Rls symptoms and conditions

23th
2009
10:36 PM
MIRENA is the worst thing EVER!!!!!!
I got Mirena as my husband and I were lacking in the sexual side of our relationship because we both HATE using condoms.I have a 31/2 year old son and we have decided that for now we are happy and would like if we didn't have anymore children right now so I talked to my doctor about Mirena.
Let me start by saying that my labor 6 hours with NO pain meds was nothing compared to the pain I had when they put it in. Then the bleeding started right away I was bleeding for 8 weeks then had 1 week free and now have been bleeding for about 8 weeks. I had 2 ultrasounds to make sure it was in proper and everything was "fine" my doctor says everyone's body reacts different.
The symptoms I have are Occasional Cramping,
Sever bleeding,
headaches,
irritation in my legs (same symptoms as RLS),
Depression,
no sex drive,
back pain
Weight Gain (17lbs in 2 weeks)
and the weirdest symptom is hard to explain but its the same feeling in my body as if you were to touch a 9volt battery to your tongue! Every now and then I have little shocks and its so annoying. I have had mine in for 17 weeks and I have an appointment in 8 days to have it removed...Back to condoms it is

I have been on Lantus & Humalog for about 3 years. I am a 75 yr old male T2 and the only other meds I currently take are Toprol XL and aspirin. After reading all these Lantus postings, I decided it was time to quit Lantus just to see what happened. Like one other person said, "all of a sudden the fog lifted"! I am a different person. I can now sing in church (after 3 days off of Lantus). Before this, I did not have enough breath to sing. When I was on Lantus I had many sleepless nights, suffering from RLS and leg pain. Now I am sleeping the entire night through. These benefits are the tip of the iceberg, I just feel better all over. Needless to say, I am injecting more Humalog now to make up for the absent Lantus but that will not be a problem. Please understand I am not advocating this for anyone else, I am simply reporting what happened to me. I see my doctor in a couple of weeks and can't wait to share the news with her.

My side effect was that RLS got worse when I took Requip. Reply to me and I'll tell you my story. You'll find it interesting. I am not selling or indorsing any product or treatment of any kind.

Hi all...I've been taking 25mg. of Topamax at night for 5 days now. Unlike most of you I have not experienced the tingling in the extremities or the weird taste in the mouth or even much tiredness at all other than what has happened as a result of my weird side effect. I was prescribed Topamax by my neurologist for my migraines. I've had them since I was 12 years old. I'm 49 years old. The got worse during peri-menopause which is kinda normal given the hormonal fluctuations, but was told by my neurologist that they would very likely subside significantly when I became menopausal. Well folks, I've been menopausal for 5 years and for the past 2 years my migraines have been the most horrific of my life. I have approx. 15 to 18 migraine days a month, some of the headaches lasting 3 bloody days. So it comes to this...Topamax. In the past I have suffered some pretty rare side effects from some very benign medications so I guess I shouldn't really be surprised that this is happening to me now. The first night I took it I slept like a baby. The second night I was slightly 'hyper' but managed to get to sleep. But for the past 3 nights it's been hell. When I lie down in bed, my body feels as though there are electric currents shooting through it and coming out my right leg. I have to move my right leg or go completely bonkers. Fortunately my daughter is away at university and so I can sleep in her room. So I lie there...on my left side...with my right leg hanging over the side of the bed swinging and swinging and swinging as hard as I can just so that I don't scream. It's awful. Last night was the worst. I saw dawn this morning. I just got off the phone with my pharmacist and he told me that I had described a classic case of RLS - Restless Leg Syndrome. And guess what? Topamax is used to trest RLS!! For bleep's sake! So nice people I am suffering a completely opposite side effect to the one that seems to be the most common one...tiredness. Has anyone else heard of this? Experienced this? It seems to all focus down to my right hip and leg. I have to move it vigourously or go nuts. I am so tired today but that's because I got like 3 hours sleep. I fell asleep from sheer exhaustion after my husband left for work at 7:30am.
A side note...I also take 75mg of Effexor for panic disorder and my neurologist told me that this is a very good mix of meds for migraine prevention. My top dosage for the Topamax will be 75mg taken at night.
I'd really appreciate any feedback on my side effect. Thanks in advance.

D.

Friends,
I've posted on this twice before. I was on the ring for nearly 2 years before I got off this past February when I discovered this site. I have to say I feel sooooo much better. Currently, I'm not on any birth control (we use condoms and spermicide) and I love being myself and being normal. While I gave up convenience and a relative peace of mind, I also gave up a decreased loss in sex, dryness, mood swings, fogginess, and putting my health at risk etc.

I still have numbness in my legs especially at night (RLS was ruled out) but it's much better than months ago. I never had this before I started the Ring.

