December 21th
2009
8:11 PM
I have been on Singulair for a few years now to control asthma. Due to the cost, I quit taking it to see if my body could handle it. (manly man) When I was taking singular, if I missed a day I would wheeze in the evening, have to take xopenex inhaler for wheezing and a "crazy" pill for anxiety.
Once I was off Singulair for a week or so I could go to sleep with slight wheezing and no anxiety.
After about a month, I was close to an asthma attack, went to the doctor for steroid shots and started back on Singulair. Last evening I had a slight drainage in my throat and got very anxious and slept on and off on a recliner with thoughts of ending it all, thinking that I would choke to death, knowing that I was breathing just fine. Tonight I am anxious, tomorrow I will call the doctor and try something else.
July 25th
2009
4:25 PM
As many of you have I started Fentanyl for chronic back pain and neck pain. My nurse case manager suggested it as she had been on it for 3 years and thought it was great. I started out with 50mcg for 3 days each patch. First patch I was a little drowsy feeling but by the 2nd I was used to it and it seemed to help a little. Enough that I had increased my walking and was hoping to help strengthen my back. Now to the horror, my calves continued to ache. At first I thought it was from the extra walking but it would not go away. Then I had the sweats and would just soak a T shirt while I was sitting in my recliner, then I would freeze to death. I thought something was wrong with my air conditioner. Then trouble sleeping and just 1 thing after another until the depression and anxiety started. I am disabled and my wife is a nurse so I'm home along a lot so I hid it. I would sweat like crazy and shiver and be so cold then get so anxious that I would lay down in be to try to rest and paw at my covers and even my clothes. I was either too hot or too cold. I would pace the floor so anxious I thought I was going to loose my sanity. The silly thing is that I was not putting together as being the Fentanyl. Our son had been diagnosed with a very bad brain cancer about 6 months before and I thought it my be partially from that. I fought it for a couple of weeks behind closed doors, although my daughter had call mom and said what is up with dad? He is having some type of problem. Well, to try to cut this to a manageable sized document I finally had to wake my wife up in the middle of the night shaking, crying and pulling at my clothes saying I'm *** and I don't cuss like that. She had warned me not to try this med but I was desperate to be pain free or at least able to manage it and be half way normal. She got me to the doctor and at first they were gonna cut my 50mcg down to 25 for 2 weeks and then go to 12.5 for 2 weeks. My depression and side effects were so bad that they wanted to stop putting Fentanyl into me asap. So I went 3 days with the 25 and 3 with the 12.5. I have been climbing the wall since Wednesday and have none in me except the residual and hopefully it will be out in a week or so. I just want to say that my depression is something that I cannot even explain. I ball and blubber like a baby at times for no reason. I cannot even see or talk to my kids on the phone because I just come apart. I'm constantly beating my self up over my mom dying from Alzheimers as if I could have done something. I think of times when the kids were small and literally want to go back there. It's not like saying hey remember when we used to do (whatever) I literally want to go back there. I know in my mind that it is impossible but I just cry to go back to the farm where my dad and mom lived. Mom has been dead for almost 10yrs. The doc gave me Ativan to take the edge off a little and Clonidine for chills and sweats. I've been off of it (Fentanyl Patch) for 3 full days now and the depression is still unbearable but the other side effects are a little better. My body aches were pretty bad last night though as I think about it.
I just wish some one could tell my how long it will take me to get back to my self, good sense of humor and loves to have fun with my family.
Thanks
*****
July 16th
2009
3:06 AM
About 4 months ago I took 7 days worth of Levaquin after my sinus surgery. It was a preventative measure, I never had an infection. A few days into the prescription I started having tendon pain in my knees & ankles. I couldn't sleep, I was having nightmares, I was emotional, anxious and drained. My doctor told me to stop taking the Levaquin immediately. 4 months later and I am still suffering from entire body tendonapathy, neuropathic pain, joint pain, skin sensitivity, severe migraines, temperature sensitivity, twitching (muscles convulsing), basically my entire body hurts. Some days are a little better than others but not by much.
