Scar tissue symptoms and conditions

I have just taken my sixth and FINAL Lupron shot. I was unaware of many of the side effects, like IBS. I am a lot different than most women. I was born with a birth defect called cloacal exstrophy. I am 41 years old and have lived my life with no bladder or rectum, due to extreme reconstructive surgery at birth. I have a permanent Colostomy and urinary diversion (ileal conduit). I do not have a very large amount of intestine, which creates an absorption problem of certain things, one of them being Calcium. I have also had severe orthopedic reconstruction since birth.

In December of 2008 they found a mass on the right side of my abdomen along with a hydrosalpinx. The hydrosalpinx was drained and I was then urged to start a 6 month cycle of monthly Lupron shots. There is a long history of endo in my maternal family. I have been advised that because of existing scar tissue from so many past surgeries a hysterectomy was not possible. I can not even have a laproscopy to determine that the growth is actually endo.

3 months into the shots I started to suffer extreme diarrhea, lasting from 1 to 3 weeks at a time post the Lupron shot...it was blamed on overgrowth from past surgeries, etc. It has become a terrifying experience for me. Due to my inability to absorb calcium well I now have several calcium kidney stones that must be broken apart with a laser. I have no idea what will happen with the GI symptoms or if they will continue once the Lupron "wears off".

I have no concerns about fertility, since having children has NEVER been an option for me. My concerns are surviving my life longer without additional risk to it from taking this drug.

I have had the usual symptoms of sweating, night sweats, fatigue, Hair loss, loss of appetite and occasional insomnia. Again, the most concerning to me are the kidney stones and GI problems I have been experiencing, including "sludge" in my gallbladder.

I am severely disheartened by the lack of looking at the whole picture, at least midway through this treatment. This is compounded by the fact that my treatment stems from one of the country's "top 10 Hospitals", which is a direct affiliate of the Children's hospital that did an AMAZING job of successful reconstruction in 1968. It is 2009 and I have fewer options to improve this situation than I did the issues from the original reconstruction in 1968.

I feel I never should have been put on this medication and am deeply concerned about my survival from here. If I could go back 6 months, as informed as I am now.....this IS NOT the path I would have chosen. I no longer know which Doctor to trust, what decision is best for me or how much more I can take.

If there are any AMAZING Dr.s reading this, please feel free to contact me...I am desperate, I do not feel that this should affect my survival rate and am willing to listen to alternative solutions IN THEIR ENTIRETY.

Anyone with a shortened GI tract, absorption issues, or previous health conditions should WEIGH ALL OPTIONS and do AS MUCH RESEARCH AS POSSIBLE before agreeing to this treatment. I placed trust and confidence first, not one of my better decisions concerning my health. I will not continue treatment with Lupron.

I had my Mirena placed in April 2003 after the birth my second child and by August 2003 I had headaches, nausea, yeast infections, severe fatigue, pain and fever. By September 2003 I was fed up and made an appointment with a specialist, at my fist appointment he found a 8cm cyst in my left ovary and the 4 cm cyst in the right. The Dr. made me come in for an ultrasound every 6 weeks and told me the cyst will go away on there own. 2 years and over $10,000 in out of pocket medical fees asked to have the Mirena removed. The Dr. insisted it was not the cause of the cyst or pain and scheduled exploratory surgery. On September 16th 2005 the Dr. removed my ruptured left ovary and found a mass of scar tissue on the right ovary along with endometriosis lesions in on and around my uterus. The pain was gone for 2 months and quickly returned. I asked again to have it removed and when he declined I made an appointment with planned parenthood and had the Mirena removed. Since the removal of my Mirena I have had 1 miscarriage and 3 additional surgery's, I still have cyst on my right ovary and just had my first abnormal pap.

