June 27th
2008
2:13 PM
My 10 year old son has taken Singulair on and off since he was 5 years old and has been on it for the past 3.5 years. My son at an early age was affected by a bad marriage and then the divorce when he was 5 yrs old. So we always suspected that his behavior issues were caused by this and I had done everything I possibly could to give them the help he needed to get over and through his issues. He was held back his first year of Kindergarden and during his second year midstream he was placed in a special class for behavioral problem children. Nothing ever seemed to help him, everytime we would see some progress and encouragement we were always blind sighted by a behavior that was always worse. Two steps forward and them 5 steps backwards. I always knew that his problems would never get better overnight so I just kept on going. He was diagnosed with ADHD but because he has some ticking issues I had to put him on Strattera which was did not do a thing for him. I always described him as my Dr. Jeckyll/ Mr. Hyde child. He could be really good and sit still and behave but I think he had to try really hard to do so. He eventually was always overpower by the impulse to show negative behaviors. Defiant, extremely impulsive, always negative and completely miserable all the time. He also went through phases of compulsions. There was always a compulsion of the month- germs, bathroom habits, noises, repetitive words. He hated school and always complained of a stomach ache which i thought he was always faking to get out of school. He had confrontations in school everyday for most of the day. I often thought some of this was because of being tired all the time. We had battled over bedtime every single night. He was terrified to go to bed alone, I tried everything to get him to sleep alone. I wore myself out falling asleep next to him, I would then go to my own bed only to be up with him half the night going back and forth. I gave in many a night and slept with him just so we could get a good nights sleep. At age 8.5 I finally got him to go to sleep alone but the lights haf to be on and he has to know that I am still awake before he will fall asleep. He would always say he didn't want to go to sleep because when he does he has bad thoughts about me and people that he loves. He always had an extremely hard time excepting the word "no"- he would flip out and hit his head with whatever was handy, throw things, break things, scream holler etc. It would take hours to get over it. When he did he would be very remorseful and lovable. He was always in turmoil. Finally in February of this year, this graduated to a new level where he would want to just kill himself and would actually go and pull a knife out of the drawer and just shake with anger as he held the knife to his throat. I was terrified although i really didn't think he was going to harm himself he just wanted to scare me. Then at the end of March when i first heard the news about the possible side effects of Singulair, I had only heard about the suicide effect. Oh great just what I needed was this medicine causing him to do that. The doctor was thinking about taking him off if this summer because he wanted to see if he out grew his seasonal allergies so I took him off immediately. Well I had no idea about the other side effects until my son turned into a completely different kid. School noticed a huge difference in him! His grades went up, his is able to control his behavior, he is happy he is NORMAL. I never suspected this drug as the culprit due to the timing of taking it. Our lives have changed completely. When i first found this site, it seemed as though some of the parents were writing about my child. It is amazing. My son still has some old habits to break but overall he is a wonderful and normal 10 year old boy. He did not outgrow his seasonal allergies but Allegra seems to help in through it. I get so angry- his whole early childhood was ruined by this medicine. He is a labled kid in our school system. This whole experience has opened up my eyes. Thank you for letting me share my story.
-- By cindy48 | Reply | (5) replies | Send Private Mail
June 25th
2008
7:07 PM
My son, now 10...has been on singular off and on, since I don't' know how long...today was the second time he was intentionally hurting his cat. He has told me time and time again about visions while he was awake, violent ones, he argues with anyone and everyone. He has no friends at school. Last year I took him off all his medications to see why his behavior was so drastic, he got so calm, it was like a new boy, but then when he started back to public school...he had to be put back on them again, and again with the singular...
If it was not for this site..I would think my son was sick mentally. But after this...he will see his doctor tomorrow and no more singular...
When I took him off all the meds I told his doctor I was really worried about his behavior and they said it will be okay...he went right back to just out of control. Could not sleep, concentrate at school or at home. He is so smart and he is failing school..not because he is slow, but they kept saying he was add...but when I home schooled him and took him off his meds...he was so great, obdient..not perfect by no means, but just a normal boy...
I hear him right now, in the other room, fighting imaginary people...he seems to go go go..and with no sleep...the dreams in the day time I just thought were his imagination...but now that i hear about other children like him...they are to him real..just like he tells me..he also always tells me how mad he stays..he says all the time I am just angry mom, and I would say at what..he just says everything...
Thank God for this site....now i know..it is not in his head, it is just like I told his doctor...it is his medication..now I know just the one it is..
THank you all..
God Bless all the others here suffering with the same problems...it is just shocking that we as parents and patients, even after telling the doctors, are right...I feel vindicated...I will be printing this off and taking it with us to the doctors...
