School year symptoms and conditions

I already had experienced some bad side effects due to singulair with my daughter. She had become moody, emotional, having nightmares and those are just a few to mention. However, my son had no side effects. When I went to my children's pediatrician, she agreed some children do experience some side effects like my daughter was having. But somehow she didn't see it as quite a concern. I vowed then and there to take both my children off it. Then my son continued having his allergies and over the counter zyrtec didn't seem to help him. I went back to the dr. and because I trust her and have known her for many years....she convinced my to put him back on singulair since he had never had any previous side effects. Well, its been maybe 2 months and now I see my son acting strange. He is not himself. The normal activities he used to enjoy don't interest him anymore. For the last few days, he has been wanting to lay down and he says he's sleepy. To me, he is acting like someone who is depressed and he's only 5!!!!!! I am taking him back to the dr. and taking him off this horrible drug! For all you parents out there...I think we should all go with our "motherly" instincts and do what we think is best for our children. We are the ones that know our children on a day to day basis..not the doctor's. So I am kicking myself for not sticking to my original instincts. My daughter improved drastically! Even her teacher noticed a difference. Please if you notice something, take action before the drug does more damage.

I'm writing in behalf of my 15 year old daughter who is trying loestrin24fe to get some relief from her back pain and migraine headaches (which she inherited from me). She had a full period after just 10 days and has had a non-stop headache since starting this pill that won't stop even with her migraine medicine. I know it takes time for bodies to adjust, each is different and the doctor says give it 3 months- but she is considering just stopping because her headaches are so bad. I'm just not sure she can hold out for 2 and a half more months to give it a good try. Her acne is a lot worse too. Moody- yes, this was another thing we were hoping the pill would help with but hasn't. I'm sure this site is biased for people having problems since if it's working okay- why look up information on it? In any case, 30 years ago the lowest dose pill made me depressed, I barely made the 3 month mark before I stopped and I thought it would be different now. I have spent years before and after having kids using an IUD, and for me, that has always been the greatest birth control!

My 13 year old son has been on sigulair now for several years. I only give it to him during the school year. I have come to realize taht every fall when I restart it he complains of severe stomach aches. As well we have noticed a him morphing into a defiant, easily angered young man. Totally out of character for him. I have now taken him off and will hopefully be able to contro; his asthma with inhalers. No more singulair for us

I find it very interesting about the possible link between Singulair and visual disturbances. My daughter had been told (about one year after being on Singulair) that she had damage to a nerve in one eye. She had never received any type of head trauma and the Doctor could not figure out how this happened. He told us that eventually her headaches would get so bad that she would have to have her eye removed while they tried to repair the nerve, and then they would replace her eye. I would be interested to hear if there are any other stories similar to this.

Here is our daughter's story, and believe me the tears are pouring down my face as I am writing this.
Our daughter, who had completed her series of 3 vaccinations has been experiencing considerable hair loss. Her first shot was in May 24, 2007, the second on July 26, 2007 and the third and final on November 27, 2007.
Here are the other specifics....our daughter was 13 turning fourteen.
She has had every blood test imaginable to rule out the obvious which may cause hair loss such as thyroid disease, polycystic ovary disease, diabetes, and the list goes on and on. Everything came back negative. We even have a future appointment scheduled with a rheumatologist this coming November 08. We have seen the Endocrinologist and two dermatologists (a scalp biopsy proved negative to any infection, disease, etc. Granted, she had a typical amount of stress during the school year, as any young teen would, but nothing to cause this. Everyday our daughter says to us, "you should see how much hair fell out in the shower today". She's so afraid to brush or comb it because of the extreme shedding. She literally, to date has half the amount of hair she had one year ago. Let me tell you she had beautiful hair. The hair loss is becoming quite visible at the forward part of her scalp. This has been devastating, hair is everything to a teen. (to anyone this is devastating) We must also mention that her periods have been totally out of whack. She went 6 months at one point without one. It finally came back, but it is so sporadic, getting every two weeks, at times extremely heavy, etc...
She also complains of intermitent dizziness. We are reporting this to Merck today (the Co. who makes this horriffic vaccine), along with the FDA. If anyone else is experiencing anything close to what we are, we all need to pull together and make the public aware of what's happening so we can prevent this from happening to our loved ones.
Please share your experiences. Feel free to write me if someone you know is going through this same tragedy.

