October 9th
2009
3:11 PM
Not a new, but seemingly common side effect, i just recently noted could be from Lipitor.......all over achey dead weight feeling, difficult to motivate and move without great fatigue an achiness....totally out of character & even herbal energy, once helpful was completely non effective. Also have arthritis and a knee replacement...knee ok but rest of body next to completely seized up, including hands, hip, sacro iliac, foot, and extreme neck stiffness and pain. Being a retired nurse i should have noted side effects, but attributed to another BP pill which was stopped... Of course absolutely no change and now tripping to chiropractor and acupuncture hoping to get this body going again, especially with much needed walking, post knee replacement. Also i had gained wt, maybe 10-15lbs in 6 months, but when lipitor ws recently doubled, i gained even more in a 3 wk period, and my midrift is cellulite lumpy looking, unlike ever b4, with my normally preferred very active lifestyle, that is now difficult with probs occurring. The chiropractor alerted me to the potential Lipitor side effects, but i know my cardiologist would not agree with this theory.....so afraid to mention, unless there is some conclusive test to be done. Otherwise they say everybody always wants to complain or blame probs on meds, if nothing else suits the situation. I have discontinued the Lipitor, just for 2 days so far and pray i will feel back to myself asap. Now of course i am torn with the lack of prevention of atherochlorosis and future bypass surgery as in father's family.... Feel like damned if i do and damned if i don't.....so definitely empathize with most. Thanks for commoradery and hoping i am not just becoming a cuckoo hypochondriac.
-- By chanceydi | Reply | (2) replies | Private Message me
September 5th
2009
7:06 AM
I have now had 18 venofer infusions over the last 16mo.Each time I receive them, within hours I have severe swelling of the IV site and up my arm.And also have severe itching also.It seems to take a week or more for the swelling,itching and pain to go away? The IV didn't come out of my vein,so not intramuscular.Is this normal?Or is there anything I can do to help these symptoms not happen at all? Thank you, P.
-- By maxxie | Reply | (1) replies | Private Message me
April 6th
2009
3:41 PM
I've been on levothyroxine 150mcg for about 3 months before that it was 100mcg and so on. I have gain lots of weight and tired all the time. depression also, headaches. I hate this gaining weight, sleepy all the time and depression is from gaining weight. I thought this med is to up boost my thryiode but it doesn't seem to be working. my dr. said I'm on the highest dose there is. I don't know what to do any more. I was thinking about taking myself off this but not sure what will happen if i do. I hope there is someone out there that might be able to let me know if they are going through the same things what they are doing and how they feel now.
-- By scooby_beth2002 | Reply | (9) replies | Private Message me
March 25th
2009
1:52 PM
I can relate to many of these experiences. Started out in my 20's with very irregular cycles, went to my first gyn after a miscarriage - the emergency room dr referred me to a dr that was at a fertility clinic. I had no idea why until I was actual a little more "awake" I was diagnosed with polycystic ovaries. I went through at least 6 or 7 different birth control pills, depo provera shot, nuvaring, then back on another birth control pill. finally we started doing the continuous suppression as I was bleeding at least a little bit every single day... for 2 years. I would still have my full blown period every 4 weeks or so, which also included a monster migraine on day one of the menstruation. Not only was my life being altered but I was starting to get anemic. Finally after a month of the continuous suppression my bleeding stopped. As did the menstrual migraines. I continued this way for 4 years. Didn't have a single period or migraine, life was wonderful.. or so it seemed. I have been over weight for most of my adult life. Finally decided to do something about it. I joined the gym with a friend and started losing weight. I dropped 55 pounds until... the dreaded bleeding, pain and hormones got out of control. I started bleeding every single day again. Finally made an appointment with my dr. She stated that when you lose weight it releases estrogen out of your fat cells. Gee, I thought losing weight was supposed to make you feel better!! I went on with it for a while thinking it would stop eventually and it just HAD to get better. In fact, things got worse. I started having horrible abdominal pain, eventually it got to be daily. To the point where I could not stretch or even hyper extend my right leg backwards. My abdomen felt like something had a rubber band tied to it from the inside. My dr said that she suspected