June 22th
2008
12:19 PM
Here is an example of the fact that the medical community recognizes that there are gene based drugs. Because Singulair is modeled to be a receptor antagonist to the cysLT1 receptor and the cysLT1 receptor is a gene, I'd say that Singulair should be described as a gene based drug. I don't really care how anybody wants to play with the definition. CysLT1 is a gene with known variations. Why isn't there just an "across the board" warning for all gene based drugs that unexpected side effects are possible???? And, that doctors should watch out for individual reactions.
WMJ. 2005 Aug;104(6):61-6.Links
Gene-based drug prescribing: clinical implications of the cytochrome P450 genes.Musana AK, Wilke RA.
Department of General Internal Medicine, Marshfield Clinic, WI, USA.
The Institute of Medicine recently mandated an increased effort to improve patient safety and reduce medical error. With the description of genetic polymorphisms in the drug metabolizing enzymes, the field of pharmacogenetics may improve medical care through a reduction in both therapeutic failure and adverse drug reaction. Investigators at the Marshfield Clinic in central Wisconsin are piloting the process of gene-based drug prescribing in a variety of contexts. This paper reviews the field of cytochrome P450 (CYP) genetics and explores factors that impact the utility of this information in clinical practice.
PMID: 16218319
-- By concernedcitizen | Reply | (1) replies | Send Private Mail
June 8th
2008
10:55 PM
Last week, I had a PhD psychologist tell me that she is seeing a lot of patients come forward with Singulair stories, much like these. She's had at least 8 patients so far, and she has now added questions about allergy and Singulair to her patient intake procedures. Basically, they've all suffered from some sort of depression and personality change.
-- By poorquilter | Reply | Send Private Mail
June 6th
2008
8:30 PM
My 54-year-old fit, social, successful husband was put on Singulair in January for newly diagnosed asthma. He developed a depression with anxiety, irrational fears, avoidance, mood swings and even one episode of suicidal thoughts out of nowhere. He saw a psychiatrist and a therapist, tried medications, yoga, a vacation, meditation, breathing exercises - everything! But he kept getting worse.
The day he was throwing patio furniture then sobbing uncontrollably was the day he realized he couldn't work in his condition. He negotiated a 60-day leave without pay. Even that didn't help. It was crazy. How could a man who managed hundreds of employees and a major health service system for 20 years suddenly be so paralyzed with fear that he couldn't walk down a beach or go into a Walgreen’s?
We found this site May 26th. He stopped the Singulair immediately. It has been 10 days and he is already 80-90% back to normal. Thank God.
Partly I am writing because it is so hard to read of parents' guilt that they "should have known" etc. Look, unlike a child, my husband is mature and very verbal; he is also a psychiatrist (!) with a capacity for self-examination and a language to describe his inner experience. And me, I'm a psychologist (!) trained in understanding people and I know him very well. And yet with all that training and skill and consultation and treatment, WE STILL COULDN’T FIGURE THIS OUT! So please, don't make yourself feel any worse with guilt. This is awful and tragic enough already.
I would add that the onset of mood and behavioral problems is so insidious that it is hard to connect the problems to the Singulair. Also, I suspect that children and adolescents are at greater risk because of their immature emotional developmental level. An adult l suspect may need some genetic or personal predisposition to mood disturbance, or stress, or both, to trigger these side effects. My husband had a depression episode 30 years ago and had recent traumas that certainly could have triggered the depression. But how treatment resistant that depression was, and those strange paralyzing fears and extreme anxiety – all that I blame squarely on the Singulair.
I have made a report to the FDA. I urge you to do the same.
-- By celticmoon | Reply | (4) replies | Send Private Mail
June 3th
2008
7:41 PM
I am sure that all kinds of people told Kate Miller that Concernedcitizen was a cuckoo or a Merck competitor. I haven't been employed by a pharma company in many years. Everybody ever employed by a pharma company higher than a certain level (practically the mailroom) knows this stuff and what to look for.
I think that I am about ready to say my opinion on how montelukast works and why these problems develop. It will just be my opinion. I need to try to find actual proof but I may forego that and just say it soon.
-- By concernedcitizen | Reply | (5) replies | Send Private Mail
May 23th
2008
5:30 PM
My mirena was inserted March 30, 2008 and removed today, May 23, 2008. I experienced a severe backslide into depression about 3 weeks after insertion. I have been treated for dysthymia (depression) for about a year - and I reverted back to acute depression while on the mirena.