I had a lap done last year in May and my doctor removed an adhesion that was hanging above my uterus. Also a fibroid (3 cm) was found in the muscle and is located right against my bladder. My doctor could not remove the fibroid because of its location and because of a risk that I might have scar tissue and could be a problem to get pregnant. He also said that I could have some other complications, like lose a lot of blood. I feel like he is not being straight with me. I also have ovarian cysts which is common in the women in my family. Since a teenager, I always had really bad cramps and heavy bleeding. As I got older, it became worse. Before I had the lap done, I bleed for 6 weeks straight. I was changing pads every 30 minutes. Then my stomach extended so far out that I looked pregnant. I could not sit or stand. My husband had to take me to the E.R. An ultrasound was done and found that my uterus was enlarged (9 cm). I was put on Nothridone to control the bleeding and to treat endometriosis. After taking 2 months of this drug my doctor did a vag lap and abdomen lap. Everything was good that is what he said. I believed it. I was doing better. I was working and had no pain for 8 months. Then it all changed for the worse. I started to have really heavy menstrual bleeding and lots of blood clots. I felt week all the time and sick. The bleeding went on for 8 weeks and finally my doctor said that I had to take Lupron injections. I asked my doctor if he could just do a myomectmy and he said no because that was should be the last result. I could no longer stand the pain and I asked him what kind of side effects come with this drug. He made it sound like it was not bad and that there are very little side effects. He gave me a some information about the drug and I read the information and I did a lot of research. I was terrified but I had to make a choice. I was calling in sick because I could not work with the pain and worrying about embarrassing moments when my pads failed to keep me from overflowing. So I took the 1st shot in May along with add-bak therapy which is Nothridone. The bleeding tapered off slowly and the pelvic pain decreased. I did not feel any side affects right away until the second week. I started to forget things and would just stand in the middle of a room feeling confused. I always had headaches since a child but now they are pounding headaches, which I cannot stand any noise. I also can't stand the light. I have body aches like I have the flu and have problems with my right hip all of a sudden. I had a x-ray done because my doctor thought I might have fractured my hip. There was no sign of a fracture but my pelvis id tilted. I have some arthritis in my spine which I do not understand how that happened. Sometimes I cannot walk and I have to use crutches to get around. I cry all the time because I am extremely sensitive and confused. I use to be a very strong person and now I just cry all the time. I called my doctor to tell him what I have been experiencing and he said its all normal. I have already had a total of three Lupron injections and the symptoms just get worse. I have been spotting here and there, sometimes I have a pinkish discharge, and now the pelvic pain is back. My doctor knows this and he just says its normal. I requested for another ultrasound because I am worried something is wrong and he said that I have to wait until I get the 6th injection.I feel like my doctor is insensitive but he is supposed to be the best GYN doctor where I live. I also want to say that I have gained 20 pounds in three months. My sex drive is gone. My hair is thinning. I lost my job because I ran out of FMLA. This has been a nightmare! I am losing trust in my doctor. My poor husband and family are having to put up with what I am going through. I pray all the time to help be stay focused and think positive. I just do not know what to do anymore. Is there anyone out there that can give me some advice?

I got this thing put in just over a week ago (4/16/09). I wasn't thrilled with the idea in the first place, but I can't take the pill and my husband is sick of condoms. I don't want any more kids (I have 3) but I'm not ready for him or me to get "fixed". Anyway. The nurse practitioner was the one putting it in and she told me if there were any problems she wasn't doing it, she'd wait until one of the gyns was in the office. I had a LEAP ten years ago and she thought it would be fine since I'd had two kids after that, but she said sometimes there was scar tissue from the LEAP and it could be difficult to insert the Mirena. The NP was having trouble getting the big q-tip thing through but the nurse assisting her opened the Mirena package so the NP said she'd try one more time and SHOVED the thing through. OUCH!!!!! Then she put the Mirena in which was extremely painful. I was told I might have a "little" cramping. Yeah, right. For the next three days it felt like I was having contractions on my left side. It was awful. Since then I've had headaches every day. I had a migraine a few days ago and I haven't had one of those in ten years. The headaches are horrible tension headaches that won't go away when I take something for them. I'm still bleeding, but just enough to need to wear something. Has anyone with the Mirena had headaches that have gone away or do they continue until this thing comes out?

