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Prednisone symptoms and conditions

Here are side effects posted by other members, that mention prednisone.
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800 Side Effects posted for prednisone

July 3th
2009
11:48 AM

My 17 yr old son was prescribed Prednisone along with Accutane for Acne. His two older brothers had undergone accutane treatment when they were each 17 ish, with no major side effects - no mental disorders at all. They did not have Prednisone along with the accutane. I questioned why my youngest son should go on the prednisone but was assured by my trusted dr. of 35 years that his very low dose of 20mg a day would be no problem. We continued the dosage for 3 months and then tapered off for 3 weeks. That's when my son's trouble began. He felt a change immediately - things didn't seem 'real', he has a hard time describing the feelings. At two weeks after discontinuing the prednisone his symptoms really began to be very frightening. He is athletic and was vomiting for extended periods - probably due to the stress of what was going on in his head. We then saw 2 GPs, his Dermatologist and I contacted a Psychiatrist, His father and I didn't want him to progress to antidepressants and he does seem to be improving - nothing like some of the other stories contained here. I just wish we had NEVER gone on this - even at 20mg - for something like acne. NOT life threatening - I should have listened to my gut and just stuck with the Accutane.

-- By buddymax | Reply | (1) replies | Private Message me

July 1th
2009
4:48 AM

Hi I am 31, have been put on prednisone for a pinched nerve in my shoulder blade. Iv taken two pills of 10 mil. For two days. one pill a day for two days. I'm stopping now. I feel so tired weak and unable to exercise. My chest is so heavy and heart flutters. I'm a smoker so it seems worse after a cigarette. I also have a few glasses of wine a day. I'm so frightened at these feelings. My tummy is now bigger in just that short of time. I really wish I knew all this first. Can any one tell me how long before I'm normal from the short usage. Please this really sucks and very scary. Also the smoking and alcohol how does it effect this? Please

-- By auippa | Reply | (1) replies | Private Message me

June 28th
2009
3:28 PM

Prednisone cut off the blood supply to my femurs, and they died. Now I am getting total hip replacements at 40 yrs old. Prednisone ruined my life , STAY AWAY FROM IT IF AT ALL POSSIBLE, if you can't make sure you take as low a dosage as possible.

-- By moffet1 | Reply | Private Message me

June 23th
2009
10:00 PM

Was on Prednisone for 11 days for an injury to my neck. I knew nothing about the drug except what my doctor told me that it would reduce inflammation in my neck and help with pain.

Well, it did nothing for the injury and pain in my neck. BUT.... I had HORRIBLE menstrual cramps and got my period 8 days early. I've had my period for 9 days now AND terrible pain in my upper left leg. I thought the pain was related to my leg and as the days went by I realized it was in my left hip! It's so bad I can't lift my leg without extreme pain. I KNOW IT'S FROM this awful drug.

I've been off of it for 4 days and the pain is still with me. I called my family dr. and was told Prednisone doesn't do that. BULL!! The paperwork I got with it from the pharmacy show "Changes in menstrual periods" "muscle/joint pain" "bone pain".

I wish I knew this BEFORE I ever took it.

Does anyone know if these symptoms and problems will go away after stopping it? I called the pharmacy and was told it will take 2-3 weeks for it to get out of my system!!

Has anyone had problems that eventually went away after stopping the drug?

Thanks and I hope everyone else is okay soon! This drug should be off the market. I received no help for my neck pain at all!!

