July 27th
2009
10:41 AM
Just finished reading the posts and I feel like it was written about my 8 year old. I never connected the two issues of anxiety, frustration doing schoolwork, quick to tears and leg pains. I kept telling them they were growing pains. Last night he called me from his father's and said he has suicidal thoughts... not that he wanted to kill himself, just couldn't stop thinking about it... good lord. After months of dealing with him not wanting to go to bed and not feeling safe we have an answer. I told my ex husband to stop the medication today, I will post back after a few weeks to update the progress. I usually never post randomly on the internet, but this site might have just saved my son from emotional turmoil!
-- By seg874 | Reply | (3) replies | Private Message me
July 18th
2009
8:03 PM
I took Levaquin 2 weeks ago for an ear/sinus problem. I had taken the 2nd pill (750) and my insides hurt so bad that night that I could not even lay down. Since then, I have burning pain in abdomen, light colored stools, indigestion, poor appetite, and my creatinine level went up to 3.3. I am going for an EGD on Tuesday. I am really sick and would like to know if anyone else had this.
-- By minsky15 | Reply | Private Message me
June 7th
2009
4:47 PM
I discovered my son's side effects from singulair a little over 2 years ago. He had used Singulair for approx 3 years. I did not recognize that he was suffering side effects until his ped increased his dosage to 5mg. At that point, it was loud and clear. I discontinued the Singulair in March 2007. The most significant improvements happen after approx 3 weeks. He was like a different child. Even after the 3 weeks, it seemed like he continued to improve a little every day.
I can tell you from our experience that my son suffered many, many side effects that i did not recognize. He had nightmares, anxiety, fear, frustration, leg pains, stomach pains, dark circles under his eyes, poor appetite, quick to tears and restlessness...just to name a few. On the higher dosage, he began to have a facial tic, dilated pupils and hallucinations.
I am thankful everyday for this website and some higher power that helped me realize what was going on and get him off Singulair. The first week off Singulair, he slept like an angel. No night terrors, no thrashing in his sleep. Week 2, he continued to improve in so many ways. It was nothing short of amazing. Week 3, he began to realize the changes in himself. Fears were a HUGE side effect for him. During week 3, the fears, ALL of them disappeared. He never spoke of them again. It was very strange and truly amazing.
I don't want to tell you to stop the use of Singulair. Only you know your child's health status. I will tell you that stopping Singulair changed our lives and saved my son. He suffered the assault of Singulair for 3 long years. Good luck to you all and your families. Feel free to email me if you have any questions.
-- By momof1son | Reply | (1) replies | Private Message me
April 15th
2009
7:29 AM
I have cancer, and am on chemo, my doctor prescribed budeprion xl 300mg (not my oncologist) I am completely dehydrated and just horrible !! should I discontinue the budeprion. I have had fluid infusions each of the last to days. I have a dry mouth and no appetite
-- By z4187 | Reply | (1) replies | Private Message me
January 14th
2009
10:57 AM
I originally posted about my 9 year old son on January 5th. Refer back to this for the symptoms. He had his upper and lower endoscopies on the 12th, and the lower showed numerous ulcers in the large intestine and at the beginning of the small intestine. The doctor insists that it has to be Crohn's disease based on just this and the blood work, which showed eosinophilia and elevated sedimentation. He is insistent that this has nothing to do with the Singulair and the dosage change. It's just a coincidence .... He' in the hospital for a week now. Watch for those stomach complaints! His started with poor appetite, complaining that he was full when he had hardly eaten, and vague complaints about eating giving him a stomach ache. It progressed to occasional diarrhea. It got worse quickly after that, just a few weeks.
