January 5th
2009
1:30 PM
I was on Advair for less than a year and the Doctor's kept upping my dose. I went off of it for about 4 months last spring because of the weight gain issue. then I got sick with a respiratory infection last summer and Dr. put me on it again -- and I started immediately having jaw pain and terrible headaches. Went to dentist and found out my teeth were disintegrating (called resorption). I go to dentist every 6 months for cleaning and have xrays each year and never had a problem or cavities. Genetically both sides of my family have very strong teeth for their entire life (into their 90's). So I saw many dental specialists and surgeons and it was baffling to them. I'm 44 years old and now my teeth and jaw are a total mess. I've had my front teeth pulled and multiple bone grafts. The reconstruction process (if it works) will take more than a year and over $25,000 (not covered by insurance). And my Doctors still don't know if my other teeth now showing problems will also eventually fail as well.
And I didn't associate the Advair with the problem until I started to take Advair again (2 months after last jaw surgery) and almost immediately my mouth start gushing blood from where the bone grafts were healing. I stopped Advair again -- waited 2 weeks and took it again (just to make sure) and again severe bleeding occurred. I wrote the scientists that were testifying before the FDA's Advair Black Box hearing that this drug should be illegal. At 44 years old I am looking at the prospect of being disfigured for life, no less and issue is the enormous cost that it presents -- and who is going to hire someone with missing front teeth (it has destroyed my career as well).
Before I took Advair I never had joint pain, GI issues, much less teeth/jaw issues and now this is my reality everyday. I feel like I aged 20 years by taking Advair for 1 year. I also know that this damage is permanent and likely to continue to get worse despite having stopped the drug. I think GSK knows how dangerous this really is. I also think it stays in your body a lot longer than they say it does. We know it kills people and they admit it does. STAY AWAY FROM IT!
All Steroids are equally terrible -- stay away from Prednisone, Pulmicort, Nasonex -- they are all killers.
-- By jenrose | Reply | (2) replies | Private Message me
November 15th
2008
1:00 AM
I was diagnosed with bronchitis a couple of days a go and was given a 5 day course of Levaquin 750mg. The doctor also gave me a prescription for the Z pack in case Levaquin did not work. Before I went to the doctor I had a fever of 102 for 5 days so I was ready to take anything. That evening Nov. 11th 2008 I took my first pill... and my last one. The onset of side effects started within 3 hours. It began with an extreme blinding headache and a very stiff neck. I finally fell asleep and had the most intensely bizarre dreams which I woke up from several times to find my self drenched in sweat. The night sweats were extremely intense and followed me through to the next day. I could not stop sweating... My head was pounding in pain, it felt as if my brain was swelling though my fever had subsided. I proceeded to turn the tv on to try to distract myself, but as I was doing so my mind was racing and I found it very difficult to organize my thoughts. My vision was very isolated meaning that I felt like I had lost my peripheral vision all together. I was unable to read silently without hearing the words in a loud voice in my head...very very strange. I had zero appetite and experienced serious diarrhea the next day. This drug felt overwhelmingly powerful kind of like dropping a nuclear weapon on a small village. I felt like my body was on fire for a moment as if i was given chemo therapy. While trying not to panic I realized that a lot of my joints were cracking. It was then I decided to go online and do some reading about this drug...WOW... I mean WOW... How do scientists manage to create a drug that can actually snap tendons... We can't cure anything but we sure can napalm the hell out of anything. That being said I decided to call my doctor and said WTF were you thinking giving me this!?! Needless to say it took about 60 hours for the one pill to wear off. I am terrified to think what would happen to me if I had finished the 5 day course. I know the one pill caused some damage, hopefully nothing permanent. I am now on the Z pac and it is very mild in comparison. Please listen to your body as I did and immediately discontinue use if you experience any side effects. I firmly believe that this drug is something you take only if you are dying and there are just no alternatives ie Anthrax.
-- By chromeheart | Reply | (1) replies | Private Message me
October 12th
2008
10:31 PM
My daughter was prescribed Singulair in the spring and it worked wonders.Since her allergies and asthma don't bother her in the summer I took her off for those few months.Since she has been back on the last few months I notice once and awhile an aggression/depression behavior.I thought immediately that it was Singulair causing this but it wasn't everyday it happened.I believe that activity,schedule,and even food in combination with this medicine that was cause this rare effect.It's no news to parents that all of these things can change a persons attitude and behavior.I also believe that Singulair may just make people more sensitive to their true self as my daughter has always been paranoid and has lacked self esteem.I think that it is trial and error as with any medicine.Try it and it may or may not work for you.Taking it off the market would be a disgrace as it has saved many lives.