endometriosis. However, due to my anemia... we had to wait. So back on the iron pills and wait wait wait. Finally, October 15th I went in for my lap. Sure enough, stage 4 endo, huge cysts on both ovaries. My endo had gone all over the place and attached itself to anything it could. Including folding my bladder in half! Good grief. I thought that I was just getting the weak bladder from getting older (I am 35 by the way). For the next couple of weeks after my surgery I felt pretty good. Finally pain free (still a little bleeding but not much). But, the end of December rolls around and here it is, back with all its fury. The pain is again horrible, my migraines are back, my energy is dwindling. The good life was short lived. My doctor suggested a series of Lupron shots. One shot a month for 6 months. My first shot in January (took me a little bit of time to decide if I wanted to do it) finally bit the bullet and got the shot. First few days, fine, no problem, no relief either but no life altering experience. Then one morning I woke up and realized I was not in pain. It was a strange feeling actually. But the time I got the second shot, no more bleeding, no more pain... However, the hot flashes, night sweats and the emotions came on. Holy cow. Drama drama drama. I could find any reason on the planet to argue, with anyone. Thank god I have a very understanding family and an even more wonderful partner. I think he has the patience of a saint. I still don't know how he puts up with me. If I am not trying to find some reason to pick a fight then I am crying like a baby... for hours and hours. These hormones are so out of control. I honestly don't know what is worse, the pain or feeling like the world is going to end in the next 2 minutes if I don't get this spill picked up.. I literally cried for 2 hours Saturday because my cat knocked a stupid bottle of car wax off a shelf in the back room. Good lord, I had the most horrible feelings coming over me and just could not stop crying. I bought a new bed 2 weeks ago and let me tell you. If I am not on one of my 13 hour sleep fests then I am laying in it crying and feeling sorry for myself. Or the even better part of indegestion or my favorite part.. gas. I honestly don't know if I can go on like this. I made an appointment to see my doctorr this Friday to determine what she thinks will happen if I don't complete the other 3 shots. just give me back the pain if you have to!
-- By endopcos | Reply | (2) replies | Private Message me
March 20th
2009
2:32 PM
I have stopped taking Lipitor after 3 yrs. I was told I had a mini-stroke because of my slurred speech 6 mo. ago. Since then I have had a battery of tests and my neurologist told me "I don't think you had a stroke." I saw the words "Motor Neuron Disease" (I looked it on the web because I never heard of it before) on the script for my EMG. I blame it all on Lipitor and the wasting of the nerves and the muscles. I sound as if I am drunk. No one can understand me . I am taking speech therapy but it doesn't seem to help.
-- By ddelrio | Reply | (6) replies | Private Message me
March 4th
2009
2:40 PM
I have been taking lamictal for 3 years now and i have just now started getting (or noticing) some of the side effects. Bad cramping with my period and break through bleeding. I feel more clumsy and i have noticed that my vision has gotten more blurry. This could be just me getting older, but i've noticed that it's about an hour and a half after i take my morning dose.
-- By zerica | Reply | (1) replies | Private Message me
February 27th
2009
5:18 PM
I have been on Lamictal now for almost 3 months for bipolar. I'm still not sure if it is helping or not. My husband says I seem better, but I feel almost the same as before if not worse. Has anyone noticed any major changes in their menstrual cycle? I'm on the pill and it would usually last 4-5 days with moderate bleeding. Now I get more annoying cramps than before but my period only lasted 2 days and it was more like spotting than a period. This makes me nervous, but my doctor said that it is more likely the risperdal that I had taken for a month when I also started taking the lamictal, but I don't agree. I recently went up to 200mg (1 morning, 1night). The morning one knocks me out but the night one has been keeping up!? I also feel less coordinated (hard to balance, knocking stuff down, klutzy). Also, it has been hard to put words together and recall correct information. Now I have to say" I think I heard or I think I remember". If I really need to remember something I have repeat it or really concentrate on the information. I used to not have to do that. Another thing I've noticed lately is hand and knee pain. Makes it difficult exercise to lose the 20 lbs I've gained. I don't know, personally I think I will give it one more month and if I still feel the same, I'm going off of it and looking into natural alternatives.
