Progestin symptoms and conditions

I had mine removed this week - thank the lord above!!! However, it has been rough and be forewarned that I experienced horrific cramping and HEAVY bleeding for nearly five days. I also had terrible back pains and some pain down my legs as well as some mental fogginess. I only had it in about one month and had gained 3 pounds and outgrown my bras! So now, two boxes of tampons later, I finally stopped bleeding altogether about 24 hours ago and the cramping has subsided. I feel mentally clearer and, believe it or not, have some semblance of libido - my husband is thrilled!

I am exploring other options for managing hormonal changes in perimenopause - including evening primrose oil and am still doing lots of yoga (even during the pain periods I did lots of yoga to help me manage)...Mainly, I feel so betrayed by the doctors (two women half my age) who insisted my symptoms were "all in my head" - to those of you planning for removal I encourage you to tell the medical professionals you work with that you are NOT crazy and NOT the only one experiencing these side effects. I personally believe that many women get too much progestin in the Mirena (which is not Progesterone, either) and this, in addition to overloading our estrogen, is enough to make us completely insane and miserable. I say let nature work its course as regards my own perimenopause and to those out there using Mirena for birth control I managed to avoid pregnancy with little concern using natural/rhythm methods and condoms as well as a diaphragm, conceiving my two beautiful (now teenage) sons without any intervention from hormones except my own. I am going to do peri and menopause the same way here on out. !!!!

Would love to hear how long it took for weight and stomach fat to go away after the removal from anyone who has been there - I eat very healthfully and exercise daily so I knew the pregnant look I got after that month with the Mirena was not due to one too many cookies )as my doctor seemed to infer !

I was wondering if anyone has been having a problem with acne? I had the mirena inserted in May of this year, within two weeks I was having terrible mood swings, I was flying off the handle at the drop of a hat! Crazy! I went to my doctor to have it removed, he talked me into keeping it in a few months see if it changes. My moods are better but my face has become insanely greasy! I wash it twice a day, use face-wipes throughout the day to try to control it, I blot my oil away with the oil absorbing sheets. The problem is I am doing it all the time! I have even resorted to using the tissue paper toilet seat covers to blot my face, they work great in a pinch...but they are becoming part of my daily oil control routine! As an added bonus I now have acne! Never in my life have I had acne, nothing I do helps, I have all the creams and acne treatments, nothing has worked. I am just wondering if anyone else is having the same problem?

I'm having facial flushing, I'm 33 years old and not close to menopause but I get extreme migraines that last 3 to 4 days and bad facial flushing and sweating. I have had the Mirena in for a little over two years.

How long did it take for the migraines and dizziness/vertigo to go away after removal? I can't keep missing 3 days of work here and there b/c I'm unable to walk, drive, or leave a dark room despite medication?????

Have had the Mirena for a year due to needing some hormone therapy during menopause.I am 54yrs old and had my last period over 2 yrs ago-look physically like I am in my 30's. Had a breast reduction and weight reduction surgery over 10yrs ago VERY successfully lost 10# off my chest and 168# off of my body. SINCE having the Mirena I have gained over 30# and gained 2 cup sizes in my breasts! HELP!!! I have been treated by my regular doctor for mood swings with WellbutrinSR, Lexapro, Lamictal, Topamax and others-nothing has worked more than to ease some of the edge. I have gone from a size 2 to a size 10-12 in 9 months and am desperate for an answer! I feel as if all of the previous progress I had made with the weight reduction and breast reduction is all being undermined! I had a tummy tuck last September 08 and I swear my stomach was flatter before I had the surgery! I look pregnant! The surgeons have done a CT scan and can find nothing to indicate the surgery went bad. I don't know what to do as my OB-GYN tells me that "this IUD" is my best bet for hormone therapy and that it is ABSOLUTELY NOT the cause for the weight gain or breasts. Has anyone else "my age/menopausal" experienced this? Most of what I have read has been very helpful BUT all but a few are pre-menopausal and way younger. PLEASE let me know your thoughts!!

