Pseudo tumor symptoms and conditions

Thank you so much for all your posts guys!! I just googled Mirena side effects today just trying to check ANYTHING that would explain my recent experiences. I sat her bawling while calling my doctor to insist it's removed immediately.

I had it inserted in December after having baby #3 in October. I finally got my girl after 2 boys and a few miscarriages and wasn't certain what to expect. I am only 25 and didn't want something permanent or really any drugs put into me on a consistent basis. When the doctor pushed Mirena I happily said okay! Sounded like a god send. I have extremely high blood pressure and his strong sale point would be that it would remove the need for meds. Liar! My regular doctor flipped out when she found that he had removed me and of course, I went back on meds a few weeks after having it inserted, after 4 readings 200+/110+... amazing he didn't cause me a stroke. That should have been red flag #1 but I figured it was just an error in judgment on his part.

I felt no pain with it going in and didn't cramp at all.. spotted for a few hours then it was over.. My first cycle lasted 2 1/2 weeks and the next started a week later.. All side effects I was warned of so didn't really concern myself.

I started having phantom kicks (uterus contractions) and stabbing labor pains back in February which I figure was it doing its job trying to get my system on track. I had numbness and pain down my left side and would constantly find myself hunched over in pain.. The bleeding had slowed down so much that I was so grateful and just kept popping pain pills like candy hoping it would go away soon.

These last few days have been a flu from hell. Can't leave bed, can't speak, constantly throwing up, loose stools followed by extreme constipation, achy muscle tingling skin.. you name it!! Went to the bathroom earlier and when I wiped, had a small bout of black blood.. Old blood that sometimes you will find at the end of your cycle! I checked the calendar and had indeed finally skipped a cycle.. The cramps and pains have been there as though I was going to start, but no bleeding for a week now.. So apparently to skip a cycle I'm going to be bed ridden with the flu.. I have a 5 year old, a 2 year old and a 7 month old who can't have mommy sick. This has been hell..

I too have experienced
terrible headaches, stomach pains, DEPRESSION, short fused tantrums, sitting and crying for hours on end, no passion for life, numbness of limbs, tingling skin, sinus infections, yeast infections, temporary blindness and now spots in my eyes which aren't regaining vision, 5 months ago I dyed my hair and it came out by the chunks, now that the dye is gone, I'm still losing hair and have bawling spots which I blamed on the dye.. Now I wonder..I also look like I'm about 6 months pregnant and people keep asking.. I HATE IT!! its been devastating to my self esteem. I lost so much weight after my boys so I blamed the weight gain on having a girl.. Now I wonder about that too.. The weight is only about 10 pounds but ALL in my belly..

I wonder so much..

I got about 5 posts into this horrified before I called to insist it will come out.. I have to wait 4 weeks.. but I can't wait to find me again.. I'm gonna just stick with condoms until I get my body back.

Thank you so much for speaking out on this.. I know the doctor is going to insist that it's not to blame.. but I now know better.. Thank you so much for helping me find answers.

My 15 year old son was put on prednisone for orbital pseudo tumor about 5 weeks ago.He hasn't had many side effects except vomiting and the pattern seems to be every other day he has tapered down from 40 mg. to 20 mg. I thought maybe the pseudo tumor might be causing vertigo , i don't know if vertigo is sporadic like this? The vomiting didn't begin until right before his next day reduction on his prednisone. I don't know what to think of this drug at this point ,it did make his eye which was swollen completely shut, begin opening up about 5 hours after his initial dose of 40mg.But i don't know why he is vomiting off and on and it didn't completely stop his eye from hurting. Now the doctors want to biopsy his eye muscle since he is not responding well to prednisone reduction.God be with you all who are struggling with this medicine.

My 9 year old daughter has been on sigulair since she was 5. She just recently started having trouble with concentration and behavior. She is always sad and cries alot .She is an honor/gt student but just recently has been having trouble with her school work.She has also begun to hurt her brother and talks about how she wishes she was dead.We are really concerned and she began counseling. Her nuerologists says it could be depression but im thinking i should take her off singulair.She has had headaches,stomach pain,depression ,mood swings and weight gain.

Hello everyone and let me say I am SO GLAD I found this site. It is good to read what people who've gotten off the Pred. have to say and that hopefully someday I will maybe be somewhat the person I once was. It's been really hard feeling like I will never be the same again and even forgetting what I was like before! I've been on Pred. since July, started at 40 for a month then had to go up to 60 for like 5-6 weeks during which time I totally had my worst effects. This has been for a pseudo-tumor in the apex of my right eye which causes double-vision due to interfering with the movement of the eye. At my worst I had terrible insomnia, moon face, dowagers hump, extremely swollen legs feet and joints, constant pain, and general paranoia and anger and frustration. I've been decreasing since then and am now down to 5mg/day, but even though the feet/leg swelling is better and the dowagers hump is not as bad, it is still there plus moon face and acne continue, plus psychological effects just seem to get worse and worse even though the dose is down. Another thing which just started is I AM LOSING MY HAIR. It is coming out in clumps every day and my Dr. says I won't be all the way off Pred. till the end of January and I am afraid I won't have any hair at all left by then! (Except the dang hair on my face which is extra thick and dark compared to "before.") I have to say it is just the worst when you are already ill and then the "medicine" you have to take makes you feel like a joke of yourself in such a very public way!!! Anyways, just wanted to add the thing about the hair loss since I can't find it mentioned anywhere. Thanks again for your words of encouragement, looks like I won't be all the way better till next fall but at least that's something to hang onto in having some belief that these things are not permanent!

Emily

I went in with what I thought was an allergy attack and found out I had what they call a pseudo-tumor behind one eye. Iwas prescribed prednisone. I told the doc I had High blood pressure before he gave methe prescription.

I had sleep loss, mood swings, sweating, and dropped weight because there was so much sugar in my blood stream. Prednisone caused the on set of diabetes. I now have to take Insulin shots at least twice a day. I was told 'it would go away' and I could stop the shots....still nothing.