Polycycstic ovarian syndrome symptoms and conditions

I am so relieved to have found this site. I suffer from PCOS (Polycycstic Ovarian Syndrome). I am also morbidly obese, but I have been on a diet for 3 years and I enjoy the diet, sounds funny, but it is true. I lost 30 pounds the first year. Now, I have gained it all back, I can't do anything, I am in so much pain. I have back pain, knee pain, I have swelling in my legs they are so huge (the calves) They have grown three inches in circumference since I started the progesterone therapies. I have pitting edema in both my legs and my hands swell all the time. The only way to reduce the swelling in my hands is to hold my arms over my head for about 15 minutes and that seems to help enough to get my rings off. Mirena was supposed to NOT cause any side effects. Well let me tell you I got them all. The same way I did with the pill form. Only Mirena took longer to enter into my system. I am waiting for my Doctor to get back from vacation and I will be insisting on its removal.

Here is my list:

Pitting Edema in arms and legs
Headaches
Severe abdominal pain
Severe backache
Heart palpitations
Constipation
Lack of appetite
SEVERE WEIGHT GAIN (how can this be, I have been a diet for three years...and I am sticking to it) MY PANTS won't fit anymore.
NO energy
Fatigue
Nightmares
Nausea
Dizziness
Unable to concentrate
Slight double vision (right eye only)
Anger
PIMPLES ( I am 38 for Pete's sake, I didn't have pimples as a teen!)

My Doctor lied. Plain and simple. He told me there would be no systemic side effects. Either Bayer (Mirena) is lying to him, or he is lying to me....either way...I see a class action lawsuit coming if they don't remove this thing. I will kill me if it stays in any longer. I just know it! For those it works for good. I am pleased. For those of us who is don't, I truly feel your pain!

I am so relieved to have found this site. I suffer from PCOS (Polycycstic Ovarian Syndrome). I am also morbidly obeses, but I have been on a diet for 3 years and I enjoy the diet, sounds funny, but it is true. I lost 30 pounds the first year. Now, I have gained it all back, I can't do anything, I am in so much pain. I have back pain, knee pain, I have swelling in my legs they are so huge (the calves) They have grown three inches in circumference since I started the progesterone therapies. I have pitting edema in both my legs and my hands swell all the time. The only way to reduce the swelling in my hands is to hold my arms over my head for about 15 minutes and that seems to help enough to get my rings off. Mirena was supposed to NOT cause any side effects. Well let me tell you I got them all. The same way I did with the pill form. Only Mirena took longer to enter into my system. I am waiting for my Doctor to get back from vacation and I will be insisting on its removal.

Here is my list:

Pitting Edema in arms and legs
Headaches
Severe abdominal pain
Severe backache
Heart palpitations
Constipation
Lack of appetite
SEVERE WEIGHT GAIN (how can this be, I have been a diet for three years...and I am sticking to it) MY PANTS won't fit anymore.
NO energy
Fatigue
Nightmares
Nausea
Dizziness
Unable to concentrate
Slight double vision (right eye only)
Anger

My Doctor lied. Plain and simple. He told me there would be no systemic side effects. Either Bayer (Mirena) is lying to him, or he is lying to me....either way...I see a class action lawsuit coming if they don't remove this thing. I will kill me if it stays in any longer. I just know it! For those it works for good. I am pleased. For those of us who is don't, I truly feel your pain!

Here is my Mirena Story.

I was 6 weeks post partum....I had mirena inserted...it was very painful and I was not warned about that.
About a week later I noticed yellowing in the whites of my eyes which I thought could be coming from a iron def. since I just gave birth. So I made sure I was eating well and taking vitamins. I also had severe itching at night especially on my ankles and legs. Oh and sex drive was gone. It was fine the 6 weeks after birth but as soon as mirena was in it was gone!!! I went to the doctor about a month after insertion and asked to have it removed, of course my doc said it couldn't be iud causing my problems...come back in a month...So I did....within this month I started having severe anxiety, insomnia and panic attacks, to the point were I actually thought I was loosing my mind. Of course again the doc told me that it wasn't iud and prescribed me an antidepressant which I reluctantly excepted. I'm not depressed...my life was perfect before mirena!!! I finally went back for the third time and decided I wasn't leaving until somebody took this thing out of me!

Here is a list of other side effects that I had/still have!!

acne
migraines
extreme lower back pain
numbness and tingling in hands and feet
vision problems
fogginess
An ADHD type feeling
inability to focus or concentrate
extreme fatigue
feeling of throat closing up
heart racing and palpitations
night sweats
sinusitus
dizziness and light headiness
headache

The problem here is that the doctors don't even know how extreme these side effects can be and they keep telling us that it's not the mirena. PLEASE trust your instinct.....I wanted to trust my doctor but I knew in my heart what was causing my problems...I am only 1 week post mirena and I am still having a lot of my problems but I can tell a difference. DON'T LET IT GET OUT OF HAND....TAKE IT OUT!!!!

DON'T GET MIRENA...IT MAY WORK WELL FOR SOME...BUT IN MY OPINION IT IS NOT WORTH THE CHANCE THAT THESE HORRIBLE SIDE EFFECTS COULD HAPPEN.....HAD I BEEN INFORMED PROPERLY I WOULD HAVE NEVER HAD MIRENA INSERTED!!

Good Luck Ladies!!