July 17th
2009
3:31 PM
I started on the Wellbutrin almost 3 weeks ago. Other than a little problem with insomnia, I really liked the medication. It seemed to be helping me control my binge eating which definitely a plus and also the depression. One morning, I woke up with hives all over my body. A few hours later, they had become very severe. I had hives there were 8 inches long and hive patches about 8X12. They were in my scalp, neck, arms, upper legs, back, stomach. Went to family doctor who gave me shot and started on prednisone and was also taking benadryl. That night the itching was so severe, had to go to ER for IV steroids. This calmed things down tremendously. Haven't gone totally away yet, but much better and more bearable. It's a shame because I was feeling very hopeful on the medication. I was taking the generic form at 150 mg 2x day.
-- By castleshannon | Reply | Private Message me
October 6th
2008
6:24 PM
Hello everyone! I just want to thank each and every one of you for your postings. On more than one occasion I would come to this site because without all of you I probably would have truly lost my mind. I just want to give a brief history of what's been going on with me because if it can help one other person then it's all worth it. In 2005, I go vaccinated for chickenpox, I work in health care, never had them, and wanted to start having children since I'm 36. A month after the vaccine I broke out in a horrific rash ALL OVER and had it until April of 2008. I went to the hospital where I had the vaccine, 5 dermatologists, 3 Infectious Disease, various medical doctors and no one knew what it was. This April, I was admitted to the hospital with Autoimmune Hemolytic Anemia. After 3 hematologists, the last one feels the vaccine threw my immune system into a tizzy. I started with 60mg of Prednisone and eventually got down to 2.5mg. The hemolysis(body produces antibodies that attacks it own body) started again so I went to a new Hematologist and was put back up to 30mg and just got put down to 10mg today. Right now my biggest concern is the hair loss. I use to have such thick hair and now I cry almost daily because I loose so much. I am going to try the Ensure like someone posted just to see if that helps. I drink protein shakes, take Silica, multivitamins (Solgar) that have biotin, and going to try Nioxin shampoo. I have terrible mood swings and now I feel like I am going through withdrawal. It's almost like I want to take more just to feel better. I know that sounds crazy. The big fat moon face, my joints feel like they pop out, confused easily, can't sleep, and just can't really leave my house and live a normal life since April. I HATE IT!!! The only thing that helps me feel better when the daily prednisone "kicks in" is walking and exercising. I feel so bad for everyone this drug is just awful. I get angry because not one person told me what life was going to be like on prednisone. I think that is just mean. That's why these postings are so important. I know this is entirely to long but I feel so much better getting my story out there. Did everyone's hair eventually grow back. I don't know if I will have any left next month. Thank you all so much.
GG
June 23th
2008
2:36 PM
my sister was put on Prednisone for a inflamed heart and fluid around the heart, she started with 6 pills a day at 5mg for 7days, then 5 pills for 7days then 4 all the way down to 1 a day. When she got to 1 a day the EXTREME chest pains came back she was in and out of the hospital so many times it was crazy, she was then put back up to 6 a day and slowing get weaned off, however her side effects are insane, major swelling, moon face, weakness, INSOMNIA bad, rashes and bruzes are appearing everywhere, coughing a LOT, sore throat, foggy vision, shortness of breath, thats put it this way she is a MESS and to top it off her husband of 24 years passed away on April 30th, 2008 with a massive heart attack at 47 years old, she feels like she is going to go CRAZY, if anyone has any suggestions it would be so appreciated. Thank you SAD SISTER!!
-- By insane10 | Reply | Private Message me
March 3th
2008
10:33 PM
I started Bactrim for a UTI and felt horrible the whole time. Sick to my stomach, trouble breathing, headaches, loss of appetite. Once I asked my husband to call 911 because I almost passed out. But then I said, wait, let me settle down. I did that and continue with the medication thinking it was the UTI. Then I went to urgent care because I was suffering from a yeast infection from the Bactrim too. The 9th day on Bactrim I got worse, I started to break out in hives. By the 10th day I rush to urgent care covered head to toe in hives with trouble breathing and bumps on my tongue and mouth and throat. The doctor said, you're are having an allergic reaction to the Bactrim. He gave me a shot of cortisone and Prednisone l for the inflammation. My stomach is swollen, my body aches, I still have a terrible yeast infection and read that if you have fungal and are taking Prednisone, that's not good either. So I am at odds because my breathing is labored and I am hoping the Prednisone works and I can make it another day or else, I will go to the emergency tonight. This is no fun....I sent this list of complaints to the FDA's attention today. I hope they listen and look at this page seriously and all those who continue to write.