-- By d27gayle | Reply | (4) replies | Private Message me
September 9th
2008
8:53 PM
Several years ago I saw a doctor at the University of Iowa Hospital and Clinics in Iowa City, IA and was diagnosed with a chronic disease. Although most researchers and scientists will tell you lifestyle and dietary changes are essential when diagnosed with a chronic disease, my doctor, Dr. Anne L., told me they don't matter. In the spirit of "Do no harm," dietary and lifestyle changes are often the first things doctors recommend their patients change.
Instead of harmless lifestyle changes, I was put me on a lot of dangerous prescription drugs. One of those dangerous drugs was prednisone.
It didn't help my disease, but its side effects have been devastating and debilitating. And these side effects are particularly annoying because I was told this was a drug that didn't have side effects. (And when I learned about the side effects, I wanted to stop using it, but my doctor told me I'd die if I did. So I had to keep using it. Once you're on prednisone, you can't stop taking it abruptly. It really can kill you. So before you take it, you need to be informed. If you later found out its a drug you don't want to take, you can't just stop.)
But this is what I really wanted to say.
Look, prednisone's a bad drug, and most doctors don't prescribe it so casually anymore, but under the care of a good MD, its effects can be managed. Most docs will tell you right away when you go on prednisone about the side effects that most people are concerned about, like weight gain and acne. The fact is, those things actually matter not just superficially, not just for self-esteem, but in terms of people's overall health and even for managing the chronic disease for which prednisone is likely prescribed. If one becomes depressed, this not only affects one's overall general health, but for many chronic diseases, it can cause the disease itself to relapse. And because prednisone itself carries a risk of depression, managing such side effects, side effects that are likely to make a patient become depressed, is paramount.
Certainly most doctors will readily prescribe either topical acne treatments oral antibiotics for cystic acne which prednisone often induces. For the weight gain itself, ignoring the chronic disease for which prednisone is probably being prescribed, doctors often recommend a different diet to the patient.
My point is just that prednisone isn't as evil when you have an average or mediocre doctor.
Now, on the other hand, prednisone really is a bad drug to begin with. So under the care of a bad doctor, it's almost inevitable that you're going to experience permanent side effects and yes, under such incompetent care, this drug could easily ruin your life. That's what happened with me.
So make sure you have a good or at least mediocre doctor if you're using this drug.
And as far as dietary and lifestyle changes, I've been able to manage my disease solely with dietary and lifestyle changes. So I didn't need prednisone in the first place. Regardless, I would never take this drug again and I would not recommend anyone else take it unless you have exhausted every other possible option, unless you know you're doctor is competent, unless you know about the risks and side effects and what to do when they occur.
I never would've taken if I knew about the side effects. It's really quite stupid to use this drug as a first-line treatment, which is how it was used in my case. It should only be used as a last resort, if at all.
If I had never taken prednisone, I would be perfectly healthy today. My chronic disease itself doesn't influence my daily life at all anymore. But every single day the side effects of prednisone are evident and debilitating and will be for the rest of my life.
-- By bresson | Reply | (1) replies | Private Message me
August 3th
2008
4:38 PM
I have never experienced the side effects of statins myself. I have never taken any - nor would I if my numbers should be too high.
I have had the opportunity - or rather was forced to - to "educate" myself on the cholesterol issue as i had 3 relatives suffering from side effects.
They were all over 70 and had taken Simvastatin (Zocor) for years.
In 2003, when I had just got an Internet connection, I started to look for information and was surprised to find these sites:
******
I also found "Stopped our statins" (google for those words) where there is a lot of information.
Under print articles you will find a very informative article from The Weston Price Foundation about the different statin studies over the years and also about the side effects.
Are you sure that a high cholesterol will cause heart problems - or is it just propaganda from the pharmaceutical and health industry?
After having visited some of these webb sites and read some of the books you might have changed your mind - like I did.
Your cholesterol is very important for your body and essential for your brain among other things.
Why should you live better and longer if you use medications to lower it?
