March 27th
2008
7:17 PM
My beautiful 11 year old daughter was on Adderall XR 20 mg per day for 4 years. After about 2 years she started to develop some minor facial tics. After 3 years the facial tics were worse along with severe head shaking and she also started to develop trichotillomania (obsessive compulsive hair pulling). The hair pulling continued until she was almost bald. Her grades began to drop and she withdrew herself from her friends and family. Finally, we took her off the medication in October 2007 at age 12 and she immediately stopped the tics and hair pulling. We have found 3 other families whose daughters have developed these same symptoms after being on this medication for at least 2 years. We have filed a report with the FDA as our own doctor had no idea that this medication was causing the hair pulling. Now 5 months later her hair is growing and the tics are approximately 97% gone. We have taken her to a homeopathic doctor and she is doing absolutely great now. Marks have gone up and she is smiling and socializing. I am so happy we have our daughter back. The side effects of this drug was definitely not work it.
-- By rhondap | Reply | (10) replies | Private Message me
February 2th
2008
11:35 PM
First of all I would like to thank you foe sharing your stories... you have saved my life.
I got Mirena "the monster" in October 2006. For a while I thought it was the best thing ever. In the next few months I gained a few lb, my skin stared to scare after bouts of acne, I did not have the usual energy. I blamed the new job, stress and aging. It seemed like an accelerated aging but I have just accepted it, low metabolism, everyday stress, you name it.
In May 2007 we went for a graduation of a friend. When entering the auditorium I started the feel panicky... it was a weird sensation but I decided not to pay attention to it. I love crowds, I love people. I forgot about it soon afterwards.
During my annual the doctor told me that my thyroid is becoming hypo and I have the elevated number of antibodies.
Then in July 2007 I was returning from Europe I had a full blown panic attack (I know now what it was). I had to be taken to the emergency room where I was treated for tachycardia and ordered to see the cardiologist. The months between July and December I have spend trying to figure out what is wrong with me. I started to have the anxiety attack on the regular basis, insomnia, I lost half of my hair, I was just barely serving, living from day to day, unable to accomplish anything, I was just trying to attend to the basic needs of my family.
I went to the cardiologist, endocrinologist, ob, EarThroots doctor (In September I developed the strange sensation of a foreign object in my throat), my family doctor (several times). I was put on Beta blockers, Xanax , Lexapro. Nothing was helping. I was depressed and absent, could not remember a thing, my mind was under some gaze. I could not understand: I am happily married wife, mother with no worries, great financial situation, job and perspectives. No drama and trauma in the last few years.
But even though it did not make any sense, I started to look for a psychologist/psychiatrist. I hired the private trainer and started the rigorous program of exercising. I learn how to meditate and attended twice a week yoga classes. I read everything in the library on the subject of anxiety, I learned relaxing techniques, bought tapes, music, dvd's. Changed diet. Eliminated alcohol and caffeine. Got massages. Everything provided only a temporary relief.
I started to make notes... the most severe anxiety started every 28 days (for a week) and sometimes in the 14 days. This when I suspected that Mirena may have something with it. Then I found this site and several other sites. In December, after a month of researching I came to the conclusion that it is impossible that thousands women on different continents are hallucinating... and on December 22, 2007 I went to take The Thing out. the best Christmas gift ever!
12 days later I had the famous Mirena crash (thank you again for sharing!), with a mini depression, suicidal thoughts, full blown anxiety and a lot of crying. The period brought a huge relief. The side effects are still present but they are diminishing day by day.
As someone here recommended, just when I was about to start this month "the anxiety period"... I went to acupuncturist. I told him that I need help with anxiety. When on the table he told me that I am having hormonal imbalance, I have a lot of heat (?) inside and that the region that correspond to the liver is pretty swollen. He told me that he is going to help me in 5 session and that I will be able to take off myself and that my body in a few months will return to normal. I have had two sessions, I did not have acute anxiety this months, I almost feel like my old self.
I am off meds, I take occasionally the beta blockers for heart palpitation (one time in January), I started to supplement with vitamin B complex. I drink Sleepy Time Extra -- with Valerian (celestial seasoning) at bed time. If I need to make sure that I will sleep I take the prescription antihistamine (hydroxizinum).
I am sure there is a light in the long tunnel... courtesy of products of Mirena... well ... you could say that I owe them a lot of spiritual growth and learning... at the price of personal hell...
Please know if I can be of any help-- I will gladly answer any questions.
Have hope! Take the damn thing out!!!
-- By mimi72 | Reply | Private Message me
April 14th
2008
3:40 PM
Hi guys,
-- By jerseymomma | Reply | (7) replies | Private Message meI came to this forum after a client at our firm told me to check out whats happening with singular. I am not a lawyer, but I am a secretary for a med mal firm and I can tell you that we have already started taking these cases. I saw a few questions posted about whether you had to wait 9 months for the investigation to finish, but that doesn't stop you from filing suit. If it were my baby boy, I would switch meds, but if you can't--make sure you journal EVERYTHING. Take videos of outbursts, etc. We have one client who's son is self mutilating after using singular. If thats happening to you, try to document the episodes. Like I said, im not a lawyer, but I work for some so I can answer a lot of questions and I would be more than willing to help. I am so disgusted by what I have read. Please email me if you have any legal questions, etc. If i can't answer them, my boss will and if its a medical question, we have a staff nurse so I will give her a call. Again, I am so sorry for what everyone is going through. I pray to god I can help in some way.