-- By worriedinva | Reply | (4) replies | Private Message me
April 15th
2008
11:55 PM
It has been 18 days since my 9 year old daughter has taken Singulair. Our daughter had been taking Singulair for approximately 2 years. It was in the last year that we started to notice some behavior changes and mood swings that were so often unprovoked. We were somewhat concerned and thought like so many other parents that it was a phase. Then in December 2007 she came home from school with a tummy ache and had several episodes of vomiting. She seemed better the following day, but we took her to the pediatrician to be sure that this was a virus. The stomach pains continued, and then anxiety attacks began. Over the next month she began to wake up each day with stomach aches and we began more visits to doctors and more testing. She had abdominal X-rays, CT scan, mekel scan, GI consult and endoscopy. All were ok except she did have some small amounts of acid in her stomach. She was treated with Prevacid with really no significant changes. As weeks passed she missed more and more school, she just could not make it through the day. She had intense separation anxiety, and developed OCD about being sick again and vomiting, fears that she may stop breathing; fear of dying and the list goes on. She was refusing to ride the bus to school, and was having more and more panic attacks that would last for hours. We finally took her to a psychiatrist after we had done every test we could possibly do and all were normal. She woke up with the fear and anxiety, and fell asleep each night the same way. The doctor said she had "OCD" which she believes was triggered by the fear from vomiting. "This was the first time she had vomited since she was an infant.” She was treated with Lexapro, and Klonopin. The symptoms worsened over the next few days even with the new medications. After many calls to the doctor we were finally advised to have her admitted to a children’s psychiatric hospital for closer evaluation where higher doses of medications could be administered. She was there for 4 horrible days with slight improvements. Over the next few weeks the medication did begin to help some and she was able to make it through school each day as long as she was able to call me a few times a day for re-assurance. I thank God each day for her wonderful teacher and staff that have helped us through this. They all have known her for 3 years and knew this was just not her character at all and she was truly struggling. She was always known as "Smiley" to everyone because she always wears a grin. We began therapy with a psychologist as well and she has good and bad days. Then we heard the news about Singulair and I began to trace back other issues she had with focusing in 2nd grade and how things just seemed to progress from there. It all happened so gradually that I would never have put two & two together. She is showing improvements every day with personality, mood, attitude, fears, and the "OCD". She told me today that this was the best day ever!! I have made all the Doctor's involved aware of this information and the progress she has made in the last 2 1/2 weeks. Her doctor did cut her meds in half this week as well. Thanks to everyone that has posted their nightmares as well, and we will pray for you and for full recovery for all those that have suffered.
-- By benitez91 | Reply | (2) replies | Private Message me
April 11th
2008
9:49 AM
i am so happy to hear all of these stories of recovery. i discovered my son's singulair side effects in march 2007, after 3 years of use. i can tell you from our experience that the most significant recovery comes within 3 weeks. after the 3 weeks, the more subtle improvements continued to occur for months and months after. without the effects of singulair, they experience life in a whole new way. my son's experiened 3 years of undetected side effects which included: irritability, FEAR, stomach / leg pains, poor appetite, difficulty with focusing / comprehension, restlessness and nightmares. the last 2 months on the 5mg dosage, he also experienced a facial tic, dilated pupils and hallucinations along with an increased in intensity of all the above. i thank god everyday for finding this website and removing my child from singulair.
-- By momof1son | Reply | (1) replies | Private Message me
March 29th
2008
10:57 AM
WOW! I just came upon this site after hearing about the singulair warnings from my dad. I have an 8 year old daughter on singulair, zyrtec, and advair for asthma since she was 5. Thursday night we came back from a meeting with a psychologist for an educational evaluation (recommended by the school). She has had problems with concentration and learning at school since first grade (she started singulair just before entering 1st grade). Prior to that, there was never any issue, in fact she was tested as a very bright girl by a different psychologist (at age 4 for admission into private school). The current psychologist diagnosed her as ADHD-NOS and recommended medication and suggested a speech therapist for a minor speech problem. The ADHD-NOS is because she feels she has ADHD without all the hyperactivity or true attention problems (no "classic" ADHD symptoms). Since we were having her evaluated, we also mentioned her horrible mood changes and temper. She falls apart over little things and gets very angry with her siblings, yelling about how she hates her life and wishing she didn't have a younger brother. Along with this, we were having her evaluated by an ENT for her sleep problems (very restless sleep, falling asleep during the day when others don't- she already has had her tonsils and adenoids removed). My daughter also has a poor appetite (she used to complain on stomach pains). This was just not the same, happy, energetic child I had a few years ago.
The next morning, I called the pediatrician and told him that I wanted to take her off all the meds. I felt they were causing her all these problems and he agreed that they may be. We have decided to take it one step at a time. The pediatrician feels it may be all interrelated. I am so shocked to see the number of kids with the same problems! I wonder how many of these kids are being diagnosed as ADD/ADHD because of these meds? It never occurred to us that these meds could be causing her so many problems over the years. As parents, we assumed her problems were just because of sibling rivalry, a picky eater, boredom at school, etc. It all makes sense now. My husband is a cardiologist trained at Hopkins and Harvard and it never occured to him that these meds could do this to a child until Thursday night when we were told to give MORE meds to our daughter. Hopefully, we will see improvement in our child and that no long lasting damage has been done.