-- By diddlesquat | Reply | (1) replies | Private Message me
February 10th
2009
3:19 PM
I am just in tears right now... Finally to know what is wrong with me is so overwhelming. I had Mirena put in Oct of 2008 after my son (third child) was born. No other bc had worked for me and I had miscarriages and two other children at age 24 because of this. My doc pushed Mirena like there was no other option on the planet. He raved about it and was VERY quick to just give it to me without discussing any negative side effects. In fact all I heard were positives, I went home AFTER it was in and looked at the official website to see what the side effects may be.
The hair loss started almost immediately, which like many others I chalked up to hair loss that you get after having a baby. I had pains all over my body, but I had a fall at the hospital (off a broken toilet seat with my numb epidural legs) but I didn't know why I was just...sore everywhere. Achy just all the time almost similar to when you have a fever but not quite. Then the memory loss began. This I thought was because my son had been born with Persistent Pulmonary Hypertension and had to be put on ECMO. I thought the stress of it all was just causing memory loss and confusion. The fatigue was constant, never ending no matter how much sleep I got. And like I've read by so many others, thought I have 3 kids and I'm a full time student, my husband works 70+ hours a week, I'm just busy and exhausted. The mood swings, anxiety, and just overall feeling of being crazed started around Christmas time (I thought it was the holidays!)
So I began to cut down on SO much. Like my cleaning, I tried to make the simplest meals I could (I DREAD cooking something that used to be a passion of mine) just getting done what my body allowed. And week after week my body let me do less and less.
Today after an entire weekend of ocular migraines and getting 10+ hours sleep every night and feeling like I have gotten less than 2, fighting with my husband because I'm such a wreck and have ZERO sex drive, constant pain, and after my shower this morning looking at my hair just bawling seeing how much I have lost, I just googled all my symptoms.
I'm so thankful I did, I'm so glad I know that this stupid piece of plastic is what is sucking the life out of me! Thats what its like! Its like RAPID aging. A part of me is outraged too. Why does it take us having to do our own research to find this out? This is SERIOUS. This stupid thing has practically cost me my marriage, I can no longer do school work because I can't remember ANYTHING, I can barely take care of my kids, I make it through the day by the skin of my teeth and honestly I was thinking today if I can't live like this anymore. I mean that. If this got any worse...I don't want to think about it. This should definitely be told to anyone considering Mirena. Yes, it may be a miracle for some people, but there is the chance and I don't care how slight, we are living proof that it happens, that it will suck the life out of you and consequently destroy it. I'm changing docs and getting this thing out ASAP.
January 28th
2009
9:40 AM
Ive just come across this site after searching for lower back pain site, ive been on statin drugs for about 5 years, at moment im off work with severe lower back pain, recently i had time off for right shoulder and neck pain, i notice most ppl are affected on the right side, as from today im not taking the meds to see if my pain reduces, i lift heavy packages at work so u can imagine the probs i have, also, my boss doesn't pay sickness benefits, good luck to us all.
-- By colinbfd | Reply | Private Message me
January 15th
2009
3:11 PM
My 6 1/2 year old daughter has been on Singulair for 3 1/2 to 4 years now and we have had horrible experiences! She was having night terrors, mood swings, angry issues, self control issues, crying over small things, etc. We have been to psychiatrists and psychologists who have diagnosed her with mood disorder, sensory processing disorder and anxiety disorder! Well she has recently been having stomach problems so we have been going to a GI to figure that out. I got online to research and found numerous sites that told how Singulair causes all these things in children. We took my daughter off the meds and within 3 or 4 days seen a tremendous difference! She is a totally different child! It just really frustrates me and saddens me that all these children and their families are going through all this and the doctors do not seem to care. The allergist or psychiatrist didn't believe me. They say no study has ever proven such things. I don't care what they say we as parents know our children and we are the experts when it comes to seeing how they change when on this medicine, we are the ones that live with them and are with them everyday not the doctors! I think they just don't want to lose out on their money from prescribing this drug 90% of children with allergies and asthma!
