February 7th
2008
11:50 PM
My mother was put on Prednisone 3 weeks ago because of severe muscle pain (15 mg at first and increased to 60 mg). After she starting taking it she began to have weakness in her muscles/joints and was unable to walk by the end of the week. She also had severe water retention and could not catch her breath. Most of all she was very weak all the time and could not seem to sleep at all. She wound up in the hospital and was classified with a type of Congestive Heart Failure due to the excessive dosage given by a pain doctor. She had to be admitted to a Rehabilitation Center where they have now cut her down to 10 mg a day and she is trying to take Physical Therapy to walk again. She is fighting with depression and overwhelming feelings of anxiety. She still cannot sleep and wonders if she will ever by back to normal again. Just a month ago she was living a normal life and because of the pain, was given this medication. I wonder if the benefits outweigh the horrible side effects she has experienced. After reading some of the responses above I see others are having similar side effects.
Any encouragement from someone with a positive long term outcome would be beneficial at this time to her. She feels very helpless in her situation.
January 17th
2008
2:18 AM
Hi I'm 26 years old and just started 60mg pred treatment for Kidney condition called Nephrotic Syndrome. This is my 8th Relapse since i was 7years old.
Started Tabs 27th Dec and now they are really kicking in with side effects! I have a beautiful little boy and just got married and was soooo Happy. Now I'm feeling so depressed, I cant sleep , My Face has started swelling and I've eaten all inside my mouth cause I'm so hungry!! Been having a few Cramps but nothing like I've experienced in the past.
I'm trying to reduce the tablets myself so I'm not on them too long but its just not working!
I just WISH I could stop the moon face I'm developing, Its the main problem for me (causing depressed thoughts)
January 3th
2008
10:40 PM
I was diagnosed with Crohn's disease in July. I had my colonoscopy/endoscopy the day before 4th of July. Got sick with what I thought was the flu on June 26th. That's when I first landed in the hospital (dehydrated & sick). After the diagnosis I was first put on Entocort and Pentasa (Pentasa is supposed to be a remission drug - keep you from having flare-ups). Entocort didn't work so they switched me to Prednisone. I've been on Prednisone for about 6 months now. Going from 20 mg to 40 mg and then I'm finally weaned down to 5 mg. I get to go completely off of it Jan. 13th. Scared of what other side effects might occur from coming off the drug. While on it I've had emotional problems, acne(never had a problem with it before), moon face, gained 30 pounds, joint pain (I was in therapy for as long as insurance covered. - I recommend water therapy, it helps for some people as it did me), trouble sleeping (haven't slept a full night since I got sick), certain days I'm really really thirsty, I've had sort of what I'd call restless leg (I had this before I was on this medicine but it has gotten significantly worse - mostly at night or when lying down), and dry skin.I have to say though that the WORST side effect is the FOG. It's horrible. I enjoy learning and using my brain and when I'm on this I can't think, I mix up words, and it feels like my brain is covered in cobwebs.I had to drop a calc 2 class and that got me off the track I'd set with my academics. My inflammation rate is down where it's supposed to be as of the last blood test a couple weeks ago. So I guess the Prednisone and Remicade are doing what they are supposed to - but I still don't feel as if the pain (not associated with Prednisone - caused by the disease) has gone completely away even if the inflammation has gone down. And Prednisone's effects are just horrible. Some nights I feel depressed and just want to cry and cry. The past months have been trying because of several hospital stays, switching to many different doctors (gastrointernologists, nephrologist, urologist (kidney stones), primary doctor - and they think maybe I should see a rheumatologist), and Pentasa (it began shutting my kidneys down). I just hope that when I come off the Prednisone the side effects will fade (hopefully quickly but lets be realistic - ill just be happy if they go away sometime in the next few months) and I won't flare up again. Anyone know the best way to get rid of the weight? I'm already drinking lots of water and I go walking and do exercises everyday.
QUESTION: When tapering Prednisone does anyone have a place(s) on their stomach that are sunken in and feels dry compared to the skin around it?
Anyways, I hope that everyone overcomes their difficulties, whatever they might be or concern. It's hard to have a life when you are constantly fighting your own body to stay healthy.There are plenty of situations in life that are already hard enough to deal with without medical issues of your own. Best of luck to all!
-- By tesa | Reply | (4) replies | Private Message me
December 20th
2007
2:18 PM
I was just wondering...I've been weened off Prednisone the last month or so and today is my last pill. YEAH!!!!!!!!!!!!!!!!! AMEN!!!!!!!!!!!!!!!!!!!!!.
However, I've noticed that my joints hurt and my feet oh the pain. Is this normal. I feel like my muscles are weak. walking up a flight of stairs is painful. Anyone know how long this will last or if this is something I will have to live with.
December 17th
2007
3:40 PM
After bith my childrens births I have experienced a enigmatic skin disease / disorder which has been unclassified by dermatologists and specialists. First I experienced blisters on my torso, which crusted over and followed with severe urticaria-like wheels all over my body. Doctors placed me on Prednisone 5mg tablets ( 40mg daily) for 4 months, in which time the symptoms subsided , but the side -effects for this Mother was terrible!!! I experienced a 12kg weight-gain, uncontrollable appetite, excessive sweating, dizziness , shortness of breath and extreme hairloss. My skin thinned and OI bruised very quickly. No diagnosis could be made. After the induced -birth of my second child now, I have the same episode and had been placed on Prednisone for the second time just to cope with the swelling.
I am currently in my 7th week of using 10mg - 15mg daily with an anti-histamine. I hate the re-occuring side-effects and am very scared of all the long-term damage. Does anyone have any idea how to boost your own natural immune-defence system while being bombarded witha immuno-suppressant like Prednisone??!!!!
I believe that your own body ws made to heal itself or be healed by natural means... but how and what?? I am desperate, and have been following a anti-candida like diet ( no yeast + sugars + preserved foods) Thus far I have not been able to kick the symptoms. Any help out there would be much appreciated. Have someone experienced the same sort of symptoms???
-- By marabi | Reply | (1) replies | Private Message me
September 28th
2008
2:00 AM
eat avocados to help with cramps. No one tells u that prednisone depletes potassium. Better avocados than banana because prednisone also raises your blood sugar.
-- By caradeluna | Reply | (1) replies | Private Message me