Glad I stumbled on this website. I started NR in April. All seemed well. I spotted most of the 1st month pretty heavily but that's not unusual for me starting BC. A number of vague symptoms began creeping up on me and I decided to stop it last week to see if it could be related to NR since many of the symptoms appeared or worsened after starting it. Sudden hot flashes that lead to panic attacks, feeling like I was as close to fainting you can get without hitting the floor. At first that was once a month but then became more frequent until lately it's been everyday! No fun to say the least! vision changes, waves of severe nausea and dizziness in the past week...I've had it. And it's even been out for a week. I hope the effects wear off ASAP. appreciate all the comments on this forum. makes me feel less alone

Another corporate scam destroying the lives and bodies of millions of women. DON'T BUY THE LIE! They don't care about you they only care about the mighty dollar. Save yourself from this assault on naive women who put their trust in these corrupt physicians (who are compensated immensely by the pharm companies) and choose natural alternative medicine. Nature has nothing to gain but a healthy you. Mother Earth does not want landfills full of progestin and IUD's polluting our planet! Wake up and tell them to stop poisoning our bodies and our planet!

UPDATE - Day 11 post removal

Still have not bled.
Still having vertigo migraines.
Still have numbness in R foot.
Still moody/irritable.
Still bloated and GAINING water weight.
Still crying (though not as much).
Still have NO energy.
Still having severe memory issues and BRAIN FOG!!!

NEW ACNE ON ARMS!!! :-(

Taking B12, B6, magnesium, multivitamin.

I'm upset/disappointed. I thought taking it out would make me feel better right away and gradually get better and better. So far I'm the only one on here who didn't bleed right away and start feeling good. Maybe more of the progestin got into my system and it will take a bit longer for it to leave?

NEED ENCOURAGEMENT!

What is wrong with all these doctors telling all of us that it CAN'T be the Mirena!!! We all have similar side effects. I am waiting for there to be one of those commercials on TV.... 'if you have used Mirena in the past you may be entitled to money due to damages'
I just want to feel better again. I wake every day hoping for the dizzy/brain fog to be gone and my mood to be back to normal.
Also, after viewing the video found on this page about Mirena I did have a great question... it states only a certain amount of hormone is released every 24hrs, how can they be so sure no more than that amount of hormone is released? With the pill you only take 1 pill which obviously gives you only that amount of hormone. This IUD is simply in you releasing hormones with no control. Just so frustrated and want to feel better again. Tomorrow will be 1 week since I had it removed.

Oh, and I forgot to mention.... the bloating is actually WORSE and I have GAINED 2 lbs since removal. Not to mention the headaches are worse and the tingling in the foot is still there.

I had my Mirena put in back in June of 2008 right after I got married. I, too, was lead to believe that the effects of the progesterone were purely "localized" to the uterus and would not cause any symptoms at all.

Since then I've experienced SEVERE migraines and dizziness, loss of libido, greasy skin and hair, weight gain (size 6 to size 10/12), numbness/tingling in my feet, crying, irritability, and SEVERE brain fog. For the migraines, I went to a neurologist who wanted to prescribe me topamax and said the only major side effect is cognitive difficulties! HA!!! I already have the worst brain fog, can't remember anything, am tired.... rather..... exhausted all the time, and can't function.

This Mirena surely works well as birth control, seeing as I have NO SEX DRIVE at all! LOL. But seriously, it's great not to have a period, but I knew something was wrong when I was needing medication (antidepressants for the mood swings, provigil for the fatigue, botox nerve injections for the menstrual migraines) for this medication IUD!

Since no OBGYN believes me when I say I think it's the Mirena, I've began to think I was crazy and this was all in my head. So I started on the internet and all my symptoms sounded like MS. So I had thousands of dollars in testing including a full body MRI/MRA. Negative. Had ENT see me for the vertigo. Lots of tests. Negative. Anemic? No. Thyroid? Normal.

HOW MUCH MORE DO WE HAVE TO SPEND ON HEALTH CARE TO FIND OUT WE ARE "FINE" WHEN WE FEEL THE WORST WE'VE EVER FELT???

Then I found this site!!! I think it's the Mirena now! So I want to get it out. But then on the other hand, I feel SO GUILTY that my husband paid $900 for it and I only kept it 1 year. That's expensive birth control! But then again, all the tests, doctor's bills, and feeling lousy cost more! (Not to mention that my doctor cut my strings too short so we can't "check" them each month so to be certain that my IUD is in place he makes me get an ultrasound every 6 months for $250!!!)

