September 26th
2009
8:19 PM
I've been prescribed 100 mg. of Doxycycline Hyclate twice a day for 21 days for Lyme Disease. I was tested to rule that and rheumatoid arthritis out because of hand pain - and I don't know who was more surprised when I tested positive - my doctor or me. Any symptoms I had, including the hand pain, I attributed to the aging process (51/female).
Took the first pill in the later evening on a Friday and waited the 30 minutes before going to bed (instructions said not to lay down for 30 min.). I woke up in the middle of the night with terrible acid reflux, which I've never had. I found it difficult to time taking pill after not eating for 2 hours and waiting 1 hour afterward - never realized how often I ate small snacks. Same thing the next two nights - I also had heartburn, which is rare for me.
I realized it would be far easier if I took the pill immediately after rising and as soon as I came home from work. That has greatly reduced the heartburn and eliminated the acid reflux.
I am fully committed to taking the pill to have the best results in eliminating the bacteria from Lyme Disease, so I'm taking it exactly as prescribed on an empty stomach. This is causing some stomach upset and nausea, which is the worst in the hour after I take the pill while I wait until I can eat - especially in the last 15 minutes, when I feel on the verge of vomiting. I try to keep myself busy, but even without looking a clock, I can tell where I am in the hour. I am hopeful that by taking the meds on an empty stomach, I'll get maximum absorption - but it's been a struggle for me.
One other discovery I've made is that the nausea is less the rest of the day if I eat - and carbs seem to be what is most appealing. I'm far more easily nauseated during the entire day, some days more than others. I feel some fatigue, but nothing that is so severe I'm not able to function and go to work. I feel bloated and my stomach just vaguely hurts, so I'm trying to wear loose clothing.
I'm finding this drug therapy a bit difficult, as I felt pretty well beforehand. My doctor has recommended I give this my best effort, as it is the "go to" drug for Lyme Disease, but has said if I can't handle it, she will give me an alternative. I am trying to stick this out, partly out of determination and silly pride, but also because I am allergic to a lot of drugs and since I seem to be able to tolerate it, albeit with some discomfort, I figure I should suck it up. I have a little bit of the tingling, am occasionally feeling a little flushed - usually when I'm highly nauseated (which is a typical reaction for me), but nothing horribly bothersome.
I'm hoping I don't develop the sleeplessness, anxiety or depression that many of you have reported, as I feel terrible for you. That would become a deal breaker for me.
Unless it's my imagination, my hand pain is reducing and some achiness I just figured was normal has been lessening. If this was the result of Lyme Disease and I can get rid of that, this (hopefully) temporary discomfort will be worth it. Good luck to all.
-- By lyndyb | Reply | (1) replies | Private Message me
September 22th
2009
10:56 AM
I had a mirena fitted twice with no significant problems except weight gain but I now have a 6 month old baby and had my 3rd mirena removed this morning.I had my second one removed in April last year when we decided we would like to try for baby no3 after a 12 year gap.I fell pregnant in the July and had lost 10lbs in the three months after removal without trying.I felt calm,slept better and had loads of energy.I then progressed with my pregnancy and continued to lose weight as was very sick so by the time my daughter was born I had lost 35lbs in total.i then lost a further 10lbs in the six weeks following her birth and felt great,loads of energy,my skin looked fantastic and was really happy.
I decided to have my 3rd mirena inserted just after my six week postnatal check as I hate heavy periods etc,well that was at the beginning of June.As soon as it was inserted my stomach started to bloat and it looked like I was 6 months pregnant,I have experienced extremely heavy prolonged bleeding with clots.I had phoned my doctor 3 times over the last 3 months and they said to give it time,it was the fact I had not long had a baby and give it 6 months.I have also gained 14lbs in the 3 months,my skin has broken out,my hair is thinning and have really bad mood swings,anxiety and restless sleep and I know I don't have post-nantal depression as had that 16 years ago and know the difference.
I am so glad i took the decision to have it removed and feel 100 times better already knowing this thing is no longer inside me.I definitely know this mirena has caused all these side effects now.Why do the doctors not listen to us.