-- By cheska | Reply | (2) replies | Private Message me

June 22th
2009
7:38 AM

Wow!!! I can't believe it! I just found this site. I've actually been on Advair 500/50 for years now, about 7 years at least. Just as a bit of a background, I'm 24 years old, used to be extremely active, played water polo, was on the swim team, and was just overall very active in high school. I've had severe chronic asthma since I was 8 years old, so in order to help me stabilize my asthma, my critical care pulmonologist put me on Advair. It was a "miracle drug"! However, while my asthma was under control, I was experiencing all these other symptoms that everyone else has been talking about.
Anyway, to make things worse, I just talked to my (new) doctor and she told me that the Advair makes it so that some organ (I'm sorry, I don't remember the name) actually stops producing prednisone (or the same stuff that your body naturally produces itself to keep your lungs working correctly) if on it for long enough. It makes sense because for the first few years it was prescribed to me, I really only filled the prescription as I was getting sick as a backup, but other then that I was generally under control. For the last I'd say about a year, I've been consistent and used it regularly as the doctor actually prescribed, every day, twice a day, whether I was sick or not. Now, I can't go even a week without it, otherwise I'm in the hospital.
During the last year or so that I've been consistent with taking the medication, I've had major depression, gained 45 lbs, fatigue, anxiety, dizziness, nausea, heart palpitations, heartburn, leg pains, sore throat, sinus infections (we just finally decided I was just allergic to our animals and I've been on decongestants for pretty much the whole year, doing sinus flushes, etc and I'm still all stuffy!), unexplained bruising, crazy mood swings, muscle pains, headaches, heartburn, etc. I thought I was just completely crazy, I kept believing it was all in my head!!!
I'm going to my doctor today and asking her to prescribe me something else. The funny thing was, I was just on my way to the hospital b/c my doctor's been treating me for the last 3 weeks for vertigo accompanied by the heart palpitations and the nausea, she finally is giving up and is sending me to the emergency room. I figured before I went that route, I'd look into it myself. Go figure!

-- By jeslspalding | Reply | Private Message me

June 19th
2009
12:37 PM

Constant weight gain. Just had a kidney transplant Dec 2008, started off with 60mg prednisone now I am done to 5mg but I will gain 5 pounds and will stay at that weight for several months then go up another 5 pounds. I am eating healthy and exercising. I need help and advice!!!!!!!!!!!!

-- By kcgray | Reply | (1) replies | Private Message me

June 17th
2009
3:46 PM

I'm 15 years old and i've been taking prednisone for a few months, and from what i've read i'm on a really high dose. i was diagnosed with rheumatoid arthritis and another autoimmune disorder concerning my muscles at the same time. my doctor told me prednisone was my only choice; it was either that or i would lose the ability to walk. he told me there'd be side effects, but i had no idea it'd turn out like this or i would have fought harder for another course of action. i started out on 30mg twice a day, and since then was weaned down to 20mg twice a day and now i'm down to 30mg once a day. i've been looking up a bunch of information trying to figure out if there's a way to lessen the side effects or any hope at all that they will get better. apparently there isn't much. after reading a bunch of these stories i gotta say i'm not feeling great about this. i totally understand everything everyone is going through. i'm sure you can imagine what it's like being smack in the middle of high school with a huge puffy face, acne so bad on my face, chest, back, neck, and shoulders that wearing a bra could put me in tears, and mood swings so bad i've lost friends over it. everyone knows how brutal high school can be, where appearance and attitude are everything. and i try to tell my doctor about it and he literally looks at me like i'm a whiny teenager and says "you're just going to have to deal with it." and people like my mom and my closest friends don't get it either. nobody understands how beyond frustrating it is. i'll get into the worst moods and not have a reason for it, but i'll stay angry for hours or burst into tears over someone looking at me the wrong way. it'll get to the point where i have to isolate myself from other people because the abrubt mood changes get so bad. as bad as i hate to admit it, the pain from the arthritis is gone now and supposedly my muscles are doing better too. developing arthritis caused me to have to quit cheerleading, something i've loved doing for 6 years, because the pain got to the point where i couldn't get my arms above my head or bend my knees. however, i'd almost rather deal with the horrible joint pain than deal with the side effects of prednisone. if your doctor gives you and alternative method, take it. i've always been confident in the way i look and really outgoing and happy and now i sometimes catch myself thinking about suicide. that's shocking to me because i've got so much going for me, but this medicine makes me miserable. and when i complain about it, anyone i'm talking to just looks at me like i'm being a cry baby. my mom does too, she'll say things like "you just have to do this. i know it's not what you want but to be honest i'm sick of hearing you bitch about it."
i feel a little better knowing other people feel the same way - like nobody gets whats going on with them. the prednisone does give me days of really great euphoria and days when i feel like i could run a marathon, but waking up in the morning to the acne and huge face puts me to tears every day. i have to pee all the time, usually getting up at 2 or 3 am. i don't sleep well anymore and i do sweat all the time. which also sucks being a teenage girl. i'm always hungry, and when i eat i never feel full so i don't know when to stop. my neck and face have put on so much weight that when people see me in the halls or out and about they ask me what happened. mind you these are people i don't talk to, just ones i know from classes or whatever. and it's pretty bad when teenage boys i've never really talked to ask what happened to your face. kind of a blow to the ego, or whatever is left of it at this point.
i'd like to know if, as my dosage gets lowered, the side effects will diminish and when i'm off the prednisone completely if they will disappear altogether. any help there?
or if there is any way to help the acne or puffy face

