May 10th
2008
2:08 PM
Have any of you developed Leukemia after taking Yasmin? Or do you know some one who has developed it and they just happened to be taking it at the time? Any feedback would be appreciated.
-- By ronijeni | Reply | (2) replies | Send Private Mail
March 4th
2008
8:50 AM
WARNING be aware of H.I.T.
IF YOU ARE ON CLEXANE PLEASE MAKE SURE THE DOCTORS CHECK YOUR PLATELET LEVELS BEFORE STARTING THIS DRUG.DO NOT BE AFRAID OF ASKING AS THIS IS STATED IN GUIDELINES.
THE GUIDELINES SUGGEST IF YOUR PLATELET COUNT FALLS 50% FROM WHAT IT WAS BEFORE YOU STARTED THE TREATMENT THEN H.I.T. SHOULD BE SUSPECTED AND ALL FORMS OF HEPARIN SHOULD BE DISCONTINUED AND AN ALTERNATIVE ANTICOAGULANT BE USED.
THIS IS VERY IMPORTANT; PLEASE DO NOT TRUST YOUR DOCTOR TO AUTOMATICALLY DO THESE TESTS. WE TRUSTED MY GRANDMOTHERS DOCTORS, THEY DID PART OF THE TESTS BUT FAILED TO ACT ON THE RESULTS!!!!!
My grandmother died from heparin induced thrombocytopenia (HIT).
This is an adverse reaction to the drug Clexane. Guidelines suggest platelet count should be monitored, unfortunately the hospital Doctors did not monitor her blood whilst she was on this drug. A 50% fall in platelet count should have alerted Doctors to act on their findings and discontinue the drug, instead they carried on giving it to her for a further 6 days. Her symptoms were as follows;
itchy
drowsy
bruises
nausea
vomiting
diarrhea
Because her reaction to Clexane had gone unnoticed she was still being given this drug her symptoms became worse they were as follows;
Black bruises (necrosis)
gastrointestinal haemorrhage
spontaneous bruising
slurred speech
confusion
falling platelet count
When the Doctors discovered the internal bleeding they stopped the Clexane but did not offer her an alternative anticoagulant and her symptoms after this were as follows;
Deep vein thrombosis, arterial thrombosis, she was still hemorrhaging, her platelets fell to 5 and her HB fell to 6.9 INR was normal.
She was transfused with platelets and red blood cells and then died. (Clexane heparin induced thrombocytopenia) is on her death certificate AFTER A FOUR YEAR BATTLE FOR AN INQUEST INTO HER DEATH! My research has led me to believe that most Doctors believe HIT is very rare and they don't bother to check for this condition, if the doctors had checked her blood test and realized a sudden 50% fall in her platelet level was more significant than the actual platelet count itself , then she would not have died.The 50% drop was a serious side effect of this drug.
PLEASE ASK YOUR DR TO CHECK AND TELL HIM/HER TO CHECK IF YOU HAVE GOT BETWEEN 30-50% DROP IN PLATELETS THEN MAKE SURE YOUR DOCTOR KNOWS WHAT HE IS DOING.
Jill (Lancashre UK)
-- By jillorrell | Reply | (2) replies | Send Private Mail
January 29th
2008
3:34 AM
The Advate administration can cause a FXII diminution?
Our patient 42 years old male in 9/09/07 presented a CNS bleeding (major). The BW=145Kg,. He treated with 10.000 unit daily with pump (continuously). During this time the level of FVIII remained between 80-125%. No appearance of an inhibitor. But he has a platelet count 63.000/μl and FXII=30%.
July 30th
2007
1:26 PM
Does Bextra cause stomach or gastrointestinal bleeding? I have ITP with 83,000 platelet count.
-- By glendafoust | Reply | Send Private Mail
January 10th
2006
12:36 PM
My daughter has been on Prednisone for 16 months because of a blood platelet disorder (ITP). She started with 100 mg and has gradually been weaned down to 2 mg. Yesterday, her platelet count dropped quite a bit, so they took her back up to 3 mg. to get the count back up. I have several questions--because she is scared to check for herself. 1st, she has had a "sore" or achey spot on the side of one of her breasts--not a premenstrual sore, just a deep sort of ache. Could this be related to the prednisone? Also, she has had breakthrough bleeding between cycles. Also the pred??? Are there side effects even on this lower dose? She is 25 years old, and this has been a horrific ordeal for her and her new husband (who is incredibly understanding and patient). She is constantly anxious and deals with irrational fears. Frequent mood swings are common. I am sure this is all a result of the long term use of pred., but she so much wants to return to normal again. Has anyone experienced any of these or been on pred for this long? Thank you!
-- By pamb | Reply | Send Private Mail
November 12th
2004
8:31 PM
I started on 60mg of Prednisone a day for severe ITP on month ago. I'm always hungry, feel spacey, have a rapid heart rate, feel short of breath and sweat easily on any exertion. Am definitely awake! I've gained weight, a moon face, and am losing too much hair. But my platelet count has improved and I hope to be able to taper down in the next couple of months.
-- By shellyruth | Reply | Send Private Mail
November 14th
2002
5:06 PM
terrible itchy rash over entire body after about a week's use; low, bordering on dangerous, level of platelet count.
-- By joannez123 | Reply | Send Private Mail
Clexane (2) PredniSONE (2) Bextra (1) Bellamine (1) Yasmin (1) Advate (1) Levaquin (1)
October 1th
2008
12:22 AM
Heres my Levaquin horror story:
In hospital for bowel obstruct. Took LevaQ. at home. 1/2 way through I noticed I wasn't feeling any better but worse while recovering. Starting sleeping for 3 hr intervals, while up I would feel as if I wanted to jump out of my skin. Calf pain. Dizziness. Intermittent instenseTingling around mouth and face. Called my MD.
-- By michie | Reply | (1) replies | Send Private MailI was put back in hospital due to a platelet count of 'one million'. My MD who is wonderful, consulted with others, even an oncologist. I refused a bone marrow aspiration, so they came up with a game plan -- possible reaction to the Levaquin???? So... 'flush out the Levaquin'. With each day of continuous mass flushing of IV fluids....my platelets decreased daily.
3 years later...I getting intermittent tingling, flu like symptoms, dizziness, heart palpitations, extreme fatigue-------------still looking for answers to my illness. Just had more blood work - lymphocytic profile was drawn, waiting on results. Definitely am anemic, chronic slight rise in liver enzymes with last sed rate and wbc count in norm range.