July 28th
2009
2:01 PM
My son was put onto 4mg Singulair when he was three years old. He is now six years old. For the past three years he has been a very quiet child, to the point that people commented on how shy and withdrawn he was. He never wanted to go anywhere or do anything. His favorite activity was lying on the couch watching tv. He was always thirsty, frequently went to the toilet,often complained of a sore stomach & had several bowel movements every day, did not sleep well at night, was often grumpy, could not concentrate for very long, was frequently ill with cold-like symptoms and did not really like you to touch/hug him. At the beginning of the year he was diagnosed by an occupational therapist as having low muscle tone. In March of this year, his pediatrician increased his singulair to 5mg. He began having terrible pains in his legs, to the point that he would cry and be unable to walk to the toilet at night. I took him to my GP who did every blood test under the sun and x rays of his pelvis and legs. He could find nothing wrong. The only thing that had changed was the increase in Singulair. I had a look on the internet and found this website. I immediately decreased his dose to 1/2 a tablet for a week and then 1/4 tablet for a week before taking him completely off it. Within a few days our whole family and his teacher and therapist noticed a huge change in his personality! He talks all the time now, he laughs a lot, he loves playing outside and has lots of energy. He teacher says he is much more receptive at school. His occupational therapist says his muscle tone has improved. He has not had one single leg pain since coming off the medication. He is sleeping well at night, his stomach is never sore and he has not been sick at all. Not even one little sniffle!! Best of all he is a normal, affectionate little boy. I feel very angry with the manufacturers of Singulair and with his pediatrician, it feels as though my son has lost three years of being a child. He felt terrible all the time and I had no idea! I have told everyone I know who has a child on singulair to look at the side effects.
-- By bronwynt | Reply | (3) replies | Private Message me
July 27th
2009
10:41 AM
Just finished reading the posts and I feel like it was written about my 8 year old. I never connected the two issues of anxiety, frustration doing schoolwork, quick to tears and leg pains. I kept telling them they were growing pains. Last night he called me from his father's and said he has suicidal thoughts... not that he wanted to kill himself, just couldn't stop thinking about it... good lord. After months of dealing with him not wanting to go to bed and not feeling safe we have an answer. I told my ex husband to stop the medication today, I will post back after a few weeks to update the progress. I usually never post randomly on the internet, but this site might have just saved my son from emotional turmoil!
-- By seg874 | Reply | (3) replies | Private Message me
March 11th
2009
1:43 AM
I have been taking 100 mg twice a day for less than a week. What I first noticed was seeing dark spots on the wall. Other side effects have been------dizzy, depressed, nausea, lightheaded, shortness of breath, sudden weight gain(5 lbs), swollen hands and feet, uneasy feeling in my chest. I am 58 years old and had been taking Norvasc for over 10 years ---- MD decided I should change to metropol. After reading this page and after how I have been feeling for over 3 days, I am not taking this med ever again. FDA should not allow this med to be prescribed.
-- By quita | Reply | (2) replies | Private Message me
September 15th
2008
12:30 PM
I have been on Loesterin 24 since Dec 2007 so far it has given me slight discoloration spots two under the breast, two on the shoulder blade and two on my arm, Mild to extreme moods swing, depression, nausea, headache, acne and speratic periods, ranging from a week before the period is suppose to start to two days after the period stops just to start all over again. Night mares and restless sleep patterns have been a usual.
I really do not recommend this birth control to any one but can’t stop taking it for fear of getting pregnant again.
May 28th
2008
3:15 AM
I was put on Singulair about 2 years ago because of my COPD. No allergies were ever mentioned by my Doctor. This site has been a god send for me.
Since starting Singulair I have been put on Digoxin for an irregular heart beat that I never had before. I have been put on Gabapentin for leg pain and cramping in my feet whenever I put my feet up or laid down to TRY and get to sleep. I have been put on so many pain killers for back pain, leg pain, neck pain I can't even count them all. I won't take them, they make me so sick. Now I find that I wake up with a headache every morning, feeling sick..oh yes, I was given medication for nausea also. And I don't want to forget the six months of experiencing never ending dizzy spells. That was another medication to ad to the list of ALL THE MEDICATIONS I HAVE TAKEN OVER THE PAST 2 YEARS for the side effects of Singulair. I stopped taking it a couple of days ago and I woke up this morning feeling so good. Oh, lets not forget the Xanax, Prozac and Cymbalta for depression.......OMG! I'm looking forward to see how many of these medications I can toss now that I've stopped taking Singulair. I just wish I had found this site two years ago, oh yeah, I am on Advair also. I've been, lets say "in a chronic bad mood" too. Some would say a "B". I've already noticed a difference there too.
May 25th
2008
12:46 PM
April 26th
2008
8:42 AM
Restless sleep, very sore and aching body, dry mouth, & chills.
