE TO DEAL W/ IT. THEY GAVE ME A SHOT AND SOME SAMPLES OF BUTALBITAL. THE SHOT DIDN'T DO ANYTHING AND THE BUTALBITAL ONLY MADE ME SLEEPY. I HAD THIS HEADACHE FOR OVER A WEEK. THEN IT JUST WENT AWAY. WHEN I HAD MY LAST SHOT MY DOC TOLD ME I WOULD HAVE A PERIOD WITHIN 6 TO 8 WEEKS AND WHEN I OVULATE AFTER THAT I SHOULD GET PREGNANT. IT TOOK ME OVER TEN WEEKS TO START. I FINALLY STARTED MY PERIOD A COUPLE OF DAYS AGO. I FEEL AS IF I HAVE ALREADY HAD A CHILD WITH ALL THE BLEEDING AND THE PAIN. IT IS UNBEARABLE. I FEEL SO SORRY FOR EVERYONE AROUND ME BECAUSE I DON'T EVEN KNOW THAT I AM BEING HORRIBLE. THROUGH THE LUPRON I HAVE GAINED 20 POUNDS, HAVE HAD SEVERE HEADACHES, HAVE BECOME VERY FORGETFUL, VERY VERY MOODY, AND JUST FEEL LIKE A TOTAL DEFERENT PERSON AND NOT IN A GOOD WAY. I WILL NEVER TAKE LUPRON AGAIN!! NEVER. IF ME AND MY HUSBAND DO NOT GET PREGNANT AFTER THIS I WILL JUST HAVE THE HYSTERECTOMY AND BE DONE WITH IT. I AM HOPING I BECOME LESS MOODY SINCE NOW MY BODY IS STARTING TO GO BACK TO NORMAL. OR AT LEAST I HOPE IT IS. HOW AM I SUPPOSED TO GET PREGNANT WHEN I AM SO MOODY THAT NO ONE CAN STAND TO BE AROUND ME? PLUS I NEVER WANT TO HAVE SEX. DOES ANYONE KNOW EXACTLY HOW LONG IT TAKES LUPRON TO TOTALLY GET OUT OF YOUR SYSTEM?

I have been on Toprol XR generic brand metoprolol since February 2008. No side effects originally. My blood pressure wasn't extremely high but enough that I needed something. Just recently, my BP has sky rocketed. Dr. upped med from 25 mg per day to 50 mg per day. In the last month, I have put on 18 pounds. I am lethargic, not sleeping well at all. Mostly 2 hours a night. I don't have nightmares, just can't sleep. I want off this drug. It isn't controlling my bp anyway. I have a doctor's appt. in a few days. I don't look forward to the withdrawals but it has to be better than the alternative and staying on it. I am afraid of CHF. My legs, hands and face are swollen from fluid retention. I have pitting edema in my legs. I am not having trouble breathing but I don't want that to happen before I decide to go off of it. The website has helped me to realize it is the meds and not me. Thanks for the support.

I had some really odd-ball side effects from Lyrica. I was on 150mg twice a day for fibromyalgia, and it seemed to work initially. I was feeling pretty good, and thought I, too, had found an answer to my aches and pains. After about two months, I noticed that my hair was falling out and turning gray (I was 39 at the time). I hadn't had a menstral period that second month, either. I told every doctor I saw about these strange symptoms, but was prompty ignored.

The third month, I began to gain weight like crazy. I ended up gaining a little over 20lbs during the year-long treatment. My skin was dry and thickening around my thumbs and heels. My energy level began to really go down (it was never that high to begin with). My fingernails became brittle and broke with the slightest provocation. The grayer and falling out hair was coarser, too. I also was either sleeping all the time for days, or then couldn't sleep at all for days.

By the sixth month, I noticed that my wounds were also taking longer to heal. Being diabetic for the last 29 years, I thought that maybe neuropathy was starting to set in. Up to that point, I had never had any signs of neuropathy, and always was in good control of my blood sugar levels. Now, I was beginning to get worried.