my doctor just put me on something called methotrexate or something like that to help wean me off the prednisone, and does anyone know what those side effects will do? or if they'll affect the prednisone side effects?
i'm constantly obsessing over gaining weight and what my skin looks like and what i eat and how heavy my face feels and the occasional pressure in my eyes to the point where i just want to be put out of my misery.
and after reading other people's stories i really don't understand why this drug is still given out as freely as it is. but maybe all doctors are like mine, they just don't get it.
best of luck to anyone who's on prednisone, my heart goes out to you; i'm right there with you
sorry this became like a book it wasn't meant to be this long

-- By db1993 | Reply | (8) replies | Private Message me

June 14th
2009
12:12 PM

My healthy, active 55 yr old husband of 30 yrs was prescribed SIMVASTATIN in Aug. of last year. He started having pains in his legs & back and had an appointment in Oct. with the dr. to check on how he was doing with the new drug. When he went in to the office, he was having terrible pains in his chest, legs & back. The dr. immediately called 911 thinking he was having a heart attack. He was in the hospital for a week while they ran a multitude of tests. All came back clear for his heart. He kept telling the dr. that the back & leg pains were still there. They didn't seem to be concerned about anything except his heart. He was dismissed continuing to have pain. The pain steadly increased over his whole body, then in Feb. of this year, he suffered a major seizure and spent another week in the hospital. This time they wrote it off as epilepsy and put him on anti-seziure pills. After he was released, the symptoms increased, his memory, vision & balance are all effected, he has chest pains, depression, and is in constant pain. He's been sent for numerous MRI's, bone scans, blood tests,etc. He has been to neurologists, neurosurgeons, chiropractors, physical therapists, etc. The entire time, his health has declined because he was being poisoned by Simvastatin. Finally, after doing our own research, we found a neurologist that recognized the problem. He told us that this drug distroys muscle tissue and that the damage may be irreversible. My husband can no longer work, drive, or enjoy life. He walks without a cane or walker, and depends on pain pills because the pain is so severe. He stays in bed most of the time due to the pain and lack of energy. He has been off Simvastatin for a week now with no change. We are hoping & praying for improvement over time. PLEASE, if you are your loved one are taking this drug-STOP IMMEDIATELY. The results can be devastating. I can't imagine why the FDA would approve a drug like this that destroys quality of life.

-- By smarba | Reply | (2) replies | Private Message me

June 7th
2009
11:45 AM

I am happy to find this site. I was given Levaquin for UTI. A few weeks prior to getting this prescription I was given a sulfa based drug (generic for Bactrim) and started feeling some pain in right wrist and hand. Dr. prescribed Levaquin since this sulfa based drug didn't clear up infection. Took 2 doses of 250mg and the reactions hit - both hands swelled, joints ached, both knees swelled and both feet and ankles swelled. Went to ER and admitted and spent 3 days in hospital on morphine and started prednisone treatment of 20mg a day with Aleve to also help with pain. This Levaquin is NASTY stuff. I can't believe doctors prescribe this medication. I am still not well. How long does it take to recover? I still am stiff and ache. I too am very active runner and finding myself frustrated in the slow recovery.

