Poster child symptoms and conditions

First of all, a big thanks to all of you who have shared your experiences. I am a biochemist, with a background in pharmaceutical research...I chose the Mirena IUD after careful consideration of it's active ingredient, Levonorgestrel. The side effect profile seemed pretty acceptable...until I started to experience nearly ALL of them...I am 33 years old and had the Mirena IUD placed in October of 2008 after the birth of my second child in June of 2008. The initial reaction was to be expected...cramping, a little spotting etc...nothing to be alarmed about. I still have yet to have a period (which I really don't miss so no problem there) I never gave a second thought to this until now...for the past month or so (coinciding with the weening process, since I have been nursing the entire time, I believe the side effects were not as noticeable) I have been experiencing the following (that may or may not be related to Mirena as my OBGYN has so adamantly pointed out, but after reviewing your posts I'm willing to bet they're connected) and are in order of occurrence: Major, but temporary, hair loss after 2 months or so; Major respiratory infection lingering over a month with difficulty breathing, tightness and pain in the chest at around 6 mos; And in the past month, several instances of motion-like sickness/ nausea, dizziness, blurred vision, major impatience/ mood swings, loss of appetite (pregnancy-like symptoms...yep, I was thinking man I'd be pretty pissed if I was that 0.01% pregnant statistic), and as of this past weekend, my first aurora migraine with tunnel vision and serious nausea and vomiting, to the point where I went to Urgent Care...who referred me to the ER...who wants to perform a battery of tests including a head CT. I have an appointment with a trusted GP tomorrow to discuss possible root causes...but it is to coincidental that so many women are experiencing these same symptoms! I am certainly leaning towards having this removed. CAN THOSE OF YOU WHO HAVE HAD THIS REMOVED PLEASE RESPOND IF YOUR SYMPTOMS SIGNIFICANTLY IMPROVED OR WERE RESOLVED!!! THANK YOU!
These side effects seem to go well beyond a 5% rate of incidence according to all of you who have reported. I will investigate further and keep everyone posted. As someone who is highly experienced in the pharmaceutical industry, you bet your a$$ I'm going to get to the bottom of this! Good luck ladies!

I took my 16 year old child off of singulair 6 weeks ago (3-28-2008). She started taking it 11-17-2003. She became dark, depressed, grades dropped, dropped out of dance and cheerleading, started cutting her legs with razors, stomachaches, headaches, anxiety attacks, trips to the emergency room. 6 months of fluoxetine given by her psychiatrist. Nothing helped her be happy again. Sad and Dark young woman. NOW: She smiles a lot, and is eating diner with the family. No headache or stomachache for a month now. She is sleeping better. Before she said that her mind would not stop thinking. She is taking pictures again and even asked me to order her book called "Understanding Exposure" and is talking about taking a class on digital photography at NMSU branch university to start on her college electives now. She is out more and even has a part time job at an ice cream parlor. Just lately I have stopped checking the trash for waded up tissues with blood (from cutting). Chris, I have had all her medical records sent to her primary Doctor and we are very willing to open them up. You have to have a child suffering to understand where we are coming from. The most dangerous place on earth is standing between a mother and her child. Singulair took our children from us and maybe changed them in some way forever.

I'm a 37 year old female and have severe asthma and allergies and have used pregnisone on and off for 30 years. I believe I am the poster child for the long term side effects. My immune system is shot to the point that my normal medicines for asthma (ventolin, advair) and allergies (tylenol sinus, claritan, visine A) and ezcema (elidel, hydrocortisone, etc. - - NOTHING works!

In the past 6 months, I have developed various infections that the doctors have not been able to identify. My eyes are swollen and red with large amount of white/yellow secretions. Vaginal secretions. Face swollen. Skilled covered in a rash with ezcema out of control. Sharp pains in my back and stomach. Constant asthma. Abnormal hair growth. It is to the point that it is impossible to function and each doctor just wants to prescribe more pregnisone. I feel as if my body is a walking time bomb and it is so full of all the cortisone from over the years and has just decided no more.

I admit that I too readily believed in the doctors when they would rapidly prescribe the pregnisone. Only now am I paying attention to the long term side effects.

Has anyone had tests done to test their immune system and other organs for damage? Thanks and best to our pregnisone club.

Where to begin. I swear I could be the poster child for the reasons why NOT to take prednisone or medrol.

I am 27 years old use to take prednisone. I stopped resonding to pred, roughly 4 years prior to my new pediatric doc at that time. The did a "steriod connectic" test where they can figure out if your body repsonses to prednisone. They give you a certain dose and take blood through an IV every 30 mins for up to 18 hours , well I wasn't there for 18 hours. It left my system after 2, I think.. Up to this point in time, I have had a Spinal Fusion in 92, due to Infantile Scoliosis, but the Pred didn't HELP AT ALL. I had secondary to my disease. I had SEVERE Osteoprosis, my 15 year old body looked like an 80 year old woman. The docs swore they had switched x-rays.lol

So I went from Pred to Metholypredislone( Medrol) stronger than Pred. They started to treat me around 15 with bone suppliments, like Miacalcin, Fosamax, etc. now I get the IV drug every 3 months call Pamidronate .. I am finally stable with my osteoprosis after being on this for 4 years..I guess the usual dose is only for two years..

I had a toxic reaction from the medrol/pred, I woke up with a nerophathy & miopathy( loss of nerve and muscle stegnth.) I could barley MOVE.. I had to rebuild the stength and re-work my nerves and muscles. I have osteo-arthritis, compress fractures in my back. I bruse like someone beat me. I get the worst headaches. I was tested for migranes, but it was the pressure in my vessules in my head, were so bad from the pred/medrol. Oh yeah, I have the the hypher activity when on it like ADHD & ADD. I act like a diabetic when on them too. My sugars "yo-yo", the jump , then get really low.

That's all I can think of, it's hard though because steriods have saved my life, yet I swear sometimes the side effects aren't worth it. I can say I have been off those things for almost 3 years.. So things are going good. :-) Feel free to email me with any questions.

Kelli