February 12th
2008
10:26 AM
I'm not sure if this is related to Singulair 5mg. chewable, but now that I've been reading everyone's experiences, I fear that it may. My 7 yr. old has been taking Singulair 5mg chewable tablets these past 2 years. He takes it during the months of Sept. to October. His pulmonologist has not determined whether or not he is an asthmatic or not. When he would get a common cold, he would almost always cough as if he had the croup and he would need to use a nebulizer with Pulmicort. The Singulair worked great. He hasn't needed the Pulmicort for almost a year now and colds this year were limited to two minor sniffles.
My son just started experiencing sharp pains on the left side of his chest. They would come quick and hard and disappear within 2-3 seconds. We immediately rushed him to the Emergency Room. He had experienced 5 quick episodes during Sunday, February 10th. The first 3 were spaced out about 20 minutes apart. the fourth was about an hour apart and the 5th and last occurred 2 hours after. The ER conducted a chest x-ray and an EKG, Neither showed any abnormalities. He felt a quick pain today, which is Tuesday. He has an appointment with a cardiologist on Wednesday morning. Now that I have read a number of postings, I am frightened. My son has not only experienced pains in his chest on the left side, but night sweats. occasional leg cramps. nightmares and is extra sensitive to emotional situations.
I'm pulling him off Singulair. Last night was his last dosage.
January 16th
2008
4:49 PM
I'm soo glad I found this site!! Now I know I am not really crazy... I was on ortho tri cyclen for 6 months then started Yasmin and have been taking it for 3 years to help regulate my period and since starting it my side effects just keep getting worse and worse. I'm 21 years old, very active, outgoing...but I will have SEVERE depression, feelings of hopelessness, bloating, crazy appetite (one day I won't eat at all, the next I'm eating everything), and for the past 3 years I easily get yeast infections and the part that really gets me is that I'm not sexually active and have never been, I only went on the pill to regulate my period. ALSO, since starting the pill I have had really bad problems with my contact lenses...so bad I couldn't even wear them and I had to get lasik surgery because glasses are not an option with me being a gymnastics coach. But all of this started when I got on Yasmin. I enjoy having a short, light, and regular period but the side effects have made me look to another because pill YAZ. My doctor said this pill should help with my symptoms of depression, poor appetite, etc. But is it even worth switching, I wish I didn't have to take anything but I'm afraid I will become irregular again. If I didn't have to be on the pill I certainly wouldn't be!!! Do ALL bcp have the same side effects? Should I try the shot, or the ring? This will definitely be my last month on Yasmin but I don't know what else to take!?
-- By michelle14 | Reply | Private Message me
January 3th
2008
10:40 PM
I was diagnosed with Crohn's disease in July. I had my colonoscopy/endoscopy the day before 4th of July. Got sick with what I thought was the flu on June 26th. That's when I first landed in the hospital (dehydrated & sick). After the diagnosis I was first put on Entocort and Pentasa (Pentasa is supposed to be a remission drug - keep you from having flare-ups). Entocort didn't work so they switched me to Prednisone. I've been on Prednisone for about 6 months now. Going from 20 mg to 40 mg and then I'm finally weaned down to 5 mg. I get to go completely off of it Jan. 13th. Scared of what other side effects might occur from coming off the drug. While on it I've had emotional problems, acne(never had a problem with it before), moon face, gained 30 pounds, joint pain (I was in therapy for as long as insurance covered. - I recommend water therapy, it helps for some people as it did me), trouble sleeping (haven't slept a full night since I got sick), certain days I'm really really thirsty, I've had sort of what I'd call restless leg (I had this before I was on this medicine but it has gotten significantly worse - mostly at night or when lying down), and dry skin.I have to say though that the WORST side effect is the FOG. It's horrible. I enjoy learning and using my brain and when I'm on this I can't think, I mix up words, and it feels like my brain is covered in cobwebs.I had to drop a calc 2 class and that got me off the track I'd set with my academics. My inflammation rate is down where it's supposed to be as of the last blood test a couple weeks ago. So I guess the Prednisone and Remicade are doing what they are supposed to - but I still don't feel as if the pain (not associated with Prednisone - caused by the disease) has gone completely away even if the inflammation has gone down. And Prednisone's effects are just horrible. Some nights I feel depressed and just want to cry and cry. The past months have been trying because of several hospital stays, switching to many different doctors (gastrointernologists, nephrologist, urologist (kidney stones), primary doctor - and they think maybe I should see a rheumatologist), and Pentasa (it began shutting my kidneys down). I just hope that when I come off the Prednisone the side effects will fade (hopefully quickly but lets be realistic - ill just be happy if they go away sometime in the next few months) and I won't flare up again. Anyone know the best way to get rid of the weight? I'm already drinking lots of water and I go walking and do exercises everyday.