I started taking prednisone along with Cytoxan, a chemotherapy drug 15 years ago when I was diagnosed with an undifferentiated connective tissue disorder that led to symptoms like idiopathic pulmonary fibrosis. After a couple of years, the inflammation cooled off and I no longer had increasing scar tissue in my lungs (IPF is almost always terminal) so I was glad of that. However, sometime in that first year or so I developed hardish lumps under my skin and severe pain that felt like it was "under my skin" but not my muscles, as in fibromyalgia. The lumps are even more painful, and the skin feels as if someone tried to "skin" me and then just llay the skin back down.
I have had to be on timed-release morphine for years in order to function with this pain, as it is especially painful if I brush up against something or sitting or lying down pressure is intense. Also the skin on my tongue gets so tender I have to use kids' toothpaste or it burns terribly.
After 15 years some of the lumps have gone away, but I've recently had to go back on the prednisone for my lung inflammation.
The last time I got a new prescription for prednisone I read the tissue-paper printout (not the short one you get with every Rx, the one written for professionals which includes all the new data, tests, side effects, etc.) What I want to point out, as I've not read one person saying this, is that to avoid a lot of the side effects and the harm to the glands which produce our own natural steroids, is that they are now recommending that it is taken only EVERY OTHER DAY. They say there may be some slight increase in symptoms on the "off" day, but that this keeps the natural cycle in place in bodies subjected to this drug and therefore reduces symptoms.
This is what my last pulmonologist prescribed for me and so far I have had minimal side effects--no ravenous appetite and weight gain, no "moon face" and it has still helped my symptoms.
Please ask your pharmacist for the flyer that comes with the new package and read this for yourself and then take it to your doctor. It may not work for those in dire need of the prednisone but could perhaps be tapered to this once the first lethal symptoms die down. ASK YOUR DOC--I cannot believe I have not heard more about this as it's right on the flyer--but docs are so busy, it's understandable. I'm grateful my doctor is up on the new research because I don't mind taking the prednisone this time, and I used to HATE it!
Good living to all and I wish you all the healthiest life possible.

Im a 28 year old male and i had lipo done on my stomach about a year ago and i have a lot of scar tissue over my abdomen. So i got a kenalog shot(not too much) mixed with lidocaine injected at an angle(just under my skin) to eat away the scar tissue. i did it march 1 2009 and its now middle of April and i see no change in the shrinkage of scar tissue(which is pretty prevalant) however i don't want to do it again to early then have a dent in my stomach. does anyone know how long it may take to see the atrophy of scar tissue is it too soon? hope someone can help :) thanks!

Im a 28 year old male and i had lipo done on my stomach about a year ago and i have a lot of scar tissue over my abdomen. So i got a kenalog shot(not too much) mixed with lidocaine injected at an angle(just under my skin) to eat away i did it march 1 2009 and its now middle of April and i see no change in sixe of the scar tissue that is pretty prevalant however i don't want to do it again to early then have a dent. does anyone know how long it may take to see the atrophy of scar tissue is it too soon? hope someone can help :) thanks!