-- By tinacristina | Reply | (3) replies | Private Message me
February 13th
2008
3:16 PM
I'm a 22 year old who was diagnosed with dermatologists a couple months ago. I've been on different doses of steroids ranging from 5mg to 60mg for 5 months now. i was on 60mg the longest and just went down to 40mg. i go down to 30 mg next month. so far my side effects are moon face, swollen areas around my neck and collar bone, weight gain like 15 lbs, always have to wake up in the middle of the night and pee, my knees get shooting pains sometimes at night, light hair by my ears like sideburns, tired, helps with my muscle weakness a little, my eyesight seems blurry sometimes, chest always feels tight. I'm also on Methotrexate, Bactrim, folic acid, and Fosamax. it might be a reaction form all these but i think its mainly from the Prednisone. i cant wait to get down to the lower doses. i look like a different person and even tho all my family and friends know its still embarrassing. i fell like a whole different person. i cant wait to be normal again.
-- By cattyo8 | Reply | (4) replies | Private Message me
January 6th
2008
12:57 PM
I agree, for me this is a horrible drug! This is the 2nd time my allergist prescribed it to me (last time was this past summer and I had severe panic attacks and thought I was losing my mind) this resulted in me returning back to my GP and him putting me back on Paxil (which I had been off of for a year). I was extremely reluctant to use this again but thought i might be able to manage it this time (with the help of Paxil).
My allergist prescribed Prednisone to me 2 weeks ago (5mg 3x's day for 3 days then, 2 2x's day then 1 for 5 days) I made up until the last 3 pills. I had severe brain fog and felt like I was floating through space. I couldn't even remember driving to work and parking my car! Extremely fatigued (I have diabetes (which is under control, but I had to keep checking my bg because I thought my sugar was dropping to low). Now, within the last week of taking the Prednisone I have experienced aching in my kidneys and I think I have a kidney infection.
Can Prednisone do this to you??
I am calling the doctor tomorrow. Today is the first day without Prednisone and I feel like I am totally out of it - really spaced out, dizzy, panicky and a bit nausea.
How long does it take for you to get Prednisone out of your system?
-- By pizzanut63 | Reply | (5) replies | Private Message me
July 20th
2007
4:51 PM
In 1993, my son ( then aged 9) commented that he might need glasses, then never commented again until 2000 that he was having trouble seeing. From 2000 to 2006 he lost the majority of his eyesight, being treated for long periods of time on Prednisone without any significant response. Up to 60mg when the inflammation was severe, coming down to 5mg when it would flare up again. His diagnosis was at first scarcoidosis, then Unidentified Eye Virus and eventually Par Planitis, however they are all medically treated with the same medication, Prednisone. My son, became very psychotic, so much so that he forcefully committed. He became and was physically and mentally incapable of getting or being taken to the Ophthalomlogy clinic to have the Prednisone adjusted, would refuse to take the medication due to the pressure in his eyes and the eye vessel bleeds into his eyes as he said it made him worse. Developed glucoma, has had two cataract, operations. His physical wellbeing was complicated as mental health are not specialised to see the slight warning signs in his eyes that indicate that he needed urgent attention. During this period, he was on Prednisone 15mg and was also in the high security section of the mental health clinic, without memory, always seemed dazed yet when he spoke, he would sit and struggle to drag what he wanted to say from the depths of his memory and would speak very intelligently,when he did. Since 2002, he has been treated for a mental illness. His 18th birthday is imprinted in my brain, he lost his memory completely and the Police services throughout the state. were involved to find him. More time in the mental health unit. Trialed numerous medications for mental health but he never responded as they expected. When he came home to be in my care, he refused Prenisone as he insisted it made him worse. It was all out of control and not a comfortable nor 'prettey' sight watching him go off it. It was sad. He would go into spasms occasionally, have heavy sweats, behaving so unusually that I was frantic watching him 24 hours around the clock. If I had known as much about the medication Prednisone then as I know now, I would have had him hospitalised against his will. I am thankful now that I respected his wishes as his eye condition was no worse off the Prednisone than when he was on it. In 2005, I sent my son to have the amalgan dental filling out of his teeth. A process of elimination in trying to find some miraculous cure in what had become an impossible situation. All the dentist knew was that the patient had a mental illness and I wanted the fillings replaced with another material other than the amalgam. He found that there had been no barriers placed between the old fillings and the flesh in the root canal (1993) and that was where the chronic infection was repeatedly occurring. Surgery cleaned and repaired the damage.The past 4 appointments at Ophthalmology has resulted in good news with the active damaging cells being consistently 'quiet', though in the last visit when I mentioned the dental work, the Ophthalmologist stated that it would have no connection whatsoever. My son's future prospects for employment is not bright though he is always thinking positive. He is overweight, lethargic, has no night vision and is borderline 'legally blind' and has been in a rehabilitation centre for the past 6 months to manage 'a medication' for his mental illness. It also has its side effects which we will have to manage for his quality of life. His mother. Judith
-- By judith_warrie | Reply | (1) replies | Private Message me
March 18th
2007
5:30 PM
My husband has been prescribed prenisone for 2 weeks, We are pretty sure that he had a little blood in the urine how bout it ? Is this a side effect?