My psychologist took very seriously the side-effect reporting of mirena causing depression in 5%, and recommended having the mirena removed to determine whether it was indeed the cause. I suppose I'll know soon. But I feel better already. My doctor was actually very understanding and sympathetic and my experience of removal was painless.
-- By ck120 | Reply | Send Private Mail
May 15th
2008
10:29 AM
Wow, I just found this site. The child that had strep especially caught my attention. My daughter, 11, has been diagnosed with PANDAS, which is also a controversial diagnosis. I'm not sure when she went on Singular, but it was a couple of years ago due to allergies. She had bad reactions to anti-histamines. For the past two years we have been dealing with just about every issue posted here. Physical pains, stomach, headaches, joints. urination issues, high cholesterol, but the worst have been the irritability , mood issues, OCD, fears of cutting herself, bad thoughts, suicidal ideation. She was on Zoloft which made things worse, She was hospitalized at her own request. She was placed on Prozac. She's had years of therapy. She would say life is just so hard and she wants to be a normal kid. About a month ago her pediatrician mentioned that there were some reports about Singular and it would be something to watch for and discuss with the psychiatrist, He didn't seem to know much about it. Last week after another suicidal ideation I decided to research the singular issue. I had been attributing everything to the PANDAs. I was so surprised to see the similarities. I took her off of it Friday and have seen some changes already. I hope we see that continued improvement. Thanks to all who have shared stories, it's so helpful. To have hope that you'll get your kid back is great.
-- By judyhk | Reply | (3) replies | Send Private Mail
May 7th
2008
12:12 PM
I am writing in response to the last posting and to all others out there who worry about long lasting effects. My son was on Singulair for about 3 years (ages 3-6). He was diagnosed with an anxiety disorder in Kindergarten and we took him to a psychologist and psychiatrist and read a lot on anxiety to try and help him. But despite some success with his behavior using exposure therapy, his mood kept getting worse - he seemed more depressed, and started talking about death. That's when I got desperate and went to the web and googled anxiety and Singulair and found this site in January 2007. After reading post after post describing children suffering in the same way as our son, I immediately stopped the medication, though the doctors were reluctant and assured me the medicine was safe.
Within a day or so I saw a noticeable difference in my son - like a cloud had lifted. The most troubling of his symptoms - such as the talk of death - went away quickly. But his anxiety did not immediately go away. Anxiety - especially over time -can lead to patterns of thinking and habits that can outlast the original problem. Whenever he felt anxious and overwhelmed, he would act out, become easily upset, and was unable to work things out rationally. We continued working on behavior management. One technique that I found very useful is the Collaborative Problem Solving (CPS) method outlined in "The Explosive Child," by Dr. Ross Greene. I also enrolled him in social therapy groups. He also got support at his school. After stopping the medication, he really began to respond to all these interventions. He steadily got better, and by the beginning of 2008 we all noticed a significant shift - not just our family, but his teachers and group counselors. Now he just seems like any other kid. Every once in a while a new situation will raise his hackles a bit, but then we just take it slow, and help him overcome the fear.
Today, when I see him humming a song to himself, skipping down the sidewalk, or shouting out a hello to a friend, I remember that there was a time when I had stopped expecting him to ever do these simple things, and I am so thankful for the parents who posted here in 2006 and 2007 and gave me the courage to follow my instincts.
I have faith that your children will keep improving. But if they are still anxious, there is a lot you can learn about anxiety - either in books or on the web - that can help you understand and enable you to give your child the support he or she may need to navigate their lives as they recover and begin to form new habits and thought patterns.
Good luck!
P.S. One note about leg pain - both my older sons suffered from this, and the oldest didn't take Singulair. I have always assumed they were growing pains, but who knows? I will say that ibuprofen is very effective, along with rubbing their legs.
-- By massmomof3 | Reply | (3) replies | Send Private Mail
May 6th
2008
5:32 AM
Hi ladies... I'm not surprised that you folks comprise most of the posting population considering the fact that this drug is prescribed to you. Well I'm quite interested in this drug and I do prescribe it to my patients however I am surprised at the magnitude of side effects listed here. I am based here in south-east Asia and I do prescribe Yasmin to my patients and I rarely here of these side effects. Perhaps this can be contributed to the fact that it (Yasmin) is available here under a different brand name however consists of the same chemical position. I am interested in the ones available in the U.S. Does anyone know how I may go about purchasing them. You can contact me personally on ****** thank you.