My ONLY FEAR is that I will have this out and the symptoms WON'T go away and it was NOT the Mirena after all. Then I will have gone through the pain of putting it in, taking it out, and the cost of "throwing one away" and then what am I supposed to do? I'm 29 but in school and can't get pregnant for a few more years. I don't want to go back on the pill because the mood swings were terrible. But I never had migraines or anything on those, so why is the Mirena causing problems?

Any feedback or encouragement would be helpful right now. I need advise!

I had the Mirena IUD inserted on April 7th after 13 yrs of being on the pill, the last 3 of which was continuous use and only 4 periods a year. I had been dealing with chronic daily headaches since Aug 2007 and had finally found a wonderful headache specialist that of instead of prescribing more and ore meds and upping doses did lots of bloodwork and tests and found that my hormone levels were messed up, specifically I had nonexistent testosterone levels caused by all the estrogen in my pill. So he took me off the bcp and I choose the IUD thinking that that would be the best birth control since I am married with 2 kids, but sure that my family is not done yet, but not ready for that 3rd child just yet.I wanted the paraguard because I was hesitant of the progestin in the Mirena, as it is the same in the Levlite bcp and had caused me to have severe anger mood swings about 9 yrs and I had to go off of it, but the gyn that I had been seeing had gone on a leave of absence so I consulted with her partner and was told that yes, this would be the best IUD for me because of my history of anemia and that side effects of the Mirena would be localized and I would not experience any mood swings or headaches. So against my better judgement I went with it.
The insertion went fine, had some bad cramping for about 4 hrs later, spotted about 3 days. Then cramped on and off for about 2 weeks. During this time frame I was actually HEADACHE FREE!!! For the 1st time in almost 2 years. Going off the bcp had worked, you cannot imagine my excitement and my whole families, they thought I was going to be me again! Then I started getting mood swings, yelling at them for no reason, getting angry and knowing that what I was doing was wrong and way out in left field but I couldn't stop---- it was reminiscent of my Levlite experience and my hubby freaked out. Said it had to be the IUD. I wasn't sure, but thought maybe so. Then I started getting acne on my chin and jaw and had never in my life, even as a teenager had acne. I also gained 6 lbs. I then started my period, VERY light spotting that lasted 20 days and with came a migraine!! A migraine that won't go away. It started April 26th and I still have it today! I knew then that it was the Mirena. By that time I had found my old gyn-instead of going on leave of absence as they had told her patients, she had actually left to start her own practice, but of course confidentiality agreements wouldn't let her say anything. Luckily I work in a hospital and ran into her in labor in delivery, so I made an appt with her on May 11th for my pap and to have my iud checked and while I was there I told her every side effect I was having and she totally agreed that it was the Mirena and she said that in more than half of women the Mirena hormone is localized, but the rest it causes a full body systemic reaction and I was one of the lucky ones!! She said with my history of migraines and my history with the Levlite that I should have have NEVER, EVER have been advised to get the Mirena. She said to go ahead and do the pap and then reschedule to have it removed since she was busy that day and needed to get to the hospital. So I rescheduled and had it removed on May 20th- 6 weeks, 1 day after having it put in. I am so glad it is gone. The cramping is gone, I am not having mood swings, no new acne flare-ups just trying to deal with getting rid of the ones I had! The headache I still have, but I think it is because my period started 2 days after removal....28 day cycle like clockwork! Maybe when my period ends, the headache will go away. Unless I just have to wait for the Mirena to completely clear out of my system?? Anybody know how long that can take??? Those 2 weeks that were headache free were a godsend and I can't wait till it happens again! In my opinion the Mirena is HELL! For those of you that have gone through similar issues I am sorry and glad that you can understand what I have gone through. For those of you who have one and have had no side effects, you have no idea how lucky you are!!!

