Private message symptoms and conditions

I posted this few days ago but has anyone developed a complex ovarian cyst since having mirena inserted? Before I had this dreadful IUD I had no problems at all. I just got back from the doctor and was told that I have a complex cyst. I can not wait until I get this IUD out this month!!! I would just like to know if anyone has gone through the same thing. I had 2 replies the other day but I am still unable to read them. Please private message me at
******

I posted this few days ago but has anyone developed a complex ovarian cyst since having mirena inserted? Before I had this dreadful IUD I had no problems at all. I just got back from the doctor and was told that I have a complex cyst. I can not wait until I get this IUD out this month!!! I would just like to know if anyone has gone through the same thing. I had a reply the other day but I am unable to read it. Please private message me.

I am a 61 year old mail. Two years ago I suffered chest pain resulting in the fitting of two stents was placed on Lipitor and had the usual liver function test which proved normal. Initially I was put on a low dose but as my cholesterol level did not improve eventually I was placed on 80mg which is the highest dose and this did lower my cholesterol level to a satisfactory level. A few months ago I had severe unexplained back pain which I thought might be due to the statin and when I stopped taking it, very quickly the pain went. I have restarted the medication for about 6 weeks now and in the last few days have had intense pain in my lower legs, hips and lumbar region. I have decided now to stop taking the drug and will be seeing my doctor shortly. Although I am taking other medication (amlodipine, perindopril and bisoprolol) for blood pressure I feel quite sure that my intolerable pain is due to the statin.

I just wanted to post my experience/perspective. I am 30, never had children...

For the most part I love my mirena and would get it again in a heartbeat. Negatives: I have had it for over 2.5 years (I had to get it reinserted after the first month because it had started to expel, but the removal was pain-free and the reinsertion was less painful than the initial insertion). My period does generally last 8-9 days (compared to 3-4 before); BUT, I love that I only have to wear a pad or pantyliner because my flow is so light. My cramps are not necessarily worse, but different--I swear I feel myself ovulating!

Positives/Neutral: I have actually lost weight since getting my mirena (about 30 pounds), but this is because I joined weight watchers not because mirena helped me lose weight :) I have always shed a bunch of hair and haven't noticed a difference. My sex drive has been low lately, but I think it's because my significant other gets home from work after I'm asleep so my motivation for sex succumbs to being tired. My period is so light that I only have to wear a pad (first time since 6th grade!). I've always had some acne since I was about 11 and have noticed no changes. My significant other can't feel the strings because they are way up by my cervix (I have to struggle to feel them to check that it is still in place). I love not having to remember a pill--I am very forgetful and busy!

I am a 39 year old mother of two teenager daughters. I had my original Mirena inserted in July, 2002 due to extreme bleeding for many months. I would bleed for about 24 days out of every month and felt horrible. As I was only 32 years old at the time, my GYN did not want to perform a hysterectomy and suggested the Mirena. I bled for a couple of months after insertion, but shortly thereafter I had no bleeding and have had no period ever since. This is the side effect that is fantastic!

Shortly after having the Mirena inserted, my marriage fell apart and I was feeling very depressed, EXTREMELY EXHAUSTED and overall "crappy". I assumed that this was all due to my life circumstances. I gained significant weight in my mid-section, I had (and still have) constant headaches, I am always still very very tired, am dizzy, fuzzy-minded, blurred vision, achey, etc. etc. etc. I never once thought about the Mirena being the cause of any of these symptoms.

My doctor has checked my bloodwork numerous time to ensure my iron levels, etc. were okay as well as my thyroid - every time the results were normal so I thought it must all be in my head and all be due to me being somewhat depressed, etc. due to my marital breakdown.

I had my 2nd Mirena put in in December, 2009 as the first one was in for the full 5 years. It was a little painful getting it taken out and the new one put in, but for me the pain was worth it to continue to be period-free for another 5 years!

Recently I have been experiencing hot flashes and night sweats so I asked my doctor if I could be going through menopause. She ordered bloodwork to check my hormones and informed me last week that yes, in fact I am quite far into menopause!!! (remember, age 39)! Because I have not had a period in almost 6 years, I did have the early warning signs of menopause such as missed or irregular periods.