-- By mtljackson | Reply | (1) replies | Private Message me

June 5th
2009
1:18 PM

A year ago I was diagnosed with Sarcoidosis and began taking 50mg Prednisone per day. The worst side effects in the beginning were weight gain, moon face, facial hair, hump-back neck, bruising (for example, just by my knees being together while I sleep,) excruciating joint pain and water retention to the point I felt my skin would split open. And poor vision which could have led to glaucoma, but an eye specialist put me on eye drops to reduce the pressure to normal levels. I've felt horrified and embarrassed by the change in my appearance but relieved that my sarcoid was being treated.
I feel confident in my case that Prednisone was the necessary treatment. My pulmonologist, opthamologist and regular doctor all agreed on a course of treatment. But I really advise people to get a second or third opinion before they take it. A friend of mine was prescribed a weeks course of Prednisone for a severe sinus infection. Luckily she didn't have any side effects but I really question if it was necessary. I'd also like to stress that if you're on Prednisone and experience worsening vision, please see an opthamologist who is a glaucoma specialist because it can lead to blindness if not treated.
And lastly, sorry this became a novel! I have been tapering off and I'm down to 20mg. But recently I've noticed my hair is thinning so much. I lose a ton when I brush it and it clogs the drain when I shower. Also my skin is shedding. When I shower and use a loofah sponge like I've always done and I lose layers of skin like a snake. I would really like to know if my hair will start to grow back when I'm finally off the Prednisone or am I going to lose it completely??

-- By travelseeker | Reply | (1) replies | Private Message me

June 4th
2009
10:34 PM

I am on a 6 day treatment of PredniSONE 4mg for a foot injury that caused massive swelling. The swelling was gone after the first day of the treatment, but the side effects started the second day for me. I freaked out yesterday thinking that I was having a heart attack. I even asked the doctor if there were any weird side effects and told him that I have anxiety about taking medicine. He said it's harmless, and not to worry. I felt safe taking it the first day but now I've been experiencing increased heart rate, flushed face, pain in my muscles, left arm, and chest, tingling and itching, I can't sleep, when I do sleep in the morning I wake up tense and frustrated, I've lost my appetite, it's hard to go to the bathroom and I can't seem to get my thoughts together. I had an anxiety disorder before and had I known the side effects of this medicine I would not have taken it. Today I decided to skip a day by only taking three pills today and two tomorrow. I just want OFF THIS STUFF!!! and I never want to take it again. I can't believe its on the market and doctors are soo shady about it! And all this from the lowest dose... 4mg.

-- By babykrys | Reply | (1) replies | Private Message me

June 3th
2009
2:17 PM

I'm sitting here in tears reading all of your posts because I've also been on prednisone and have horrible side effects. I was diagnosed with metastatic breast cancer in my lungs in June of 2002 and, after starting at 60 mg/day then, I have been on 20 mg/day for years now. The very first posting that I read mentioned problems with the femur bone. Besides all of the other problems associated with this devastating drug, in December, 2007, I broke a bone in my left foot with no known cause for it. Then I started experiencing pain standing or walking in my left leg and was diagnosed with a fractured femur bone and after several months of trying to get it to heal (including an ultrasonic bone healing system), it just kept getting worse until an orthopedic surgeon recommended that I have a 16 inch rod put into my leg which I did and it ended up to be one of the worst decisions that I have ever made. After experiencing all of the prednisone side effects for almost seven years including depression, severe fatigue, weight gain, moon face, thin skin, cataract surgery on both eyes, hump on my back, mood swings, etc., the pain and suffering that were caused by that operation brought me to seriously consider suicide. I was also diagnosed with chemical neuropathy in both of my legs also which makes my legs so weak that I have to crawl up any steps and have trouble just standing. I actually have an appointment for this evening to have an x-ray done to see what is wrong with my knees and did not realize that this also is yet another side effect. I never make it through the night without waking up in pain and getting a pain pill and then getting up in the morning is almost unbearable with that "burning" pain. I am now on Cymbalta for depression, Xanax for anxiety, Percocet for pain, and of course 20 mg of Prednisone. I was told that I would have to remain on Prednisone for the rest of my life because of the lung scarring and COPD. After reading all of your comments, I have decided that I would rather put up with any breathing problems (and I don't even know how slight they may be at this point) than to remain on the Prednisone. I have tried weaning off several times but get so fatigued that I can't move and that's dropping one mg every week. I'm affected by the decrease but it gets out of hand when I get to 14 mg and I get so frustrated and depressed at not being able to do anything that I just go back up to the 20 mg/day. If you have been able to wean off of it, would you please let me know how you did it and what you had to go through? I'm 65 years old now but I have two wonderful granddaughters (ages 4 and 6) who I can't do any normal "Grammy" things with anymore at this point and I have to change this condition for them and for me. Obviously, the doctors don't recognize the severity of the drug because they just keep prescribing it and out of a regular doctor, an oncologist, an orthopedic surgeon and a neurologist, they can't seem to get together to come up with a solution. I have to say that I haven't considered suicide lately but I do wish that I would just die and be out of this pain. My family and definitely my granddaughters and wanting to see them grow up are the only things that keep me going. There are probably things that I'm forgetting but I'm sure that one of you have covered it in our posting. Although my family is so supportive, no one and I really mean not one of them, realizes knows what we all go through because of this drug. How could they know that something that is supposed to help you could cause these problems? My life is a living hell, all because a pulmonary doctor prescribed prednisone seven years ago and I trusted him to only do what was right without informing me of what was to come. I more than sympathasize with all of you. I sincerely appreciate the time that you took to post to this site and so thankful to know now that this knee pain is not something new that I have but another side effect of the prednisone. I wouldn't have known that if it wasn't for this site because I'd be willing to bet that after I would have had this x-ray done, one of my doctors would have just prescribed another medication to take. Please feel free to contact me directly with any comments or especially any help that you can give me. I know that all of you are going through the same thing so if I can do anything for you, even just listen and understand, please contact me also. Sometimes that's the only thing that people can do is to listen and someone who is in the same situation can always understand. I'm here for anyone who needs a hug for the day.