-- By abuckler | Reply | (4) replies | Private Message me
December 30th
2008
4:15 PM
I had my mirena coil fitted 7 months ago by choice after an early stage miscarriage in April-my second in 15 months.My husband and I decided that we would not go for another baby(we have 3 great kids aged 4-14)and the mirena was the obvious choice.I had previously had the mirena 9 years before with absolute success and only had it removed as it was 5 years old. I experienced all the usual early settling niggles(bleeding,bloating,tiredness etc)but for the last 6 weeks every time i visit the loo there are strandy brown blood clots (old blood)My first thoughts were that the mirena has moved but length of strings suggests not.I am wondering if anyone else has experienced this as i know i did not have this problem with my last mirena?
-- By luluc | Reply | (1) replies | Private Message me
December 11th
2008
3:01 AM
I was on Yasmin for 3 months or so earlier this year, and ended up going off of it because of side effects, but looking back on it now, I may have just found out what caused my gastrointestinal problems that I've had since then.
I was put on Yasmin like a lot of other people because I was having really irregular periods - like, I would go 2 or 3 months without a period, and all of my periods were EXTREMELY heavy. My gynecologist put me on Yasmin as a first attempt, saying it was the least amount of hormones, it wouldn't screw me up, I'd lose weight, acne would clear up (now, I've never had much acne, but most of what I had actually was related to the make up I was using. Let's clarify that now).
It worked miracles for me for my period. I was completely regular, normal flow, exact amount of days, barely any cramps. After about 2 months, though, I started having... not really mood swings, but emotionally violent reactions. I'd overreact to things, I'd freak out about things - I wouldn't necessarily have panic attacks, but I essentially had mini breakdowns. For example, one day, I was in hysterics for 5 or 6 hours because I thought that registration for the next semester started that day, and I had missed getting into the class I wanted.
My parents made me get off the Yasmin, thinking that had to be the only thing that could cause them. They even went so far as to confiscate all the packages I had, knowing I had no way to get any more, just in case I tried to use it without them knowing (this makes me sound like an addict. They were just overreacting, though).
Within 2 weeks of stopping, my mood swings were almost completely gone. Looking back, there was some nervousness and depression in those months as well, but the emotional lability was the most prominent thing.
Now, around Summer 2007, I began having stomach and hip pains - the stomach pains around my period, and hip pains (I call them hip pains, they felt like a 1-inch diameter steel rod was being stabbed through my pelvis) with exercise. We assumed that the stomach pains were cramps, but as it reached into Fall 07 and neither went away, they simply got worse, we began to worry. We considered appendicitis, cysts on my ovaries, nothing turned up. Eventually we determined that the hip pains were probably due to my cyatic nerve being pinched, and figured that the stomach pains were associated, and went on with life. I dropped my dance classes, and the hip pains went away. The stomach pains continued to worsen, though.
They were still focused around my period, though, and I was beginning to have diarrhea due to the pain. These pains would literally tense my ab muscles so bad I couldn't move. Around the time I went on Yasmin, however, they got a lot worse. I was no longer just having diarrhea around my period, it was all month long, every bite I put in my mouth. It was worse around the period, however.
After I went off the Yasmin, though, the gastrointestinal problems have never gone away. I have been through nearly every test I could be put through to figure out what has caused such severe stomach problems. The cramps have all but gone away, but there are days where I'm so sick I can't even drink water. I had to do a non-academic withdrawal from most of my classes this semester because of how bad my stomach is.
Now, I'm not saying for sure that my stomach problems are linked to the Yasmin, but... let's just say there's a strong chance, and I'm going to my doctor and having them pull my records tomorrow.
-- By jellyfish72 | Reply | (1) replies | Private Message me
November 3th
2008
9:51 PM
I've been taking Yaz for about 2 years now. I didn't notice any symptoms right away. In fact, I loved it in the beginning. It calmed my PMDD tremendously. I loved the fact that the mood swings I had been having were much improved. There was some breast tenderness but no big deal.