I have been to rhuemetologists, neurologists, pm & r doctors, physical therapists, acupunture, orthopedic surgeons, & allergists (in Chico Ca, & @ UC Davis in Sacramento Ca). NONE OF THE DOCTORS KNEW WHAT TO DO. My general physician actually told me to "go home and wait it out" because there was "no hope of finding help" (I'm not kidding). I've had tons of blood tests with fairly normal results. Thankfully I have a wonderful neurologist who has taken some interest in my situation. All of the other doctors told me that my case was very rare & that they had heard of such side effects but had never seen any patients with them! After some research on the internet I seriously doubt that my condition is as "rare" as they claim.
I am only 28 years old, I can't walk, I can't work, and my life has been turned upside down. I was very healthy before, I don't have a family history of health problems, nothing like that...it was the Levaquin.
Here is what I am currently taking: Lyrica for neuropathic pain, twitching, not being able to sleep etc., and oral morphine for the severe pain, Milk Thistle to promote glutathione (important because it helps your liver detox), Magnesium Malate (also helps detox), a multivitamin, vitamin c, and fish oil pills. I also attend acupuncture 2x per week (honestly feel some relief from it). Also, I heard that glutathione infusions are helpful but I haven't tried them yet. At this point I will try anything.
IF YOU HAVE HEARD OF ANYTHING OR ANYONE WHO CAN HELP WITH THESE DEVASTATING SIDE EFFECTS PLEASE LET ME KNOW.
~J.
-- By jen07 | Reply | (2) replies | Private Message me
September 26th
2008
3:27 PM
When I started taking it I suddenly started to fall asleep at odd times.Falling asleep in mid-sentence, when I would just sit down during the day, dizzy, disoriented. After I stopped, I quit doing that.
-- By corvair16 | Reply | (1) replies | Private Message me
September 17th
2008
1:03 AM
I HAVE BEEN TAKING NORVASC FOR YEARS.I TOLD MY DOCTOR IT WAS HURTING ME AND SHE SAID I JUST DIDN'T LIKE MY MEDICINE.WELL LET ME TELL YOU WHAT HAS HAPPENED TO ME SINCE TAKING THIS POISON.I HAVE SOMETIMES SEVERE HEADACHES THAT FEELS LIKE I AM GOING TO HAVE A SEIZURE.VISION PROBLEMS,HOT FLASHES,NUMBNESS FROM NECK DOWN TO TOES,FEELINGS OF ELECTRIC SENSATIONS IN HANDS AND FEET,SWELLING OF FEET AND LEGS,REDNESS,BURNING,SEVERE PAIN IN FEET AND LEGS LIKE A SEVERE SUNBURN PAIN,CAN'T STAND TO BE BARELY TOUCHED ON MY FEET AND LEGS,I FIRST STARTED WALKING LIKE A SOLDIER MARCHING WITH LEGS GOING OUT IN FRONT OF YOU,THEN I GOT WHERE I COULD BARELY WALK,WELL NOW I HAVE COMPLETE PARALASIS FROM WAIST DOWN.I CAN'T MOVE MY FEET AND LEGS AT ALL.I HAVE SEVERE MUSCLE CRAMPS AND PAIN FROM MY HIPS TO MY TOES.THAT HURTS SO BAD IT MAKES ME SCREAM.I HAVE TO BE LIFTED WITH A PATIENT LIFT AND CARRIED TO MY RECLINER AND THEN BACK TO BED.IT GAVE ME SEVERE CONSTIPATION,NAUSEA,VOMITING,I LOST 60 LBS FROM SEVERE VOMITING.I HAVE BLEEDING GUMS AND BAD TEETH FROM IT AS WELL.I HAVE CHEST PAIN LIKE SOMETHING HEAVY SITTING ON IT,HEART FLUTTERS AND IT WILL STOP AND JIGGLE IN MY CHEST AND WHEN IT STARTS BACK BEATING IT WILL FEEL LIKE A BIG GUSH OF BLOOD AND I WILL GET SO DIZZY I NEARLY PASS OUT.IT DOES NOT CONTROL MY BLOOD PRESSURE EITHER.MY BP RUNS AROUND 178/106 .SO I WOULD ADVISE PEOPLE RUN DON'T WALK AWAY FROM TAKING THIS DEADLY DRUG.
-- By turkeylouise | Reply | Private Message me
January 5th
2008
12:53 AM
Severe frontal lobe headaches that occur upon waking in the AM.
