Restless leg syndrome symptoms and conditions

Are there any meds that are safe? I was taking 10mg norvasc. I started taking 20/25 mg lisinopril. I was doing ok on the norvasc but the added lisinopril has almost killed me. They had cut my norvasc down to 5 mg then to 2.5 mg when I started the lisinopril. 4 days ago I stopped the lisinopril and added back 2.5 mg norvasc. Back to 5 mg. The side effects seem to be letting up. Now im wondering is all of my meds are killing me. I can't live without them. My BP sores. Im so scared of what I should do. Im afraid of all my meds.

The best drug out there !! No I am not ignorant enough to make these cart blanche statements like some of these posts---Millions of people have used this drug successfully like I have. Just because it works for one individual they should not recommend it to the world nor if it causes you personally some harm YOU SHOULD NOT POST A STATEMENT THAT INFERS IT WILL HARM EVERYONE--IN-OTHER-WORDS GET A LIFE!

23th
2009
10:36 PM
MIRENA is the worst thing EVER!!!!!!
I got Mirena as my husband and I were lacking in the sexual side of our relationship because we both HATE using condoms.I have a 31/2 year old son and we have decided that for now we are happy and would like if we didn't have anymore children right now so I talked to my doctor about Mirena.
Let me start by saying that my labor 6 hours with NO pain meds was nothing compared to the pain I had when they put it in. Then the bleeding started right away I was bleeding for 8 weeks then had 1 week free and now have been bleeding for about 8 weeks. I had 2 ultrasounds to make sure it was in proper and everything was "fine" my doctor says everyone's body reacts different.
The symptoms I have are Occasional Cramping,
Sever bleeding,
headaches,
irritation in my legs (same symptoms as RLS),
Depression,
no sex drive,
back pain
Weight Gain (17lbs in 2 weeks)
and the weirdest symptom is hard to explain but its the same feeling in my body as if you were to touch a 9volt battery to your tongue! Every now and then I have little shocks and its so annoying. I have had mine in for 17 weeks and I have an appointment in 8 days to have it removed...Back to condoms it is

If none of the other postings tell you to get off of this drug, I certainly hope this one will. I began taking 5 mgs. of Lisinopril after visiting my Physician due to back pain. I have been a runner my whole life and went in because I had pulled my back out. I was very nervous; hence the high blood pressure….I was told by the nurse that I probably had white-coat-hypertension. Anyway, after being scared out of my mind, by this Doctor, I agreed to go on this drug, even though, at 50, I had never taken any other kind of drug in my life….HATE DRUGS! I began having heart palpitations after the first day on this drug, and one month after taking this poison, I began experiencing severe itching on my head, neck, and top of my back. I had just visited my salon and thought it was due to hair dye, which I had never had allergy to before. The itching increased and then I started getting severe cramping of my legs. I called my Dr. and was told to purchase organic shampoo/conditioner/soap, and that the leg cramps were probably Restless Leg Syndrome. He told me it was DEFINITELY NOT from the meds. He told me to let him know if the cramping got worse as there was something else that he could prescribe for it. This itching went on gradually for about 5 months. I purchased ever kind of organic shampoos, etc. with no relief, and the cramping of my legs became unbearable. Then, in April of this year, every thing starting to happen. I began itching all over my body and when I itched, it left big red welts wherever my nails hit. After about a week of this, I began breaking out in hives here and there. Went in to the Dr. and told him that I thought this medicine was doing this. This Dr. assured me again, that this would not be the cause of this and told me to take Benadryl and come back the next day so that he could see if I was any better. The Benadryl helped immensely and upon the next Dr. visit, he told me that I had come down with some sort of allergy and it was NOT due to the medicine. Went home and itched my body raw for the next week. Now the hives had turned into huge welts with water in them and my body began swelling with each new day! I stopped this poison on my own and was told to come back in to the Dr. immediately. I was put on Prednisone and told to take massive doses of Benadryl and this idiot Dr. still insisted that it was not from the Lisinopril….my ankles, arms, etc. now were almost double in size and the itching was unbearable. The seven day pack of Prednisone didn’t do a thing. I will say, though that after three days off this poison, my leg cramping subsided and my heart palpations did as well. I decided to take this in my own hands and went to see another Doctor. The Doctor I had been seeing, I found out, owned the Center where he practiced, and I believe he kept having me come back just to make more money. By now, my entire body had huge sores and pits and scales on my skin….I felt like a leper. I went to a Holistic Dr. and told him my story and he could not stop apologizing for the agony that I had been doing through. He told me this was ridiculous. His nurse asked me if I had ever heard of Johnson Steven’s Syndrome, and told me that she thought I had it. I was immediately sent to a Dermatologist and given steroid shots….which did nothing. My skin was pealing off each and ever day in flakes and I itched so bad I wished I were dead. I underwent skin biopsy’s and blood tests which came back showing that I was overwhelming reacting to some sort of allergy. This Dermatologist, who was excellent and didn’t even charge me due to his concern for what I had been through, sent me to an allergist. My small stature body had now increased 25 lbs due to water retention and sores covering my whole body. I can not put into words the agony I was in. Upon the visit to the Allergist, he recognized immediately what I had. He said he saw this type of thing, (not this bad, however), often due to the Lisinopril. Why didn’t that other QUACK Doctor stop this from the beginning…I believe it all comes down to money! Anyway, after almost 6 months of the hives, sores, etc., I am finally seeing a bit of improvement. My legs and back and back of my arms are permanently scarred…they are poke-a-dotted due to the huge hives and massive sores, and I still itch all night long if I don’t take my Benadryl. Who knows what the Benadryl will have done to me in the long run. Please, please look into this medicine and all other medicines that you take. There are holistic, natural methods of getting your ailments under control. Through my experience, I have encountered the most money-hungry, unprofessional Doctor in the world, but I have also experienced the most considerate well-intentioned Doctors. Please do your homework, and find a Doctor that has your best interest in his sight. Through this ordeal the only thing that sustained me was prayer. I have always been somewhat superficial about my looks, weight, etc. and this truly was an eye-opener. It’s amazing what these medicines can do to you, and don’t you wonder if the Pharmaceutical Companies don’t know all of this and could care less due to their hunger for money?!!!! It’s gotten to be a sad world. God Bless!!