The eighth month forward brought cracked heels, cracked toes, cracked fingers and thumbs. I began to have pitting edema, which I immediately informed my Rheumatologist about. I have chronic renal insufficiency, though not diabetic related. It was a gift from my OB/GYN during pregnancy when I became eclamptic. The edema was so bad that blisters appeared on my ankles and would not go away, no matter how high up I rested with my legs. My skin hurt all around my legs, and soon started to notice my face also swelling. Still, no comments from any of my numerous doctors.

After a year of all this strange stuff, I took myself off of the Lyrica. It was a hard choice, as the meds helped to silence the strangling pain in my muscles. Within a month after discontinuing the drug, my period came back. Three months later I noticed that both my hair and nails were stronger, and my hair wasn't falling out as much.

Six months later, and I notice now that my wounds heal like they used to. My hair isn't as coarse, and my nails are much stronger. My sleep schedule is still not right, and I still have the deep cracks and crevices to my thumbs and heels, but it is much better than it had been. I have also since tried Lamictal, but am having tachycardia and shortness of breath, along with a marked rise in my blood pressure. This, too, I discontinued and am feeling somewhat better. The muscle aches and pains and fatigue are back with a vengeance, but I will put up with them as long as I can. I am on so many meds anyway, that my body is probably kissing my toes in thanks!

Luck to all who are on this drug, and hope it works for you without all the weird side effects I put up with!

I am so relieved to have found this site. I suffer from PCOS (Polycycstic Ovarian Syndrome). I am also morbidly obese, but I have been on a diet for 3 years and I enjoy the diet, sounds funny, but it is true. I lost 30 pounds the first year. Now, I have gained it all back, I can't do anything, I am in so much pain. I have back pain, knee pain, I have swelling in my legs they are so huge (the calves) They have grown three inches in circumference since I started the progesterone therapies. I have pitting edema in both my legs and my hands swell all the time. The only way to reduce the swelling in my hands is to hold my arms over my head for about 15 minutes and that seems to help enough to get my rings off. Mirena was supposed to NOT cause any side effects. Well let me tell you I got them all. The same way I did with the pill form. Only Mirena took longer to enter into my system. I am waiting for my Doctor to get back from vacation and I will be insisting on its removal.

Here is my list:

Pitting Edema in arms and legs
Headaches
Severe abdominal pain
Severe backache
Heart palpitations
Constipation
Lack of appetite
SEVERE WEIGHT GAIN (how can this be, I have been a diet for three years...and I am sticking to it) MY PANTS won't fit anymore.
NO energy
Fatigue
Nightmares
Nausea
Dizziness
Unable to concentrate
Slight double vision (right eye only)
Anger
PIMPLES ( I am 38 for Pete's sake, I didn't have pimples as a teen!)

My Doctor lied. Plain and simple. He told me there would be no systemic side effects. Either Bayer (Mirena) is lying to him, or he is lying to me....either way...I see a class action lawsuit coming if they don't remove this thing. I will kill me if it stays in any longer. I just know it! For those it works for good. I am pleased. For those of us who is don't, I truly feel your pain!

I am so relieved to have found this site. I suffer from PCOS (Polycycstic Ovarian Syndrome). I am also morbidly obeses, but I have been on a diet for 3 years and I enjoy the diet, sounds funny, but it is true. I lost 30 pounds the first year. Now, I have gained it all back, I can't do anything, I am in so much pain. I have back pain, knee pain, I have swelling in my legs they are so huge (the calves) They have grown three inches in circumference since I started the progesterone therapies. I have pitting edema in both my legs and my hands swell all the time. The only way to reduce the swelling in my hands is to hold my arms over my head for about 15 minutes and that seems to help enough to get my rings off. Mirena was supposed to NOT cause any side effects. Well let me tell you I got them all. The same way I did with the pill form. Only Mirena took longer to enter into my system. I am waiting for my Doctor to get back from vacation and I will be insisting on its removal.