Today also had visual acuity affected in left eye. The pain was like
nothing I have ever experienced! I must take 800mg IB immediately
and not move at all, nausea the sets in and it takes a couple of
hours to slowly resolve. I am left feeling weak, shaky, disoriented
for the rest of the day. This EXACT scenario has happened twice
after starting 20 mg. of Prilosec twice daily (started 2 weeks ago).
Needless to say I am not taking this medication anymore.
October 23th
2007
9:42 PM
one year and seven months ago i was given a coarse of laviquin--750 mg--for seven days.after 5 days I was so sick i thought i would die and at times wanted to--I had severe depression, diarea, musle pain a weakness, ancles ,knees, back and shoulders hurt so bad that I had trouble getting out of bed. my heart was raceing at 120 beats per minute and blood pressure was very high. I also had a lot of pain in my butt muscles and could not sleep, then I got to where i could not breathe and had to go to the E R
now it has been over a year and a half and still have trouble walking because of pain in knees and ancles. shoulders are sore all the time and I can not sleep more then a couple of hours at a time. my butt hurts so bad that I can not sit in a recliner for over an hour with out extreame pain.. I changed doctors now tree times and none of them will consider that the laviguin was the cause. the last one did send me to a hospital for a rectal exam but they found no problem. now that I know what caused the problem, the depression is most replaced by anger. this drug should be recalled and the drug companys should be made to pay for our care. I am 67 years old and been in pain now all that time and think I will never be the same again. my advise would be---DON'T TAKE THIS POISON--AVOID AT ALL COSTS
YOUR FRIEND---ALP
-- By guitarpicker000 | Reply | (3) replies | Private Message me
September 15th
2007
3:47 PM
My Mother was diagnosed with Rheumatoid arthritis 30 years ago. She has been on prednisone at low doses since then. About 3 years ago she started imagining things, and hallusinations. About 2 years ago her prednisone dose went up to 60mg a day due to a stroke of the optic eye nerve. She has since been tapering down, now at 15mg a day. But tapering down makes her arthritis more painful. She has developed diabetes, loss of sleep, loss of apetite, loss of muscle tone. When she gets bumped, it's a big opened gash, rather than just a bruise. With the higher dose she was more moody & would get angry easier. The hallucinations & paranoia continue & are making me more & more concerned. I haven't read about this in any of the stories. Has anyone else experienced this side effect? I spoke with her Rheumatologist who suggest a psychiatrist to prescribe anti-psychotic drugs. She's already on 11 pills a day, does she need another?
Please let me know if anyone has experienced this as well.
Thank you.
July 24th
2007
5:09 PM
My husband had been on lipitor for several years. He thought his symptoms of headache, severe muscle aches, depression were related to just getting older. He is 55 years old. He was beginning to feel like this was the way he was going to have to live the rest of his life. He use to be the life of the party but had got to the point that all he wanted to do was sit in the recliner and rest or sleep. He had even become uninterested in sex. This was one of the main reasons for the depression because he was always very sexual active. It was very depressing that he didn't even want to have sex. He also developed peronies (spelling?) but never even occurred to either one of us that it may be related. His last visit to the doctor (about 3 weeks ago) he mentioned these problems and the doctor told him that he had had several of the similar complaints and they all took lipitor. He told him to stop taking it. He says the improvement in just 3 weeks is amazing. The muscle pain and other symptoms are getting better. He told me that he honestly did not know how much longer he could go on feeling the way he did. We never even thought about researching this drug until the doctor told him to stop taking it. I don't know if the peronies is related but if it is I don't think it is reversable. His doctor is scheduling an appointment with a urologist.