-- By karen122275 | Reply | (2) replies | Private Message me

June 3th
2009
2:02 AM

My 4 year old Son has had diarrhea from about the last 4 weeks... we have started some tests for Celiac disease but today it only occurred to me today that he has been on Singulair for about that time frame... after all the worry and reading these other storied Im even more convinced that it maybe the Singulair..
Im just hoping that someone might read this sometime today or the next couple of days to tell me if when they come off the singulair how long did it take for the diarrhea to pass. My son had is last tablet 2 nights ago ( so he has only been off it so far for one night. But he still has the diarrhea.. should it have started to come out of his system already.

-- By cinderella92 | Reply | (7) replies | Private Message me

June 1th
2009
6:35 PM

I HAVE BEEN ON PREDNISONE FOR 10 YRS. I AM ON 5 MG FOR 4 YRS. I AM HAVING SEVERE PAIN IN RIGHT HIP. I CAN'T LAY ON RIGHT SIDE AT ALL. WHEN I WALK OR BEND ITS FINE. BUT TO LAY ON BACK OR SIT OR RIGHT SIDE I HAVE SEVERE PAIN. I SAW THE DR TODAY HE SAID THE TOP OF THE FEMUR IS SOMETIMES EFFECTED BY PREDNISONE. LIKE BLEEDING OR OSTEOARTHRITIS. HE GAVE ME NAPORSIN. DOESN'T WORK STILL HAVE SEVERE PAIN. I HAVE POLYMYOSITIS. THE PAIN IS SO BAD IT HAS BEEN GETTING WORSE OVER 6 MONTHS. GOING FOR XRAYS. I AM A NURSE AND CAN'T FIGURE OUT WHAT HE IS TALKING ABOUT.

-- By di1015 | Reply | (2) replies | Private Message me

May 31th
2009
8:48 PM

I have been on various doses of prednisone on and off for 9 years for a kidney disease. The doses have varied from 70mg to 5mg. I have just about had enough. I cannot describe how debilitating this drug is. Every side effect on here I think I have had except excessive energy. Here is a small list:
Moon Face
Buffalo Hump
shaking like Parkinson
body aches
EXTREME weakness
heart palpitations constantly
joint pain
something would go on with my knees in the morning....it felt like something was boiling. It would be my guess as to what the "Bends" must feel like....it feels like someone is stabbing you in the knees with a knife.
Sleeping at least 16 hours a day
I could barely make everyday at work. It was so miserable to not be able to wake up, I would push myself in 15 minute increments....
You cannot know what it is like to be bed ridden for weeks and to have no doctor understand or believe what is happening to you. You just seem fat and lazy.