I was taking Ultracet for about 3 months for arthritis in my shoulder--usually 2 to 4 pills a day. The pills gave me a pleasant feeling and did help with the pain, but they definitely can become addicting. Be careful if you ever want to stop taking them--withdrawal effects are not pleasant! I had a delay in getting a prescription refilled which resulted in my stopping the pills abruptly for about 3 days. On the second day, I had flu-like chills, sweating, restless leg syndrome at night (the worst!) and a general feeling of uneasiness. That was enough for me--bye bye Ultracet.

I have been on levoxyl for about 8-9 years now. I have an under active thyroid which I believe is from radiation over my neck area for benign tumors. I have been reading the side effects from people and I am starting to think that most of my symptoms or side effects are from this medication. Slowly over the years I have developed several of the same things people are talking about on this, especially restless leg syndrome, fatigue, chronic pain in legs, trouble sleeping, anxiety, lack of energy, cold feet/hands, lack of sex drive depression, b-12 deficiency, neck and back pain. I am talking to my doctor tomorrow and see if I can go on something else. I am being treated for all these other things that could all be related to the levoxyl side effects. I had none of these other things before taking this medication, what is going on?

Oh, that last post reminded me of another side-effect- My husband and I always called it "the Jimmy legs" I have no idea why that name came about but when I would try to sleep my legs just felt jumpy- hard to describe but I wasn't moving them but they sort of felt like they were moving inside. It's weird, I would relate it to the restless leg syndrome that you see on TV ads but it happened all the time while I had the Mirena in- it's gone now that the IUD is gone

My 9 year old daughter got her first shot in Dec. 2008 and her second in Feb. and the last in June. We have have been to the doctor a lot of times due to headaches with the doctor's opinion being that it's "allergies". She is now on allergy shots with still no relief from the headaches. I listened to her pediatrician and got her the shots. I feel so bad now after reading all the problems others are having with this vaccine. She also has had a change in her attitude aggression,moodiness,cries often, and she says she's depressed. If anybody has any suggestions for us please let me know. I love my little girl and know I'm worried.

