Rest of my life symptoms and conditions

Folks, I was on this standard diuretic for about 6 years or so. For a very long time, I did not think it was causing any significant side effects (other than having to pee a lot). I was wrong. It gave me type II diabetes.

If you ask MOST doctors and nurses about this, they will deny it strenuously. As one very good PA told me, "diuretics are our first line of defense." An RN just two weeks ago thought I was crazy to blame my diabetes on it.

But it is not my imagination. The ALLHAT study -- which, if you cite, will cause most docs and nurses to shut up right fast -- is one of the most famous studies out there. It was huge, and its authors became strong proponents of diuretics. But the same study found that if you take HCTZ for five years, you have about a 12.6% chance of developing diabetes (versus perhaps a 1 to 2% chance otherwise). I am so angry about this because no one warned me. No one told me this, so I could never make an informed decision about taking this medication. Now I will be fighting diabetes for the rest of my life!

I haven't looked at the insert for HCTZ in a long time, so for all I know they're now finally listing blood sugar issues. But they said nothing when I started in 2002, and no one bothered monitoring by blood sugar either. Even when we finally noticed the glucose readings going up, no one said, "Oh, we should take you off that diuretic."

If you do some googling, you'll discover that there are a (minority) of doctors out there who are also very concerned about this. They argue a lot at forums for doctors. This business about diabetes IS a known side-effect. It's just, as I said, that too few doctors seem to be aware of it, or if they are, seem to feel the need to inform their patients before prescribing it.

I have been on Yasmin for over 5 years, and just thought that I was a hypochondriac. After starting Yasmin I experienced severe nausea and unrelieved hunger pains. I saw a gastroenterologist who performed an EGD and Colonoscopy at the age of 20. It was normal and I was placed on Protonix to help with the GI issues. Also I have severe joint pains in my knees, hips, elbows and shoulders. I have been tested for everything from Lupus to Rheumatoid Arthritis, and it was all negative. I get headaches, have little sex drive if any, my skin is not clearer than usual and nor has it been since starting Yasmin. Thanks to all those people who have voiced their concerns and shared their stories, it makes us feel less crazy. I threw out all my birth control pills last night and I am going to try another form of contraceptive. I mean my headaches and chest pains have gotten so bad that they have forced me to go to the ER on several occasions. I DO NOT THINK THE BENEFITS OF YASMIN OUTWEIGH THE RISKS ASSOCIATED.

ive been on prednisone and cortisone..2 doses i woke up and couldn't move my legs at all. the more i walked the more it hurt..the more i sat the worse it was to stand up and walk..idk what to do..i have to take this for the rest of my life..its just terrible to move.and my doctor wont be around for 3 days.

I have had Mirena in for about a year. I got it because after trying birth control pills, I was getting severe migraines all the time. My doctor told me I was at risk for stroke and should never take birth control pills again. Not wanting to have to use condoms the rest of my life, I asked for options other than the pill. My doctor strongly recommended Mirena. Well, I had it put in in September of 2008. At first I had the normal symptoms of heavy bleeding, severe cramps, etc. But after about 2 months that calmed down. However, I felt bloated all the time and started gaining weight. I was only 21 at the time, and had never had a problem with weight gain in my entire life. I wasn't over-eating, and I was still exercising. In the last year I have gained about 20 pounds. Anyways, around January I got a large cyst on one of my ovaries which eventually burst, but I still feel like I have sharp stabbing pains in my abdomen quite a lot. The real problem started a few months ago. I have been getting severe migraines again, and they are coming more and more frequently. I get optical auras with the migraines and often feel tingling in my face and hands. I am concerned that something more severe could be wrong or that Mirena is putting me at risk for stroke. I was told this would not happen with Mirena, but I have had no other significant changes that could account for the migraines. I have had migraines since I was a little girl, but never this often or with the strange tingling. The only other time I had migraines like this was on the pill. I really like Mirena because it is easy and I don't have to think about it, but I hate the migraines, weight gain, bloating, cysts, etc. I don't know what else I would use, though, since I can't be on estrogen-based birth controls. Does anybody have any advice? I am only 22 years old and don't want children for a while. I really don't know what to do.