Here is my list:

Pitting Edema in arms and legs
Headaches
Severe abdominal pain
Severe backache
Heart palpitations
Constipation
Lack of appetite
SEVERE WEIGHT GAIN (how can this be, I have been a diet for three years...and I am sticking to it) MY PANTS won't fit anymore.
NO energy
Fatigue
Nightmares
Nausea
Dizziness
Unable to concentrate
Slight double vision (right eye only)
Anger

My Doctor lied. Plain and simple. He told me there would be no systemic side effects. Either Bayer (Mirena) is lying to him, or he is lying to me....either way...I see a class action lawsuit coming if they don't remove this thing. I will kill me if it stays in any longer. I just know it! For those it works for good. I am pleased. For those of us who is don't, I truly feel your pain!

Here is my Mirena Story.

I was 6 weeks post partum....I had mirena inserted...it was very painful and I was not warned about that.
About a week later I noticed yellowing in the whites of my eyes which I thought could be coming from a iron def. since I just gave birth. So I made sure I was eating well and taking vitamins. I also had severe itching at night especially on my ankles and legs. Oh and sex drive was gone. It was fine the 6 weeks after birth but as soon as mirena was in it was gone!!! I went to the doctor about a month after insertion and asked to have it removed, of course my doc said it couldn't be iud causing my problems...come back in a month...So I did....within this month I started having severe anxiety, insomnia and panic attacks, to the point were I actually thought I was loosing my mind. Of course again the doc told me that it wasn't iud and prescribed me an antidepressant which I reluctantly excepted. I'm not depressed...my life was perfect before mirena!!! I finally went back for the third time and decided I wasn't leaving until somebody took this thing out of me!

Here is a list of other side effects that I had/still have!!

acne
migraines
extreme lower back pain
numbness and tingling in hands and feet
vision problems
fogginess
An ADHD type feeling
inability to focus or concentrate
extreme fatigue
feeling of throat closing up
heart racing and palpitations
night sweats
sinusitus
dizziness and light headiness
headache

The problem here is that the doctors don't even know how extreme these side effects can be and they keep telling us that it's not the mirena. PLEASE trust your instinct.....I wanted to trust my doctor but I knew in my heart what was causing my problems...I am only 1 week post mirena and I am still having a lot of my problems but I can tell a difference. DON'T LET IT GET OUT OF HAND....TAKE IT OUT!!!!

DON'T GET MIRENA...IT MAY WORK WELL FOR SOME...BUT IN MY OPINION IT IS NOT WORTH THE CHANCE THAT THESE HORRIBLE SIDE EFFECTS COULD HAPPEN.....HAD I BEEN INFORMED PROPERLY I WOULD HAVE NEVER HAD MIRENA INSERTED!!

Good Luck Ladies!!

I decided a long time ago, Doctor's are not the best listeners!! I am a nurse, I know!! Read my post today June 18th. I have been praying for an answer to all my symptoms, especially the profuse sweating I have been having for the past year!!! I believe I have found my answer at this site. Thank God I found it. All because I was looking up info about Toprol because after the doctor increased my dosage yesterday , today my ankles and feet swelled up like balloons!!!!! Now I have pitting edema!!!
I have gone to a # of doctor's in the past year and a half and I think they believe it is all " in my head"!!! I have been so depressed. My husband has even threatened to leave me. NO interest in much of anything. I don't know what it is like to sleep anymore :-( My husband says " just close your eyes and sleep like a normal person". Maybe after he reads the posts at this site he will begin to understand that everything I have been going through is "REAL". I am calling my Dr. in the morning and she will WEAN me off this awful drug!!! My BP has been going up since I have been on Toprol instead of going down. I have wondered why the Dr. didn't just change the med. It really makes one wonder. DO the Dr's ever hear what we are saying???? I would be happy to share stories with anyone on this site. How many of you have experienced profuse sweating???? The doctor will WEAN me off this drug!!! :-)
God bless everyone!! I pray you all get off this drug!! It needs to be pulled by the FDA!!!
Joyce47oh ;-)

has anyone noticed excessive breast tenderness with the NuvaRing. my boobs have always been a little sore the week before my period, but now they start feeling sore, and even aching, up to two weeks before. it freaks me out monthly as breast tenderness is a sign of pregnancy.