Hi, my name is M. I just got up with my son Jo Jo as usual about 2:00 pm. Nightmares--severe. Leg and foot pain. In fact I thought he was having restless leg syndrome and the doctors had him tested for seizures. His moods are horrible. Tantrums have been out of this world. After two years of sleep deprivation for both of us, something said look at side effects of Singulair. Actually, I believe that something was God because as I massaged my son's legs I prayed. I came to the computer, found his website and saw my son's symptoms written out clear as day. We are done with Singulair. Forever. I just walked back to the room and apologized to my sleeping son. I can not tell how horrible I feel as a parent for my child to have suffered so. I also can not begin to describe the relief I feel right now. My son has enough problems without medication causing him to suffer. I have suffered as well. As a single parent I have to work but I am often sleepwalking through my days. Thank God for all of you who posted. You have saved my son's health and quality of life. And mine. Thank God!

I'm at the end of a 10-day cycle of doxycycline (100mg 2xday). Worst side effects: insomnia and restless leg syndrome. I think I'm averaging about 3 hours of sleep a night. Stomach pain, occasional cramps, severe loss of appetite. I've also experienced some of the stranger side effects others have mentioned: mood swings, depression, suicidal thoughts, feeling like I'm in a dream, mental problems (after I write something I realize I've spelled half the words wrong).
Next time my doctor mentions this drug, I'm going to say no way and see if I can get a sulfate based antibiotic or maybe good old amoxicillin.

I just learned that you can develop Cushing's Syndrome from taking prednisone, and that the doctor that has you on this should warn you that you could develop this. 10 mg a day usually worked for my pain, but I eventually got up to 20 mg a day, and that's when my problems really started. Of course I had already gained enough weight, which caused severe depression, but then I started gaining like crazy, and this is really weird, I was eating less, and had no appetite, but still gaining weight. I started feeling too tired to do anything, I have severe lower back pain, and get short of breath from any little bit of activity I do. I can't even take a shower without sitting on the side of the tub to rest. I also started having restless leg syndrome at night and would wake up several times. I sweat profusely without doing anything. I can just be sitting on the couch watching tv and sweat will start pouring down my face. I keep a towel with me at all times to wipe the sweat off. I definitely have moon face, and I also have sores all over my legs and face. I wish I would wake up and it was all a bad dream, but not so. I feel for everyone that has had these experiences. I am seeing an endocrinologist next week to see if I have Cushing's Syndrome. I don't even know if there is anything to do for it? Has anyone else who has used prednisone been diagnosed with Cushing's Sydrome?

I've never done this so hopefully it goes where it is supposed to.... I am a 24 year old mommy of 2. I have been on wellbutrin (generic) since late march. So about 3 months. My problem wasn't really depression, but anger. I have always had a short fuse, but I was getting ridiculous with my 4 year old daughter and even I knew it. Well, I was on the 150 xl for a month and a half, then asked the dr. to switch me to something that I could take 2 times a day because the xl wore off right around 5pm and gave me headaches.... So now I am on 150 sr 2 times a day. I have to say that it really is helping me. I kinda feel emotionless sometimes, but I'll take that over feeling like I might rip someones head off. On top of working on the anger, so far I have lost about 25 lbs! I got on the mirena (huge, horrible, god awful mistake) after having my 2nd child and gained about 20 lbs in 1 year. (it also made me the reincarnation of satan)
So, good side effects: No longer angry all the time, no longer fat
And, bad side effects: No sex drive (may be due to 2 kids, not the pills), blurry vision, oily hair, dry mouth (which causes really bad breath in the morning) and I swear, I had Restless Leg syndrome when I was preggers the first time and it was HORRIBLE! It seems that now I have Restless feet syndrome :D My feet always feel like I'm spreading my toes apart (even though I'm not) Don't know what the heck that's all about, but figured I'd throw it in :D I'm also on YAZ which from what I read isn't the best BCP, so maybe I should get off of it.