My symptoms have gotten increasingly worse over the past 6 months. Horrible headaches on an almost daily basis. Nausea 4-5 times per week. Extreme anxiety and panic attacks. Depression and suicidal thoughts. I constantly crave food...not necessarily that I'm hungry but I always want to eat. I have gained 20-25 pounds. I weigh more now than I ever have in my whole life!! Shortness of breath. Chest pains. No energy. It is killing my relationship with my fiance. We USED to have a healthy, active sex life. My libido has diminished to the point of being (basically) nonexistent. When we do have sex, it is extremely painful. Instead of enjoying it, I can't wait for it to be over. Of course, this is due to the fact that, as many other women on this site have stated, it blocks or binds free testosterone. I guess killing the desire to have sex in the first place is one way of avoiding pregnancy.
I recognize that there are side effects with any medication. But this pill creates\d some serious quality of life issues FOR ME. After reading this site and realizing ALL the uncomfortable symptoms I've been experiencing over the last 6 months are related to this (expensive) little pink pill, I threw the pack away. I'm not going to tell anyone else what to do b/c, hey, some women out there may have no probs with it.
October 31th
2008
10:08 PM
Started with a Pred pak for a sinus infection. Made my heart race and had tach and early heartbeat, which kept me from sleeping. Went to Cardiologist. Several doctors denied that the Pred would cause the rapid heartbeat. Then the Cardiologist did an echo and found a pericardial effusion and some weird spots on my lungs. They suspected lung cancer which may cause the effusion, so I had surgery to do a pericardial window and a lung biopsy. Then a pulmonologist decided to put me on Pred again...steady dosage...because she didn't know what else to do. (Didn't have lung cancer) I didn't have any more funny heartbeats, so maybe the pred didn't cause it after all. But I've gained 40 pounds. My hair has grown faster, and I've gotten some facial hair (not supposed to have that, being a female)...which I call fur. Moon face with cheeks that are hard, muscle cramps, can't sleep, but once I do go to sleep, I can't wake up. Tired all the time, headaches, joint pain-sometimes severe, dry skin, generally bad attitude, with very little patience, low potassium levels which add to my muscle cramping problems, difficulty swallowing, indigestion which I've never had, with painful and burning reflux. And occasionally when I eat, I have the rapid heartbeat again. I go in search of food like I'm going to store it in my thighs for winter. Anything you eat will turn to fat, including protein. Can't wait to get off this stuff which will take until June of next year. Then my doctor says it will be 3 months before all these effects wear off. No one told me I would get fur.
-- By jannski | Reply | (3) replies | Private Message me
October 22th
2008
5:05 AM
Just had a tubal yesterday and to remove my Mirena. It was embedded into my uterus and had to have stitches to stop the bleeding.
My new gyno was very understanding about wanting this removed (not like everyone else I talked to)
Don;t know what followups if any I will need because of the embedding. Anyone know?
I posted in August and realized I needed to do something quick.
Thank god I got this done sooner rather than later. I knew something was wrong!
-- By mmeter | Reply | (1) replies | Private Message me
October 17th
2008
11:30 PM
My son is almost 5 now and has severe food and inhalant allergies, along with sever asthma. When he was 3 he was hospitalized for 4 days because of his asthma. I have been warned that only 1% of asthmatics will ever be hospitalized, so I've made sure he stays on all his meds. He has been on Singular ever since he was 15 months old. At first it was a God send. Everyday was a constant challenged, fussy, icthy red eyes, constant flow of mucous and wheezing. I would have to pin him down 6 times a day with the inhaler, but when Singular came "poof" it was like magic. He was on Singular when he was hospitalized and is now on 3 meds; Zrytec, Singular and Q-var all given to him everyday. Lately we have had some major issues come up for him. I think I have the next J. D. living with me. NO FOR REAL. My next step is a shrink. You might think I'm mean for saying it, but I don't know how else to describe it. When I was driving he asked for some gum, because I wouldn't let him pick out his own piece, he got out of his car seat and started hitting me over and over again, pulled my hair and tried to "break my arm" as he put it. I had to pull over and I couldn't get him to calm down he kept slapping me in the face and kicking me not only was I embarrassed, but it hurt, I was crying. I have finally come here trying to see if other children, who are on Singular, have had similar episodes. He is a very good boy most of the time and aggression is a hit and miss. I don't know what to do.