My daughter who just turn 7 has been on and off Zyrtec for the past 6 months. This last time it finally clicked... She was on it for about 3-4 weeks and I notice her mood changed and she was now very angry at anything and started hitting her sibblings and throwing things at me out of anger. She also was waking up at night either with bad dreams, or couldn't sleep. My husband and I realized that this all started about the time we put her back on Zyrtec. Two days ago, I took her off it and the next day she was an "Angel" compared to before. WOW what a difference. I did notice today (day two) she was sneezing more and didn't feel as well physically. So we are not out woods yet.

She also has been taking Singular for several years and I have been reading more about that medicine as well. I am not sure if needs to be taken off that yet, and will do an experiment. The timing isn't the best since school starts in just two weeks, but it might be worth it to have a happy child again.

On a side note, last year in school, they diagnosed her as having social anxiety. She is "extremely" shy and closed off in school. It would take her hours to do her homework which should have taken about 30 min. I am curious if stopping singular would help clear her head and make her less anxious. (She was on Zyrtec as well during that time).

This would be such an answer to prayer if it works. My two sons are so much happier than my daughter and I always wondered why. This may be the answer!

PRAISE GOD for all of the stories shared on this site. And I've only read page one. My husband called me back today to say that he "googled" Singulair and found some interesting things (to say the least). While we were on the phone, my three-year-old was in the throes of another meltdown, kicking me, hitting me, throwing whatever he could get his hands on. My older two boys, 8 and 12, were ordered, once again, to lock themselves in their rooms to avoid being hurt by him. He will throw stuff, bite, hit, kick, and, at times, spit on us. This disturbing behavior is rather constant lately. He is like a mad man. Very scary.

Caleb has been on Singulair since about age 1, when he was diagnosed with chronic sinusitis and allergic rhinitis. Unfortunately, we initially equated his rages with the onset of "terrible two's" and dismissed his behavior to a chorus of "oh, he's just a boy!" My husband felt, at times, that I was just not disciplining him properly. I intuitively knew, having raised two other boys, that this behavior was abnormal, even for severe tantrums. We received a variety of suggestions from his pediatrician, caregivers, and grandparents, all to no avail. We have several calm days but things always deteriorate back to insanity. He is VERY unpredictable.

Last Thanksgiving, Caleb (age 3) was kicked out of his daycare setting for biting and hitting. Once I witnessed him run as fast as he could into a group of playing children, falling on them, kicking them. He would walk up to sweet little girls half his size and push them down as hard as he could. It was a nightmare. My husband had to take 3 weeks of leave to stay home with him while we prayed and searched for new care. We had him evaluated and he was staffed into the "developmentally delayed" program in our school district (for poor adaptive skills and personal/social behaviors). We recently had his tonsils removed, hoping that some of the sinusitis symptoms and behaviors would improve. They really haven't. This past week we have been looking into the Feingold diet. We have been PRAYING for answers. The last time we spoke with his developmental neurologist, he recommended a trial of Risperdol (sp?). We feel like more meds would be like a band-aid, not a solution. But his rage is becoming unbearable.

So, that brings us to today. I was so moved by your accounts. Unlike so many of you, we don't have much of a "before" to go by. But his "after" sounds VERY much like what you have all described. It's probably the pure rage that I see on his face that is the scariest part. And at the same time he seems desperate and vulnerable. He truly seems to snap. If we had pool chairs, I can just picture him throwing them (citing another post :).

We are going to throw the Singulair away. He will never, ever have it again. Even if this isn't the cause of his problems, I certainly don't want to exacerbate any behaviors with this toxic medicine. I will post again just to let anyone who's interested know if this changes his behavior. I am praying that my entry will help someone else, just as all the other postings have helped me. I have renewed hope.

I have copied many of your comments to a Word document. I will be sharing it with a high ranking officer at the medical clinic/hospital on Keesler Air Force Base. I hope that he will discuss this with his staff and that perhaps we can at least make a difference here. I, too, will be filing a report with the FDA. I can only pray that this medicine has not permanently altered his developing brain.