I am emotionally scarred by this medicine, there is not a day that goes by that I'm not terrified of having to take a large dose of this again. I just can't.
There is no quality of life at all. You can't do anything.
On top of that, there is no one to talk to, not even a doctor that understands what you are going through.
God help anyone that has to go through this. I understand.

-- By jan40411 | Reply | (1) replies | Private Message me

May 29th
2009
3:10 PM

I was prescribed generic Wellbutrin two weeks ago today. I took it for 10 days with no problems except mild headache, mostly pressure. I felt great even after only 10 days and had tons of energy. I know it usually takes 3-6 weeks for the full effects but I was already happy after only 10 days. I thought this was a miracle drug. On the 11th day I had a few hives on my inner thighs and on my chest but I didn't think too much of it. On the 12th morning I had tons on my thighs, entire torso from abdomen to chest, shoulders upper arms, neck and back. I even took pictures to show my doc of the ones of my back. I tried to get in touch with my doc which was this past Wednesday 5/27/09 but his office closed early that day. I then called my pharmacist. He told me to go to the ER immediately. He asked if I was having shortness of breath and I told him I couldn't tell if it was related to meds because I am prone it anxiety and I was a bit anxious about the hives all over. I went to the ER and they gave me a shot of Solu-Medrol (a steroid) in the hip and but me on a steroid (prednisone) pack for 6 days. I only took the prednisone that Wednesday night. Yesterday (Thursday the hives were visible but soo much better, and today (Friday) they are completely gone. I am so disappointed that I had this reaction because I loved taking buporion (generic wellbutrin). I wonder if it's just the generic that does it because I read someone else say that the name brand didn't give them hives but the generic did. I will have to check in to that. The ER doc told me to stop taking so my last does was Wednesday morning. (ohhh by the way I was on 150mg once in morning and once at night, so 300mg/day and I was on the wellbutrin SR kind)

-- By mindybellerose | Reply | Private Message me

May 27th
2009
5:12 PM

I have been on prednisone since I was two years old (I am now sixteen) because I have Autoimmune Hepatitis IIa. I would like to point out that there is still a life worth living being on prednisone, maybe I say this because I do not know life without it, but at least we're alive! Last year I had a flare up of the AIH and had to 6x my dose of prednisone. It sent me into a spiraling depression of constant sleep, crying, hopelessness etc....but I made it through. Just PLEASE keep hope that things would get better, because I know what it's like being on the dreaded drug better than most.

-- By xxanonymousxx | Reply | (13) replies | Private Message me

May 27th
2009
4:28 PM

I began prednisone May 20th for hives from a reaction to an antibiotic. After taking it for a few days I started having ringing in the ears, shortness of breath, tightness in the chest and sweating, dry mouth, puffy face and just a strange feeling like my blood pressure is up. I took it for 7 days out of the nine because the nurse told me to stop it after I called in about how I have been feeling. Today is the first day of not taking it but I see hardly no improvements. My husband tells me to drink a lot to flush this medication out of my system. Today I am experiencing some chest discomfort with slight aching. I feel the same as all of you. I wished I knew of this drug beforehand, and I hope to never see this drug again. I just hope it didn't cause much damage. I will be praying for all of you. No one knows any more what can happen after taking such medication. If you are on this call your Dr. to be taken off. This is not good, I have no idea why this is still on the market. Hope you all recover from your symptoms after taking this drug!