I've had my thyroid removed in 2006 and since then I've been on medication, i was ok first and i thought i was ok until now. i had leg pains that woke me up from my sleep and i went to doctor and couldn't figure out why i was having this pain, i thought i had restless leg syndrome or sciatic but doctor said no. now i'm reading all your side effects and I'm in shock, i had no idea that it can cause to leg pain. also I've change my medication to generic (because of insurance issues) since then i guess my itching started. i thought i had allergic reaction to food or bugs or something and i went to allergist of course nothing came out. now I'm reading the side effects of this medication, it can cause hives, rashes, itching and even urticaria which i have right now. i went crazy to find anything in my house to find a bed bug, spider, flea or anything that can make me itch like this. the other side effects that I'm having are hair loss, red/hot face. i can not believe all these symptoms are actually side effects to a medication supposed to make me feel better. whoever says that's they find it weird that this medication has this many side effects, we are not crazy. this effects are real and so many of us has them.

I have just been put on Neurontin and found out about this weight gain thing!! I am freaked out. I have come off of Topamax due to I could not handle the side effects and I was like I was in a coma. I am also on lexapro for depression so the topamax really effected me. The Neurontin has said to be given to bi polar patients but from what I have read people are having depression problems on it. So the whole weight gain and the depression thing is scaring me.

I have only been taking this pill for 6 weeks. I am 44 and was put on it to help with severe cramping (I would pray for death every month). I have not been on any type of birth control since I was 23. I also have never been pregnant (not by choice). I have read hundreds of reviews from users on different sites and do not see anyone having leg cramps (calves). They are so bad at times that they hurt the next day from cramping so bad the night before. I have called the nurse and am waiting for a call back. I also have noticed that I am way too emotional and it has only been 6 weeks. I'm just not sure I can wait out 6 more weeks. Every night just about now I seem to be sick to my stomach or have diarrhea. I have always had headaches so I can't contribute Loestrin 24 to that. I have gained about 5 pounds...which I certainly don't need. Like I said in the beginning, my most severe side effect is the leg cramping. I wish they would just do the hysterectomy and put me out of my misery!

edrogers, sorry to hear about all your difficulties. Hair loss is a hallmark of Synthroid and any doc that tells you it isn't, is simply incompetent! I too am 110 and can't gain weight. After years of having tests, incl thyroid (I figured I had Graves), tests always came back normal. A year ago I had a large goiter that turned out to be non-cancerous but I had to have half my thyroid removed. I ended up on 50 mcg and now 75 mcg of Synthroid. Since the dosage increased 2 mos ago, I have had SEVERE leg and foot cramps that wake me up several times during the night. Plus when I wake up, I feel an aching in my legs and wonder if that is not "restless leg syndrome". I am not sure if that syndrome is related to thyroid disease or Synthroid. I have not read about that one anywhere so far. I hate the idea of being on this med from what I have read and am considering Armour.

Two things I have learned though are: 1. If you have thyroid disease, you MUST have your adrenal levels checked. Even the drug info states this must be done before any thyroid treatment and 2. if your doc doesn't listen to you, find a new one. The best article I have read for thyroid disease is Gail's Thyroid Tips. it is a real eye opener.

I've been on Lisinopril 20mg for a week now. I have been having the hoarseness, leg cramps, tired (no energy), getting no sleep, and cough. But what worries me most is my blood pressure has dropped to what I think is TO LOW, (example: 87/60, 90/58, 96/66 89/68. I called my dr. 2 days ago and explained my concerns. They told me to cut my 20mg pill in half and we will decide what to do at my next appt. which is in a few days. Even after cutting the pill in half, my bp is still running 96/67, 98/66. Should I demand to be taken off the Lisinopril and be put on a different medication?

I was on Abilify many years ago for a few days and I got severe akathisia. It is a movement disorder where you become extremely restless and are constantly moving and pacing. It felt like my body was alive and it was this intense internal restlessness and a constant need to move. It was severe restlessness. I couldn't sit down for more than a couple minutes, I couldn't sleep, my body just kept moving. I went off the Abilify and it took weeks for the akathisia to go away completely. I became extremely restless. I was young when I took the Abilify and the akathisia scared me. Abilify causes severe restlessness and severe akathisia. The akathisia from the Abilfiy is the worst, most uncomfortable, horrifying feeling in the world. I was a teenager when I was on it and this movement disorder was scary. severe internal restlessness, akathisia. Extreme restlessness, constant internal need to move, felt like I had the jitters, it was terrifying.