My son is 10 ½, and had been on Singulair for almost 6years to treat his well controlled asthma and allergies. We have had behavior problems with him for years, but it seems to have gotten worse this school year, when his grades (he is in the gifted program at school) went down the tubes. Our family has been to counseling, where it was suggested we put him on ADHD meds. We resisted, but things had reached the point that I was ready to give the NEW meds a try. ARGH!!!!! Then my sister sent me a link for a story about the teenage boy who committed suicide. This was several weeks before the Singulair/suicide stories were in the news. I did some research, and I started reading these posts. It was like I was reading descriptions of my son!! I talked to several pharmacists and none of them knew of any behavior problems attributed to taking Singulair. Talked to his pediatric pulmonary doc, he knew of no connection, but said to try taking him off. He thought the allergy/asthma would be OK since he also uses an inhaled steroid every day. Well........... I thought I could see a difference in 4 or 5 days, my husband thought I was wishful thinking! But, since then everyone in his life agrees, he is a different kid! No moodiness, no unexplained anger, more on task, sleeping better. I could go on and on. There is no doubt in my mind, the differences started when he stopped taking the Singulair.

Hi guys,
I came to this forum after a client at our firm told me to check out whats happening with singular. I am not a lawyer, but I am a secretary for a med mal firm and I can tell you that we have already started taking these cases. I saw a few questions posted about whether you had to wait 9 months for the investigation to finish, but that doesn't stop you from filing suit. If it were my baby boy, I would switch meds, but if you can't--make sure you journal EVERYTHING. Take videos of outbursts, etc. We have one client who's son is self mutilating after using singular. If thats happening to you, try to document the episodes. Like I said, im not a lawyer, but I work for some so I can answer a lot of questions and I would be more than willing to help. I am so disgusted by what I have read. Please email me if you have any legal questions, etc. If i can't answer them, my boss will and if its a medical question, we have a staff nurse so I will give her a call. Again, I am so sorry for what everyone is going through. I pray to god I can help in some way.

Ok I haven't been following along for several days so I may have missed some info. But what I'm wanting to know is if anyone out there has had the their child off singular for several months and had the attitude problem get worse rather than better. I don't know what is going on with my son but he has been off the meds for almost 7 months and within the last month turned very mean and ill-tempered. We would get this reaction sometimes while he was on the medicine but now it's 10X worse. Could be totally unrelated, but I thought I'd through it out there just to see.

Update...Today is the 11th day my 7 yr. old son has been Singulair free! He was taking it for "cold induced" asthma. He never had the typical asthma where he needed an inhaler. He got RSV when he was almost 3, then whenever he got a URI it seemed to go straight to his lungs, so the dr. prescribed Singulair and Xopenex (to be used with a nebulizer). I had asked the dr. a few times to take him off Singulair because he seemed to be doing much better and I wanted to see how he would do without it. The dr. would say "oh, let's wait until summer or let's wait until allergy season is over" and kept putting it off. I just had some sort of bad "feeling" about it. Of course, I look back now and know with certainty that his wierd behaviors started around the time he started Singulair. I am relieved now because his erratic behaviors are almost totally gone!!!! When I heard the news I decided to take him off the Singulair immediately. I was nervous because he had a cold and a bad cough, but did it anyway. You know what? He is fine! His cough is almost gone now without the help of Singulair! He is much happier and can actually focus on doing his homework without getting up from his chair until he is done. Before he would get up about 10 times and just couldn't sit still. He has a better attitude about everything now! He is doing great! I hope everyone who was taking this and stopped is doing better! I learned a valuable lesson from all this. I won't put him or my other son on anything until I research it! I will not trust anything anymore, and that in itself is sad, but true. Good luck to all!

1st post 4/3: 8 year old boy with suicidal ideation...now 7 days off Singulair. His teacher reported to me today that my son is not the same child that he was 5 days ago. She stated that she hasn't seen him this happy or enthusiastic since the beginning of the school year. This was UNSOLICITED.
I told her that I took him off of Singulair last weekend. Unbelievable. My husband and I are still in shock.

UPDATE:It is now a week since my 6 yr old son stopped taking singulair. My happy boy is back! He has now had a second day in a row with positive reports from school. These are the first 2 positive days of the entire school year!!! Its no mystery anymore! I am 100% positive it was the Singulair he was on. It may work for some people with no side effects and thats great for them. But for those parents out there that had the slightest doubt I am telling you from experience to go with your gut! Speak to your Dr for alternatives and get back your happy children!