-- By rose20 | Reply | (2) replies | Private Message me

May 25th
2009
10:54 PM

About a month ago I was given Levaquin, for Pneumonia. After about 5 days my face and neck swelled up, Then came the Prednisone at the hospital. I have never in my 38 years not been able to control my own body. I do take Zoloft,and Xanax for anxiety. No one said I would have a problem walking (legs are not working properly) eating,sleeping, Buzzing in my head. Unable to lift my 3 year old let alone care for her, I get extremely fatigued easily. My Husband has missed a week of work, and if your like us....NOT GOOD. Even trying to type is hard I must look at every letter, It's like I REALLY have to think to make my body move.My kidneys feel like balloons in my back when I lay down,Uncontrollable crying. I can't believe this has happened. We have been going through this the whole month of May.Is anyone able to control the shakes? Even my head is shaking??? I suppose if I had tried hard drugs ever, this might be what it's like. I Pray someone can help me. I am so afraid of what is happening to my body. By the way, when they put me on the Prednisone they did not give me a taper... Had to see another Doctor for that. So as I sit here today, hands shaking, head shaking, knees feeling to loose to walk on them, Hard to breathe, or even to think the way I could a month ago. SOMEONE PLEASE HELP ME...

-- By angie1026 | Reply | (1) replies | Private Message me

May 24th
2009
9:06 AM

STARTED TAKING PREDNISONE ON SAT. 3 PILLS A DAY FOR COUGH, SWEAT ALL DAY AND NIGHT. WILL THIS EVER GO AWAY.

-- By nannybingo | Reply | (2) replies | Private Message me

May 20th
2009
2:51 PM

They think that I have either crohns or ulcerative colitis. I have tried antibiotics, lialda, mesalamine enemas, with no improvement. After another colonoscopy they put me on prednisone at 40mgs, 30, 20, 10, then 5 decreasing weekly. Well the first week was okay. I had some of the side affects, insomnia, extreme hunger, and crazy. I could deal with that. But then when I decreased down to 30mg, my body flipped. I awoke from the middle of the night with burning pain in the knees. So bad I took 4 ibuprofen and threw myself in the tub with epsom salt. I thought okay that was weird because I have never had a joint pain in my life. I saw the gastroenterologist that day bc I was still having abdominal pain. He totally blew off the knee pain and said he had no idea what that was. I thought okay maybe it will go away. A few days went by and nothing. 3 days later and I awoke one morning crying in pain because of my legs. I called the on call doctor who also said he had no idea and go to the er. So I went crying hysterically for 4 hours. Even after 3 rounds of dilaudid I was still in pain. They suggested a Rheumatologist. So I went to one a week later who said I was going through steroid withdrawals. And there is nothing we can do but treat the symptoms of pain. I am now down to 10mgs have been out of work for 2 weeks and am absolutely miserable with severe leg pain, muscle weakness and fatigue. He also adjusted the drop down increments to 5 instead of 10. Anyway I will never take this drug again and I think they rushed to this one. Just wanted to share. I am glad I found this website because I went from a fully functioning physically fit 28 year old to a crippled crying crazy person. I think I was scaring my husband, honestly, until we both read some of your postings which were similar.

-- By sbl315 | Reply | (6) replies | Private Message me

May 19th
2009
11:21 PM

I was diagnosed with Rheumatoid arthritis at the end of 2007 and have been on prednisone since then. I started on about 105mg a week and am currently trying to reduce it but it is really hard as the moment the dosage goes down I lose all mobility and cannot even get out of bed. I am only 23 years old and really feeling the disease to the extent that I cannot even cope with my life. The prednisone has really taken its toll on me and the side effects are crazy! I just want to go back to my old self as I am finding it sooo hard to get through a single day. My side effects include:

Insomnia, tooth sensitivity, depression, anxiety, mood swings, moon face (my face is so swollen that I cant stand looking in the mirror anymore, dizziness, temper, feelings of uselessness, nightmares, night sweats, water retention, and to top it all off the arthritis is getting worse and I am in constant pain. Is there anything anyone can suggest then please help me!

-- By rowrow | Reply | (6) replies | Private Message me

May 19th
2009
8:56 AM

I was 54 at the time (2007) and in good physical health, however, after having my first round of chemotherapy as a result of breast cancer, I developed a severe throat yeast infection and my white blood count plummeted. I had ceased taking my many vitamins that have kept me in reasonably good health for the past 25 years because of nausea and generally just not feeling good. The doctors prescribed Levaquin.

Almost immediately, I developed heart palpitations and continued to have fever, nausea, and a rushing feeling throughout my body that was draining me of all energy. I could tell I was fading fast. Upon calling the doctors I said then that I thought it was the Levaquin but they insisted I stay on it otherwise they would put me in the hospital.

