Private message symptoms and conditions

FINALLY I FEEL LIKE I AM NOT INSANE!!!!!!!!!
I am 27 years and had my Mirena inserted 2 months after my son was born. It has been over a year and I feel so crappy at times I don't know how i get through the day. I have been feeling apprehensive about removing it and thought maybe all of these symptoms have nothing to do with Mirena. I feel dizzy at times like I am drunk, mood swings, my hair is thinning out, i look like I am 9mon pregnant especially when i am PMSing, and have gained weight around the middle section, I don't feel attractive anymore, i don't feel good wearing clothes I once looked good in and always have to wear girdles which do not always work. I have always had acne but now it is ten times worst. I was a very sexual person but now it sucks. It hurts sometimes and I am very dry down there and that is not like me. I have leg cramps every now and then. I am gassy constantly and bloated, which I thought was because of my acid reflux (which existed before mirena). My breast hurt and gets swollen, sometimes one even looks bigger than the next. I just basically feel like I am having an out of body experience and not in a good way. My boyfriend has been nagging me to remove it if I feel so bad, but I am sacred that if I do and the symptoms still persist then what. I have spoken to my gyn so many times about this and he keeps insisting it is not the mirena. He has recently sent me for some lab work related to my breast pain and prescribed some medication to dry out my breast milk, but I have decided against it. Now after reading this site, I definitely am not going to waste money doing this, I am just going to be adamant about it and go get it removed. To think I am a nurse I should know better but I guess I am a woman first. I AM HAPPY I DO NOT FEEL ALONE ANYMORE. CAN ANYONE OUT THERE WHO HAS THIS REMOVED AFTER ALL THOSE SYMPTOMS TELL ME HOW THINGS HAS CHANGED FOR YOU. PLEASE SEND ME A PRIVATE MESSAGE.

SINCERELY,
WANNA GET RID OF MIRENA IN THE VI

I've had Mirena for almost 2 years. I am bloated and fatigued. My joints hurt, especially my hips. I've gained 5 pounds and cannot lose it, even working out 7 days a week. I workout regularly but not with the stamina I used to have. I am 39 and in great shape. I can't make it through my classes the way I used. I struggle and it's very depressing. For the past few months my sex drive is zero. I am considering having it removed. Was it extremely painful?

I have founded an advocacy group called Parents United for Pharmaceutical Safety and Accountability. The activities of this group will include supporting Kate and Dave Miller's efforts to initiate change in the adverse event reporting system and failed system of updated drug info notification to physicians and pharmacies, and to educate the public and motivate them to demand change too. Another activity will be to educate the public about the dangers of Singulair and how to spot adverse reactions. And finally, the biggie: putting pressure on the FDA to AT LEAST "black box" Singulair.

I personally wonder how many people out there have experienced adverse reactions to Singulair. At some point, if the FDA lets us down, I want the group to conduct its own study to determine this and maybe identify new adverse reaction?

Hopefully the website will go live next week. Anyone who wants to volunteer or give input is invited to sign up via a private message to me at this site. If you provide your email address I will contact you when the site goes live. If you would like to speak to me directly, send me your phone number and I will call you.

I have already contacted some of you directly, and if I have not yet gotten back to you, forgive me, I will.

Thanks in advance for any support you can give!

Jenna M.

Has anyone had long term side effects after taking Wellbutrin. I was on ot for two years it helped with my anxiety and energy levels a lot. When the doctor put my dose to 300 mg I had severe muscle pain and swelling in hands, feet, ankles, legs it went down after I went back to 150mg. I tried to up my dose but the same thing happened. After two years of wellbutrin I developed severe headaches feels more like head pressure so I went off wellbutrin. would still have muscle pain and swelling from time to time. started developing severe pain in legs and now everywhere along with muscle twitches and muscle loss. I now am 32 and have severe memory problems and no doctor knows what is going on with me. Has anyone had anything like this or heard of anyone with these problems.

I had Mirena for 3.5 years and I also suffered from exhaustion, mood swings and bloating. When I got it removed with the hope of getting pregnant, nothing has happened for 6months now although my periods have become regular. My tummy still looks bloated and I fear that maybe the IUD damaged my uterus or something because I feel the pregnancy symptoms every month only to be disappointed with a period a few days later. Is anyone having the same trouble, not being able to conceive? I'd love to hear from you coz my OBGYN said once my period started, all should be normal.

I have had many of the side effects mentioned here, and I have posted here before. I'm five months post and doing a lot better. Just in the days around ovulation and right before my period I get some of the side effects back, but only temporarily.
Find the full side effects report Bayer wrote for the Canadian market on:
http://nerdnuggets.com/wp-content/uploads/2008/02/mirenaen.pdf
Don't let ANY doctor tell you that your complaints can't be caused by Mirena.

Hi all.
I am really dis-heartened right now. I cannot seem to get this thing taken out yet. My husband and I are self-employedso we have to take out our own health insurance. Our ins. company said that side-effects are a "disorder of the reproductive system" and there is a six-month waiting period to have anything done and we have just gotten it. So I went to an after hours clinic that I called waited until today thinking I could get it removed. WRONG!!! :( Today they said they could not remove it. More over, naturally the doc there said that there was no way all these side effects were from the mirena. I was so upset.
To anyone who has had this taken out, how many of your symptoms have gone away? How long has it taken?
Please e-mail me at ****** or private message me and let me know your experiences with post-removal and side-effects that cleared up. I am ready to take action on this mirena as women need to be informed of the possible side-effects of this drug. I have been suffering for 1 year and 10 months.
Thanks for reading!

I just got a very condescending private message from a doctor on this site who said that while my articles from Europe are very helpful that I don't know what I am talking about and that I could mislead the public. Then I see how many parents and patients got a condescending attitude from their own doctors.

Well the public has been mislead but it is not my fault. I don't see any experts in this field stepping up to the plate to acknowledge that these side effects exist, have been reported by authorities in other countries, and that these experts are interested in learning why they are happening. This is an extremely widely prescribed medication that involves the lives of millions.

Merck's research director was quoted as saying that they know of no mechanisms by which these side effects could be related to psychiatric adverse drug reactions. That was a flat out LIE. So what if I quoted you a research article from China that was very complicated and yes, could possibly be misinterpreted by somebody? I just needed to give you an example. The only expert so far that had the guts to give you a truthful statement was Dr. J. Douglas Bremner. Thankfully, he corrected a misunderstanding about saying that it was "unclear."

I hope that we will all hang in there and something will be said by somebody, anybody on this site that will make the FDA listen and investigate Singulair (montelukast) all the way back to the very original studies done in test tubes not on people. And, then take a new look at it from the standpoint of what we now know about human genetics. I guess I will keep repeating myself about one size does not fit all.

I would also PRAY that all clinical studies on Singulair (montelukast) would be suspended until the FDA decides why these side effects occur. And that they would issue a statement to doctors to make conservative decisions regarding treatment with Singulair until the results of the investigation have been reported.

I hope that nobody thinks that I am trying to mislead anyone. The answers are either unknown or being hidden by Merck. How would I know the answers? I don't work for Merck. How many other people are out there trying to translate articles in foreign languages to see what's going on? American doctors are calling Merck and being assured that there is nothing to these claims.

I wonder how many experts there are that just don't want to be another Jeffrey Wigand or don't know what is wrong?

I know that I am ranting but somebody should do it.