-- By slicvic169 | Reply | (1) replies | Send Private Mail
April 29th
2008
1:32 PM
(A divorced father)
My son has been on Singulair now 5 years and I am in the middle of fighting to get him off. My son is now 7 years old and has been diagnosed with allergies (no test have been done which I find very odd), which leads to a case of mild asthma. This past weekend his mother forgot his Singular on Friday so I could not give him any till the next day, where we met at his soccer game. Saturday night I gave him his usual pill and thankfully due to his exhaustion from playing out side all day he went to sleep in 10 min. vs 3 hrs later which is the norm since Singulair seems to jack him up.
He also has red puffiness under his eyes - most likely allergies.
Seems depressed - just driving down the road and I look at him in the rear view mirror and he just sits and stares into space. When I ask what's wrong he either says nothing or I am tired.
He will try to tell a story or think for himself and just stops mid sentence and says " never mind I am just confused"
He will be having fun one moment and just starts crying or gets depressed.
He was throwing a ball in the house (yes I know) and accidentally knocked a glass over breaking it - he went running to his room, crawled under his bed and sobbed profusely for over 30 min.
He has a hard time doing / focusing on homework - becomes bored very easily.
Does not want to go outside. I will take him to allot of cultural events/ hands on or participation events - he will not try anything. He is unsure and will not come out of his box so to speak.
I spoke with his doctor who was reluctant to take him off, but then agreed that if it was OK with the ex, to take him off for a week to see what happens.
The fun part: My ex is convinced that since he has been on Singulair for 5 years he is fine and does not need to come off it.
1.) Son is diagnosed with mild asthma or allergy induced asthma.
He has never had an allergy test done and has not had a lung function test in over a year.
2.) It is documented that our son has four outbreaks a year. (sounds like the changing of the seasons) but is given Singulair all year round and the dosage has also been increased.
3.) Since the court order, ordered my ex to enroll our son in sports (she would not let him play anything) he does not wheeze or cough uncontrollably.
4.) Since I had to battle to get our son on my insurance I have cut her control issues off a little, but she is refusing to take him off Singular just for a week to see how he reacts. Although I do agree that he should have some form of allergies medicine.
5.) When I found out about the side effects of Singulair, I also found that his doctor was getting ready to add two other allergy medicines to his portfolio - totaling 3 different meds.
I see our sons behavior getting worse and I watch him turn into something he is not and with a controlling individual not believing anything about the side effects it looks like I will have to rely on the medical system to prove my point. I do believe he needs to be accurately tested for allergies and given a regularly lung function test but most of all since he is now on my insurance, a second opinion and a 3rd to narrow down what the situation is and an alternative medical procedure that is fit for the symptoms.
-- By aussie63385 | Reply | (9) replies | Send Private Mail
April 13th
2008
11:16 PM
Alright. After observing my daughter for two full weeks after discontinuing Singulair, I have decided to share our story.
Our daughter started taking Singulair last August (2007) to relieve her allergy symptoms. I'd like to add she is an identical twin, whose sister did not need to take the medication, for she had mild allergy symptoms that were easily relieved by taking Allegra. So we clearly have a side-by-side case study where one twin took the Singulair and the other did not. About two weeks later we noticed changes in her behavior and thought it was due to the new school routine and changes, etc. Then she started not eating, and when she did eat, she ate very little. Both girls are in a select soccer league are physically active 4-5 times a week.
Long story short - she stopped eating, lost weight, stopped growing and is now 2.5 inches shorter and 15 lbs. lighter than her identical twin. They are fifth graders, I might add, so 15 lbs is ALOT of weight at their age. She was withdrawn, known to have deep depressive episodes, reacted adversely to everything and, in general, wasn't acting herself since last August. She was not enjoying life at all.
She is usually a quick-witted child, one with a sunny disposition and who interacts with others very well. She is joy packaged in a colorful bottle, ready to share her thoughts with you.
We took her to her pediatrician, a nutritionist, a psychologist and all said she was clearly depressed and that is what led to her changes in eating. No kidding, I thought. But why? What has happened that could have changed her so drastically?
I had never felt so far away from my child as I had with her during this time period. We are a close family and we pride ourselves on being able to freely express how we feel.
My dear mother-in-law saw that the FDA was probing the side-effects of Singulair with children and she mentioned it to me, because she knew that is what my daughter was taking was taking. I never thought about the connection, because I take Singulair. I will add I also take an antidepressant and have made an appointment with my doctor to discuss all of this.
After talking with our pharmacist and getting an exact date as to when she started taking it, I called her pediatrician and discussed it with him. We had not been to him since October, because we took her to everyone else (psychologist, etc), so he had not known exactly what was going on with her mental health. He did, however write in his notes (and told me when I called), "Discontinue Singulair if symptoms persist." Hmmmm. Exactly why I wasn't told this from the beginning, I don't know and am very bothered knowing he wrote that on her chart.