After the 4th day on it and with my blood pressure sinking (80/30) my husband called the doctor and they said to go to the ER. I again said to the ER doctor that I thought it was the Levaquin and he scoffed at that. After several hours and many tests, the ER doctor released me and said I could stop taking the Levaquin and he prescribed something to help me to sleep.

By the next day, I already started feeling better and within 3 days I was back taking my vitamins and feeling much better. I never took chemo again after this experience. Unfortunately since then, I have experienced severe ankle and leg cramps in the middle of the night, muscle spasms in my legs. I don't trust my ankles, they feel weak. I assumed it was linked to the chemo and never guessed it could be tied to Levaquin.

I went to my internist doctor who prescribed Flexeril which has helped with the cramps. My massage therapist has noted many times that my tendons and ligaments seem twisted and she has to really work on them which ultimately feels better. I never thought any of these symptoms were tied to Levaquin until last night when I saw the ad on TV regarding Levaquin and tendinitis. I will show this info to my Internist the next time I see him. How does one know if what I am experiencing is linked to Levaquin.

-- By lydiak57 | Reply | (1) replies | Private Message me

May 18th
2009
2:10 PM

My symptoms started with aches in my ankles and I thought I should stop wearing heals for a while. But then the tingling pain moved up into my lower legs and then my arms/wrists over a period of a few days. I felt like I was having constant shin-splints. I was heavy joint/muscle pains. Then the back of my head hurt really bad on the left side, just at the top of my neck/bottom of my head, and was also really sore to the touch. Then massive headaches. Probably migraines, although I have never had them before. My MD immediately put me on celebrex, which did nothing. I was eating Advil and Tylenol like candy and couldn’t sleep. So the doc put me on steroids (prednisone). That took the pain away. After a few days, while at work, the vision in my left eye went in and out (perfect vision to completely gone). I have never had any issue with my eyesight before - perfect vision. Then at one point (actually while I was in for my first MRI) my vision never came back. No one thought it was serious enough until I demanded to go to the hospital. I spent three days in the hospital, where they ran tests after tests (including MRI, Lumbar Puncture, blood work, neurological tests, echogardiogram, dobblers, etc). Upon leaving the hospital actually diagnosed me with Optic Neurosis, and gave me a 15% chance of getting MS later in life. We were all relieved it was not MS, like they originally suspected. After going to the Eye Dr, they told me that was not the case. This kind of eye stuff only happens to people in their 80’s! I will never regain my vision. If my diagnosis had been optic neurosis, it would not explain the joint pain. I have seen specialist after specialist over the last two months, and they still have no idea. Every test I have undergone has come back clear and I am perfectly healthy. My doc said we might have to go with the retinal specialists theory - which was a piece of cholesterol that clogged the artery in my eye. I just don’t get why a piece of cholesterol would have caused me so much pain over the rest of my body. After viewing this site and the Mirena pamphlet that I found online they give to the doctors, I really think it was the cause. The packet even notes, if you have symptoms like visual loss and headaches/migraines for the first time, to remove it immediately! I did not get mine removed until a month after my vision loss. Every doc I have seen I have asked if it was Mirena and not one of them thinks that could be the cause. But it is ironic, that when you see someone for the first time, the first question they ask is if you are on birth control or any other medications! I think I need to show them this site, so they can read other women’s symptoms. I did also have all the other symptoms as well - weight gain, irritable, oily skin, cramps, moodiness, vaginal odor, gross discharge, headaches, nausea, low sex drive, hot flashes, anxiety, restlessness at times, fatigue, and the list could really go on and on.

-- By trlee | Reply | (2) replies | Private Message me

May 15th
2009
7:59 PM

my boyfriend has been on prednisone for 4 years and he is terribly snappy and aggravated all the time and short tempered and does not think that he is... i love him so i deal with it but its getting harder because he dosnt feel this is correct every time i ask him something he bites my head off and almost everything i do irritates him gets on his nerves the mood swings are out of this world sometimes and he totally thinks im being a lala in his words...will someone respond to this so i can show him and he will know im not just saying these things
all this

-- By kyliefaye | Reply | (2) replies | Private Message me


 

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