QUESTION: When tapering Prednisone does anyone have a place(s) on their stomach that are sunken in and feels dry compared to the skin around it?
Anyways, I hope that everyone overcomes their difficulties, whatever they might be or concern. It's hard to have a life when you are constantly fighting your own body to stay healthy.There are plenty of situations in life that are already hard enough to deal with without medical issues of your own. Best of luck to all!
-- By tesa | Reply | (4) replies | Private Message me
November 24th
2007
4:09 AM
I began 15mg of Remeron per day about 1 month ago. At first, it was wonderful. I slept better than I had in years and my depression was reduced greatly. I felt hope for the first time in ages. However, about a week into it, I started to become aggitated VERY easily. I would get angry at anything. This has not subsided at all...in fact, it's worse. Now I wake in the middle of the night with my mind racing and either in a rage or STARVING. I eat a lot. It's nice to have my appetite back, but I crave sweets too much. I can accept that symptom if it wasn't for the rage and inability to stop my mind from switching between utter numbness to anger. I'm going to give it longer, in the hopes that it brings me back to where I was when I started taking it. If this keeps up though, I'll be in trouble.
-- By wdead | Reply | (4) replies | Private Message me
January 19th
2006
5:19 AM
My 6 yr old dtr was given omnicef for strep throat. I hate this medicine. She has had nausea and vomiting, stomach cramps, and poor appetite. I lowered the dose after 2 days and stopped the medicine after five days. It has now been 1 week since she took her first dose and she is still having nausea and stomach cramps when she gets up in the morning
and her sore throat is back! Stay away from this med!
March 13th
2005
2:13 PM
i feel good one week back on synthysoid. iwent off of it for 4 months, biggest mistake of my life. my periods had completely stopped, gained wheight, had no reflexes, heart had slowed down and i wasnt having any balmovements. my doctor put me back on synthyroid starting on 97mg for 2 weeks then for a month i will be on 112mg then i will be back on my original dose of 137mg. only been back on it for a week . have not had a period yet, but i started using the bath room again. a good tip that has helped me is a change of how you eat and drinking lots of water, and also taking a daily vitamin. i believe a poor appetite and not drinking water and not taking a daily vitamin has a whole lot to do whith why we are diognosed with this disease.try to keep as healthy as possible.the syntoms you guys talk about might just be your dosage is either to high or to low. or you are just not taking it right.
-- By andrea601 | Reply | Private Message me
Singulair (9) PredniSONE (1) Yasmin (1) Budeprion (1) Levaquin (1) Remeron (1) Omnicef (1) Levoxyl (1)
July 28th
2009
2:01 PM
My son was put onto 4mg Singulair when he was three years old. He is now six years old. For the past three years he has been a very quiet child, to the point that people commented on how shy and withdrawn he was. He never wanted to go anywhere or do anything. His favorite activity was lying on the couch watching tv. He was always thirsty, frequently went to the toilet,often complained of a sore stomach & had several bowel movements every day, did not sleep well at night, was often grumpy, could not concentrate for very long, was frequently ill with cold-like symptoms and did not really like you to touch/hug him. At the beginning of the year he was diagnosed by an occupational therapist as having low muscle tone. In March of this year, his pediatrician increased his singulair to 5mg. He began having terrible pains in his legs, to the point that he would cry and be unable to walk to the toilet at night. I took him to my GP who did every blood test under the sun and x rays of his pelvis and legs. He could find nothing wrong. The only thing that had changed was the increase in Singulair. I had a look on the internet and found this website. I immediately decreased his dose to 1/2 a tablet for a week and then 1/4 tablet for a week before taking him completely off it. Within a few days our whole family and his teacher and therapist noticed a huge change in his personality! He talks all the time now, he laughs a lot, he loves playing outside and has lots of energy. He teacher says he is much more receptive at school. His occupational therapist says his muscle tone has improved. He has not had one single leg pain since coming off the medication. He is sleeping well at night, his stomach is never sore and he has not been sick at all. Not even one little sniffle!! Best of all he is a normal, affectionate little boy. I feel very angry with the manufacturers of Singulair and with his pediatrician, it feels as though my son has lost three years of being a child. He felt terrible all the time and I had no idea! I have told everyone I know who has a child on singulair to look at the side effects.
-- By bronwynt | Reply | (3) replies | Private Message me