I worry about others because I didn't know my side effects were caused by the Ring. And my obgyn made me feel like an idiot when I suggested it. But getting off the Ring was the best choice. I have my health, my sex drive, and natural lubrication not to mention a great relationship with my boyfriend (when you lose interest in sex obviously your partner is going to take it personally).

If you have NO side effects and are confident the Ring will not affect you then by all means go for it. But if you have doubts look into it. Trust your instinct and take care of your health. There's no point in taking birth control if it's going to kill you (figuratively or literally).

I'm looking forward to being healthy again and I hope that you all are safe.

I have had 1 remicade infusion so far for ulcerative colitis. The next day a bunch of spots appeared on my lower legs. There were 30-40 of them, small, roundish, purple/dark red. They looked like blood spots under the skin.
It wasn't a rash and they didn't itch or hurt. My doc had no explanation, and I haven't heard of anyone else having this reaction. They checked my blood for a clotting problem and didn't find anything. The spots faded away over a week or so. My next infusion is in 2 days, so we'll see if they reappear.
I have also been experiencing a weird kind of insomnia where I am so physically antsy I CANNOT keep lying still, I have to shake my body or kick my legs or something. I read up on restless legs syndrome and the symptoms sure sound like what I am experiencing. I don't know if it's connected to the Remicade - I read that iron deficiency can also cause it and I am anemic due to the UC. But since Remicade can disturb the central nervous syndrome, it seems possible. Anyone else experience RLS with Remicade?

Hi, all. I'm 30 and have been taking Yasmin since Oct. 2006. Yesterday, I finally went to my OB/GYN and asked to take me off it. I can't believe it's taken me so long to realize it was the cause of my many health problems.

Like others have said, I've had many side effects but never connected any of them to Yasmin - until a friend was thinking about using it and told me she'd read it had bad side effects such as mood and GI problems. Once she said this, everything clicked.

Immediately after starting Yasmin, I started gaining weight and had terrible depression. Crying ALL the time. I thought both were because I had started a new job that was very stressful, and I've had struggled with depression my whole life. But this was severe enough that I've had thoughts of suicide and my actions really worried my husband. I asked my doctor to increase my Prozac dosage.

In June 2007, I started having migraines. The first one was so bad that my husband took me to the ER and had me get a CAT scan. It was clear, but the migraines have continued about once a month since then. I've been prescribed Maxalt for when they occur.

Also in 2007, I started having GI problems, especially bloating, cramps, heartburn, gas, and quick-onset diarrhea. The diarrhea got so bad, I'd have to leave parties, work, etc. One day, I didn't make it to the bathroom in time (thankfully, I was at home), was in tears, and my hubby said to see a GI doctor. I got the full workup, including a colonoscopy, which was clear.

In 2008, I started having Restless Legs Syndrome and extreme fatigue. It'd get tingles/pain in my calves when watching TV, in movies, on airplanes, and when asleep. I would sleep 12 hours and still be exhausted. I'd go to bed at 7 or 8 p.m. Finally, I had a sleep study in March 2008 and was diagnosed with RLS and was prescribed Klonopin.

This spring, I've had terrible sinus problems and headaches. I've had allergies before, but never this bad. My Allegra isn't working anymore. I have incredible post-nasal drip and sneezing. Go through Kleenex like crazy. My doctor prescribed Nasonex.

And finally, since Oct. 2006, I've gained about 60 pounds while on Yasmin. I chalked it up to stress from a new job and planning a wedding. Yes, I gained weight WHILE I was engaged. In the time between buying my wedding dress and my wedding, I gained so much weight that my dress had to be let out. I thought it was because of stress, not exercising and a poor diet - but now I realize it shouldn't have caused me to gain THAT much weight. I've continued to gain weight since I've been married.

Now that I put this all together, I realize I am on THREE NEW MEDICATIONS, increased my Prozac, had a colonoscopy, a sleep study, and a CAT scan, and gained 60 pounds ALL since I started Yasmin.

And aside from the medical problems and prescriptions, my lifestyle has changed and I use many over-the-counter drugs. Of course, I'm overweight. I use antacids about 5X a week for heartburn, simethicone about 3X a week for gas, Advil about 2X a week for headaches, sleep all the time, have unusually strong depression, still have diarrhea, and have terrible sinus/runny nose constantly.

I feel so stupid that I never connected the dots. And I realize as I'm typing this that I sound like a hypochondriac because of all my drugs and doctor visits! Most of all, I'm outraged, and truthfully, very sad, that I got married at a very heavy weight because of Yasmin.

I'll post again in a couple of weeks to let you know how I'm feeling off Yasmin. I pray it's much better. Thanks for this forum to share our experiences.

