Reconstructive surgery symptoms and conditions

I have just taken my sixth and FINAL Lupron shot. I was unaware of many of the side effects, like IBS. I am a lot different than most women. I was born with a birth defect called cloacal exstrophy. I am 41 years old and have lived my life with no bladder or rectum, due to extreme reconstructive surgery at birth. I have a permanent Colostomy and urinary diversion (ileal conduit). I do not have a very large amount of intestine, which creates an absorption problem of certain things, one of them being Calcium. I have also had severe orthopedic reconstruction since birth.

In December of 2008 they found a mass on the right side of my abdomen along with a hydrosalpinx. The hydrosalpinx was drained and I was then urged to start a 6 month cycle of monthly Lupron shots. There is a long history of endo in my maternal family. I have been advised that because of existing scar tissue from so many past surgeries a hysterectomy was not possible. I can not even have a laproscopy to determine that the growth is actually endo.

3 months into the shots I started to suffer extreme diarrhea, lasting from 1 to 3 weeks at a time post the Lupron shot...it was blamed on overgrowth from past surgeries, etc. It has become a terrifying experience for me. Due to my inability to absorb calcium well I now have several calcium kidney stones that must be broken apart with a laser. I have no idea what will happen with the GI symptoms or if they will continue once the Lupron "wears off".

I have no concerns about fertility, since having children has NEVER been an option for me. My concerns are surviving my life longer without additional risk to it from taking this drug.

I have had the usual symptoms of sweating, night sweats, fatigue, Hair loss, loss of appetite and occasional insomnia. Again, the most concerning to me are the kidney stones and GI problems I have been experiencing, including "sludge" in my gallbladder.

I am severely disheartened by the lack of looking at the whole picture, at least midway through this treatment. This is compounded by the fact that my treatment stems from one of the country's "top 10 Hospitals", which is a direct affiliate of the Children's hospital that did an AMAZING job of successful reconstruction in 1968. It is 2009 and I have fewer options to improve this situation than I did the issues from the original reconstruction in 1968.

I feel I never should have been put on this medication and am deeply concerned about my survival from here. If I could go back 6 months, as informed as I am now.....this IS NOT the path I would have chosen. I no longer know which Doctor to trust, what decision is best for me or how much more I can take.

If there are any AMAZING Dr.s reading this, please feel free to contact me...I am desperate, I do not feel that this should affect my survival rate and am willing to listen to alternative solutions IN THEIR ENTIRETY.

Anyone with a shortened GI tract, absorption issues, or previous health conditions should WEIGH ALL OPTIONS and do AS MUCH RESEARCH AS POSSIBLE before agreeing to this treatment. I placed trust and confidence first, not one of my better decisions concerning my health. I will not continue treatment with Lupron.

I seem to be the only person on earth who developed fat atrophy in my left eyelid, after receiving two shots of Kenalog for chalazions in said eyelid. I'm just heartbroken at the way I look now. The doctor told me there would be no side-effects except for a possible whitening of the skin, which I was not concerned about, since I am light-skinned. What happened instead is that my left eyelid is now asymmetrical to my right one and worse, it also has a droop. I have consulted an occuplastics surgeon who has just informed me that it's a permanent condition and the only way to fix it is reconstructive surgery, which will be difficult because of the size and delicacy of the location. In other words, it will never be the same as it once was. I really liked my eyes and if I had known that this was a possibility, I would have just left it all alone. It's disgusting that Kenalog is not used as a last measure. It's a very, very damaging drug that has serious side-effects. I have written the FDA.

Took leviquin 500 for 8 days before I realized what was happening to me. Side effects included: severe panic, altered mental state, constant sleep, loss of appetite, pounding heart rate. After 2 trips to the ER no help was provided. I stoped the Leviquin early (was supposed to take it for 3 wks) and immediately started feeling better. The anxiety is much less but still present and I still sleep all the time.

Has anyone had similar experiences and, more importantly, how long does this last?

Please help!

Be careful,the guy who had the sensative teeth,it doesnt go away, over the course of 5 years since taking that poison,ive had 2 hip replacments,lost some of my eye side and now its affecting my teeth,steroids do that,youd think doctoes would know,but im having to have total reconstructive surgery, they dont tell you about the other side effects,bastards

I had kenalog injection in right buttock in Oct/05. I have the horrible indention and discoloration like everyone else has described. I called my doctor's office yesterday and the nurse knew in an instance that it was from the kenalog. She spoke with the doctor then called me back within 30 minutes stating that the doctor wanted to send me a plastic surgeon. Has anyone had their problem fixed by a plastic surgeon? I have read "fixes" are everything from collagen injections to reconstructive surgery.... please help if you know anything. I really want to educate myself more before I see more doctors. Thanks.

I received a shot of kenalog at the top of my left buttox after going to the emergency room because my throat was nearly swollen shut when I had mono. It was about 2 months after I had the shot that I noticed a weird dent where the shot had been given, the dent continued to grow in diameter and get deeper over the next couple of weeks. I went to the medical facility my college had on campus and after 2 NP's and 2 doctors came to look at it, 1 person asked if I'd had a kenalog shot at any time. He explained it to be a tissue atrophy caused by the shot and then told me that before a doctor administers that shot, they are suppose to explain the possible side effect to the patient and have a waiver signed. I went back to the hospital that I'd had the shot at and explained the situation to them and asked why I wasn't instructed about side effects and why I did not have any type of waiver presented either. They took a few days to get back to me, but the facility had aggreed to do reconstructive surgery on it at no charge. The only problem was that between my school/work schedule and the time it would take to have the surgeries/recovery time I was not able to have it done. However I would strongly suggest anybody else who's had this problem make this point to the facility they received their shot at. I was 19 at the time of the shot, and am 24 now. A minimal amount of tissue has regenerated on its own, however there is a scar-like marking about 2 inches long and about 3/4 of an inch high in that spot along with a small dent that still remains. The spot is very tender still and by this point, I'm assuming it will always be with me. Hopefully this helps anybody that's had a similar problem. Laws on the shot/procedures could vary by state so I would check with someone who is 100% familiar with medical laws in your state/area.

I have had to use Prednisone off and on since the 80's for flamation of the lungs when I get a cold. I didn't use it too much, however, until this last year and can't seem to get off of it. I need to finalize reconstructive surgery and have to keep postponing it due to the fact, I can't seem to get off the drug. My surgeron will not operate while on it. He says I need to be off 4 to 6 weeks. I had been off two weeks, when I got sick again last week w/a fever, upset tummy and chest discomfort. My lower legs are also very weak, which they were back in Dec. when I was sick. My pulmonary doesn't know why the leg weakness, but everything I read says Prednisone can cause weakness. I have asthma also.