I can relate to many of these experiences. Started out in my 20's with very irregular cycles, went to my first gyn after a miscarriage - the emergency room dr referred me to a dr that was at a fertility clinic. I had no idea why until I was actual a little more "awake" I was diagnosed with polycystic ovaries. I went through at least 6 or 7 different birth control pills, depo provera shot, nuvaring, then back on another birth control pill. finally we started doing the continuous suppression as I was bleeding at least a little bit every single day... for 2 years. I would still have my full blown period every 4 weeks or so, which also included a monster migraine on day one of the menstruation. Not only was my life being altered but I was starting to get anemic. Finally after a month of the continuous suppression my bleeding stopped. As did the menstrual migraines. I continued this way for 4 years. Didn't have a single period or migraine, life was wonderful.. or so it seemed. I have been over weight for most of my adult life. Finally decided to do something about it. I joined the gym with a friend and started losing weight. I dropped 55 pounds until... the dreaded bleeding, pain and hormones got out of control. I started bleeding every single day again. Finally made an appointment with my dr. She stated that when you lose weight it releases estrogen out of your fat cells. Gee, I thought losing weight was supposed to make you feel better!! I went on with it for a while thinking it would stop eventually and it just HAD to get better. In fact, things got worse. I started having horrible abdominal pain, eventually it got to be daily. To the point where I could not stretch or even hyper extend my right leg backwards. My abdomen felt like something had a rubber band tied to it from the inside. My dr said that she suspected endometriosis. However, due to my anemia... we had to wait. So back on the iron pills and wait wait wait. Finally, October 15th I went in for my lap. Sure enough, stage 4 endo, huge cysts on both ovaries. My endo had gone all over the place and attached itself to anything it could. Including folding my bladder in half! Good grief. I thought that I was just getting the weak bladder from getting older (I am 35 by the way). For the next couple of weeks after my surgery I felt pretty good. Finally pain free (still a little bleeding but not much). But, the end of December rolls around and here it is, back with all its fury. The pain is again horrible, my migraines are back, my energy is dwindling. The good life was short lived. My doctor suggested a series of Lupron shots. One shot a month for 6 months. My first shot in January (took me a little bit of time to decide if I wanted to do it) finally bit the bullet and got the shot. First few days, fine, no problem, no relief either but no life altering experience. Then one morning I woke up and realized I was not in pain. It was a strange feeling actually. But the time I got the second shot, no more bleeding, no more pain... However, the hot flashes, night sweats and the emotions came on. Holy cow. Drama drama drama. I could find any reason on the planet to argue, with anyone. Thank god I have a very understanding family and an even more wonderful partner. I think he has the patience of a saint. I still don't know how he puts up with me. If I am not trying to find some reason to pick a fight then I am crying like a baby... for hours and hours. These hormones are so out of control. I honestly don't know what is worse, the pain or feeling like the world is going to end in the next 2 minutes if I don't get this spill picked up.. I literally cried for 2 hours Saturday because my cat knocked a stupid bottle of car wax off a shelf in the back room. Good lord, I had the most horrible feelings coming over me and just could not stop crying. I bought a new bed 2 weeks ago and let me tell you. If I am not on one of my 13 hour sleep fests then I am laying in it crying and feeling sorry for myself. Or the even better part of indegestion or my favorite part.. gas. I honestly don't know if I can go on like this. I made an appointment to see my doctorr this Friday to determine what she thinks will happen if I don't complete the other 3 shots. just give me back the pain if you have to!

Hi,

I have had my Mirena since March 2007 and until Nov 2008 have not had any real complications. I do still have a period, it's lighter but lasts just as long. In Nov 2008, I started having problems with dizziness, stomach pain, nausea and at the time I was diagnosed with an inner ear infection, I also had a CT scan done which was normal. But after taking the antibiotics as prescribed the symptoms persisted for 3 weeks then went away. It all started again in Feb 2009, waking with severe nausea every morning, loss of appetite, tired and stomach pain. I went to the ER and had bloodwork which was normal, and a urinalysis, which showed a UTI infection. I was given antibiotics for this, but yet the symptoms persisted for 3 weeks. Both of these episodes followed my menstrual cycle. After the last bout, in which I feel completely normal, it started again. My period was two weeks late this month (March 09) it started on March 18th and on March 19th I started experiencing all these symptoms all over again. I have, bloodwork, preg tests, a colonoscopy, a stool sample, and a pelvic ultrasound, all of which have been normal. I am scheduled in a week to have an ultrasound of my gallbladder, but I really don't think that's my issue. I have lost weight, have no appetite, and wake every morning at the same time with nausea. I am seeing my family Doctor again tomorrow, he has discussed sending me to an ENT, but he is also removing the IUD tomorrow. He is doubtful that it is causing these problems after two years, but said strange things happen so better remove it to be safe.