It`s just to read all these patient stories - what quality of life is this?
I would suggest that you also read the messages for the other statins such as Lipitor, Zocor (=Simvastatin) etc.
All statins have similar side effects.
Here are some books that you might find interesting. Some about the cholesterol issue.
The Great Cholesterol Con (Antony Colpo)
The Cholesterol Myths (Uffe Ravnskov)
Lipitor - thief of memory (Duane Graveline
Malignant Medical Myths (Joel F. Kauffman)
--------
Overdosed America (John Abramson)
The Truth about the Drug Companies (Marcia Angell)
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Bitter Pills (Stephen Fried)
about quinolone antibiotics such as Cipro, Ciprofloxacin, Levaquin etc.
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The Antidepressant Fact Book
Your Drug May Be Your Problem
Toxic Psychiatry
Medicine Madness
(Peter R. Breggin - all books about psychotropic drugs)
____
What if medicine disappeared?
(Gerald E. Markle and Francis B. McCrea)
How doctors think
(Jerome Groopman?)
-- By swedish | Reply | (1) replies | Private Message me
July 22th
2008
9:31 AM
On lipitor for 1 1/2 years.... starting taking yoga a month ago. Had ache in knee and leg which then went to toe on other leg. Thought it was overstretching from yoga. Pain moved to hips and lower back. All very painful but worst was yet to come. Pain moved to neck and shoulders. Could not move head. Excruciating SOBBING pain. I was in so much pain for weekend. Everyone wanted me to go to emergency room but I wanted to stick it out til Monday.
PS... went on web. Saw this is lipitor side effect. never would have expected that after 1 1/2 yrs on a 10 mg dose.
Went to pain management doctor ... got Soma (muscle relaxant), an oral steroid and Percoset. Relief was almost instant.
Called my cardiologist. He says it is the Lipitor.
No more statins for me.
And back to yoga.
April 9th
2008
11:42 AM
My daughter had an appointment with a gastrointestinal doctor this morning because of her stomach problems. (She has been off of Singulair 10 days now and ALL symptoms- leg pains, abdominal pain, dizziness, sensitivity to light, severe mood swings, depression, anxiety, severe tantrums have all vanished) We kept the appointment with GI because our physician advised us to. He found it hard to believe that Singulair could be the cause of all of her symptoms. Well the GI also found it hard to believe that Singulair was the cause but said, "The proof is in the pudding." I have filed a complaint with the FDA on medwatch.com. It was very easy. I have also asked the doctor to file one as well. I also gave the doctor a printout of the studies done. Hopefully with more and more people filing complaints the FDA will act quickly. There is so much indisputable evidence regarding adverse reactions. It is unbelievable how many stories sound just alike. So many children have lost years of their life due to this drug. Parents have spent so much time and money trying to figure out what is "wrong" with their child. It is a shame so many have been incorrectly labeled all because of a drug they were taking!!
-- By rams0509 | Reply | (2) replies | Private Message me
April 2th
2008
6:44 PM
A British study suggests that Singulair should be studied for possible psychiatric adverse drugs reactions in children. I don't have this access to this journal so I have to try to find it. I will get back to you on what it says specifically.
BMC Clin Pharmacol. 2008 Mar 17;8(1):1 Links
Individual case safety reports in children in commonly used drug groups - signal detection.Brunlof G, Tukukino C, Wallerstedt SM.
ABSTRACT: BACKGROUND: Due to few paediatric drug safety studies, knowledge on risks of drug treatment in children is limited. The knowledge needs to be increased to make proper risk-benefit analyses possible when treating paediatric patients with drugs. The aim of the present study was to investigate drug groups commonly used in children concerning type and frequency of individual case safety reports in children. METHODS: Number and type of individual case safety reports in the 30 groups of drugs (5th level ATC-code) most sold (number of defined daily doses) in outpatient treatment to children (<5 years old and experiencing psychiatric adverse drug reactions. CONCLUSION: The number of individual case safety reports per million defined daily doses varies in different groups of drugs. A possible signal for montelukast and psychiatric adverse drug reactions was found, which should be further explored.
PMID: 18366638
The key sentence is:
A POSSIBLE SIGNAL FOR MONTELUKAST (SINGULAIR) AND PSYCHIATRIC ADVERSE DRUG REACTIONS WAS FOUND, WHICH SHOULD BE FURTHER EXPLORED.
