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Rare disorder symptoms and conditions

Here are side effects posted by other members, that mention rare disorder.
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50 Side Effects posted for rare disorder

May 11th
2008
3:25 PM

I was just placed on Cellecept last week- 500 Mg 4 times a day-
for my autoimmune muscular myopathy- I was a body builder 6 months ago- now I can barely make it across the Target parking lot.
I am sure the myopathy is Statin induced as I was on Lipitor-)rather than Prednisone as my doctor said less side effects.
He said I should see improvement in about 6 weeks- is any body taking Cellcept for autoimmune disease?
Thank you.
PS; So far- side effects seem to be weakness- more shakiness-

-- By maxinep | Reply | (6) replies | Private Message me

April 2th
2008
3:38 PM

After one week of being on Singulair, I lost the use of my feet and legs (Vasculitis. foot drop and parathesis) The doctors in hospitl said I developed a rare disorder called Churg Strauss Syndrome. It has devastated my life.

-- By jangeren | Reply | Private Message me

February 22th
2008
3:56 PM

Hello everyone,

My name is Tina and I am a mother of 5 children and I was diagnosed with a very rare disorder called "VKH" It is a rare eye disorder that only strikes like 1 in 1,000,000,000 people. I was put on Prednisone to help with this condition and to reduce the swelling in my eyes. I was put on 70mg initially and was tapered down to 40mg. then things did not go as well as to be expected and I was bumped back up to 60mg. I am so happy to read these stories but also saddened at the same time. I have been on Prednisone for 5 months and have gained 20 pounds and have the moon face, the acne, the hair growth and the horrible mood swings. My husband and I had our 10 year anniversary last week and I spent it all alone because of my moods.......
It has destroyed my relationships and my self esteem. I don't like leaving the house barely because I hate how I look and I am so depressed I am not the same person as before. I cry all the time because sometimes I wonder if taking this drug is worth it!!! What makes things worse is I wonder if things will ever go back to normal for me or my family again.................

-- By twentworth75 | Reply | (4) replies | Private Message me


 

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