I wondered why I would be going through it so early so googled "Mirena and early menopause" which brought me to this site. When I started reading all the side effects, I wondered if it was maybe the Mirena that cause a lot my problems over the years and it wasn't in fact the dissolving of my marriage and change in life circumstances.

I now have to decide what to do. My doctor stated that I should (because of my young age) go on Hormone Replacement for quality of life. (I am close to my decision and believe that HRT is beneficial for me) - hopefully this will help with the terrible symptoms of menopause I have been having.

I am wondering if having the Mirena inserted had any part in accelerating my body into menopause. I am thinking of having it removed before starting HRT because even though the doctor told me that there is a very low hormone dosage in the Mirena, I don't want to over-do it with hormones as that could cause me even more problems. It would be amazing if I had it removed that I would feel the way I used to feel back 6 years ago (minus the husband)

FYI, before I had the Mirena inserted the first time I read and re-read the pamphlet which contained all the possible side effects, etc. But, as I stated above, my life changed dramatically very shortly after insertion so it never occurred to me that some of my problems may be related to the Mirena.

If this device does accelerate a woman's body into menopause, this should be well publicized as it would be tragic for young women who use this as a form of contraception early in their life to only find out later that they are no longer able to conceive due to their body going though "the change".

UPDATE - Day 11 post removal

Still have not bled.
Still having vertigo migraines.
Still have numbness in R foot.
Still moody/irritable.
Still bloated and GAINING water weight.
Still crying (though not as much).
Still have NO energy.
Still having severe memory issues and BRAIN FOG!!!

NEW ACNE ON ARMS!!! :-(

Taking B12, B6, magnesium, multivitamin.

I'm upset/disappointed. I thought taking it out would make me feel better right away and gradually get better and better. So far I'm the only one on here who didn't bleed right away and start feeling good. Maybe more of the progestin got into my system and it will take a bit longer for it to leave?

NEED ENCOURAGEMENT!

I have been taking 40mg lipitor for over 9 years now.

I have had back issues since an injury to one disc (L4?), and had microdiscectomy in 2001? Took about two years to actually get close to normal.

The last few years, I have had multiple issues with shoulder pain, wrist pain, elbow pain, lower back pain, Upper rump muscle pain , and now both hips are killing me (the shoulder, upper rump muscles and hips are by far the worst). And I am now so weak in my lower back muscles, that it feels like I will (and do) pull out my back.

I have seen NO many doctors I can't even name them all. I have had operations, multiple injections (cortisone) taken pain meds, etc. Nothing has helped and in the last year and a half, I have gotten steadily worse. To the point where I can't really do much of any activity. Sleeping at night is painful. Can't lie on left shoulder, and can't lie on either hip for more than a few minutes. If I fall asleep on my side, the pain wakes me up. When I try to walk, 80% of the time, I end up with a pain in my upper right rump (sacroiliac area), that I MUST sit down to get the intense pain to go away, which it does. But comes right back when I walk again.

I have had x-rays, MRIs etc, and never reveals all that much. Disc issues, yes. NOt much else.

Recently, I have begun to get a nasty clicking (catching) on my left jaw (joint?). Not really painful, but something definitely wrong. My dentist sent me to his Chiro. I went and liked him right away. I had gone to another chiro for years and I believe in them. But this one is the best I have seen.

Anyway, one of the FIRST things he suggested, was that it was POSSIBLE that the Lipitor is causing all of my problems. Put me on COQ10, and doing multiple adjustments and treatments. I will be seeing my regular doctor 5/26, and my chiro wants me to see if he will take me off lipitor and put me on Niaspan instead.

I guess my question is: Can Lipitor be fine with me for so long, and then in such a short period of time, turn me into a compete wreck from the pain and wasting away of my body/muscles? I've told doctors for over a year now that there is SOME connection as to all these issues and pain. One Doctor, of course, gave me the "you are getting old" bull. Yes, I am 56 yrs old. But I understand the process of getting old, vs the complete failing of ones body.

Also, IF it is the Lipitor, can it possible all go away? Or should I expect some damage forever?

One more thing, the last ortho I went to the other day for a second opinion, wants me to do a EMG, to see if there is muscle damage. I was not planning on doing it, but wonder now, should I? He was not doing it because of lipitor, as he never even talked about that to me. I had shoulder operation and have not had the results I feel I should have had.