-- By concernedcitizen | Reply | (2) replies | Private Message me
January 3th
2008
1:19 PM
I used Yasmin for almost 3 years between 2004 - 2007. I loved it....my periods were regular, I had little acne, and I hardly had any PMS. Then I got pregnant (after stopping the Yasmin!) with twins and delivered them in late November 2007. I was so happy to know that I just knew which type of birth control I wanted to use, I had a great experience while on Yasmin so of course I would go back to it!
BAD IDEA! 4 weeks after the babies were born I started the pills. Mind you, I had a great pregnancy and lots of help at home...no post-partum or baby blues here. I started the pills on 12/23/07 and by 12/25/07 (Christmas Day) I was feeling majorally depressed, having emotional outbursts, having irrational thoughts....I felt alone and as if no one cared about me. I secluded myself and had suicidal thoughts. I thought about leaving my family and living in a hotel. I would get so mad at the littlest things....I almost threw a chair at my husband and tried to punch a hole in the wall. I cussed family members out. I was so irrational. I felt like a crazy, psychotic woman and all in less than a week. This was NOT me.
I quit the pill after the first week, realizing that this pill was causing all these side-effects. I called my OB and spoke with the nurse who told me what I was experiencing couldn't be from the Yasmin - those weren't common side-effects. I told her that I was 1 day Yasmin free and felt like a completely different person...I was myself again. She tried to tell me that maybe I was experiencing post-partum depression and I decided then to just make an appointment to talk to my OB (about Yasmin & his nurse!).
I have an appointment next week and am curious as to what he will say. I know it was the Yasmin and I am glad that I found this website & that I am not alone!
-- By breezee | Reply | (4) replies | Private Message me
November 21th
2007
11:26 PM
After a stay in the hospital for my asthma 18 months ago, my doctor prescribed Singulair. I had already been taking Zyrtec for a long time. It finally dawned on me a few days ago, that it's primarily at night that I have difficulty breathing. Come to find out, this sensation starts not long after taking my Singulair. And even though I have fibromyalgia and osteoarthritis, I've noticed that the pain and aching have become so much worse - now that I think about it, since I've started taking Singulair. And the hair loss that I was attributing to getting older - the same thing, since around the time I started taking Singulair. I'm going to try not taking it for awhile and just hope my asthma doesn't get worse, because I've not had to use my puffer or be in the hospital since I started taking the Singulair. Wish some scientists would get working on this.
-- By mtnmamajan | Reply | (1) replies | Private Message me
February 1th
2005
7:16 AM
The doctors like to tell you that they put you on BCP's for endometriosis. However BCPS" with estrogen in them help make a lovely little womb for endo to grow, and grow, and grow. Then they tell you that progesteron is what drys it up and gets rid of it. But progesterone makes you crazy! Yasmin is not to blame, it's the scientists that can't seem to figure out what cause this disorder or what can fix it. Doctors give you drugs to get you out of their office. But the truth is, there is nothing that works. And if they suggest Lupron depot( induced menopause), or even depot provera(=3 month long never ending period) tell em to stick that needle in their body and see how it feels. Until then, just try to exercise and keep healthy. B/c these doctors don't know anything, and can't help us in any other way than by prescribing percocet. So the best way to beat it is to stay healthy, mabey have a child or too if that is still possible, and then just have em do a hystorectemy, b/c non of these drugs will ever work, until these scientists actually do some research instead of just trying to sell a drug.
-- By ro1juliet | Reply | Private Message me
Singulair (5) PredniSONE (2) Yasmin (2) Lipitor (2) Levaquin (1) Simvastatin (1) Advair Diskus (1)
January 14th
2009
3:17 PM
OK,well,as you have probably read by now,there was not enough evidence of a link to suicide in the clinical studies,but in the smaller print it notes that this avenue was not really in their study,so maybe those questions were not asked.The FDA says it needs more time,maybe months to figure it out.No surprise there i guess.Amazing to us,who's children have suffered,and clearly saw a recovery take place when stopping singulair,but we are not scientists,just mothers and wives,who do not pocess the intellectual capability to no the ins and outs of science,or so they would like us to believe.Clearly we saw our children suffer,clearly we saw our children recover,clearly the link was singulair
-- By flindy | Reply | Private Message me