-- By kcrosby | Reply | Private Message me
February 18th
2007
6:51 PM
Had cortisone shot two days later had severe pain in Heart (not chest) lasted no longer then 60 seconds. Pain grew intensity started at 1 and went to about an 8. Thought I was going to dye. Pain was horrible. Went away as fast as it came. About 5 minutes later got in car to go to work 3pm. 5 miles down the rd, arches of both feet started itching and tingling really bad, had to take shore off to itch, fingers then started tingling and itching too. Anus also started itching, thank goodness not bad, had hemmoriods removed two years ago. Made it to work, Caregiver, could not work still itching and tired, head dizzy, weakness, waited two hours before I could drive home. Was ill all weekend, heart started beating irregular, now it is worse. Told Doctor, she said I had anxiety attack and gave me another shot. Heart got worse, swelling of feet and fingers, depression, dizzy, really sad. Christmas time and could not shop because I was too tired and fatiqued. Went into hospital, potassium level low was ok before, irregular heart beat worse, heart hurts all the time, fatiqued all the time, short of breath, dizzy a lot. Cannot do the things I used to do. Cannot sleep on my back, have to sleep in recliner or wedge pillow, cannot stand having weight on my chest especially on my heart. Have to go slow, been 1year 2 months now and doc said it would go away after 7 months, another one of her patients had this happen to him and she said he was better in 7 months. Doctors say I will have to live with it now. I say no.
-- By vjhart | Reply | Private Message me
October 17th
2006
9:57 PM
I was put on Lisinopril about one month ago as an addition to my Norvasc 5mg. Lisinopril10. Very soon after I developed a severe cough. As many people have said, sometimes causing violent dry coughing for minutes at a time then causing post nasal drip and more coughing. I stopped the Lisinopril last Saturday, 10/14 and had an appointment with my doctor 10/18. I couldn't wait...10/16 I went to my doctor and she said it was probably that Lisinopril. Now I am taking Avapros...no more Norvasc or Lisinopril.
After reading the postings, my husband and I realized that I had had some of the other symptoms we read about, such as dizziness and nausea, being unusually tired.. Unreal..I don't understand why doctors even give this drug to anyone, knowing the terrible side effects it 'most likely' would have. I still have the violent cough. I work in a classroom and when the coughing starts, it is very disruptive. I need to run for a drink, a tissue, a drop. It really only stops on its own.
My doctor told me not to take anything over the counter and just let it run its course. I dread weeks of this coughing. I sleep in a recliner and still don't get much sleep.
I wish everyone the best....DON'T TAKE LISINOPRIL! PLEASE..there are so many other BP meds out there.
-- By bert954 | Reply | Private Message me
October 17th
2006
9:49 PM
I was put on Lisinopril about one month ago as an addition to my Norvasc 5mg. Lisinopril10. Very soon after I developed a severe cough. As many people have said, sometimes causing violent dry coughing for minutes at a time then causing post nasal drip and more coughing. I stopped the Lisinopril last Saturday, 10/14 and had an appointment with my doctor 10/18. I couldn't wait...10/16 I went to my doctor and she said it was probably that Lisinopril. Now I am taking Avapros...no more Norvasc or Lisinopril.
After reading the postings, my husband and I realized that I had had some of the other symptoms we read about, such as dizziness and nausea, being unusually tired.. Unreal..I don't understand why doctors even give this drug to anyone, knowing the terrible side effects it 'most likely' would have. I still have the violent cough. I work in a classroom and when the couging starts, it is very disruptive. I need to run for a drink, a tissue, a drop. It really only stops on its own.
My doctor told me not to take anything over the counter and just let it run its course. I dread weeks of this couging. I sleep in a recliner and still don't get much sleep.
I wish everyone the best....DON'T TAKE LISINOPRIL! PLEASE..there are so many other BP meds out there.
-- By bert954 | Reply | Private Message me
December 11th
2005
4:43 PM
I was prescribed legaquin for pnemonia. I took 5 pills and the pain in my left leg, left shoulder, and left arm was so severe I can hardly move. Took the last one of the fine on Nov. 17, 2005. I sleep in a recliner as I cannot lie in our bed. I also cannot sit in a chair for longer than 2 or 3 minutes and cannot drive. Have already had a lot of blood tests and am schedualed for an MRI of ankle, shoulder and upper arm all on the left side. I take 2 vicoden + 1 prescription ibuprofen every 6 hours. My blood tests showed positive for rheumatoid arthritis, high for inflamation, and 2 other things that I don't know what they are. I have been tested for RA before even last year and have always been negative. Levaquin may have brought it on but of course cannot prove it.
I know three other people in this area who have had similar reactions but not as severe.