-- By hollyglentz | Reply | (1) replies | Private Message me
March 29th
2008
12:26 PM
My daughter is 20 years old and a chronic asthmatic with severe allergies. She has been on Singulair for 8 years. She has been complaining and in some instances begging her asthma doctor for a reason for her insomnia and restless sleep over the last several years. She takes other asthma and allergy medications. He told her to not take her Xopenex inhaler before bed, as that may be causing the problem, that didn't help at all (sometimes a Xopenex nebulizer treatment is needed for her at bedtime and during the night, during asthma flair-ups). Her doctor just switched her from Allegra (which she has been on since she was 10) to Zyrtec, which is helping with allergies, but not with the sleeplessness. She was taken off of Advair and put on Symbicort in September 2007, this made her asthma worse requiring Prednisone off -and -on since January. She is back on Advair and doing better, but the sleepless nights continue...
We are seriously contemplating taking her off of the Singulair. We aren't 100% certain this medication is causing her insomnia/sleeplessness. However, as she explains it..."If I could get one really good nights sleep, I would go off of the Singulair in a heartbeat". Our fear is that by going off of the Singulair that her asthma will worsen.
-- By formydaughter1 | Reply | (4) replies | Private Message me
March 29th
2008
10:57 AM
WOW! I just came upon this site after hearing about the singulair warnings from my dad. I have an 8 year old daughter on singulair, zyrtec, and advair for asthma since she was 5. Thursday night we came back from a meeting with a psychologist for an educational evaluation (recommended by the school). She has had problems with concentration and learning at school since first grade (she started singulair just before entering 1st grade). Prior to that, there was never any issue, in fact she was tested as a very bright girl by a different psychologist (at age 4 for admission into private school). The current psychologist diagnosed her as ADHD-NOS and recommended medication and suggested a speech therapist for a minor speech problem. The ADHD-NOS is because she feels she has ADHD without all the hyperactivity or true attention problems (no "classic" ADHD symptoms). Since we were having her evaluated, we also mentioned her horrible mood changes and temper. She falls apart over little things and gets very angry with her siblings, yelling about how she hates her life and wishing she didn't have a younger brother. Along with this, we were having her evaluated by an ENT for her sleep problems (very restless sleep, falling asleep during the day when others don't- she already has had her tonsils and adenoids removed). My daughter also has a poor appetite (she used to complain on stomach pains). This was just not the same, happy, energetic child I had a few years ago.
The next morning, I called the pediatrician and told him that I wanted to take her off all the meds. I felt they were causing her all these problems and he agreed that they may be. We have decided to take it one step at a time. The pediatrician feels it may be all interrelated. I am so shocked to see the number of kids with the same problems! I wonder how many of these kids are being diagnosed as ADD/ADHD because of these meds? It never occurred to us that these meds could be causing her so many problems over the years. As parents, we assumed her problems were just because of sibling rivalry, a picky eater, boredom at school, etc. It all makes sense now. My husband is a cardiologist trained at Hopkins and Harvard and it never occured to him that these meds could do this to a child until Thursday night when we were told to give MORE meds to our daughter. Hopefully, we will see improvement in our child and that no long lasting damage has been done.
January 27th
2008
4:16 PM
I'd like to start off by saying though many people have had some very bad reactions to this medication, that it is not a reason for it to be taken off the market. everyones body's have different reactions to different medications and while for some it may be a very negative reaction, for others it may be a very good or significant one. I'm 17 years old and currently taking Omnicef for a sinus infection. I am having side effects but the fact is a few days ago I was miserably sick, and now I am feeling significantly better. so though I am having side effects, the benefit of this medication, or at least for me, is that my sinus infection is most definitely getting better. my side effects have been gas and nausea (which I usually have regardless from GERD), bad dreams and restless sleep, and this is quite odd but fowl smelling urine and body odor. I haven't read about anyone else noticing body odor after taking it though so if someone has noticed this can you please let me know? thank you.
-- By hypocondriac | Reply | Private Message me
January 9th
2008
6:42 PM
I am a very healthy 21 yr old. I have always had a slight problem with urinary tract infections, nothing major tho. Doctors in the past always prescribed an antibiotic, usually Macrobid. I went in to see a doctor at MEA that gave me 3 samples of LEVAQUIN. They were each 750 mg. Within 3 days of taking the pills I was unable to get out of bed. My stomach pains were so severe I had to constantly bend over to relieve some of the pain. I had no appetite. My chest hurt so bad I couldn't talk loud, laugh or cough without crying from the pain. My fingers began to swell and became numb. I could barely sleep and when I did it was a very restless sleep. I woke up during the night one night and couldn't feel anything in my left shoulder. It has been close to 8 months since I took LEVAQUIN. I still have problems with my joints hurting horribly. I see spots like you would see after a camera flash in my eyes all day everyday. The bottoms of my feet still hurt if I stand still for a long time. LEVAQUIN is so dangerous. PLEASE BE CAREFUL!!!