So lots of people talked about gaining weight after having Mirena inserted...so does the weight come off after it's removed? I am 4 days post removal. Had headaches first 2 days (withdrawal from Progestin?) now I am having weird type period, discharge looks like tissue and brownish blood, small amt. No cramping, less bloating.Have not had a real period in almost 3 years. Need to need more about pending "mirena Crash" any info?

I LOVE my Mirena!!!!!! I don't know who you all are out there complaining, but this is the best thing I have ever imagined! No pills to remember, no periods to deal with, and I can't even tell it's there. I had the most minor cramps when it was placed, and felt totally normal the next day. I had minor spotting for the 1st 3 months, and then absolutely no bleeding, cramping, bloating or weight gain. My libido is completely unchanged, and I feel carefree and with a lot less to worry about than with any other birth control I've ever used. The only drawback to this thing has been mild acne, which got much better after the 1st 2 months, and is controllable with Proactive. I loved my Mirena so much I talked my 3 best friends into getting it too, and they love it just as much as I do, only they didn't even get the acne. Sorry you all got so unlucky... my experience is completely opposite of yours...

I had my Mirena put in May 2008. The procedure went well there were no issues but I do remember getting a headache that day and the day after. Really didn't think much of it even though I had never been a headache person. Now almost a year later I have been having headaches regularly. My GP said that it was probably stress. I thought not, I thought sinuses so I went to an ENT who told me I had no sinus issues. In addition to the headaches I was also feeling dizzy, in a fog and having memory issues. The GP told me I needed to have my eyes checked. Nope not my eyes. Not one to go the Doctor a drop of hat I just kinda gave up. But the memory issue and not being able to concentrate is getting worse. I finally mentioned it to my husband. I told him I was going to the OB/GYN next week with the hope that they would check my Thyroid because if you search the symptoms that comes back. My husband said what about the Mirena. Not knowing any better I searched Mirena side effects and I found this site. OH MY. All the symptoms I have been having someone here has also had. I feel so much better. I thought I was losing my mind. Thank you everyone for posting and shedding some light on this.

I have the Mirena IUD now. I had in inserted in August of '06, 3 months after I had my first daughter. All along I really liked the IUD. I did have some problems at first however, while having intercourse I had some discomfort. But all in all really liked the fact that my periods were lighter. However, for the past year or so I have noticed a huuge change in my sex drive, and hardly ever want to have intecourse. I am tired a lot, and even though I eat well, and exercise I have lost hardly ANY baby weight. After reading these comments, I am seriously thinking of having my IUD removed.

Hi Everyone,
My experience with Mirena is still causing me distress, and I had it taken out on 9/1/08. I've been Mirena free for 5 months now, and still waiting for my hair to grow back. I do see some small, short hairs around my hairline, and I'm hoping that it's growing back, but maybe it's breakage? Any thoughts?
Here's my story: I have always had very heavy periods, so after one botched ablation two years ago, my doctor suggested Mirena. I had it placed in June, 2008. Almost exactly 3 months later, I figured out why my hair was falling out. Every time I brushed my teeth, I noticed how thin my hair had suddenly become. You could see each individual hair from the front of my hairline backward about 2 inches - each individual hair surrounded by lots of space! There was hair loss at the temples as well. I had my thyroid checked first, because my mother has a thyroid problem. My bloodwork was fine. I thought maybe my last highlight/foil might have caused it...but it was not breakage, it was an all-over thinning out. I finally realized that the only thing different was the Mirena, so I insisted it come out immediately. My doctor told me that at 45, I should expect thinning hair, which was probably the cause, not the Mirena. I told him to JUST GET IT OUT!
I really wish I had researched the matter beforehand, but am thankful that I put two-and-two together in a matter of months.
If anyone else has experienced hair loss, please post. We have to get the word out!

I had my mirena inserted about 13 months ago before Christmas after the birth of my 2nd child , I was naturally shedding the baby weight until Mirena came into my life and then I gained 10lbs effortlessly within 2 months! even though my diet is always the same (I am coeliac). I had to start working out running 4 times a week and gradually have lost 8lbs but its been a huge battle.
Last May I woke up one morning bright red covered in a sunburn type rash all over my body it was scary, my joints ached so bad and my hands and feet were really swollen as if my body was reacting to something.. my gp did some blood tests and nothing it kept happening for 2 weeks and then the rash went,..I put it down to a virus at the time but felt as weak as a kitten and suffered night sweats, anxiety and flu like symptoms for months.