I have had Mirena in for about a year. I got it because after trying birth control pills, I was getting severe migraines all the time. My doctor told me I was at risk for stroke and should never take birth control pills again. Not wanting to have to use condoms the rest of my life, I asked for options other than the pill. My doctor strongly recommended Mirena. He said I would not get migraines with this. At first there were the normal symptoms of bleeding, severe cramps, etc. But after a couple of months I was pretty happy with it. The only thing that was really bothering me was that I was gaining a lot of weight. I was only 21 at the time and had never had a problem with gaining weight in my life. It was so weird. Over the last year I have gained about 20 pounds and am really upset. About 4 months after getting Mirena I got a large cyst on one of my ovaries, but it eventually burst and went away. All of those things I suppose I could have dealt with, though. However, after about 9 or 10 months with the thing I started getting severe migraines again. I got married in June and over the past few months I have had more and more frequent migraines. I have optical auras and often feel like I have tingling in my face and hands, which is similar to what I had when on the pill. I am concerned that this could be a serious problem. I like having Mirena because it is easy and I don't have to think about it, but I am not sure what to do. I can't be having migraines all the time, and I also would rather not have the weight gain and cysts. I'm not sure what else I would use, though. If anyone has any suggestions for me, please let me know. I am only 22 and don't want kids for a while.

I have been on Yasmin for 2 years now. It is the only BC I have ever been on and have LOVED it up until about 3 months ago. All of a sudden I started having heart palpitations, sever chest pains, extreme fatigue, very bloated in my stomach, low sex drive, pain and tingling in my arms and legs,dizziness, shortness of breath, trouble swallowing, weight gain and major mood swings! I went to the DR and they did an EKG (which was normal) Tested my blood (I now have a thyroid problem that I have never had before) and they did an ultrasound (Dr that I may have a murmur) on my heart and the results came back fine. So the DR prescribed me Synthroid for the thyroid problem and the DR said that should help me gain my energy back, loose some weight and would take care of the heart palpitations. The other symptoms he contributed to Stress (Panic Attacks) I have been on Synthroid for 5 weeks now and I don't feel any better in fact I feel worse!

This morning I seen a commercial for a lawsuit against Yaz or Yasmin. Well since I am non Yasmin I immediately did a search and came across this site. I have literally been sitting here all night reading all the comments from different women and now know what my problem is. My problem is YASMIN! I am not taking this anymore and have an appt with my Dr tomorrow to have them do whatever they need to do to see if I have any blockage or any other damage from using this pill. My chest pains and the tightness in my chest are so severe that it takes my breath away and I am only 24! I am not ready for children and don't want to deal with bad periods like I had before getting on the pill but I can not take this rise. PLEASE if you are on Yasmin please stop taking it immediately and call your doctor Your life could depend on it!! I am hoping like other people who have commented that after a few weeks of being off the pill that I will feel so much better. I hope I am getting off of it in time before I have done any further damage.

After my kidney transplant I was taking 40mg a day and only weighed slightly over 100lbs. I felt all of the same side effects: trembling, sweating, bloated tummy, paranoia, confusion, horrible acne, insatiable hunger, bad headaches. I started taking the pill and this helped a lot with acne and hair growth that started to appear. Ask your doctor if you can taper down to a more manageable dose. I'm still on prednisone and probably will be for the rest of my life, but I was firm with my doc and got it down to 7.5mg MWF. This level is much easier to deal with, and although I still have a slight "moose hump" (some kind of name) and disappearing eyebrows, my hair loss has evened out and I'm happy with what I have. Like many of you I used to have really thick hair. Things will get better, you just have to be persistent. No one should live that way, it's horrible and I don't think that doctors understand the drastic drop in quality of life that occurs.

update from last post, doctor called back, said there are no other reliable alternatives, she said there is armour but not very reliable. I guess I will continue to suffer rest of my life, or go against what doc says not sure what to do. Someone needs to invent something that works and doesn't make you sick!!!!

Like many of the others who have posted to this site, I have been dealing with what I thought was IBS for the past 3 years or so. I'm healthy and mid-30s and couldn't figure out what was causing it. Colonoscopy and other tests showed that all was normal. I don't drink caffeine, coffee or alcohol. Healthy as can be. Finally discovered it was a dairy intolerance. Coming off dairy solved the diarrhea issue but really limited my diet. Shortly after I discovered Lactaid Fast Act supplements and started to take them at meals when I had dairy.