-- By tracyvalley | Reply | (4) replies | Private Message me
October 15th
2008
9:16 AM
I've experienced many of the same side effects described by others: weight gain, moodiness, endless PMS. But coming up to the 5 year mark, what i'm wondering about is my feeling of sheer unhealthiness, of a compromised immune system. I have two children 6 and 8 and they finally don't get sick all the time, but in the last year I'm the one coming down with things first and hardest, e.g. they had a cough and I had pneumonia. Anyone else experienced lowered immune system?
-- By bloated4 | Reply | (1) replies | Private Message me
October 13th
2008
9:48 PM
Sitting here with heat on thigh fm severe muscle cramp. Had one earlier in hand. Have had many probs with hands lately; thought it was carpel tunnel but pain seems to be randon in hand and fingers. The muscle cramps are unbelievably severe; didn't know about the loss of Calcium and B - good to know. Was taking Levothyroxine .25 with seemingly no effects but when TSH was still over 4.0, MD changed to .50 Levoxyl. Have been on it a month and have had nausea, bowel disturbances; irritable eyes; bloating, depression (which MD is offsetting with antidepressant), and SEVERE muscle cramps in places you wouldn't expect... hands, neck when I yawn, things, stomach, waist... it's awful. After hearing everyone else, I'm weaning off and doing more research. Thanks to everyone for sharing.
-- By nomini | Reply | Private Message me
September 3th
2008
5:23 PM
OMG. I guess I am lucky that this is the first site i found! I am 22 years old and i have had Mirena since may of 2007 since i delivered my youngest son. I stopped having a period (which is great) but i started having some symptoms that were completely out of the ordinary for me. I started what felt like panic attacks, it feels like tightness in my chest with pain high in my chest. I'm having heart palpitations very often, and sometimes when my heart palpitates (it feels like it stops for a second) i partially black out. i have been attributing it all to stress because i am a full time college student with 2 toddlers and a house to run but now after reading all of these comments i'm not too sure. I have a really hard time focusing, it's like my eyes slide out of focus and i just stare into the distance. I've been having sleep trouble as well... i'm always fatigued but i have a really hard time falling asleep. My mood swings have inreased tenfold. i get so angry at the littlest things and i just can't help myself. the last and most important side effect (at least in the eyes of my husband) is that i have absolutely no sexual appetite. I find myself dreading sleeping with him because i just don't feel like it anymore. I love him dearly and I really think it's not normal for an otherwise healthy 22 year old to have zero sexual interest.
-- By lavenderinscence | Reply | (3) replies | Private Message me
August 22th
2008
11:34 AM
Oh my oh my, reading all ur posts is like ive written it myself. I thought i was going bonkers, i think i did actually!! I was on the pill for 16yrs and came off it to have my 1st child, aged 34. Never had any probs with the pill. I had my mirena coil fitted 2.5yrs ago and have had no end of thrush, discharge, itchy vagina and sharp cramping pains on my left. Greasy hair and falling out in shed loads. No weight gain or spots tho. I had the coil removed 2wks ago, that was hell in itself!!!!!!!!!! was looking for the gas and air!!! it took 2 nurses and 4 extremely painful tugs before it finally came out.I was nearly having to go to hosp to have it removed. The nurse said it had embedded into my skin. Bled due to the removal, but then it mustve triggered my period, which lasted just under 2wks. I have never felt so crap in all my life. Within a day i felt low, tearful, sad, headache everyday, face full of spots and very dry head to the point of bad dandruff. Still having cramps and period type backache, i don't feel as low, but still feel chocked & huge sore boil spots. Nice...not. This must be the 'crash' that ive only learn about from everyone on here, not my doctors, which is where u think u'd here it from. Thank all of u women willing to confide.
