October 10th
2008
12:58 AM
I have Autoimmune Hemolytic Anemia (AIHA), was diagnosed in Feb. 2008. Have been ill for several years and finally it came to a head in Feb. I had a blood transfusion and then in the hospital 6 days later with a hgb of 4.0. I was so toxic and my blood so screwed up I nearly died. I was given another transfusion then (total of 5 pints of packed red blood cells) and started on Prednisone. For 3 days given liquid Pred injections, starting at 1000mg, tapering down to 250mg., then on the pill form at 100mg. Sweat poured off of me dosing down. I was off work for 2 months. I am still tapering but am now at 1mg. DR. added another drug, Danazol, after getting to about 10mg because my blood started going crazy again. My side affects with Prednisone have been, Euphoria, no depression, LOTS of hyper brain activity, thoughts running a 100 miles an hour but body at slow speed.Visual problems and a feeling of being highly drugged. 2 to 3 hours of sleep each night, compulsive behaviors and a lot of pacing back and forth. Couldn't hold my concentration because my mind wandered so much. Extreme Tremors in my back, hands and head. Wanted to talk constantly, if no one was around I talked to my Chihuahua or the TV. My cheeks puffed up and became hard and had a fat pocket puffed up on left side of my neck. My dog thought I was crazy, she was tired of the lights being on at 3 or 4 in the morning. Legs looked skinny but didn't gain weight until I got to about 60mg. Gained 25 lbs total. Tapering caused bad spasms in my calves, feet and hands. Thigh muscles would get extremely weak each time I went down a dose. At 50mg I started getting sleepy and could hardly stay awake. Went back to work at 35mg and couldn't remember how to sign on to my computer. Some memory problems since I was in the hospital, couldn't remember how to spell words I knew as a young girl. Started having hip pain about 3 months into the Pred, that hasn't stopped. At 10mg feet, knees, shoulders hurt deep in the sockets, muscles below my neck knot up, may take a while to totally get off this. Read on a couple of blogs where people cut a 1mg tab into 4 pieces to taper off the Pred. because of side effects. Had thrush in the beginning and break outs of shingles. I hope to God I never have to get back on this drug again, it is so HARD on the body but it did do what it was given for, to repress my immune systems. My next step is Spleen surgery, hope this is a cure for me, am sick and tired of being sick and tired. Wouldn't advise anyone to take Pred unless it's a life or death situation. It's prescribed too liberally and people have multiple problems, worse than I have experienced. I've probably forgotten some things, but there's enough I've mentioned to give you an Idea it's not good, but if Pred is all you have then you do what you gotta do!! My puffy cheeks have went down though, now my hair has become curly but at least I have hair and my chihuahua stills loves me!!!
-- By linn | Reply | (4) replies | Private Message me
July 19th
2007
2:32 AM
I had been taking Lipitor for several years and had many of the common problems listed as possible side effects, however, since bloodwork showed no liver problems my doctors kept me on the drug. In Novemeber 2005, I had a 'charlie-horse' so bad that it tore a muscle in my right leg.
I stopped taking the drug, but the damage was done! Since that time my condition has continued to go down hill and no doctor has been able to help.
-- By john545 | Reply | (2) replies | Private Message me
April 20th
2007
6:17 AM
I am 48 years old and I have been taking Tricor for about 4 years. About 2 years ago my doctor added 10 mg of Lipitor. My cholesterol went from 235 to 145, however during the past 2 months I have started to develop joint and muscle pain in both my arms. I went to the doctor and he told me it was tendonitis. I felt that having it in both arms at the same time was weird. I have always been very physically active and have not changed my routine. Last weekend I stopped taking the Lipitor and I felt a little better. I took it again this week and the pain is back. My doctor told me it is not the Lipitor. I am going to stop it for a week a see what happens.
-- By corey823 | Reply | (1) replies | Private Message me
August 14th
2005
9:27 AM
To Guest 12473 especially: Many thanks for your posting.
I too, have been on this lisinopril for nearly two years, starting w 10mg and recently ending at 40mg. Side effects include erratic BP, horrific dry cough in the evening, productive but sometimes bloody sputum in the morning. Unexplained low grade fever that comes and goes. WBC going out of sight, RBC going down. Hemotologist/Oncologist wants to do bone marrow biopsy thinking the same as Guest 12473: lymphocytic leukemia. My opinion: I've been slowly poisoned by this filth for months. Of course the body is doing strange things, the WBC are trying to fight off this chemical infection. I pray permanent damage has not been done. Quit the lisinopril 48 hours ago. Cough is starting to improve, feeling somewhat better and more energetic, but am now getting queasy throughout the day. Supposed to fly to England and Wales in a few days; hope I can make it.
This filth needs to come off the market now!
-- By arpa | Reply | Private Message me
June 25th
2003
6:34 AM
I am just questioning abnormal blood work with Lisinopril??
The following are low: Hemoglobin, Hematocrit, RBC, RDW, Neutrophil
The following is high: Lymphocytes
WBC and all else is Normal
Unfortunately I did not have labs prior to starting Lisinopril.
-- By dljuly | Reply | Private Message me
June 16th
2003
6:38 PM
I was prescribed Levaquin the first of April 2003 as a preventative measure, and around the 20th of May 2003 lost my ability to taste, just a weired metallic taste, and noitced I tired very easily and was short of breath with very little exerction. Was advised by a Dr. friend of mine to have some blood test done which showed that my immune system was very depressed. Abnormal platelets, very low RBC (2.95), very low WBC (1.22). Just about every entry on my CBC is low, with exception of two items which were high and these have remained unchanged for the past two weeks. I have had four CBC's done in the past 14 days with virtually no change. I am going for a bone marrow biopsy as soon as I can get in. (no insurance) Does anyone have any suggestions?
-- By steve21 | Reply | Private Message me
Lisinopril (2) Lipitor (2) PredniSONE (1) Mirena (1) Levaquin (1)
December 21th
2008
10:53 PM
I had my Mirena inserted in 9/07. I was fine until 6/08. In 6/08, I started to experience strange urinary symptoms of urgency and frequency. I addition, I had pain on urination. No UTI present. I had a cysto to r/o interstitial cystitis. The physician said that it did not look like IC because I did not scream when fluid was infused into my bladder. For the last 5-6 months, I have been dealing with my strange symptoms. The GU speculated that my problems might be due to my dropped bladder, but he seemed very unsure.
A few week ago, everything changed. I started having the most severe urethal pain. I was in tears all day long with 3 kids to care for. I have wbc and rbc in my urine. ALL cultures were neg. The Dr. even cultured me for STDs. Last Thursday, I had my Mirena pulled out after reading this message board. I'm hopeful that it hasn't caused irreparable damage to my body. I still have the same symptoms 3 days post Mirena. Please let me know if anyone has had relief post Mirena.
Thank you!
-- By katiebugbows | Reply | Private Message meK.