September 17th
2008
9:57 AM
I've been on 200 mg Lamictal for 2 months now, after 4 month titration up from 25mg; Going off Lithium 900mg titration to 450mg this week. Since 1st day of lower Lithium, all the common Lamictal symptoms went from mild to extreme. Whole body muscle aches (like 24 hours after a heavy weightlifting workout) worse in neck & back/shoulders/calves, bad headaches, swelling in hands & feet, extreme blurred vision, loss of memory, halted speech while trying to figure out what to say, fuzzy. I called the Clinic to simply ask which NSAID (aspirin? ibuprofen? Excedrin? naproxin?) to use to manage the pain. They all freaked and made me come in for a blood test to check Lithium levels. I explained I wasn't "overly" concerned about it at this point, but just looking for a recommendation, and that they may be over-reacting (even though I did appreciate their concern). I also reminded them that I had just **decreased** Lithium when it happened, so I wasn't having a Lithium Toxic attack (I'm well-versed in that, having been on Lithium for 7 years). It didn't do much good to tell them I thought their diagnosis was a little off. I'll find out the blood test results today, but I'm pretty sure I know what they'll be. They also wanted me to see my PCP since it could be something else. Again, the problem was a ramp-up of existing symptoms the next morning after I lowered Lithium (the only change), so I'm conviced everything centers around that. I think they're a little inexperienced with this med. (Lamictal/Lamotrigine) and if they'd just read this blog they'd probably learn a lot. They had never heard of the muscle ache side effect. Pretty hard to believe after reading all of your comments! My theory is that Lithium was somehow holding back the side-effects of Lamictal and now they're expressing themselves more fully. I haven't read anything like this on any internet discussion, so maybe my body is very different. But maybe my experience will give someone else some insight in a similar situation.
I might also mention something that happened to me I have only seen (kinda) in one other "blog" about follicle (sweat gland) cysts. Yeah, I definitely got the jawline acne starting at the Lamictal 50mg level & increasing at 100mg. But I also got my first ever "cyst" that concerned me and sent me to my dermatologist for the first time in 30 years (I'm 47 and saw the old guy when I had acne at 17!). It started as a blind pimple on my chest the week I increased Lamictal to 200mg (final dose), but didn't go away. It continued to grow (not diminish) over 4 weeks to 3/8 inch round/pink/solid/itchy/burn-when-rubbed. So off to the "Doctor" like my father used to do on a regular basis (I know I'm getting old now) and scalpel/pop/stitch it was out. But it was real, not my imagination or hypocondria, and the timing of its appearance was right when Lamictal changed to full steam. Since acne appears to be a common effect with so many, it seems it's not unreasonable that this occurs occasionally as well to others. Let me be the 2nd to mention it. No "official" verification, but....
I'm not bagging on Lamictal, and have been very hopeful that this would be better than Lithium. It has eliminated the GastroIntestinal problems I had on Lithium, but I am getting discouraged that it has all the brand new symptoms that are discussed in this blog. Your "stuff" is real. I wish the Docs/Nurses/Case Workers would spend 5 minutes checking your comments out. It might bring about a better informed conversation than the shiny Glaxo flyers provide. That is all.
September 9th
2008
12:20 PM
I am a person who had never experienced depression before going on NuvaRing. I'm 39 years old and had been on it for a year - gradually the crying jags, feelings of hopelessness, moodiness, ANGER and insecurity kicked in...I even lost control and yelled and hit my boyfriend on one occasion. The final straw was when I broke up with him in a fit of rage - completely unintentionally. The day after, when I got myself back together, I went into counseling and the counselor suggested hormonal causes. Fortunately there are many anecdotes, like these on this website, linking NuvaRing to depression and I did go off about a month ago. Gradually, as with the ramp-up onto NuvaRing, I feel myself getting back control of my emotions. If you've experienced something like this, don't wait for an emotional break: get off NuvaRing so you can evaluate what's happening to you with a clear head.
-- By seastar100 | Reply | Private Message me
August 22th
2008
12:52 AM
After a slow ramp-up (4 weeks), I'm at 300 SR for major depression and PTSD. Though originally petrified of taking it, I must say it's been a pleasant surprise -- the only side effects have been dry mouth and occasional afternoon tiredness. This week I'm noticing that that pervasive nameless read has subsided, and I'm actually tackling some of the little tasks that had seemed overwhelming before. So far so good!
-- By bananafofana | Reply | Private Message me
June 1th
2009
11:19 AM
I took Zocor for 9 months after I had a heart attack. After about 8 months I began having sever muscle spasm in my legs. I had a couple of episodes where when walking I couldn't pick up my feet and thought I was having a stroke and had to sit down and rest before walking on. I had to do this several times to get where I was going. I told my cardiologist and he had me stop the Zocor. The spasms stopped but I never regained the strength in my legs. Today I have had to put ramps in at home cannot climb steps. The ramp is difficult because of the incline but it is better than crawling up my steps to get in the house. I can only walk about 50 steps before my legs give out on me. I cannot walk on uneven ground without holding on to something or someone. I have now had 2 back surgeries because I have been told over and over it is my back with no relief for the legs. This last surgery my left foot drags and my big toe hangs down and I cannot pull it up. Now I fall a lot because of that and have to wear an AFO to keep my foot and toe up so it doesn't drag and trip me. The back doctor thinks it another pinched nerve and wants to open back up again. I am so tired of them trying to convenience me it is my back when I know it was the Zocor and the damage apparently is irreversible but no one wants to agree with me. I am sick of it and just wish they would say yes it was the Zocor and get you a scooter and live the best you can. I know I am headed for that road I use a walker and cane when I don't have someone with me to hold on to. Because I am so unstable on my legs.
-- By tyleen | Reply | (8) replies | Private Message me