YAZ changed my life. And not in a good way. I'm now 40 yrs old. I've been on BC since age 16 and only OFF BC to have two children. I had NEVER had any problems with BC, and it helped me with my Endometriosis. I was switched to yaz about 1 1/2 years ago to help with some depression/acne. I was told it had the same side effects as my OrthoLo. So I took it. My skin looked great. I felt better emotionally in the beginning, but physically I started having trouble. It started with little things. I had no sex drive, I was tired all the time. Slowly I started getting infections that would take FOREVER to go away. (mostly sinus) I felt like I had the flu all the time, I had fevers for no reason and was achy and irritable. I then started to become anxious for no reason, I wasn't sleeping well and was becoming more and more exhausted. I saw my doctor and they tested my thyroid...no problem. Then after a few months, I saw my doctor after having bad pain in my side/neck/back and she gave me pain pills and muscle relaxers. I got better slowly...but never felt the same after that. I never had energy. Nobody knew they were BLOOD CLOTS in my lungs. It was a YEAR later when I went back with the exact same pain/symptoms and was sent home with the same meds. I knew it was something more. I saw another doctor that did more tests, then went to the ER and was sent home with pneumonia and pleurisy. 4 Days later I went to the ER and was admitted with MASSIVE PE's. I spent 1 week in the hospital and after a week at home I had a mini-stroke and my 3rd visit to the ER. Since the stroke I have had 2 seizures. I can't drive, my life has changed so much. I can't do everything I used to, can't function the way I used to and all of it is from YAZ!! I may have to be on Warfarin for LIFE. It all depends on how much scar tissue I have from the blood clots. I tell everyone I talk to NOT to take YAZ for any reason. It's NASTY, NASTY stuff...posing as a BC pill like the others. Of course...NOW they have changed thier commercials to be more descriptive. But I'll join any class action suit!! Just contact me.

I am 18 years old and I've been on birth control since the age of 15. Why so young? I was raped shortly after my 15th birthday. I was on Estrostep for awhile and loved it, but I ran out and have yet to find more of it. I was then started on Ortho-Tricylen and had been on it for almost 2 years when I noticed something wasn't right. I went to the doctor and they sent me straight to the hospital after having an abnormal ultrasound. Long story short, I had a cyst on my right ovary the size of a tennis ball and my doctor diagnosed me with endometriosis phase 2. I was scheduled to have surgery that following morning. I was in so much pain that I was hoping this one surgery would fix it all. They had to remove my appendix and burn a lot of scar tissue and whatnot to fix me up. After surgery, my doctor told me that I was ate up pretty bad with endo, and that they didn't want to have to do a total hysterectomy on an 18 year old. I don't have any kids, but I have hopes to someday have a couple. He started me on Femcon Fe right away, saying that this would control my endo cell growth. I have been on it for almost 5 months now and it's the worst pill I've ever taken! I have all the side effects listed on the package. The worst of them are breast tenderness, heavy spotting, nausea, vomiting, headaches, acne, weight gain, and severe moodiness. I can't take this anymore! I missed two pills one weekend and ended up back in the hospital because I started gushing blood that looked like black water. I don't know what else to do, so I'm quitting them. I took my last one Wednesday. I will be returning to the doctor next week and seeing if I can get back on Estrostep. I want my body back! I really hope all of you out there on this pill read this and stop immediately!! It's not safe!

Has anyone had it for 6 years or more ? How long did it take to get your periods back and conceiving as well.

Seems most people here have not had it long!Please help

i had the iud since sept 2006 and had it removed last week. i had felt it the entire time ive had it. id go thru hell with cramping and no bleeding. my weight would fluctuate from 135 to 150 in a matter of days, i haven't been able to get back down to my pregnancy weight of 117. i was so depressed that i tried to commit suicide. id cramp and bleed after sex, during i could feel it sometimes my husband could too. i had migraines that would last for days multiple times a week. my eyelashes, brows and hair has thinned out a lot. my skin is horrid with acne that would last for months with the same break out. i was bloated all the time. i was super moody, didn't have patients for anything or anyone. i am usually a pretty layed back person on mirena i was completely opposite, im surprised my husband hung in there! i was constantly constipated, frequent urges to pee, didn't want to out outside. when i was having it removed, my doctor couldn't find the strings, luckily she found them. my experience with mirena was horrible. i don't recommend it to anyone. after it was removed my stomach felt so much better. wasn't constipated, didn't feel a hard uterus, the pain that would shoot down to my feet stopped. my doctor did tell me i might have a mini period, which i am now. but im telling you i feel a lot better now that it is out of my body. if you knew me while i was using the IUD, you would think i am a different person now. i wish i had never gotten it in the first place...