I am a 44 yr old female. I have been on Zocor for 2 yrs. I have never had high cholesterol. I have a family history of heart disease and after my 44 yr old brother had a heart attack and the transplant, my doctor put me on Zocor as a precaution. I have had problems over the 2 yrs and have been to the doctor many times only to be dismissed as Oh, I need to lose weight, I need to get out of the house more, I need to exercise, It must be my depression....and on and on. I have never had a kidney or liver test in 2 years. I never knew I needed on and my doctor never tested me. I have over 30 symptoms/side effects of Zocor. I only looked into the side effects after my mother-in-law had muscle break down, an intestinal blockage and a ruptured bowel and almost died a few weeks ago. I couldn't believe what I found on this site. I immediately stopped the Zocor. I started to feel better right away but it was short lived. i felt great for 1 week and then it all crept back in on me for a week and then this last week I am back in bed with dibilitating fatigue and muscle weakness. I will now list my symptoms/side effects.
Shortness of breath; heart palpitations; droopy eye lid (left eye); eye lid twitch (right eye); optical migraines; numbness & tingling of my arms (from the elbows down) and my hands; My hands "fall asleep"; Itching all over; severe muscle weakness ( I have dropped things); muscle pain; joint pain (even the little ones in my toes); leg cramps; critically anemic (on 3 iron pills per day); ruptured ankle tendon (left ankle, currently being treated with a brace trying to avoid surgery); hot flashes/flushing; cold hands and feet; dizziness;, loss of balance; headaches; blurred vision; mental fog; confusion; loss of memory; loss of concentration; extreme and debilitating fatigue; insomnia; trouble staying asleep (wake every hour); huge weight gain; swelling of calves, ankles and feet; dark colored urine; gas; upset stomach; diarrhea; stomach pain; depression; anxiety; hair loss; bruises; mouth ulcers; back pain; tingling on top of head; heaviness in my thighs; EXHAUSTION! I feel like I am 100 yrs old. I have had nights that I thought I was dying and had panic attacks that I would not survive the night. I have 3 young children to take care of. I can not even put conditioner on my hair or shave my legs in the shower because I have to get out so quickly due to exhaustion. I have to lean on one elbow at the sink to brush my teeth. When I get out of the shower I can barely breath, I am wheezing, my heart is pounding and I feel like I will collapse so I have to get out and rush to my bed. I home school my 3 children and most days we do school in my bed. Everything is an effort. I can never plan anything because most days I am incapacitated. I may have a good day and can actually go out to dinner or Walmart once or twice a month and then I can't wait to get back home and get in bed because I am so worn out. I don't see how this drug can actually remain on the market. I am so angry and upset that my doctor never told me this could happen. When I asked about side effects I was told "oh no there aren't any really". My doctor never ran tests on me. I just can't believe this. I go tomorrow for blood work and I go to the doctor on Mon to discuss the results and all of my problems. I am so afraid that I have permanent damage to my muscles and possibly my heart. I went tot he doc months ago with shortness of breath and swelling and she did an EKG and said my heart was fine and I was not having congestive heart failure. I fear I was and still am! It is not normal to be out of breath just brushing your teeth and combing your hair. I hope we all get the answers we are looking for and that we all recover from this horrible drug. God bless you all!

Here's my horrible experience w/ Doxycycline Hyclate (100mg prescribed 2x day)
I only took 3 doses of this and vomited one of those.(there appeared to be blood in vomit) I was taking this for pelvic infection. I had severe nausea that came in waves. I also had severe drowsiness to the point that I could not lift my head up. I felt a sense of being "out of body" and extreme dizziness that almost made me feel like I was falling. I had confusion, disorientation, forgetfulness, and an inability to concentrate. I felt bone chilling cold, that alternated with sweating and hot flashes. My face, hands, and arms became puffy. I was very drowsy but could only sleep a couple hours due to insomnia. When I did sleep I had very weird and vivid dreams. I also felt a general sense of panic the day after I stopped taking it. This stuff was nasty and I will never take it again.

It is wonderful to have a forum like this to share stories and complaints but NOTHING WILL ACTUALLY BE DONE UNTIL REPORTED TO FDA. It takes many people reporting symptoms for Fda to even care or take notice. PLEASE PLEASE PLEASE HELP YOURSELF AND OTHERS BY REPORTING TO FDA. Go to www.fda.gov/medwatch. It is really simple to do and this is the first time I have ever reported anything. (and first time I had any major drug reaction). It is also confidential.