For the first three weeks, the pills worked great. I loved them. I could eat like normal again without diarrhea. But after that time, I started to feel a sharp pain in my stomach when I take them...like someone slugged me in the stomach. It always comes within 5 minutes of taking a pill. Since then, it has gotten worse. Gas, bloating, and a constant pain (gnawing feeling) in my stomach that nearly has me doubled up. I've never had an ulcer, but from what I've read, that's what it feels like. I decided to stop using the pills.

I just discovered this site and was amazed to see that others have had the same. I should have checked for side effects before I took it! I've not had the vomiting that many of the others have had, but I won't be taking it any longer and risking that!

Hoping there is some alternative solution out there. Hard to imagine the rest of my life without cheese or dairy in anything (bread, dressing, etc.).

I have taken Yasmin for a year and a half. Since then I have gained 25 pounds, developed thyroid disease, and am very moody! I have taken several different types of BC because I have periods that last for two weeks and are very painful. I have to get off of this pill to see what happens. I can lose the weight, but I will be on medicine the rest of my life for thyroid disease. I also have headaches almost everyday and I have cramps for two weeks out of every month!

I had the shot 5 times because I didn't finish the first series. Since then, I've lost 20 lbs and may have to have thyroid replacement treatment for the rest of my life! I owe it to PrisonPlanet.tv and PrisonPlanet.com for helping me realize that Gardasil may be the cause of this condition. Visit these sites for more information...

I will be on prednisone for the rest of my life so my Pulmonologist says. I have an auto-immune disorder called allergic broncho pulmonary aspergillosis. I thought I was alone until I read all your messages when it comes to leg, and joint pain. My doctor acts as if I am crazy, and that it is not a side effect of the medication I am taking. It has gotten worse the longer I have been on the drug. I rarely sleep, and I have an appointment with him tomorrow. If anyone can suggest something that helped them I would love to hear it. I have tried everything, and the only relief is when I take pain medicine which I do not want to be on forever.

I am 26 years old. I've been on warfarin for almost eight years. I wish I had seen a site like this eight years ago when I started on warfarin (after DVT and P.E) I may have had some insight into the hellish two years that were to follow: hair-loss, depression, weight-gain. But I attributed all this to stress (it was pre-med varsity and I was under a lot of pressure academically).
Anyway, now my life is more settled, I eat right, exercise furiously 5 times a week...but I have digestive problems. Bloating, gas, overall discomfort in my stomach almost every night. I've cut out milk, wheat, coffee...nothing.
But tonight I started thinking...could it be the warfarin?
Does anyone experience or know about possible side-effects of warfarin on the digestive system, and does anyone have some useful advice????

I m Asian 5ft 5, started on simvastatin 3 wks ago cause doctor advice. Feeling cramp and numbness in my right leg 3-4 times a week and my hands and legs felt so tired and weak when i get up in the morning. Told my doc about this but she said its normal! How am i suppose to go through the rest of my life like this? I m only 37 years old!

I have had asthma since i was 10. I am 44 years old now. I have never in my life been on prednisone this long (since Feb 2009). It is now July 11,2009. I was admitted to the hospital for IV steriods (prednisone) because for the first time in my life the general 10 course with the pills wasn't working. so there i was on 165mg of pred every 6hrs. After eight days in the hospital i was released and was to take 40mg for five days and decrease by 5mg until done. I didn't do to well and had severe exhaustion where i couldn't even walk 2 steps the next day. so I went to my pulmonary dr. who said he noticed a severe anxiety side affect in me from the drug and said i needed to get off it as soon as possible, he had me drop my dose every day by 5mg. TO FAST! I had breathing problems again, started over going slower, got down to 10mg and had to jump to 40mg again! side effects for me are severe anxiety (which i have to take ativan for) and especially massive painful foot cramps. My hands will cramp to while trying to write, but the foot cramps and the feeling of being wired are the worst. I am still trying to wean off....sometimes i wonder if i will ever finally be off this stuff. I just want to cry sometimes. It feels like being pregnant and going thru post partum at the same time

I take 25mg of Toprol XL for mitral valve prolapse. The only thing is I feel tired like I could fall asleep all the time. Is this common with this medicine on such a small dose. My doctor said this small dose shouldn't bother me. Anyone else take this dose and feel tired?