-- By lindsay863 | Reply | (2) replies | Private Message me
August 27th
2007
4:20 PM
Been taken synthroid for 2.5 years. I am 30 old male, Really athletic.
I notice that I get fatique very easly and memmory and concentration problems. But the most noticable is shortness of Breath, and I have very high anxiety. I lost wait since being on synthroid.
July 4th
2007
12:06 PM
I have been taking Singulair for about two years now and I have been getting increasing fatigue so profound I have had to go from a 40 hour week to a 15-20 hour week. I have noticed increasing pain in my feet and legs which which affects my ability to stand and walk more each day. I also have stiffness in the ligaments of my hips, knees and feet. Medical tests show no arthritis in any of these areas. My memory is not as sharp and I have very restless sleep averaging 4-6 hours a night. My mind seems to be constantly running with thoughts and my concentration is gone out the window. After reading the the comments on this site, I am surely going to have my doctor change my medication to something else!
-- By whysper | Reply | Private Message me
May 12th
2007
6:57 PM
My 6 year old son has had all of these more or less. He has been on Singulair for about 5 months. We took him off last Friday when he started having seizures. It is only now that we are connecting the things he has complained about. He is still going through testing but everytime a test is done it is negative. He is in perfect health. The dr.s are stumped. What happens is, he smells a wierd smell. Then he sees lights. After this he has a bad headache and becomes weak so he lays down. Shortly thereafter he stiffens and starts shaking his arms and legs while clinching his hands. He also grunts and makes a buzzing sound and appears as though he only breathes out. the dr.s say it is not seizures but movement disorder and if it is Singulair it should be out of his system within 3 days... He is still having the seizure type fits and its been a week since we took him off singulair. He is still losing his temper and having horrible dreams as well. Cat scan was normal, EEG was normal, blood work is ok, they want to do an MRI but does this sound familiar to anyone?
-- By micah | Reply | (16) replies | Private Message me
January 7th
2007
7:05 PM
The first night I started levaquin I had difficulty sleeping and woke up in a panic @ 2am. The second night I slept only 2 hours of which was restless sleep. I have had several episodes of tachycardia (high heart rate), just pounding! I have felt uneasy and anxious as well. My teeth and joints are sore. However, despite all this discomfort, my sinus infection is clearing. The pharmacist doesn't seem concerned, however I am calling my physician in the morning. I suppose this is simply the antibiotic battling the infection. I feel worse on the medication!
By the way -this is the 5 day 750mg pack. Thanks, Dana
August 30th
2006
1:24 PM
A TREMENDOUS AMOUNT OF WEIGHT GAIN AND SWELLING-
I DON'T KNOW WHAT TO DO PLEASE IF ANYONE HAS ANY SUGGESTIONS LET ME KNOW. I HAVE ONLY BEEN USING LANTUS A MONTH AND HAVE GAINED OVER THIRTY POUNDS.
THANKS=)
-- By lowedevon | Reply | (1) replies | Private Message me
June 12th
2006
6:32 PM
I had severe sharp pains all over my body. Sharp shooting pains in my joints, severe headaches. My entire face was swollen, my eyes bloodshot red and burning. My body still aches after about 2 weeks of recovery. I still feel pressure in my head. I'm on pain medication to ease the pains. Other side effects are dry mouth, nausea and restless sleep. I'll never forget the agonizing pain I went through. Thank God I'm still alive!
-- By faunmorris | Reply | Private Message me
May 4th
2006
12:27 PM
I have been taking Geodon for about 4-5 years. I was diagnosed with schizophrena in 97. I had tried Seroquel and Zyprexa prior but quit because I still heard things. I saw things. I had disillusions. On top of this, I have extreme anxiety as a symptom. I saw my doctor as a drug dealer trying to take my money. At $240 an hour, he probably was.
After 2 years of being off the medicine, I was quite a mess. In retrospect, my psychosis was influencing my thoughts. In an attempt to be normal by not being on medication, I had reached a whole new definition of abnormal thinking. I justified it by thinking I was a psychic and not psychotic. Hey, if spirits spoke to John Edwards, why not to me. They do make sense sometimes. They are just intrusive.
I came to a point of depression. I had never thought of killing myself before but it became an obsession. I just wanted it all to end. So back with the doctor and he prescribes me Zoloft and Geodon. The Zoloft had to go after 2 weeks because it made me extremely anxious. Anxiety causes increased thoughts and more anxiety.