My experience on this drug after only 3 doses was very scary. I hope I will feel better soon. It is 1 1/2 days now after last dose. I will try to report back on here when I am feeling better. The half life for the med is about 18 hours, which means by tomorrow I will still have 25% left in my system. I am hoping after 2 more days I will feel back to normal. I have had as much water as I can tolerate and took dandelion root to help cleanse my liver. Take care everyone and remember to report any symptoms you had to the FDA at www.fda.gov/medwatch

Okey-dokey. I guess they deleted my post because I included my email address. So here it is again...

There is a class action lawsuit in the works against Bayer pharm. regarding Yaz & Yasmin. There are many women you have had heart, lung and/or thyroid problems, myself included. If you are interested in more information I can put you in touch with the firm conducting the lawsuit. Please send me a private message.

My seven year old son has been on Singulair for a year and half. He would get angry but he's a kid...and I didn't think anything of it. Then the headaches and bad dreams....and then he's always talking about death. One day, I wasn't home when he arrived from school and he met me at the door crying....he thought I was dead. But the muscles cramps really got me. He's to young for cramps and waking up with a charley horse. I took him to the clinic and to the ER twice.. and still the doctors don't know why he's getting muscle cramps. So I said...let me go online to find some answers. Well... you know I'm going to his doctor and I threw his bottle of Singulair away. I'm going to start a journal and chart his progress and I'll get back to y'all.

Mirena removed in October. Has a period in December have not had a period since. I am 51 year old. Did the mirena put me into menopause. Any one else have a similar case.

google the class action lawsuit for mirena. i joined in. so should you. it has ruined a part of the happiest time of my life. don't let them get away with it.

Jan. 4th, 2009
4:35 am
I have been on wellbutrin 150 for several month's now and I have extreme dry mouth, sometime's unable to swallow without taking a drink. Itching, strong urine odor, hand's shake badly when drinking and sometime's eating, headache's, dizziness, lightheaded, balance is bad, nausea, depression seem's to be returning, weight gain, short term memory, leg cramp's bad enough that I have to get out of bed and walk them off, burning spot's on my lower leg's. Including the wellbutrin 150, I take about 27 or 28 pill's a day and it seem's like every time I go the doctor they add more pill's. I now also have nighttime incontinence and barely make it to the bathroom in time, but still have leakage or worse going to the bathroom, having trouble getting to sleep and if I get awakened it sometime's take's 2 or 3 hour's to get back to sleep.
--By floridapeach / Reply / Private Message Me

WOW! I have been taking wellbutrin for two years now. The first three weeks were spent with nausea, vivid dreams, some jitters and being very tired. By the end of the first month that had all pretty much gone away and I was feeling more energetic, less anxiety and no depression. When I started exhibiting memory loss at first I really didn't notice it since was just articulation & range of descriptive words. Eventually it progressed to common words and sentence endings. Then I began to notice I could no longer do ANYTHING and listen to someone else at the same time, that progressed to not paying attention to what someone was saying period and the lack of ability to remember the plot of books I had read or some movies I had watched. I also began to notice moderate hair loss. Last but not least I was very slowly gaining weight, it was beginning to add up and I didn't seem to be getting the energy boost or feel that great anymore. So I decided I would quit. After a quick taper off I got to experience all the joys of withdrawal, nausea, sleeping fourteen hours and taking a nap in the afternoon, appetite swings, mood swings, diarrhea , sweetooth and the inability to get up and do anything or go anywhere. It was paralyzing. That went on for almost a month. Its been three months now and the improvement in my cognitive function and physical energy was so profound that it made me wonder if my problems over the past two years could be related to the wellbutrin, so I typed in memory loss and wellbutrin and here we are. I really didn't realize it was affecting me (or others)so seriously and I had zero initiative to investigate my condition until after I quit taking it. Dont get me wrong when I started taking wellbuterin I was at the mercy of my emotions and I needed something, but I feel the corruption of my facualtys was very insidious with this drug and by the time I realized I was having problems I didn't readily recognize it and and had no desire to do any thing about it anyway. My husband had even pointed these symptoms out to me and still I didn't/wasn't able to put it together until now. I don't know what the solution for others will be but I have found mine. I guess what bothers me most is that none of the symptoms caused by this drug was expounded upon by my doctor, the focus was all about how much better I would feel, He never once mentioned memory loss or concentration. And in the last two years he has never once mentioned the idea that I would ever be off antidepressants. For most of us it doesn't have to bee forever. I don't know if I had it all to do again if I would take wellbutrin again or ask for something else, but what I do know is that I would be more aware of what I was taking and not take it for nearly the length of time I did. The drug itself kept me from reacting to its effects and I was unable to gage when I was starting to do better emotionally. The process of getting off it made me wonder if I could do it and if I really was better, believe me I thought about reaching for that bottle every day for a month. Ask yourself where you are mentally, talk to your doctor, MAKE HIM TALK TO YOU, and taper off a lot slower than I did so your able to clearly differentiate between recurring depression and withdrawal. I am no longer in the same frame of mind that I was when I started taking wellbutrin and now that I am completely off of it I feel fine. Good Luck and be careful