I am taking prednisone and probably will for the rest of my life due to a rare lung disorder. I am down to 5 mg every day. When I first was put on it, I was taking 20 mg which wasn't too bad. The Dr. increased it to 80 mg. That was a living nightmare. My eyes hurt so bad from the pressure. My pressure in my eyes were very high. The Doctors did cut it down to 5 mg which isn't a good idea as you should taper off of it slowly. I still have some hip pain but it's not to bad. I do try to keep busy and that does help. It does make one's period irregular if you are a woman. I feel for those high school students taking this stuff. Also, it can make your sugar high so get tested for diabetes. This drug does suck but it also can be a lifesaver.

I am a female in my mid-to-late 30's. I was on Topamax for about a year. The memory, vocabulary, concentration, focus, loss of words and 'confusion' got so bad it became a real problem at work and the rest of my life. When I started forgetting how to get home, the neuro doctor took me off of it. Those problems decreased a bit, but never entirely disappeared. After weening off the medicine, the full-blown headaches/migraines returned (Topamax only moderately relieved pain). So now in addition to the pain in my head, I have the lingering sides-effects to deal with. It cost me my job. I've been off Topamax for over a year and still have not regained control of my own thought processes. Among other things, it's embarrassing because I feel stupid. I no longer understand about half of what I read, have trouble following (and remembering) conversations, habitually forget what I'm supposed to do/have done/am doing. Forget being able to follow a series of directions. I am afraid Topamax has caused permanent damage to my cognitive brain functions and I have no idea what to do about it. Has anyone else experienced this problem?

CONTINUOUS dizziness, 24/7. Truly miserable. I am asking doctor for some alternative. I would rather not be dizzy the rest of my life! this is a pitiful medicine.

I was diagnosed with Factor V Leiden after suffering from bilateral PEs in February 2004. I am on Warfarin for the rest of my life (I turn 45 in November). Since starting the Warfarin I have gained about 70 pounds. Nothing I do seem to work. I have tried eating better. I would love to exercise but my knees are shot. Probably from lugging around all this extra weight.

Has anybody else had this problem? From what I have read online, doctor will say the drug doesn't cause weight gain but come on.

Can anything be done short of stopping the medication? I am too afraid to do that. It sucks that there is not an alternative rx that would work.

I suffer from depression too (have for almost 15 years). As my weight has climbed, my meds for depression don't work as well. I am at the end of my rope & slowing losing my grip.

I was diagnosed with Factor V Leiden after experiencing bilateral PE's in February 2004. Since then, I have gained A LOT of weight. Not that I needed to but dang. I am at my highest ever & nothing I do will make it go down. I am almost 80 pounds heavier than I was in 2004. Something is not right. I suffer from depression (have for more than 15 years). My medication doesn't seem to have the same effect. My joints are killing me so it's hard to exercise.

A side note, shortly after being hospitalized for the PE's for a week, I noticed my hair thinning. Doctor told me it was because of the "shock" to my system due to having the PE's.

I will have to be on Warfarin for the rest of my life. I turn 45 in November. Ugh.

Has anybody had the same problem with weight gain? Is there anything to do about it? I feel I am at the end of my rope & slowing losing my grip.