Ive had to really fight to keep up my running because most of the time I feel tired and depressed and run down and I have awful PMT the past few months have been dreadful I feel rubbish most of the time..everyone is getting on my nerves, I have little sex drive too and I am sure its down to the Mirena..its side affects remind me of the mini-pill which I took once for a few months it sent me so extremely loopy (paranoid and anxious) that my husband flushed them down the toilet!! well I think its the same/similar type of synthetic hormone that my body DOES NOT agree with.

I saw my Gp the other day and asked her about the side affects and she still said that I shouldn't have any after a year and it was very rare but after reading about it on here I cant believe it... its obvious and Im getting it removed. Ive had over a year of feeling terrible and various ailments so much so that I think my immune system (which is already sensitive) has suffered.

I got mirena in January of 08, so I have had it about a year now. I have had constant depression, fatigue and chronic headaches. My eyes are are starting to ache now and I am having abdominal pain as well. I get this very odd tingling sensation through my whole body. I have been to so many doctors and like everyone else, all the sudden thought is it mirena? I called to make an appointment to get it taken out, still waiting for the call back. Please anyone write back and let me know if you experience this weird tingling and eye pain. I have also started to have anxiety and panic attacks as well. They put me on Valium and all sorts of stuff. I have anxiety because no one can explain all of these symptoms. I constantly just feel tired and angry. I hope when I get this out I can be NORMAL again.

Hi, I'm a 24 year old mom of one. I got the Mirena in December of 08. Which was about two weeks ago. I haven't felt the same since. No Joke I have gained 7-8lbs since then. I also haven't stopped bleeding. And a foul oder has been added to it. I'm also having some serious chest pain, Feels like heartburn. But I know its not. I recently moved from the state that I had it put in. And now have to wait till my medical kicks in. I was told that this was the best birth control out there.. But found out thats its just an abortion over and over again. I'm a Christian women and have my beliefs on that subject. I feel sick all the time. Not like being pregnant.. Just flu like. And my poor child. I don't think I have ever lashed out on her the way I have been. Can anyone explain to me why my body is changing so much so fast. I was also told that there was NO hormone in this. Its just an unsafe place for sperm to be.

I had my Mirena put in on Oct 13th 2008 and since last Tuesday, 6th Jan 2009, I've been feeling extremely fatigued and nauseas. I've completely lost my appetite and right now I feel dizzy as I'm typing this post. I feel as if I'm about to keel over. I thought it might be a bout of food poisoning but since it's been lasting for the past 1 week, it can't be. I have 3 kids and the youngest is 11 months old but since I'm feeling fatigued all the time, I can't care for them.
During meal times, I can only look at my food and eat only a few mouthfuls. After eating, I feel like vomiting. I have all the symptoms of being pregnant but my tests came back negative. I've been suspecting that all these symptoms comes from the Mirena but my gynae assured me that there will be minimum side effects. I can barely keep my eyes open and I slept at 10.30pm and woke at 8am this morning and it's only 1pm now. At night, I fall asleep as soon as my head touches the pillow. When I need to wake up in the middle of the night, I feel nauseas and quickly stumble back to bed to stop the room from spinning. I never felt like that before.
The worst part is not being able to care for my children as I'm too exhausted all the time. My husband insists I go and see my gynae to have it taken out tomorrow morning.