I got a couple of kenalog shots in 2004 and 2005 following a surgery that left scar tissue on the bridge of my nose. I never had any bad side effects. I wanted to follow up and get more but the cosmetic surgeon that previously gave me those shots what not accepting my insurance any longer so I went to another plastic/cosmetic surgeon. He told me that I would need a revision and a Kenalog shot would not be beneficial. I pointed out another area on my face that I was concerned with and he agreed to inject the kenalog into a scar on my eyebrow which caused an indentation on my forehead! He won't admit this is a side effect from the kenalog shot. He even tried to convince me it was a frown line, but I know better. I have it all the time even when I'm not making expressions and it's only on the side of the injection.

I have been taking percocet for about 5 months now due to osteomylatis in my midle finger had 2surgeries before dr found it now i have bursitis in my left hip,cortizone shot didnt help ,plus i have 2 surgeries in 1 spot and develop scar tissue the pain is really uncomfortable 24 seven i have pain in the middle of my stomach ,is my liver getting damage because of percocet ? please any suggestions

I suffered with gastric reflux for a number of years not paying the attention i perhaps should have done. My reason for seeking medical advice that i found it increasingly difficult to swallow food. I had put it down to a psychological reaction. I reasoned that an episode some years ago caused a fear of food getting stuck in my thought, the thought sometimes seemed to trigger the response - ie the throat closing and quite literally stopping the food halfway down. The phenomenon became more and more frequent occurring almost every mealtime and making social eating a nightmare. Visited a specialist, had an endoscopy and found that the reflux had over a period of time caused a build of scar tissue in the throat, creating a ring of tissue which dramatically reduced the diameter of the throat. Specialist mad incisions into the tissue so it was flaps rather than a solid ring. sounds a bit grim but didn't feel a thing and a lunchtime sandwich a few hours later slipped down a treat.

it has been liberating being able to eat normally again. I am on these tablets or at least similar for the rest of my life so that the reflux does not burn my throat and build up scar tissue again. I do suffer from some of the side effects mentioned, - gas, blurred vision - which i hadn't realized was fairly common and put down to overuse of computer, tiredness. I guess there's no perfect remedy but I'd have to give it my vote. Strangely, before taking the drug i also suffered fairly regularly with dizziness and nausea - put down to labyrinthitis. It would seem the reflux and the connection between the throat and ear was the cause as the condition has disappeared. Sorry a bit long winded but a good site and good to know one isn't quite unique and suffering alone

I came to this group and posted my bad bad side effects on July23rd.
I got the IUD removed. Felt a lot better immediately, I had my periods, regular flow stopped after 4 days, feels good that I don't spot anymore. I feel great as a person, No more mood swings , no more snapping at the kids. Fog is lifted, lost weight, no more joint pains. I am glad it works for some people but for people like me it just does not work, for the 4 months I had it was the most horrible period of my life.

Now I feel good, but my mood swings and attitude when I had Mirena had already made a dent in my life . Relationships with my loved ones are spoiled. They are coming back to me and I am at loss to explain that the mood swings were not My character but Mirena. Nobody believes me and they probably think I am haughty and crazy too... Ahh ...... What do I say...... I used Mirena to help inturn has turned my life upside down, I wish somebody had told me before I got that. the 4 months I had it has altered my life permanently........Somebody has to raise this awareness and make it known that some women do get affected very badly..... Not worth it for women like me. Not at all.....

A plastic surgeon injected Kenalog in two places underneath my chin to dissolve small spots of scar tissue. The result is a disaster. I have a dent on one side and a large burned looking, atrophied area on the other. He did not advise me that there was any possibility of this drug eating my healthy tissue -- said it would probably not do anything. I did this on the spur of the moment and am angry with myself for not researching the drug first.