Well, after taking her off it two weeks ago she is now back to her happy, connecting and eating self. People (her father, twin, and I included) noticed a change in three days from stopping use of Singulair.
She has changed IMMENSELY since getting off the Singulair that it has been easy to pinpoint her taking that medication as the reason she has been absolutely miserable for the past SEVEN MONTHS. I thank God it wasn't longer and that she didn't suffer any longer than she already did, but it was a true hell to watch her go through what she did and to watch her decline and to not know (professionals included) what to do. Words diminish how we felt and how we feel now after having her back.
So there you have a side-by-side comparison. One identical twin thrived while NOT taking Singulair and the twin who did take it suffered terribly, physically and mentally, while she was taking it.
The allergy relief she experienced was clearly not worth the internal suffering she endured while taking Singulair. I wish we could turn back time and give her those seven months back.
-- By nran | Reply | (6) replies | Send Private Mail
April 12th
2008
11:20 PM
Previously posted 8 year old son w/ suicidal ideation and depression...I'm seeing comments about "inattentive." I've been saying my son is ADD for years....How many of you saw this possible side effect? Off of Singulair for 14 days now....behavior unbelievably improved.
-- By nonstop934 | Reply | (9) replies | Send Private Mail
April 12th
2008
10:45 PM
I am posting an update on my granddaughterwho has been off for 2 weeks since the story broke in the news. There certainly has been a difference, she's more 'present' when I'm speaking with her, not angry, calmer and she slept through the night the other day when she came over to visit. There were actually no 'scenes' or carrying on. However, in light of the last posting I do not know how she will be affected in the long term, None of us can know that, none of us know how this drug actually works on the brain to create such side effects. I just saw a Singulair commercial on TV and almost got sick. Cody Miller's mom in her post stated that he had no behavioral problems before his death. I imagine that is true for the majority of us. My granddaughter never had the need to go see a counselor before this drug. She was a happy, normal 9-year old. That all changed in only 2 months as her mother took her to a psychologist to find out why she was acting so bizarrely. I am convinced this drug has caused untold misery and should be at least restricted to adults or at most taken off the market. This website is only the beginning at some point those who feel strongly will have to come together and organize against this giant company Merck.
-- By catherineevans | Reply | (3) replies | Send Private Mail
April 2th
2008
12:05 PM
I cannot believe that doctors are not more aware of the potential side effects of this birth control. I'm actually a little angry and needed to post a brief account of my story. Took a break from birth control after 9 years. I had been on ortho-tri-cyclen. I had read studies that said being on it for that long was not good. So after a year off of it my doctor recommended Yasmine. To her credit the symptoms of PMS were reduced however I literally almost went crazy. I have often been described as annoyingly laid back. After a short time on Yasmine I started feeling anxious all the time. I thought it was the stress of life. I was turning 30 and had just caught my boyfriend cheating on me. I felt that dam clock ticking and my job as a teacher was becoming increasingly stressful. So I honestly never even thought my moods and anxiety and depression could possibly be coming from a birth control pill. Well I went on line to find a psychologist because my own mother gently told me she thought I needed one and thats when I stopped for a second. I asked myself if I had been taking any new vitamins first and then I looked at the calendar. I quickly noticed that the depression had started soon after my new birth control. So I decided to look up the ingredients in Yasmine. That's when I stumbled across this sight and was truly horrified. I stopped taking Yasmine that day and literally within a week I was feeling better. If you are struggling with anxiety, mood swings, and depression I suggest you switch your birth control immediately. Life is hard enough without our allies like birth control secretly being an enemy.
-- By chrissyc22 | Reply | Send Private Mail
April 2th
2008
10:54 AM
Our story is like so many of yours…My son, 7, started Singulair at 2 ½ after a hospital visit and too many rounds of oral steroids. When he started Kindergarten at age 5 his behavior became increasingly problematic. It was hard for him to meet new people - something we had noticed at birthday parties in preschool, where he clung to me the whole time. He became more and more anxious, ran out of the class, didn’t really socialize, chewed his shirt, wouldn’t talk to people he didn’t know (or even look at people). I thought - he’ll adjust, he’ll be ok - he did well in preschool (although looking back, there were some repeated behavior problems there as well). By November the teacher told me she was really starting to worry about him - that he was depressed. I took him to a psychologist and he was diagnosed with anxiety.