I have PCOS, and was experiencing dysplasia of the endometrium. After some search, a doctor recommended the Mirena. This was November of 2008. The installation should have been a clue of things to come. I have never had children, and had a tipped uterus, and as a result they had to use the clamps that look like needle nose pliers to grab my cervix, and after 45 minutes of stuffing, got it in. It was excruciating. I was working out 6 days a week, 2 1/2 hours a day, and eating South Beach Phase 2- and had lost 80 lbs and had maintained for 1 year. I asked if it would in any way cause weight gain, and was told it would not. Within the first month my diet/exercise regimen failed, and despite working out 7 days a week and resuming Phase 1, I was gaining 10 lbs a month- which my Doctor would not discuss with me except to dismiss it. To make a long story short, after life threatening edema and bleeding 22 or 23 days straight and with my now discovered sensitivity to progesterone, I required a total abdominal hysterectomy to remove an enlarged, boggy, and fibroid riddled uterus. I am doing 200% better now, and I am sure there are some women the Mirena works well for, but I was not one of them, and I feel the Mirena actually endangered my life (that and the arrogant doctor who inserted it and told me to be patient. I had it in from 11/2005 to 7/2007- is that time enough?) Please, please,please. If something does not feel right, do not NO for an answer. I did not want children so I was okay with losing the ability to bear children, but having a TAH at 38 is a life change that most younger women would not want. Would I have had to have it anyway? Perhaps. But I could have been in a position to be navigator in my care rather than reactive as I was forced to be.

I never thought about the side effects of mirena. I had mine in over 4 yrs. and now I've realized the maybe everything that I've been going through could be because of it. I've been depress, moody, in pain all over and I feel like no doctor knows what is going on with me. I have gain a lot of weight, I'm heavier now than I was at 9 months pregnant. I'm a 36 year old married mother of four, my youngest is five now. My main concern is that lately, I've been feeling this terrible pain on my upper back and neck. I feel my bones crack with every movement, they crack even when I breath. A few weeks ago I went to the doctor and she order an x-ray of my neck and it showed some deterioration of the bones. I've been so worried, even thinking that it could be cancer or something. Now after finding this website I am wondering if it could be the Mirena.

I had Mirena placed in Sept 2007. I have 2 girls, wasn't ready for more at the time, was horrible with taking the pill (both in remembering to do so and with the side effects). Since Mirena is only a "local" hormone, I thought it would be a great choice for me. This past summer I got online to find out why my periods were so odd... brown, clumpy, really short but frequent... and came across this site as well as a few others. I couldn't believe the stories everyone was sharing! I could easily dismiss all of my symptoms away to something else... constant exhaustion (I have 2 kids under 5 and work full time, maybe my thyroid), anxiety and even a few panic attacks (started a new job), no libido (tired and stressed… How funny to spend so much money on birth control and have no desire for sex!!!), irritable (2 kids), hair loss (didn't even think of that one, but it is true), night sweats (maybe I am just dressed to warmly to go to bed?), unable to lose some weight (gained 5 pounds post insertion now that I think about it) even though I had joined a gym, was working out with a personal trainer and really watching my eating (maybe this is my new weight... I am 35 and my metabolism is supposed to slow down), weird pain/bloating in my lower abdomen (gas??? maybe something I am eating???), the described ‘Fog’… how true! I saw my doctor about 1 ½ months ago and we discussed taking it out. I had my thyroid checked first just to see if that may be the problem. It was, but after putting all of these pieces together I just needed to get this thing out!!! I had it removed one week ago. I felt better immediately. I am sure that was psychological, but who cares! Bled for a week and now it has stopped. Feeling some cramps still, but overall really good, especially emotionally. I asked my doctor about the ‘CRASH’ and she hadn’t heard of such a thing. I am kind of on the fence with this one… just waiting… hoping it won’t happen. If anyone is about 1 week out like me, I would love to hear more from you! I am sure Mirena is good for some, but I am sure it is not good for me. I am happy to be out of the fog.

I LOVE MY IUD. For those of you thinking about an IUD, I wanted to post a positive case study. I am sure there are more, but those people don't bother posting. Before I got my IUD, I did extensive research, not just internet or industrial propaganda, but peer reviewed medical journal articles. I decided on the IUD because of efficacy and minimal hormones. The IUD releases a steady amount of progestin that equates to about 20% that of the mini-pill (what breast feeding women take). Even less than 10% of a low dose pill.

I had the Mirena IUD inserted 7 months ago after being on the pill for way too long. I had random cramps for a few months on and off, and had to readjust to being on my OWN cycle vs. the pill. I do get PMS every month, but I attribute that to my own body's cycle, not the IUD. I have not gained a single pound, am on a normal cycle, have minimal bleeding during my period and no spotting in between cycles. My partner and I are thrilled to have this option. Only you know your body, decide for yourself.