July 8th
2005
3:11 PM
I had been taking lisinopril for about a month when I began having nose bleeds and bleeding piles. My doctor insisted that it was not the lisinopril and pointed out the Plavix I was taking is a blood thinner. He didn't say it directly, but I inferred that he suggested I reduce the Plavix, which I did. But the bleeding has stilling continued irregually.
Then about a month ago, I woke up with tinkling in my hands and feet, although I sleep only on my back in my recliner. After several days of this, I check the info sheet that comes with the medication. It states that lisinopril may cause swelling of hands and feet. Since once before, when a pharmacist told me another medication could cause swelling of the extremities and when I got the numbness and tinkling I called and he confirmed it was the same thing.
Any way, I stopped the lisinopril completely and informed my doctor thru his medical assistant, who relayed that although the doctor doublted lisinopril was the cause, he cautioned that I keep checking my BP. (I have been taking Verapamil for seven years to control it, but this new doctor wanted the BP even lower, so he put me on lisinopril in addition.)
I stayed off it for ten days and the numbing of the hands and feet vanished. But to verify that it is the lisinopril, I took one pill two days ago and woke up with strong tinkling in my right hand and lesser amount in my left hand.
Even today, as I am writing this, I still experience tinkling or numbness in both hands.
March 17th
2004
9:47 AM
I AM A 64 YEAR OLD MALE, With 2 installed stents in 99. been on lipitor till a year ago, and switched to zocor. I can,t sit in my recliner for a half hour and get such bad right knee pain that I have to get up and walk around. can't sleep good until its time to get up. Is it the zocor?
-- By eallenvaness | Reply | Private Message me
May 13th
2003
2:42 PM
I took the prescribed dosage of Ultracet (2 caplets every 6 hrs as needed for pain) on Friday afternoon. It was prescribed for an injury to my wrist that resulted in prolonged swelling and pain. I took it on an empty stomach because the directions said it would make no difference and would speed absorption. About 30 minutes later I ate. Big mistake. I had severe nausea and a dizzy, woozy feeling. I did vomit but must have retained enough of the drug as I was still groggy 8 hours later. I rode it out all night and did not take the recommended dosage after 6 hours. No pain though. I decided the dosage was too much for me and took one pill, with food, the next morning. I spent all day in the recliner, fading in and out, and letting the Movie Channel watch me! The Ultracet relieved my pain...I think. I certainly did not have the intense pain I had suffered but I also lost my ability to function. I stopped taking the medication. There is no way I could drive or work while taking Ultracet. I had enough trouble navigating the hallway.
-- By annetta.c.fondern | Reply | Private Message me
April 27th
2003
7:43 PM
So far it has been a life saver for me. I have been able to get up and and do things I took for granted. There is a price ( side effects that I can sometimes live with). Two days ago my knees down went numb, pins and needles/razor blade feeling in the feet, my face, lips were numb like novacaine, that lasted 6 hours and scared me alittle. I have herniated/steniosis thorasic, cervical, lumbar, I take 2, 400 mg aday. I also am bipolar and recently were put on topomax 50 mg am 100 mg pm. Anyone? What do ya think? Recliner looking good again?
Spider
Lisinopril (4) Levaquin (3) Baclofen (1) Cortisone Acetate (1) Fentanyl (1) Ultracet (1) Singulair (1) Neurontin (1) Zocor (1) Prilosec OTC (1) PredniSONE (1) Norvasc (1) Lipitor (1)
February 6th
2010
8:35 PM
I have been taking lisinopril 20 mg for about 9 months. About a month ago I started having this feeling of internal shaking or vibration. It's not visible on the outside of my body. I feel it all up and down my spine, in my pelvis, down my legs. I went to my dr. and she doubled my dose of lisinopril and it's a lot worse now. Before I was having this sensation about half the day and now I have it all the time. I also have the dry cough, weird taste, my hands fall dead asleep when I am sleeping even if I am not pressing on them at all, I'm cold all the time and I feel sluggish and stupid. I also had urticaria on my arms all summer and my doctor didn't think it was related. My BP was pretty high without it so I am afraid to stop taking it, but I am wondering if the weird vibrating feeling is a side effect of the lisinopril. Has anyone else had this sensation? It's not painful but it's distracting and making me crazy.
-- By sarae | Reply | (7) replies | Private Message me