I'm sitting here in tears reading all of your posts because I've also been on prednisone and have horrible side effects. I was diagnosed with metastatic breast cancer in my lungs in June of 2002 and, after starting at 60 mg/day then, I have been on 20 mg/day for years now. The very first posting that I read mentioned problems with the femur bone. Besides all of the other problems associated with this devastating drug, in December, 2007, I broke a bone in my left foot with no known cause for it. Then I started experiencing pain standing or walking in my left leg and was diagnosed with a fractured femur bone and after several months of trying to get it to heal (including an ultrasonic bone healing system), it just kept getting worse until an orthopedic surgeon recommended that I have a 16 inch rod put into my leg which I did and it ended up to be one of the worst decisions that I have ever made. After experiencing all of the prednisone side effects for almost seven years including depression, severe fatigue, weight gain, moon face, thin skin, cataract surgery on both eyes, hump on my back, mood swings, etc., the pain and suffering that were caused by that operation brought me to seriously consider suicide. I was also diagnosed with chemical neuropathy in both of my legs also which makes my legs so weak that I have to crawl up any steps and have trouble just standing. I actually have an appointment for this evening to have an x-ray done to see what is wrong with my knees and did not realize that this also is yet another side effect. I never make it through the night without waking up in pain and getting a pain pill and then getting up in the morning is almost unbearable with that "burning" pain. I am now on Cymbalta for depression, Xanax for anxiety, Percocet for pain, and of course 20 mg of Prednisone. I was told that I would have to remain on Prednisone for the rest of my life because of the lung scarring and COPD. After reading all of your comments, I have decided that I would rather put up with any breathing problems (and I don't even know how slight they may be at this point) than to remain on the Prednisone. I have tried weaning off several times but get so fatigued that I can't move and that's dropping one mg every week. I'm affected by the decrease but it gets out of hand when I get to 14 mg and I get so frustrated and depressed at not being able to do anything that I just go back up to the 20 mg/day. If you have been able to wean off of it, would you please let me know how you did it and what you had to go through? I'm 65 years old now but I have two wonderful granddaughters (ages 4 and 6) who I can't do any normal "Grammy" things with anymore at this point and I have to change this condition for them and for me. Obviously, the doctors don't recognize the severity of the drug because they just keep prescribing it and out of a regular doctor, an oncologist, an orthopedic surgeon and a neurologist, they can't seem to get together to come up with a solution. I have to say that I haven't considered suicide lately but I do wish that I would just die and be out of this pain. My family and definitely my granddaughters and wanting to see them grow up are the only things that keep me going. There are probably things that I'm forgetting but I'm sure that one of you have covered it in our posting. Although my family is so supportive, no one and I really mean not one of them, realizes knows what we all go through because of this drug. How could they know that something that is supposed to help you could cause these problems? My life is a living hell, all because a pulmonary doctor prescribed prednisone seven years ago and I trusted him to only do what was right without informing me of what was to come. I more than sympathasize with all of you. I sincerely appreciate the time that you took to post to this site and so thankful to know now that this knee pain is not something new that I have but another side effect of the prednisone. I wouldn't have known that if it wasn't for this site because I'd be willing to bet that after I would have had this x-ray done, one of my doctors would have just prescribed another medication to take. Please feel free to contact me directly with any comments or especially any help that you can give me. I know that all of you are going through the same thing so if I can do anything for you, even just listen and understand, please contact me also. Sometimes that's the only thing that people can do is to listen and someone who is in the same situation can always understand. I'm here for anyone who needs a hug for the day.

I haven't really had any adverse side effects in particular from my mirena. The insertion of my Mirena was a nightmare though. I have had three children, all of them via c-section and my doctor neglected to inform me about the insertion process in general. That it would be much easier for her to insert it had I had my children vaginally.
I went to my doctor and they got ready to insert my mirena and realized that the tool that they used to open my cervix and insert it was too short since my cervix is apparently very far up. So they had to go fetch a longer set of scary looking tongs. They then proceeded with the insertion which hurt so badly that I started crying. My poor husband had to hold me down on the table it hurt so bad. Then, after all was said and done she decided to ask me if I had ever dilated and I told her only with my first daughter and only to 7 1/2 cm. She then decided to tell me that was why the insertion was so difficult. That was, by far, the worst pain I have ever been in I believe.
After the insertion I had some pretty bad cramps and bled for a day or two but I haven't experienced anything other than that. Well, I do occasionally have a kind of sharp pain in my abdomen. I suppose it might be my uterus but hopefully it's all okay because I SERIOUSLY DREAD getting this mirena out. They will have to put me to sleep or give me a bunch of pills in order to get it out. I don't want to go through that pain again

I had a kidney transplant feb08. I was put on prednisone as a rejection med. So far, i have gained 50 lbs, my hair has fallen out, had mood swings when first put on it. Haven't noticed them lately, have little bumps under my skin, not acne, have started noticing slight breathing problems, when trying to walk to lose the weight. Yesterday I was diagnosed with cataract. Eye doctor said that it is another side effect of the med. I am under the impression that, I am on this for rest of my life. Whats next?

The severe headaches EVERY day. that the doctor was sure were not related to the coumadin.. are debilitating. They are usually in the evening or during the night, as I take the medication later in the day. However, I do not know how I will be able to take this med the rest of my life. I am 66 and just spent time losing weight on weight watchers program.. only to see the scales climbing daily. I appreciate the insight on this site to let me know that I am not imagining all this and not alone.