In the summer I tried to enroll him in an art camp - but he ran around like a chicken with its head cut off and they kicked him out. In first grade he hid in the back of the room for the first few weeks. More shirt chewing, wouldn’t take off his coat, threw things, hit kids. At home he was capable of acting normal, but then every so often would act - well, psychotic. Mumbling to himself, overreacting to everything, screaming. Meals were hard, bedtimes were hard, getting dressed was hard. I had him evaluated and he was put on an IEP for behavior/emotional issues. More and more he was talking about death - wanting to die, wishing he was dead, saying that he hated himself.
Throughout all this time, I wondered, could it be the Singulair? I asked the doctor, the allergist, the psychiatrist - have you heard that this medicine could cause this? No, no, no- they all said after looking it up.
Finally, I looked on the web and found this site back in January, 2007. I read enough postings to recognize that other people were having similar issues. I told my doctor I was taking him off. She tried to get me to wait until after winter, but I didn’t. I just stocked up on pulmacort and albuterol and figured I would be ready with the nebulizer.
I watched my son carefully that first week, and it seemed like a cloud had lifted from him. He did not instantly change all of his troubling behavior, but as time passed it became less severe and more manageable. He became capable of things that he couldn’t have handled in the past. Almost immediately he learned to read. He had been almost reading for so long, but was so self-conscious about reading aloud to anyone. He took swimming lessons without a problem - it had been impossible to take him to any new class or camp where he didn’t know anyone before.
During this time, he also got lots of support at school and I enrolled him in group therapy. But I know that he would not have made as much progress as he has if I had kept him on the Singulair. Back at his worst he was like another child - haunted, crippled by intense anxiety and self-hatred. We wondered - what could be the cause - abuse? - but it just didn’t make sense - there were no other signs. I have an older son - who never went on Singulair - who has the sunniest disposition. Yes we have some history of mental illness in our family - but most people start showing signs either from birth or in their teens. My son was a happy baby, a friendly toddler, and all along, was very loving in his good moments to his close family members. Things just weren’t making sense. We were looking all over for an explanation. Now that we have it, even though we feel relief, we also feel tremendously sad.
I wonder - how many kids out there with crazy behavior are getting punished, are falling behind in school, are being institutionalized? I will be writing my senators, congressman, state and federal, as well as notifying the FDA.
This is what bothers me the most - all of us across the country go to our doctors and ask about these side effects. But (except for those who posted here) we don’t report the side effects, because everyone tells us they are not caused by the medicine. So our individual reports were never taken seriously because it never got past the doctor’s office.
I feel bad I didn’t post earlier, but I was intimidated, and almost embarrassed to “blame” my son’s behavior on the medicine, rather than taking responsibility for it as a parent. Thank you to all the parents who had the guts to post, and especially to the parents of Cody Miller who brought this to the public. I am so sorry for your loss - and I am so sorry for all the parents and children and teens and adult Singulair users who have suffered. I feel like we should form support groups because we have all been through a terrible trauma. I live in Massachusetts and would love to hear from those who live near me.
-- By massmomof3 | Reply | Send Private Mail
April 1th
2008
5:46 PM
DO NOT LET YOUR DOCTORS AND PEDIATRICIANS LEAD YOU TO BELIEVE THAT SINGULAIR IS NOT THE CAUSE OF THESE BEHAVIORAL AND PSYCHOLOGICAL ISSUES. IF THEY DON'T LISTEN TO YOU, FIRE THEM!!!!!!!!!
I am contacting the Attorny General's office for the State of Connecticut this evening and have communicated directly with the leading professor at the University of Florida - School of Pharmacology and Pediatrics. His exact quotation to me was "The efficacy of Singulair is modest. If we took all of our patients off it right now they would not suffer"
Spread the word to ALL people you talk to on the street, at work, and wherever you may go. While this drug may work for some it is BAD for MANY!!!! Too many people are being misdiagnosed because of the side effects of Singulair.