I stayed on the Geodon. My doctor said that 120mg was the theraputic dose but I take 80 at night. Does it help. I guess. I have forgotten how I was before it. I still hear voices but my anxiety is under control. I can sleep at night when I take it without feeling like I am privy to some celestrial conversation. I haven't layed in bed worrying for years. I forgot a pill last week and had a restless sleep and that isn't fun.
I get hateful thoughts when I am getting close to the night. Anxiety starts to build and I am uncomfortable for a few hours. It takes about 3 hours for me to have an effect. I don't have the side effects other than insomnia when I skip. Sleep is impossible.
The major problem I have been having lately is with my memory. I feel like I am living life with a chemical labotomy. I can study for tests and pass but then forget the material shortly after. I can't remember if today was yesterday or a week before. This could be because I'm getting old though.
-- By jtwylie | Reply | Private Message me
May 3th
2006
11:05 AM
I was prescribed Sulfameth for an abscess on my inner thigh. I have been on it for two days now and the side effects are getting worse with every pill I take. I have felt racey, which has led to the restless sleep; I have had no appetite, no energy, shakes, panic attacks, depression, & mood swings. I definitely do not feel like myself. I feel seperated from the world, or like I'm walking outside of my body. I am running a slight fever every now and again too. There has to be something better out there that can do the same job but with fewer or less severe side effects!!!!
-- By vjennabeacha | Reply | Private Message me
April 28th
2006
11:30 AM
i am so glad to have read this. my daughter is 4 and was recently put on singular for her chronic sinuitis and allergies.....she started itching uncontrollably for days...and her moods were horrible..she could not sleep and when she did sleep it was a very restless sleep with bad dreams..she became very agressive...it was weird so i was told by the doctors that it was not the singular but after reading this i see i was right! i just want my sweet little girl non-itching back!!
i stopped the singulair!
January 13th
2006
6:50 PM
Got a cortisone injection in the neck. Few several minutes later had very excruitiating pain. Pain subsided to low pain few hours later. Had achy back and legs. Nauseaus. Restless sleep on and off. Next day dull achiness in the neck. Had to move slowly.
-- By threepeasnpod | Reply | Private Message me
August 20th
2005
11:54 AM
I repeat what I've seen here in so many posts. I can't believe it took so long, how did I not realize, my poor child has suffered etc... etc... His side effects were: restless sleep, night mares, NEVER slept through the night. Less and less willing to go to bed at all. Combative, aggressive, began biting, short tempered. Extreme and rapid mood swings, physical, throwing toys and household items. Disinterested in socializing with other children, afraid to be with anyone other than immediately family. Poor self image ("I'm a bad boy"). Plus others.
I have a similar story to many. My 3 year old has been on Singulair for over a year. He had sleep disturbances early on, but the doctor changed the time to administer the dose and it improved... at first. The unfortunate thing I have realized with this medication is that the side effects are gradual and varied. This makes it difficult to make a connection especially in small children. It wasn't until he had a frightening 4 hour night terror episode last week that something clicked, I did a web search, found this website and realized it was probably the singulair. I stopped giving it to him immediately. Within days his behavior improved. Within 2 nights he began sleeping through the night, his personality is completely opposite of what I've dealt with for the last year. He is evolving each day and while I feel guilty for not catching it sooner, I am so elated to watch him shine. I thank all of you for sharing this information, without it I may not have yet realized that my son was suffering.
I contacted the company and they said that all these things have been reported "after marketing" what this means to me is that salespeople can market this to the medical community and not mention theses side effects because they did not occur (or were not documented) during the trial period. I suggest that you share your story with your friends and get the word out. If this medication works for a patient that's great, but I think patients/consumers have the right to know what they may be getting themselves into.
-- By concernedmom777 | Reply | Private Message me
Singulair (10) Omnicef (2) Yasmin (2) Levaquin (2) Metoprolol Tartrate (1) Adderall XR (1) Bactrim (1) Cortisone Acetate (1) PredniSONE (1) Mirena (1) Claritin (1) Doxycycline Hyclate (1) Synthroid (1) Guaifenex (1) Geodon (1) Loestrin 24 Fe (1) Sulfamethoxazole (1) Lantus (1)
November 14th
2009
12:58 PM
Adderall X-R saved my life! I've been taking 20mg a day for 2 mos. and I noticed that it was even more effective if i drank coffee. I only just found out that you can't mix caffeine and adderall so I talked to my dr. about it and we increased my dosage to 30mg a day. I didn't have any noticeable side effects on 20mg but i've got some pretty big ones on 30mg, namely, neck pain, headaches, restless sleep, and dry mouth. has anyone experienced these and did you eventually adjust? Thanks for any response!
-- By treehugger | Reply | Private Message me