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Reconstruction symptoms and conditions

Here are side effects posted by other members, that mention reconstruction.
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50 Side Effects posted for reconstruction

July 15th
2009
4:37 PM

I was diagnosed with ILC August 2007. I had bilateral mastectomy w/ reconstruction, chemo and started Tamoxifen. Then I had a hysterectomy and I started Aromasin about six months ago. Prior to starting Aromasin I had some muscle and joint pain from Tamoxifen but I could tolerate most days. Three months into Aromasin, I couldn't get out of my car. It literally took me 15 minutes one day and I had to trade cars with my daughter. Naproxen gave me upset stomach, ibuprofen wasn't enough, Tylenol wasn't enough, Hydrocodone kinda helped but makes you feel weird. My doctor decided to take me off of it and i haven't taken anything since. My side effects were: extreme stiffness, better with motion but joint pain was so bad i didn't want to move. I have been documented as having overall generalized weakness as a result. My doctor said Aromasin shouldn't make me feel this way but why is it doing this to everyone else (mostly) too? I am now being evaluated by a rheumatologist for arthritis. My joints still hurt so bad. I gained weight, cant concentrate, can't sleep, can't wear my shoes. my ankles hurt the worst after being on my feet. My ankles, knee joints, hip joints, neck, elbows, wrists, fingers, toes and jaw are all very painful now.
If i would have known all of this, i never would have had my hysterectomy and stayed on Tamoxifen. I can only hope at some point this will get better. I just pray the cancer doesn't come back in the meantime.

-- By saturnrose1969 | Reply | Private Message me

January 5th
2009
1:30 PM

I was on Advair for less than a year and the Doctor's kept upping my dose. I went off of it for about 4 months last spring because of the weight gain issue. then I got sick with a respiratory infection last summer and Dr. put me on it again -- and I started immediately having jaw pain and terrible headaches. Went to dentist and found out my teeth were disintegrating (called resorption). I go to dentist every 6 months for cleaning and have xrays each year and never had a problem or cavities. Genetically both sides of my family have very strong teeth for their entire life (into their 90's). So I saw many dental specialists and surgeons and it was baffling to them. I'm 44 years old and now my teeth and jaw are a total mess. I've had my front teeth pulled and multiple bone grafts. The reconstruction process (if it works) will take more than a year and over $25,000 (not covered by insurance). And my Doctors still don't know if my other teeth now showing problems will also eventually fail as well.

And I didn't associate the Advair with the problem until I started to take Advair again (2 months after last jaw surgery) and almost immediately my mouth start gushing blood from where the bone grafts were healing. I stopped Advair again -- waited 2 weeks and took it again (just to make sure) and again severe bleeding occurred. I wrote the scientists that were testifying before the FDA's Advair Black Box hearing that this drug should be illegal. At 44 years old I am looking at the prospect of being disfigured for life, no less and issue is the enormous cost that it presents -- and who is going to hire someone with missing front teeth (it has destroyed my career as well).

Before I took Advair I never had joint pain, GI issues, much less teeth/jaw issues and now this is my reality everyday. I feel like I aged 20 years by taking Advair for 1 year. I also know that this damage is permanent and likely to continue to get worse despite having stopped the drug. I think GSK knows how dangerous this really is. I also think it stays in your body a lot longer than they say it does. We know it kills people and they admit it does. STAY AWAY FROM IT!

All Steroids are equally terrible -- stay away from Prednisone, Pulmicort, Nasonex -- they are all killers.

-- By jenrose | Reply | (2) replies | Private Message me

March 18th
2007
2:58 AM

Have taken Reglan just for just one and a half weeks to help with my diabetes related gastroparesis. Since taking it I have been unable to read, play computer games or even concentrate on TV. I chucked it yesterday morning and already feeling a bit better. I am gonna try again maybe in a few days just to confirm that this drug is the cause, but it looks awfully coincidental. That's why I'm looking up side effects on the web today, gave them no thought until yesterday.

-- By judekeenan | Reply | (3) replies | Private Message me

November 8th
2006
9:35 PM

Get over yourselves. Those 'other' problems could be caused by a variety of things and not necessarily have anything to do with kenalog. I LOVE the stuff! I've received it several times for trochanter bursitis in both hips, for inflammation/pain relief in my right shoulder due to shoulder/rotator cuff reconstruction, my foot for affects of severe gout, carpal tunnel in both wrists, and several other times for inflammation/pain that cannot be treated with oral anti-inflammatories due to diabetic gastroparesis. Mind you, I do suffer from bad stomach cramps for a few hours post injection, but other than that mild side effect, the medication is FANTASTIC and successful in treating my numerous problems. I think you're all just looking for excuses to whine about your problems rather than being glad that you at least have someone trying to help you.
I will recommend kenalog to anyone looking for relief of symptoms I've mentioned. My success rate is 95% +. Sometimes it takes more than one shot or being the individuals we are, we suffer some effects that aren't usual, ut this is no reason to crap on an excellent product that has helped so many, so often.
So get over yourselves and quit your pouting.

-- By krazykritik | Reply | (1) replies | Private Message me

February 23th
2005
6:42 AM

Ihad a hysterectomy and total reconstruction, then was put on premarin. It has helped me I feel alot better when i take it but siince the first week i started i've had leg and foot cramps every night! bad ones to the point i can hardly get any sleep! i asked my gyn, and he said it does not have anything to do with the premarin and that was all. has anyone else experienced this?

-- By jcarr | Reply | Private Message me

October 28th
2004
4:12 PM

I have been on Lisinopril/HCTZ 20/12.5 twice a day for about three months now. I have been experiencing chest pains, head aches, and fatigue but had not attributed it to this medication, due to the side effects creeping up on me over time, until I read many of the posts on this website. My blood pressure without medication runs around 180/120 at its highest. On lisinopril it runs about 145/80. I am 32 years old and was diagnosed with hypertension when I went in for a reconstruction of a broken nose. The only immediate side effects I noticed was tremors and some muscle weakness.

I was prompted to check side effects for this medicine when my father's doctor recently doubled his dose. He takes Lisinopril as well. (I think he takes 40 mgs per day now along with another bp medication). According to my mother he started the heavier dose yesterday evening and took it again this morning and had to LEAVE WORK due to exhaustion. (He starts work at 8:00 am) He slept out in his car until 1:00 in the afternoon, worked until 4:00 and came home angry, confused, tired, said he felt like he had the flu, couldn't eat and I naturally got worried and decided to check for side effects, and I'm glad I did, man this stuff is bad news!

Has anyone had any good results with natural treatments?

Thanks,

JWC

-- By jwc | Reply | (2) replies | Private Message me

October 19th
2003
9:23 PM

Extreme muscle tear. Hamstring,shoulder tear reconstruction twice. Daily falls and muscle pain,
80mg. Lipitor for about 5yrs. Hair loss.
Undergoing ct. scan
Rang Pfizer Pty Ltd. Sympathetic Pharmacist , told to see doctor at once. Condition not always reversible.
Where do I go from here?

-- By odear | Reply | Private Message me


 

Medications contributing to reconstruction

Kenalog (1)   Aromasin (1)   Lipitor (1)   Reglan (1)   Advair Diskus (1)   Premarin (1)   Lisinopril (1)  

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