Has anyone who has had these "dents" had their atrophied area fill back in?

When I was visiting him for something unrelated, my doctor pointed out the bags under my eyes and said he could eliminate them with a Kenalog injection. He did not mention any possible side effects. Worst case, he said, would be that the injection would have no effect.

That's the last time I consent to a treatment on trust without first researching it thoroughly myself. The injection did nothing for the bags, but did cause atrophy of my right cheek at the injection site, resulting in a severe indentation in the middle of my cheek which continued to get worse as the weeks went by.

Attempts to fill out the sink-hole have resulted in a lopsided appearance to my face, which is quite demoralizing.

I have been on Lupron for not even a month yet. My side effects are bad headaches, the pain has not gone away, I am still having my period, I have terrible mood swings, I have trouble sleeping, I have no sex drive at all, (my husband hates that) I get shortness of breath sometimes. I get hot flashes, they don't really last long, but when they hit, they hit. I get stomach aches and nausea sometimes. I think the worst thing about me is that I am in the Army. One doctor that I was seeing did a sonogram, a CT scan(i think), and put me on birth control pills, but none of that worked. She said there was nothing wrong with me and that I was making it all up. She said I needed to go to mental health. I finally got referred to OBGYN. The doctor there did a laproscopy, but let her tell it, she doesn't even know if I have endometriosis. She said I have a lot of scar tissue, but she can't say if it is endometriosis. Why are you treating me for endometriosis if you don't know for sure if I have it? The worst part of all is that I am supposed to be deploying to Iraq next month and I am still in pain. Yall please pray for me...

Hi: My doctor has suggested me lupron depot 3.75mg for three months before doing supracervical laparoscopy. I did ask the doctor about the side effects and she said that you might get hot flashes and mood swings. Thats all she said about the side effects. My first shot is on Tuesday April 15/08. After reading all these experiences i am so scared to take them and planning to talk to the doctor again and looking into the abdominal hystrectomy instead of supracervical laparoscopy. Do you guys think that because it is 3.75mg and not 7 or more mg it might not have that many side effects.
God, I am so confused now, please help me out here.

I can't tell you how happy I was to find this web site. I had my Mirena inserted almost 2 years ago now. Was looking forward to having NO periods but that never happened...they're lighter but last longer. Some months I'll have spotting for a week or two prior to my period...feel like I should buy stock in Kotex! Several months after having my Mirena inserted I complained to my GYN of pain in my lower right side. He said it was probably scar tissue from my two c-sections. A few months after that I started seeing a chiropractor for back pain that just wouldn't go away...and STILL hasn't almost 2 years later. I am VERY moody before my period comes to the point of screaming and yelling at my husband and children and I can't stand that...not like me at all. Back in November I had pain all around my middle and could hardly walk without being slumped over. Went to the local walk-in, ended up in the hospital with a ruptured ovarian cyst. Haven't been the same ever since then. My face breaks out...mostly on the left side, I get horrible headaches nearly every day and feel like I LIVE on Excedrin...THAT can't be good for my body. I've gained about 20 pounds since I got the IUD inserted, I have a hard time going to sleep at night, have no energy whatsoever...it's just been horrible. After reading all of these posts I feel like I've finally found the answers to all the things that have been troubling me...it's the Mirena and it needs to come out!

I have my first steroid injection as a 10 year old to try and put weight on my sickly skinny body.
In my 20's I had 5 lung collapses from toxic chemicals( I work in a oil refinery and laboratory) and Bullous Lung disease. Blisters of air and fluid on the outside of the lungs. Break a bleb and have a spontanious pnumothorax (lung collapse. I had a thorocotomy (opened the chest and spread the ribs) in 1976 when I was 29. They sewed up a hole in my lung and tacked the lung up by taking gauze and rubbing the lung and the pleura (membrane sack in which the lungs are protected) so they would grow together and my left lung could no longer collapse.