FINALLY I FEEL LIKE I AM NOT INSANE!!!!!!!!!
I am 27 years and had my Mirena inserted 2 months after my son was born. It has been over a year and I feel so crappy at times I don't know how i get through the day. I have been feeling apprehensive about removing it and thought maybe all of these symptoms have nothing to do with Mirena. I feel dizzy at times like I am drunk, mood swings, my hair is thinning out, i look like I am 9mon pregnant especially when i am PMSing, and have gained weight around the middle section, I don't feel attractive anymore, i don't feel good wearing clothes I once looked good in and always have to wear girdles which do not always work. I have always had acne but now it is ten times worst. I was a very sexual person but now it sucks. It hurts sometimes and I am very dry down there and that is not like me. I have leg cramps every now and then. I am gassy constantly and bloated, which I thought was because of my acid reflux (which existed before mirena). My breast hurt and gets swollen, sometimes one even looks bigger than the next. I just basically feel like I am having an out of body experience and not in a good way. My boyfriend has been nagging me to remove it if I feel so bad, but I am sacred that if I do and the symptoms still persist then what. I have spoken to my gyn so many times about this and he keeps insisting it is not the mirena. He has recently sent me for some lab work related to my breast pain and prescribed some medication to dry out my breast milk, but I have decided against it. Now after reading this site, I definitely am not going to waste money doing this, I am just going to be adamant about it and go get it removed. To think I am a nurse I should know better but I guess I am a woman first. I AM HAPPY I DO NOT FEEL ALONE ANYMORE. CAN ANYONE OUT THERE WHO HAS THIS REMOVED AFTER ALL THOSE SYMPTOMS TELL ME HOW THINGS HAS CHANGED FOR YOU. PLEASE SEND ME A PRIVATE MESSAGE.

SINCERELY,
WANNA GET RID OF MIRENA IN THE VI

I've had Mirena for almost 2 years. I am bloated and fatigued. My joints hurt, especially my hips. I've gained 5 pounds and cannot lose it, even working out 7 days a week. I workout regularly but not with the stamina I used to have. I am 39 and in great shape. I can't make it through my classes the way I used. I struggle and it's very depressing. For the past few months my sex drive is zero. I am considering having it removed. Was it extremely painful?

I have founded an advocacy group called Parents United for Pharmaceutical Safety and Accountability. The activities of this group will include supporting Kate and Dave Miller's efforts to initiate change in the adverse event reporting system and failed system of updated drug info notification to physicians and pharmacies, and to educate the public and motivate them to demand change too. Another activity will be to educate the public about the dangers of Singulair and how to spot adverse reactions. And finally, the biggie: putting pressure on the FDA to AT LEAST "black box" Singulair.

I personally wonder how many people out there have experienced adverse reactions to Singulair. At some point, if the FDA lets us down, I want the group to conduct its own study to determine this and maybe identify new adverse reaction?

Hopefully the website will go live next week. Anyone who wants to volunteer or give input is invited to sign up via a private message to me at this site. If you provide your email address I will contact you when the site goes live. If you would like to speak to me directly, send me your phone number and I will call you.

I have already contacted some of you directly, and if I have not yet gotten back to you, forgive me, I will.