-Katie

I am a 30 year old female and have had asthma since I was 3 years old. For years I struggled with it, having to always have an inhaler on hand everywhere I went. About 4 years ago by the prescription of my pulmonary doctor I started taking singulair and advair once a day (before bed) The one thing that I have noticed that concerns me a bit, is that when I miss even one day of the medication (due to my forgetfulness in refilling) my asthma will be worse then before I even started the medication. So it's like I'm dependently addicted to it, which is really scary. Just one day off of it and I have to use my albuterol inhaler at least 5 times a day and I can't even get out of bed sometimes.

The other thing that I noticed was my complexion changed. I have been to several dermatologists who either think I have a mild rosacea, mild acne rosacea or a mild adult acne. I have never had a problem with my skin, it was always clear. However now it is just so tempermental. I recently asked an internal medicine doctor who doesn't seem to feel that there is any link between singulair and skin problems but thought that perhaps it was the advair.

I also have experienced strange mood shifts that sort of go back to the time I started the medication. I fight a lot more with my husband and just feel very anxious, fearfull, reclusive, depressed. I feel like another poster, that everything is going to go wrong, or is always wrong. I'll have extreme anxiety about small everyday things. I am an actress living in LA. I have a commercial agent and was quite active in auditioning but this has dwindled as the years have passed.
Is all this due to the medication? I cannot say obviously, and like another poster said, you can't attribute side effects that some people have had to all the millions of people that must take this medication.And, it is true that during studies conducted of medications anything that someone experiences has to be listed as a side effect. I was taking a medication for my possible ADD symptoms, concerta, and one of the side effects is "Accidental Injury" what does that even mean! I asked my doctor about it and he told me, that if someone so much as accidentally bumped into a table or tripped during the study it would have to be listed as possibly being associated with the medication.It's a legal thing I'm sure.

But in any event who's to say that it isn't causing these symptoms. I certainly hope that it doesn't. I can only vouch for my physical symptoms for sure. I know whether or not I can breath or not and that it's due to not taking the medication since being on it is like I don't even have asthma. But as for the emotional stuff, they are just that emotional and there are many other things in peoples lives that could be contributing factors. The greatest test would be to stop taking the medication to see if the emotional symptoms improve.

It has been mostly good. I was diagnosed with RLS and CFS, Chronic Fatigue. It has removed most of my aches and tiredness. I have to devote 10+ hrs to sleep a night though. It has limited my sexual drive, where it is almost non existent. A small price to pay for my overall well being and more energy.

I wish I would have found this sight two years ago!! I started taking Yasmin, seen the commercials saying reduces pms, so I thought I would try it. The week before I went on it I had a pinched nerve in my back. I mention the back because I thought at first it was my problem. So I had a shooting pain going down the back of my leg and then all of a sudden my foot started tingling. I went back to the doctor, he gave me predisone, gained 20 pounds in a month. I was miserable, I was going to the doctor every two weeks, with pain. I went through serveral MRIs, CT scans, blood work for everything you could imagine (metal poisoning, vitamin deficiency, etc..) I had four epidurals trying to figure out where the pain and tingling was coming from. I was on percocet, taking it every 4 hours. I went to two different neurologist, three orthopedic doctors, Chiropractors, acupuncture. Nothing helped. I took Lyrica, for the tingling, nothing, I started taking Cymbalta, because I thought I would be miserable forever. I felt like I had restless leg syndrome.(RLS). Finally after 7 miserable months, not thinking it could possibly be the Yasmin, I have been on the pill before (Ortho-Tri Cyclen) I went off the pill in June. I almost immediately started feeling better. By the end of August I was feeling GREAT!! My Husband and I decided to have another baby (#3) I had a great pregnancy, and other than needing to loose a little weight couldn't be happier.

Have been suffering from bad muscle cramps in the back of my calves, Cardiologist trying to find out why. I believe it is from the Lisinopril (40 mg a day). He has taken me off of Vytorin, that hasn't helped. pharmacist believes it is from the Lisinopril, my primary doctor doesn't think so but I am glad that I have my Cardio b/c he will try anything and believes in side affects that meds can cause, since reading all the other posts I can't wait to tell him and hope that is the answer. I miss walking and right now can't go a half mile without severe pain in my leg calves

Over the past five years my doctors have steadily upped my Lipitor from 20-40-80mg and I am having a lot of symptoms. The worst symptom is a burning, numbness from my right armpit and over to my shoulderblade. I can't even stand for clothes to touch the area. I also get severe headaches and abdominal pains, diarhea, muscle spasms with shooting pains, RLS in the evenings. I've quit taking it but have found no relief from the symptoms. My doctor will not be happy with me, but he is not the one experiencing this misery!