My 6 year old daughter has been off the Singulair for 5 days, after being on it for like 4 years. I have noticed some big changes for the positive... but she is still yelling at me when I have to get her up for school...and ight before bed. She is falling asleep a little better, and waking up less. But this screaming is so bad. I need to videotape it so people will believe me..as to how bad it is! Anyone else have some side effects still left, or did the all go away right away?

Our son started taking Singulair three years ago at age 4. Last year he started having really bad headaches and stomach aches. After taking him to the doctor, we thought he was having migraines and was lactose intolerant. He's always been a kind, gentle, well mannered child until this school year. He's in the first grade and has been starting fights, saying mean things to his classmates and hitting other children for no reason. He also has terrible nightmares that are very gruesome for a 7 year old. I've been wondering how in the world his little mind could come up with some of the horrible stuff he tells me he dreams. It scares him enough for him to come into our room and sleep with us. I'm so angry that we were never told of the serious side effects this medicine can cause. We're taking our baby off of this medicine immediately. I agree, we should all file a class action lawsuit - and I have the disciplinary reports from my sons school to prove how his behavior has changed. We're praying for all the children and families that have been victims of the greed of the drug companies once again. This is a shame.

Hi. My eight year old daughter has been on singular for 6 months. She has had chronic stomach pains that she says feel like pressure. Her appetite is terrible. She always says she isn't hungry. I have to search for anything I think she will eat. She is very tall and very thin for her age. She grew an inch in the last year but gained no weight. First time her growth just stopped. No surprise as she doesn't want to eat. I took her to the doc several times and they think she has acid reflux and have given her 2 different acid eliminators ( which freak me out as well) Said she should see a gastroenterologist. We have appointment in March . I started reading this site and thought well maybe it's the singular. So I called her allergist and told them I was taking her off to see if that's why she has the stomach problems. They said I could since it wasn't a big trigger time(seasonal) and she wasn't sick with any cold or flu) She gets mild asthma when sick. Her allergist asthma doc thinks her stomach aches are related to the mucus dripping into her stomach. I have taken her off all meds to try to see if it could be the Singular. She also has been very tired and can't keep up in her dance classes. Her school teacher had to put her in the front of the class because she said she wasn't paying attention. She seems to lose it over anything that requires focus or attention.She also seems kind of depressed. She is worried that something is really wrong with her. This child used to eat normally and is gifted academically .Her tests results(taken while on the Singulair) went way down from last year. She was put in gifted pull out program from last year results but would have barley made it in this year based on her much lower scores. That does not make sense to me. Never has had attention or focus problems before. I will keep everyone posted. Does anyone know how long it might take to get this drug out of her system? Has anyone else had this kind of reaction to this drug? I also wonder whether she had reflux before but this made it worse? I had her blood tested for Celiac and general stuff and nothing showed up.I wanted to get the Singular out of her system before we see the G.I. doctor. anyway thanks, Elizabeth

I have been on Topamax for a little over a year. I've had most of the side effects; tingling, numbness in the fingers, dry mouth, forgetfulness, and weight loss - love the weight loss. All the side effects have sort of slowed down as I've been on the medication longer. The weight loss has slowed and I've even began to get my appetite back- I'm afraid I'm going to start gaining weight now! I've lost about 40 pounds and I needed to lose it, so that was wonderful. I've had a very hard time losing weight all my life so this was wonderful.

I was addicted to Coca Cola and this med also helped me kick that habit because I lost my taste for the carbonation.

Does anyone know if the weight loss usually evens out after about a year or a year and a half? I need to lose about 30 more pounds and was hoping that I would continue losing weight!

Anyway, I was on the Topamax for headaches and it has completely helped that! It has truly been a God-send for me. Other than monthly hormone headaches, I don't get migraines hardly at all!

I am wondering about having my doc up my dosage for the weight loss aspect????

My daughter is 5 years old and has been on singulair for 1 week. i have already noticed a dramatic change in her behavior. she has become irritable, mean, nasty, and emotional. she has had me in tears on a daily basis. she has turned into a monster. we will be calling the doctor in the morning!