-- By matthewct1 | Reply | (2) replies | Send Private Mail
April 1th
2008
1:50 PM
Oh my god!!!! My poor daughter. My daughter Karilynn has been taking this drug for about 8 months now. She is 2 1/2 years old now. All of the sudden she had a drastic change in behavior, sleep and eating patterns. She began with sleep problems. She would wake up in the middle of the night screaming that the green monsters were after her. I chocked it up to night terrors that weren't explained. Then she started waking up screaming that her "bottom" hurt but would point to her stomach. She quit eating, cried all the time, started acting out randomly. My little girl who had never had discipline problems started randomly hitting and biting me. It wasn't even when I would discipline her for something. She would literally come up and bite me out of no where. She throws huge tantrums now. The daycare lady even asked me if something was going on at home because she was doing strange things there also. Not knowing what was wrong (but trusting my mother instinct that there was SOMETHING wrong) I started to think that maybe she was being abused. The night mares, the random pain.... I even had a breif moment where I thought my grandmother was hurting her. I want to throw up thinking about that now. I took her to the pediatrician, who ran every test imaginable to "rule out any physical reason" that could be causing all of these symptoms at once. Test after test came back negative. I actually have the number to the psychologist that does "play therapy" sitting in front of me because we were seriously terrified that someone was hurting her. Little did I know it was us!!!! I called tha asthma dr. yesterday after seeing the news story and he told me that my concerns weren't really valid and that it sounded like she was being a "typical" two year old. That really made me angry. After reading all of these accounts there is very little doubt in my mind that it is the medicine. It all makes sense now. Halleluah if it is such a simple fix!!! I was worried my daughter was being ABUSED!!!! What an unimaginable feeling for any parent!! I quit the singulair last night against the asthma doctors "urging" and gave the daycare lady a heads up. Its sad to say but I pray this is all that is wrong with my little girl!!! If someone files a class action suit please let me know. Also if there is anything more I can do to make sure someone else doesn't go through this let me know!!!!!
-- By brandy_m | Reply | (2) replies | Send Private Mail
April 1th
2008
3:28 AM
I have taken adderall xr 30mg once a day for 4 years and have noticed many different emotional levels and behavioral changes. At only 20 i am starting to become concerned with my mental state as of now and in the future. I have experimented with the drug and found that i can take 8 30mg pills at once and survive it, not recommended at all.
-- By riryan20 | Reply | (3) replies | Send Private Mail
March 29th
2008
10:46 PM
I cannot believe I am seeing this. I thought my son develops ADHD.... My son (6) took Singulair since he was 2 1/2 (asthma). The drug worked great, until about one year ago: anxiety, severe mood swings (yes, crying at the drop of a hat), fears of being alone in a room, any room (even when I was in his view), aggression, loss of concentration. I thought it was because my husband was deployed and took my son to the psychologist. Over the last month, my son developed new symptoms: itching, and therefore, rubbing first over his face, by now from the feet up over his whole front body. We took him off Singulair two days ago and investigate other asthma meds (he still is on Flovent). Hopefully, we will see improvement soon.
-- By happymom | Reply | Send Private Mail
March 29th
2008
11:10 AM
My son has been taking singulair on and off since he was 11 years old, he just had his 15th birthday. The past 2 years of his life have been filled with depression and anxiety issues. We have been to countless doctors, hospitals, therapists and now a psychologist. When he is on singulair for long periods of time he would have mood swings, depression, stomach and headache issues. I have asked the questions to all involved with him are you sure that singulair is ok to take with the depression meds? They told me yes. They recently up his dose to 10 mgs and his depression got worse! He has trouble concentrating, sleeping, and feels the world is a bad place. He is a good student, he is in sports and was popular, now he is tormented by these feelings of depression and anxiety. He has been on and off homebound instruction for the past 2 year and I have had to use family leave time from work to help him through this. My husband and I have spent a lot of hours trying to understand what has happened to our son. I have stopped giving him singulair and I hope that in the near future we can take him off his depression meds that he has been on for 1 year. How long will it take till his mind and body are rid of this drug? Why did no one tell me that this drug needs to be examined to why my son has had these very serious problem. Teenage years are hard enough with out the added conditions that my son has had to experience. I want some answers and I will give everything that I have to assure that my son will get better. Please help those who have experience what we have with the answers we are all asking.
-- By lynn251 | Reply | Send Private Mail
March 28th
2008
9:13 PM
I have been taking Singulair since it came on the market almost 10 years ago. I am now 26 years old and working on a Masters in Psychology. My theory is about this drug that people that are experiencing depression, and suicidal thoughts are prone to having this without the drug. I cannot skip a day without this medication or else I start having severe flair ups. I am writing because it always seems when there is a good drug on the market it gets pulled because of the side effects. I hope Merck does extensive testing and surveying to make sure of these allegations before the drug is discontinued. Also I took Singulair the entire time I was pregnant and my child has no kind of birth defects etc.