I started singulair in 2003. It seemed like a miracle drug! I had no asthma until feb. 2007.I had really bad asthma I had to start using my pulmo-aid again. Well since 2003 I,ve had very bad leg pain, neuropathy and RLS. I was a sales person. I walked miles and miles every day. I was in so much pain. I am on darvon. My head has a tremor. My hands are shakey.
I started taking cymbalta for depression And had to quit work.I've been off for 4 months. I lost my health Insurance, I couldn,t afford my singulair I started taking Quercitin. It works really well .It's been about 3 weeks since I stopped taking the singulair and guess what? I had my first pain free day sat.april 20 I've been having a lot less pain in my legs!

I would just like to say I have been taking Ultracet for about 5 years with yearly blood tests. All my life I have suffered with RLS and now I have been diagnosed with Fibromyalga which is very painful and no one understands this pain unless they have experienced it. Ultracet has allowed me to function so much better and for all those years with RLS when I could not sleep at night and was so tired during the day ,Ultracet has changed all that .I have no side effects except for maybe dry mouth which comes with most medications. I take 4 or 5 Ultracets a day and have little or no pain. It has changed my life so much for the better.

I am a 42 yro who has been using Advair 250/50 for over a year now. The Doc prescribed 2 puffs a day but I prefer to take 1 puff every day (shhhh...don't tell the doc!). Before going to Advair I was taking albuterol inhaler on an as needed basis (allergy/exercise induced asthma). I am not sure if its old age, or me moving from NE to the SE USA (where its hot & humid), or Advair itself but I am noticing that I am getting more and more dependent on Advair to the point where If I don't take my once-a-day-puff, I find myself starting to wheeze. I was never like this with Albuterol. Sometimes I wonder if there is a chemical in Advair that makes you become dependent on it just so the drug company can make more profit on your depenency. The other two minor side effects that I attribute to Advair is the occasional hoarsness in my voice, and a minor tingling sensation in my arm and leg (Restless Leg Syndrome?) at night. Anyone else can make a connection between Advair and RLS?

I don't smoke, drink caffine free drinks, athletic, and work out regularly, and take no other medications or vitamins.

The pill worked great for my RLS but I became a compulsive gambler and didn't realize it was because of the pill untill it was nearly too late. I urge anyone else who has experienced this side effect to come forward. There is a law firm willing to handle your claim. Please see more info on mirapex lawsuits.com. I nearly waited too long to seek help.

In response to those who praise the virtues of Lipitor, I will tell you that I was on 10 mg/per day regimen for the past six and a half years. I first noticed bizarre weakening of my legs last summer but because I am 78, I at first attributed this to old age, but because the onset was so rapid and unexpected, I discounted what was happening at being due to my age. Then on Dec. 6, I was awaked by pain in my lower left leg so severe that I was literally crying. I could only hobble to my doctor the following day and he, by way of response to my question about Lipitor, suggested I stop taking it. He also gave me a prescription (thank God) for vicadin without which I do not believe I could have survived until today. I am still unable to walk more than a quarter mile or remain on my feet for more than a half hour or so. In looking back now, I began having sleep problems about four years ago, sleep apnia being suggested. However, my sleep doctor also said that I had RLS (restless leg syndrome) for which he prescribed chlonazapam. I have had recurring problems these past few years with my legs cramping up when I would drive any distance. When I recently informed my cardiologist of these experiences, he pretty much brushed me off by saying at while 2-3% of Lipitor users experience problems, on the whole it is a beneficial drug. In other words, they know that some folks are going to experience problems, but that's just too bad. What happened to the medical adage, "Above all, do no harm."

VAGINAL BLEEDING HAVEN'T HAD PERIODS IN 5 YEARS
JUST IN THE PAST FEW DAYS HAVE INCREASED NEURONTIN
TO 1800 TWICE WHAT I HAVE BEEN TAKING FOR THE LAST 4 YEARS. BLEEDING STARTED TONITE. I HAVE FIBRO, LUPUS, ARTHRITIS,FACTOR 8 DEFICIENCY, MIGRAINE EQULIVANT WITH PARYLSIS, GOUT, RLS,SUGAR, HI BLOOD PRESSURE,BURSIDIS,DRY EYE, I THINK THAT IS EVERYTHING
OH YES SEVERE MEMORY LOSS.
PJ

I was just prescribed Neurontin for PLMS (periodic limb movements in sleep) - basically, I twitch all night long. I also tend to experience side effects from most medications. I'm not on anything else except Prevacid for GERD and xanax as needed (about 1x/month). I also take a supplement for my joints, and 5HTP for mild depression/anxiety (works wonders!).
Can anyone offer some advice? Anyone else take Neurontin for RLS or PLMS? Sounds like most people posting here are taking many more medications than I, &/or have many medical issues. Was wondering what to look out for. Can anyone list some basic, common side effects, and those more serious to look out for? Thanks!