-- By phealeywhite | Reply | Private Message me
October 21th
2006
2:22 PM
I have ulcerative colitis and have been on and off Prednisone for 3 years. Usually about 40 milligrams and tapering. I always noticed sensitive teeth and leaky leg veins/ swelling and discolored. That was all really. Then in April this year, during a bad flare, was put on 120 milligrams (accident by Dr or Pharmacist) for two weeks then 80 mg for several weeks then 60 until I could get on Remicade and finally get off the stuff in August. I gained 30 lbs while on a strict no sugar, specific carb diet, from size 12-18, moon face, triple chin, hump on back, big stretchmarks under my arms, fallen uterus and bladder now needing surgery, lost my voice, glaucoma and cataracts, cholesterol went from 189 to 318, leg and hand cramps daily and nightly, now am experiencing intense joint pain in every joint of my body. My legs and ankles swelled up terribly and now I have to wear support hose constantly. Since getting off Prenisone in mid August til now mid October, my face and neck have been returning to normal, friends mentioned last night my face looked more normal (I was hating seeing myself in the mirror or a picture). My teeth are terribly sensitive, even room temperature wine (acid?), hot or cold.
-- By rfae | Reply | Private Message me
August 10th
2006
6:03 PM
I was diagnosed with Crohn's Disease over thirty-one years ago. I have taken Predisone many times over the period of my illness. My Crohn's Disease has been very aggressive and I have lost all but 250 cm of my bowel. Prednisone has been the only drug that has been able to help but at great cost to me. I am now disabled from the disease and the side effects of the drug. The most devestating side effect is the weight gain. I am now 80lbs heavier than when I was diagnosed. The moon face is very difficult to deal with. Everyone says they know it's from the meds but that doesn't help when I look in the mirror. The fat deposits in my abdomen are very embrassing to me as well.
The sweats, blurred vision, nervousness, hyperactivity, exhaustion, acne, slepplessness, shaking, joint pain (so bad I can hardly walk when I am on the meds), mood swings, depression, swelling (water retention so bad I can hardly bend my legs), the muscle wasting in my thighs, the conective tissue damage making it hard to heal from surgery, difficulty concentrating, bone weakness ( I break ribs very easily) and so many more...all this is too much to pay to control a disease.
They really need to find better drugs now. If you can try something else instead of Prenisone I strongly recomend that you do. It should always be a last resort.
August 3th
2009
12:37 PM
Male 28. Was diagnosed a couple of months ago with Ulcerative Colitis and was prescribed Prednisone. A large dose to start with then tampered off for 4 weeks. The first week I felt great, better than great, fantastic. The only downside was difficulty sleeping. The following 3 weeks, without any exaggeration have been among the worst I have ever experienced. I think the lack of sleep finally caught up with me, so I was constantly tired and generically felt depressed, also knee ache, eye pain, inability to think clearly (quite a problem when you are an Engineer), lacked energy or strength – and the Acne. Never before have I had Acne like this, and I used to suffer quite bad during my teens. Its just so aggressive, every few hours there seems to be new ones appearing. It seems to occur when ever I step down the dose. I think having this bad skin has really added to my depression over the last few weeks, it has been especially difficult considering I have been in the process of starting a new job. To top all of that my UC seems to be worst than ever! I’m worried that when I go back to see the Doctor next week he is going to put me on some equally-annoying medication or maybe another course of Prednisone if I’m lucky.
Does anyone know of some natural alternatives that are good for UC, very reluctant to put anymore man-made chemicals into my body.
-- By trucker | Reply | (4) replies | Private Message me