I am 20 years old, and have never taken birth control before. My doctor just prescribed me to Loestrin 24 Fe. I have already taken my first week of pills. So far I've had extreme headaches almost everyday, I find it very hard to sleep due to restless leg syndrome(which I've never experienced before taking this pill), on the fourth day I felt sick to my stomach and actually threw up once, and worst of all(in my opinion), my already existing acne has now become uncontrollable. I haven't experienced any emotional changes or had any breakthrough bleeding yet, but i have experienced cramps, like I would if I were about to start my period. I am also eating more than usual...a lot more! I'm not sure if this is just my body getting used to the pill, or what. After reading all of these reviews, I am very scared(blood clots, mood swings, depression), and I'm not sure if I want to continue taking Loestrin any longer! Any advice or comments?!?!

I had muscle aces and pains most of that time but near the end of the 3 weeks I would loose the use of my left arm for periods. I would feel faint and very weak. I have had restless leg since I was a child but my legs got much worse during the 3 weeks. Finally I remembered that if you had muscle weakness you were to stop Zocor so I did. The daily muscle weakness gradually went away but I developed severe restless leg and had to go on Requip. I also started having face spasms and “turrett” type spasms in my legs that would travel up into my arms and hands. My hands would clench and I couldn't talk plain. My head would jerk and my body would shake inwardly as if I were freezing. These symptoms were worse when I was stressed or got too hot. Eventually I had to quit my job, it was very high stress. Five years have past. I now stay home and garden and paint. I very seldom leave my home and my stress level is low but when I do get into a stressful situation I still have to deal with the “loss of control” over my body. My sleep is a nightmare every night. My restless leg syndrome is getting worse and I've had to increase my Requip and will probably have to do so again soon.

My cholesterol is very high and my doctor keeps trying to get me to go on some meds for that but I would rather die than add to the painful, exhausting struggle I go through now because of what Zocor did to me.

I have been on this pill for six months now and I'm starting to get bad heart palpitations. This has been happening since the beginning of this pack. My breasts are super sore and itchy (kinda like when you're pregnant). This has not happened in the last six months of taking this. I cannot reach an orgasm at all (since I started taking it) and my legs feel like "restless leg syndrome" when I lay down to sleep. I'm only 32 and will be very upset if this pill has given me heart problems. My heart feels like its pounding out of my chest.

I commenced Lipitor 14 years ago at age 47. At that time I was a regular tennis player, walker and generally fit for my age. No problem with Lipitor for the first couple of years until I began to experience hip and low back pain. My GP diagnosed arthritis. Gradually became worse and I started to gather injuries (over stretched ligament in right knee which refused to heal, plantar fasciitis twice) My back pain became far worse, I persevered with tennis believing that exercise would help. I began to "trip" on the carpet and going up stairs (foot drop). I was sent for a CT scan in 2002 which showed spondylolisthesis and root canal stenosisss. On advice from doctor I stopped tennis. Referred to a neurosurgeon who after several months carried out a laminectomy in July 03. Cleared to recommence exercise in December 03 which is when my nightmare commenced. I developed bursitis in one hip, stopped walking until it settled, then excruciating pain in feet, and then bursitis in the other hip and continuing foot pain. I developed rib/back pain, again diagnosed as arthritis even though I felt the pain was muscular. I had one session of aqua aerobics and woke the next morning with plantar fasciitis which continued for 3 months even with doctor, physio and acupuncture treatment. I was then referred to a Spots Medicine Dr who ordered bone scans/x-rays which revealed a stress fracture in my foot. In 2006 I began to notice that my right arm had a tense feeling all the time, I had a loss of dexterity in my right hand which assumed a claw like appearance and my normally neat handwriting became practically illegible. My physio recommended I see a Rheumatologist who said I had "no more arthritis than I would see in any 62 yo", he sent me to a Neurologist who after 5 mins diagnosed Parkinson's Disease. Within 7 weeks of commencing the PD medication I was experiencing Restless Leg Syndrome every night. The neurologist said that my condition had "progressed" and increased the medication - twice. I was then getting RLS DAY AND NIGHT and getting no relief OR SLEEP!!! Finally after 12 months misery my GP suggested that I try coming off Lipitor to see if that was causing my body pain. Within 6 days I felt better, my muscles became less stiff and relax. I went back to my Neurologist who refused to accept my claims, he insists I still have atypical PD (because I do not have tremors). I told him the cure is worse than the complaint and against his advice I weaned myself off PD medication and Lipitor. It was hard going but I NO LONGER SUFFER FROM RLS AND MY DEXTERITY IS SLOWLY IMPROVING. I still have dexterity problems with my right fingers but the tense feeling in my right arm has gone and my "claw" hand is starting to relax My muscles feel bruised all the time. I am still taking my blood pressure tablets and 150mg of Co-Q10 a day. I have been off Lipitor 9 months. It has been a painful journed for the last 8 years and a nightmare for 12 months. My GP has marked my records as "allergy to statins" but says she just doesn't know if I have Parkinson's. I know that I will never take this awful drug again. My cholesterol has skyrocketed but I will have to try and lower it naturally and take the risk. I constantly feel like I have worked too long and hard in the garden, all my muscles are so sore. I really need to know if this damage is permanent and if this drug has caused Parkinson's Disease itself or just PD like symptoms. I guess I will just have to wait and see. I don't think doctor's believe us when we say Lipitor is doing damage to thousands of people. They love it!! When we are aging we are not surprised to get diagnosed with arthritis and this is why we take this medication unwittingly for so long.