-- By ladymuck | Reply | (1) replies | Private Message me
August 8th
2008
12:21 AM
I have also had a headache with Pexeva, on and off for weeks, and even as a withdrawal symptom. I went back on after two days for various reasons. I mainly went off the med because it was making me have to go to the bathroom (soft stools, sometimes worse) and lots of gas and stomach cramps, etc. I decided to go back on though because I loved how calm and relaxed I was. I also had an awful headache like when I had first gone on the med. I believe it was withdrawal symptoms (even though I had just started Zolof). I thought if I went back on Pexeva, my gastrointestinal symptoms might disappear after a few weeks and I need to give it more time to see. I have been back on for 7 days now and have yet to achieve the calm and relaxed mood I was in, but maybe I need another week. The gastro problems are on and off, some days better than others. Headache has varied, but today the worst. The one problem I am having and perhaps is getting worse is itchy skin, especially my nose (on outside, top and around it). So, maybe I am allergic to Pexeva, which would explain also the gastro probs. All and all, I have probably been on this med for a couple of months or so, mostly on.
-- By flipper67 | Reply | Private Message me
April 23th
2008
7:17 PM
Hi, I'm 40. had mine fitted end Dec. have had one bleed which lasted 3 weeks now due again but just having aching, ibs and nausea probs with cramping when moving out a chair or exercising.Last time i had that I was pregnant! Definitely have felt lightheaded, vertigo feeling and even visited an osteopath as thought it was my neck as had had lot of tension. Friend has one and said she feels fine & loves it! Got to give it 6 months she said. So I wait in hope that i will feel better. Don't miss the heavy periods, so thats a bonus! Have put on just under a stone in weight so that is annoying. All round tum area. think it probably affects us all slightly differently and all doctors have differing opinions. I will give it a bit longer, but no one should put up with feeling awful all the time. Listen to your body! thanks Jo
-- By jomarea17 | Reply | Private Message me
April 7th
2008
10:18 AM
I'm also back with an update
I posted a few days ago about the extreme change for the better I saw in my son when I took him off the Singulair & that this week I was planning to put him back on just to make sure it was the singulair causing his crazy behavior & not a new bipolar med working
well I have now decided not to reintroude it, I think I have tortured him enough this past year that he was on it & I now know in my heart Singulair was the cause of making our lives a miserable living hell this past year :(
I have just sent my complaint to the FDA I also plan to let his psy. know what I think about Singulair & also the allergy doc within the next few wks! so now my ? is what do I do next I dont want to just sit here & do nothing when there are so my families dealing with this
Please let me know if there is anything else I can do right now?
I'll continue to pray for those families affected by this
October 9th
2009
10:17 PM
Hey this is Kitykittysno and i just posted the first time the other evening. I have since talked with my doc about all of this and he believes that trying to come off Lamictal is just not working for me bc of all the symptoms I'm having as a result of it. SO...we're gonna take me back to 400 mg BUT this time, I'm gonna intermittently take them. Start like at 8a, 12p, 4p, 8p. I'm willing to try this bc I feel so awful so we'll see. HOWEVER, I did specifically ask him about these "side effects" and he did not denounce them but he did say, "that in his years of practice, he had not had a patient with these problems"....he told me that bc of other meds I take and with the severe anxiety I suffer with, that that has a lot to do with the memory probs and as far as they eyes, he feels it may just be age (im only 42) and I need to see my eye doctor. I am planning on doing that asap. BUT...for me, I'm really inclined to believe this has to do with Lamictal.
-- By kittykittysno | Reply | Private Message meMy doctor is a great guy...I don't think he's trying to dismiss me or my thoughts and feelings about Lamictal but...how do you explain it unless you've been there or are STILL there??? How can I be having such significant memory loss and deteriorating eye problems if not for L? I did ask him if there was somewhere I could go to just safely detox off this stuff and he said he was not aware of any place that knows how to safely take someone through that process. I think I will do what someone said in here about just slowly decreasing it yourself and suffer the "hell" until it's out of your body. I have no problem(s) taking any meds that will help my condition but there has to be SOMETHING that works better than this. I am very curious to see if taking this intermittently will help with the "drop off" feeling I usually get around 5p and also if it helps with the memory part. I dunno folks...I wish I had more answers than questions while posting in here. I welcome any advice or comments.
I want all of you in here to know that since I found this site, I've been praying for all of you. I'm sorry if that offends some but I believe in the power of prayer!