-- By mlkeene | Reply | (3) replies | Send Private Mail
March 28th
2008
7:39 PM
My Daughter is 15 she was put on singulair 2 years ago. She started having severe stomach pains. The doctor started her on pepcid ac. It never got better, just worse. A year later the stomach pain was so bad she was hospitalized. They couldn't find anything wrong. She had several c.t's and ultrasounds of the upper right abdominal area several times showing nothing.Then she got worse she was experiencing 51 side effects from the singulair she was in the e.r every week including Children's memorial in Chicago. Her eyes and lips swell till they bleed and crack along with the stomach pain and low grade fever for 2 weeks at a time. She would be literally in the fetal position telling the doctors she was in pain and they couldn't find anything wrong. So they would send her home. She began talking about suicide and we have her seeing a psychologist who kept saying nothing was wrong with her because the tests don't show anything. Our doctor bills exceed 40, 000 dollars from last year just ur portion. Never once did any of those doctors say maybe its the singulair. They keep changing and adding new meds and still couldn't figure it out. We had to get a tutor and have now got her on state disability an I.e.p for education because she swells everyday. Her skin peals off her face after the swelling goes down. She wont even go out in public. I mentioned it to the pharmacy and they said oh my god stop taking it. They asked why didn't our doctor take her off along time ago. The doctor still wont say that it is due to the singulair. Now the suicidal effect is coming forth for the f.d.a. I want every parent to know not to let their child take this drug! Please ! L.S in L.I.T.H., Il
-- By lstout | Reply | (1) replies | Send Private Mail
March 28th
2008
1:59 PM
I have been crying for almost 24 hours now. I cannot believe what I am reading and hearing about Singulair. My son has been to hell and back again and again. I cannot say for sure the Singulair is the culprit. But after reading all of the other stories on this website, I am convinced it is a strong possibility.
My son is 11 years old. He has severe allergies and asthma. He takes many, many medications for this including Singulair. He as been on Singulair for about 8 years now (my best guess because he has been on it for sooooo long.)
My son was diagnosed with ADHD in pre-school. He has taken many medications for the ADHD, but none have ever done any good at all. We thought some of the medications even made things worse. Now, I'm not so sure.
After exhausting all the ADHD medications, our pediatrician sent my son to a psychiatrist and a counselor. The psychiatrist put him on 2 different antipsychotic medications. Again, neither one did any good and seemed to make matters worse. The psychiatrist sent my son to a psychologist to be tested for Asperger's. For those of you who don't know Asperger's is a high functioning form of autism. The psychologist ruled out Asperger's by diagnosed ADHD and Anxiety Disorder. He did not prescribe any medication.
For some unknown reason, I've only given my son the Singulair off and on for the last year. My son had the best year in school ever. However, his pediatrician was still not satisfied. He sent him to see another psychiatrist at Children's Hospital in Pittsburgh. We were told he is believed to have more than one disability. He is believed to have ADHD, Aspergers, Teurettes and a possible 4th medical problem that has not yet come to light.
We are scheduled to see a neurologist at Children's Hospital on the 15th of April to rule out any medical reasons for his tics. We see the psychiatrist again on the 18th of April.
I am so tormented by this recent news. Has all of these problems been caused from him taking the Singulair for so long? Although he has had his best year in school yet, he still has a lot of problems. Are the side effects of the Singulair permanent.
The other side of the coin is this: It is also very scary to watch my son not be able to breath. Asthma can also be life threatening. What is a parent supposed to do.
Also, I now don't know whether to keep these appointments that are coming up. I hate so much to put him through more. He has endured enough doctors and tests to last him a lifetime. However, what if it is not the Singulair and there is help out there for him that I am not aware of.
Please if anyone else has had a similar experiences e-mail me. I would love to hear from you.
God Bless everyone who has been through this kind of hell.
-- By foxhlam | Reply | (4) replies | Send Private Mail
Singulair (35) Yasmin (14) Zyrtec (2) Lamictal (1) Lupron (1) Adderall XR (1) Zoloft (1) Zyprexa (1) Topamax (1) Lexapro (1) Wellbutrin (1) Mirena (1) Effexor (1) Aviane (1) Lisinopril (1) Pravachol (1) Prozac (1) Ritalin (1)
July 19th
2008
4:21 PM
To a small population of people, this drug has an immediate detrimental effect to mood. In my case it caused a strong urge to commit suicide within 5 hours. The doctors all said it was impossible. I was inclined to believe them since these drugs are not meant to be effective for days after treatment initiation. However, my reaction cannot be ignored or dismissed.
The prescribing physician (Robert Moffat, MD in Longmont, Colorado) suggested I try it again because he was so certain it was my problem. I did try it again, and I had the same reaction. And so I filed a complaint against him.
Incidentally, I was not taking this medication for depression. It was for nocturnal panic attacks.
I am not saying people should not try it. I just suggest that FOR THE FIRST 24 HOURS WHEN YOU TAKE THIS MEDICATION YOU SHOULD NOT BE ALONE. It probably works great for some. Also see ******
-- By recherche88 | Reply | (1) replies | Send Private Mail