Hi all...I've been taking 25mg. of Topamax at night for 5 days now. Unlike most of you I have not experienced the tingling in the extremities or the weird taste in the mouth or even much tiredness at all other than what has happened as a result of my weird side effect. I was prescribed Topamax by my neurologist for my migraines. I've had them since I was 12 years old. I'm 49 years old. The got worse during peri-menopause which is kinda normal given the hormonal fluctuations, but was told by my neurologist that they would very likely subside significantly when I became menopausal. Well folks, I've been menopausal for 5 years and for the past 2 years my migraines have been the most horrific of my life. I have approx. 15 to 18 migraine days a month, some of the headaches lasting 3 bloody days. So it comes to this...Topamax. In the past I have suffered some pretty rare side effects from some very benign medications so I guess I shouldn't really be surprised that this is happening to me now. The first night I took it I slept like a baby. The second night I was slightly 'hyper' but managed to get to sleep. But for the past 3 nights it's been hell. When I lie down in bed, my body feels as though there are electric currents shooting through it and coming out my right leg. I have to move my right leg or go completely bonkers. Fortunately my daughter is away at university and so I can sleep in her room. So I lie there...on my left side...with my right leg hanging over the side of the bed swinging and swinging and swinging as hard as I can just so that I don't scream. It's awful. Last night was the worst. I saw dawn this morning. I just got off the phone with my pharmacist and he told me that I had described a classic case of RLS - Restless Leg Syndrome. And guess what? Topamax is used to trest RLS!! For bleep's sake! So nice people I am suffering a completely opposite side effect to the one that seems to be the most common one...tiredness. Has anyone else heard of this? Experienced this? It seems to all focus down to my right hip and leg. I have to move it vigourously or go nuts. I am so tired today but that's because I got like 3 hours sleep. I fell asleep from sheer exhaustion after my husband left for work at 7:30am.
A side note...I also take 75mg of Effexor for panic disorder and my neurologist told me that this is a very good mix of meds for migraine prevention. My top dosage for the Topamax will be 75mg taken at night.
I'd really appreciate any feedback on my side effect. Thanks in advance.

D.

I took 2 pills before dinner and my stomach was great after the meal, no gas whatsoever. Intestines felt great, but I noticed I was very uncomfortable on the couch, restless. Feeling was similar to RLS, restless leg syndrome, but all over my body. Lasted about 2 hours then feeling went away.

My 8-year-old son started on Singulair 6 weeks ago. Soon afterwards he had severe problems falling asleep--often up until 4 or 5 am before drifting off, but I didn't make the connection. (Thank goodness it's summer time and no school!)

About 2 weeks ago, my doctor recommended Singulair for me, too. The first day I was unbelievably sleepy, but after that I, too, have had severe problems with insomnia. I have also noticed involuntary muscle twitching, restless leg syndrome, and my mind feels like it's turning to mush. I used to tutor statistics; now I can't even do basic multiplication! Scary!

I have just thrown out both my son's and my bottle of Singulair. I hope stopping it will reverse this crap.