I massed scar tissue and it pressed the lung in half and blocked my pulmonary artery. Results: Primary Pulmonary Hypertention a cor pulmonae (right ventricle can't push enough blood through the mentioned artery.

Prednisone treatments began to control swelling and treat pericarditis (inflammation of the heart) I traded certain death with certain death later on)

I had injections but don't remember the dose. I took 20 to 100 mg daily for 5 years which was how long a Primary Pulmonary Hypertension patient survives.

On the short term Prednisone caused depression. I had bouts of pneumonia and pleurisy (severe) for the next seven years.

Prednisone clearly saved my life. However it impairs the immune system leading to the pneumonias.
I went from 6'1' and 135 lbs to 265lbs and had a classic moon face. Some 30 years later I am a trim 170 with no fat.

I developed osteoporosis (bone thinning) and broke numerous bones including two ribs (one in two places) which happened when my wife clutched my chest during a love making session.. I no longer have osteoporosis, it took seven years to wash the steroids out of my body. You can get better.

Long term effects also includes avascular necrosis (blood vessels dieing in all my joint caps which has led to one hip replacement ( I would rather not have another)
And I have abnormal hemoglobin (beta 2 immunoglobulin) which are precancerous cells leading to Multiple Myeloma which has no cure.

It was discovered in my 30's that you could take large doses of Prednisone every other day and prevent the adrenals from shutting down. I have forgotten doses and have gone into adrenal shock. It takes a very long tapering off of the odd day dose but improved my life greatly. I took Prednisone for 10 years.

It has all kinds of nasty side effect but frankly it saved my life. It is killing me now at sixty; yet, I have had a bonus of 33 years of life and have seen my kids go to college and have a grand daughter 10 years old.

I have been throughly poisoned with steroids as I have with chemicals.

Prednisone has saved my life but it is too dangerous to take without strict medical follow ups. (this is a little hard to find these days)
The topical steroids which you put on the skin, inhale or any non-systemic use are pretty safe.

I don't regret taking them but regret more the fact that I needed them in the first place.

Patrick

The drug insert for Doxycycline says to take the medicine with a full glass of water, and it warns not to lie down for a half hour after taking the drug. IT IS VERY IMPORTANT TO FOLLOW THE INSTRUCTIONS. Doxycycline, along with a number of other drugs, is quite corrosive.

I was on doxy for about a week when I woke up with the feeling of something caught in my throat. I had taken it with a full glass of water, but I had laid down immediately. I guess the pill had found its way back up to my throat. That night, I went to the hospital, did a barium swallow, and I eventually had an endoscopy to check out the damage. Thankfully it subsided after a couple weeks, but I had horrible pill-induced Esophagitis. I couldn't even drink water without pain and a feeling that I was choking. I didn't eat solids for 2 weeks, took double-dose Nexium, and I had to sleep SITTING UP because I also have silent acid-reflux, but when this happened, I could feel it intensely. I was lucky it wasn't perforated.

Anyway, lesson learned. Always follow the instructions. This can also happen with NSAIDs like Advil, btw.

I have been on Warfarin since Sept 2004 when I had multiple blood clots in both lungs. Since then I have had two more PE's (one with a therapeutic INR) and a blood clot in my left arm (INR was also therapeutic). Genetic tests show nothing.

Since starting Warfarin I have had
- dizziness issues,
- eternal extreme fatigue
- hair loss
- short term memory and cognitive issues,
- joint pain and
- head aches all the time. I think the headaches are the worse since I can't take any NSAID's for them.

I have lost weight and push myself to exercise because it is supposed to make you feel better, right? Well not yet. I keep waiting.

I have not been able to return to work and worry about the long term implications of this.

Many times I have wondered about my sanity and if I was imagining all of this, so finding this forum at least lets me know that there is a possibility that it is not all in my mind.

I have been seeing a psychiatrist to help me work through the almost dying 3 times thing, but it is hard to accept since no one knows why I throw the clots. My INR is not stable in spite of close monitoring of Vit K and other drugs, and my INR must be taken twice a week.