Thanks in advance for any support you can give!

Jenna M.

Has anyone had long term side effects after taking Wellbutrin. I was on ot for two years it helped with my anxiety and energy levels a lot. When the doctor put my dose to 300 mg I had severe muscle pain and swelling in hands, feet, ankles, legs it went down after I went back to 150mg. I tried to up my dose but the same thing happened. After two years of wellbutrin I developed severe headaches feels more like head pressure so I went off wellbutrin. would still have muscle pain and swelling from time to time. started developing severe pain in legs and now everywhere along with muscle twitches and muscle loss. I now am 32 and have severe memory problems and no doctor knows what is going on with me. Has anyone had anything like this or heard of anyone with these problems.

I had Mirena for 3.5 years and I also suffered from exhaustion, mood swings and bloating. When I got it removed with the hope of getting pregnant, nothing has happened for 6months now although my periods have become regular. My tummy still looks bloated and I fear that maybe the IUD damaged my uterus or something because I feel the pregnancy symptoms every month only to be disappointed with a period a few days later. Is anyone having the same trouble, not being able to conceive? I'd love to hear from you coz my OBGYN said once my period started, all should be normal.

I have had many of the side effects mentioned here, and I have posted here before. I'm five months post and doing a lot better. Just in the days around ovulation and right before my period I get some of the side effects back, but only temporarily.
Find the full side effects report Bayer wrote for the Canadian market on:
http://nerdnuggets.com/wp-content/uploads/2008/02/mirenaen.pdf
Don't let ANY doctor tell you that your complaints can't be caused by Mirena.

Hi all.
I am really dis-heartened right now. I cannot seem to get this thing taken out yet. My husband and I are self-employedso we have to take out our own health insurance. Our ins. company said that side-effects are a "disorder of the reproductive system" and there is a six-month waiting period to have anything done and we have just gotten it. So I went to an after hours clinic that I called waited until today thinking I could get it removed. WRONG!!! :( Today they said they could not remove it. More over, naturally the doc there said that there was no way all these side effects were from the mirena. I was so upset.
To anyone who has had this taken out, how many of your symptoms have gone away? How long has it taken?
Please e-mail me at ****** or private message me and let me know your experiences with post-removal and side-effects that cleared up. I am ready to take action on this mirena as women need to be informed of the possible side-effects of this drug. I have been suffering for 1 year and 10 months.
Thanks for reading!

I just got a very condescending private message from a doctor on this site who said that while my articles from Europe are very helpful that I don't know what I am talking about and that I could mislead the public. Then I see how many parents and patients got a condescending attitude from their own doctors.

Well the public has been mislead but it is not my fault. I don't see any experts in this field stepping up to the plate to acknowledge that these side effects exist, have been reported by authorities in other countries, and that these experts are interested in learning why they are happening. This is an extremely widely prescribed medication that involves the lives of millions.

Merck's research director was quoted as saying that they know of no mechanisms by which these side effects could be related to psychiatric adverse drug reactions. That was a flat out LIE. So what if I quoted you a research article from China that was very complicated and yes, could possibly be misinterpreted by somebody? I just needed to give you an example. The only expert so far that had the guts to give you a truthful statement was Dr. J. Douglas Bremner. Thankfully, he corrected a misunderstanding about saying that it was "unclear."

I hope that we will all hang in there and something will be said by somebody, anybody on this site that will make the FDA listen and investigate Singulair (montelukast) all the way back to the very original studies done in test tubes not on people. And, then take a new look at it from the standpoint of what we now know about human genetics. I guess I will keep repeating myself about one size does not fit all.

I would also PRAY that all clinical studies on Singulair (montelukast) would be suspended until the FDA decides why these side effects occur. And that they would issue a statement to doctors to make conservative decisions regarding treatment with Singulair until the results of the investigation have been reported.

I hope that nobody thinks that I am trying to mislead anyone. The answers are either unknown or being hidden by Merck. How would I know the answers? I don't work for Merck. How many other people are out there trying to translate articles in foreign languages to see what's going on? American doctors are calling Merck and being assured that there is nothing to these claims.

I wonder how many experts there are that just don't want to be another Jeffrey Wigand or don't know what is wrong?

I know that I am ranting but somebody should do it.