I'm so glad that I found this page. I injured my back 3 years ago and have been taking prescribed opiods for the pain. Recently got a bad UTI that lasted 3 months and they thought it spread to my kidneys, so they put me on Levaquin. The first 2 days nothing but soreness,I felt like I had been held down and beat with a bat. The 3rd day I noticed some swelling on my ankles and attributed it to working and standing on my feet all day. By the 6th day(this past Saturday) I can barely stand my knees and hips hurt so bad that I cut short my training with my Thoroughbred Shelby. I even had to ask my husband to come with me so that I could at least get him brushed out and groomed. I couldn't even hold a large groom brush. I literlly have to roll out of bed and try to prop myself up. My hands and wrists are so swollen that it's hard to just sit up on the side of the bed, and my lower legs, ankles and feet are all pitting edema with pain in every joint and difficulty just standing and walking is even harder. Thank God I have a cane that I use intermittently for my back. Here I was worried that my kidney's had shut down. I also have been looking on the net and found all my symptoms related to Levaquin. I'm not taking this any more.
This drug is dangerous, like others here, not 1 doctor even said a word about this side effect/ allergic reaction I could have. Not even the pharmacist. Sickening. All for a buck in their pocket.

excessive weight gain
muscle fatigue, joint pain shortness of breathe

I ahev been taking advair for 2+ years on and off when I was sick for chronic bronchitis and asthma. Within the last 4 months I have been on either the 500mg or 250 strength... I have gained over 30# in 3 months time and have a huge belly! I have not changed lifestyle to have gained so much weight. I kept joking marriage did it to me as I am a newly wed. Someone told me they quit the advair as they gained so much weight. SO I stopped cold turkey afraid my asthma would get worse. While taking it routinely I was having to use my rescue inhaler daily plus use of the nebulixer when at home. I have not had an attack since i went off the advair!!!! I also had severe leg pains/ aching. When we took a trip my legs and feet had 3+ pitting edema! All the edema has gone done. I have bene advair free for one week now. I was alos getting pimple like sores on my back and I never had acne or skin problems in my life not even as a teen ager.

I have been taking prednisone for severe chronic urticaria (hives) for 14 years. The good outwieghs the bad here because I would be dead by now if I was not on it. I would have killed myself. Before I was on it, my face would swell up so that I could not see, barely breathe and definitely not talk. On top of this I had hives on every inch of me, my hands so badly swollen that I could not close them, my feet so swollen even standing hurt and walking was like treading on knives. If that was not bad enough I had extreme nausea and could not keep even water down. Sleeping was completely out of the question and trying to do anything at all but sit and scratch was also out of the question. The only side effects I have had are extreme weight gain (60 the first year and in the additional years it has become a grand total of 150 lbs) I have doubled my weight since I started the medication. By the way I excercised like a hamster on crack and it did not help. I have pitting edema, an ulcer and I now bruise very easily. Over the years I have taken every antihistimine ever conceived as well as tried many other remedies. I have been on anti rejection medications, asthma medicine and even arthritis medication. At one point I was on Zantac and Proventil to see if that might do it. Unfortunately prednisone is the only thing that has worked for me. I have even tried some herbal remedies. I would wrap myself in aluminum foil if it would make my hives disappear, unfortunately it ended up being fat and pitting edema in which I have been wrapped. I can handle it. Getting fat is not the end of the world, not living my life is the end of everything! So take the vitamins and the detoxifiers and suck it up!

Left ankle and knee ache and are very swollen. Other joints hurt as well. Left leg has pitting edema. Upper back pain. All since starting Toprol. Spent 5 hours in ER to rule out DVT only to be told. "You must have done too much exercise". I've been exercising for 35 years and never had this problem.