September 12th
2008
2:17 AM
I've been on Lisinopril for about a year and a half now. I thought some of my side effects were just my bad health - tingling in my hands and arms and legs and feet. I've been in ER a time or two in fear of heart attack and they cannot usually find anything particularly wrong with me or my heart. I thought since my blood pressure was down, that this medicine was a life saver. I had no idea these side effects could be from the medicine. Especially since they were pretty mild and sporadic originally and only in the past few months have they seemed to increase almost daily. Also I had to get an ultrasound for my enlarged uterus and I believe the pressure I feel (I had no pressure just a few months ago) is due to the increased side effects of this drug. My concern is this, how do you safely wean yourself off of this junk once you've been on for years. I don't want to even take any more bp medicine - hbp will eventually kill me but feeling daily like I'm going to die at only 36 is not worth living a long life if these symptoms are all I have to look forward to. Save my heart, but give me neurological disorders? I don't think so.
-- By djg315 | Reply | (2) replies | Private Message me
September 5th
2008
2:42 PM
Five weeks after my daughter received 2nd dose of gardasil she began complaining of neck pain & stiffness. Fevers accompanied this for about a week. I found her early one morning seizing and foaming at the mouth. By the time we arrived at the er via ambulance she was in respiratory failure and had several seizures. She was intubated and continued seizing repeatedly for several days. She was placed in a medically induced coma for six weeks in hopes of "resetting" her brain to stop seizures, as there was no explanation as to why they started.After coming out of coma seizures continue and still do after one year. She has brain atrophy, gait abnormality, severe behavioral and emotional problems, memory impairment, ticks, numbness to limbs, impulsive uncontrollable erratic behavior, and of course uncontrolled seizures. After several months in hospital and numerous tests there is still no answer. She was perfectly healthy before this vaccine. She also received 3rd dose and was hospitalized again for increased seizure activity. She needs constant adult supervision at all times, falls when seizing, and is unable to carry out simple activities of daily living without reminders and supervision. She is almost fourteen and is living with the mentality of a 5 year old.She has no chance of ever leading a normal life.
-- By raemcculloch1 | Reply | (1) replies | Private Message me
August 26th
2008
1:28 PM
WoW! I am SOOOOOOOOOOOO glad I found this website!
I had been taking Lisinopril HCTZ 10-12.5 once daily since April of this year. I was on Labetalol 200mg/2x's daily as I developed Hypertension during my pregnancy. Once I delivered my baby I was then switched to Lisinopril HCTZ by my primary care physician.
The Lisinopril did wonders for my blood pressure but by mid-June I started having side effects. I went to my doctor numerous times and then to the ER since I thought I was having a heart attack. The ER doctor suggested that I was having panic attacks or just symptoms from the cold I had. So, I went to my primary doctor and she immediately jumped and gave me Prozac. Never once did either doctor ever link the symptoms to the Lisinopril.
My symptoms included:
*Light Headed
*Dizziness
*COUGH COUGH COUGH!!!!!!!!
*EXTREME DIARRHEA - Everything I ate or drank came out like water almost immediately!
*Chest Pain and pain down into my left arm and fingers
*Chills
*Blurred Vision
*Rapid Heartbeat
*Cold/Sweaty Feet
*Sweating
*Bloated Feeling
*Tight/Itchy Skin
*Rash on chest 2x's
*Nausea
*****Panic attacks and feeling like I was going crazy!!!!!******
Upon finding this website Friday, August, 22nd, I went to my doctor and told her NO MORE was I taking this medication! It's POISON! I am now taking Ziac 5/6.25 once daily. Ziac like Labetalol is a Beta Blocker rather than an ACE Inhibitor and may not be as effective but I sure would rather this than Lisinopril.
I am still experiencing some of the side effects of the Lisinopril but I am hoping that they will deminish soon. PLEASE!!
I, like a lot of others have mentioned on this website felt like I was loosing my mind. I felt like I couldn't explain all the things I was feeling because some of the feelings just didn't come out right and did make me sound crazy. At one point my doctor told me it was "all between my ears!" Okay?!?!?
I hope this has helped others and I plan on making a complaint on the FDA website, this medication needs to be removed from the pharmacies! It's poison!
If anyone knows how long the side effects last after stopping this medication I would surely appreciate the info!
July 26th
2008
9:50 AM
I am a 39 year old white male that had aortic valve replacement surgery five years ago. About three months after the surgery (which went off without a hitch) I had a tremendous spike in my BP that went on for a few days (200/100 - enough so I could see my heartbeat in my eyes!). My Dr started me on Toprol XL 75 and while it brought my BP down some, it didn't bring it down a lot. He moved me to 200 mg a day and now my BP is around 105/55 with a resting pulse around 50.
While I experienced many of the side effects listed here (feeling groggy, confused, etc) they only lasted a few months. I must admit that I did pack on about 20 lbs over six months. However, unlike so many who choose to blame drugs (or lack thereof) for their problems, I took it upon myself to start exercising and guess what?!? The weight comes off! I now weigh less than when I graduated high school, I am in better shape than any time in my life and I believe that exercise helps me sleep better at night. All of this even though I still take 200mg a day. Given that some of you say that you're practically dead at taking 25, I should be 6 feet under or weigh 400 lbs.
I guess what I want to say is that perhaps instead of jumping on the bandwagon here that Toprol causes all of your problems, perhaps you want to take your own health into your hands and begin to eat a little better and exercise (and don't give me "but my ankles are swollen!" excuse - there is something called water aerobics). I don't deny that it can cause some side effects, but it can work wonders with your BP. You just have to DO SOMETHING to help keep the weight off (which then help with the sleep problems, mental clarity, etc).
-- By thom228 | Reply | (3) replies | Private Message me
July 3th
2008
4:18 AM
OK FOLKS -HERE'S A GOOD ONE FOR YA- Just over a year ago I was on a heart transplant list. Today my heart function is normal and I am off ALL HEART MEDS. Even after finding out my heart function level was normal I was still living a nightmare for some unexplained reason. After MONTHS of tests and everyone telling me I was nuts a neurologist finally found out I was having seizure activity. Funny how my "seizure activity" feels EXACTLY how I felt when they increased my beta blocker dosage. I'm telling all of you.. This beta blocker helps some but they are burying their mistakes. I now know all of my ER trips, only to have them laugh and have them send me back home, were do to seizures caused by beta blockers while I had heart failure. I'm lucky to be alive.... and now that my heart function is good I have to fight this seizure BS. *REMEMBER THIS - Only YOU know what your body is telling you.. LISTEN TO IT! But do be careful.. You can't just stop taking a beta blocker.. Good luck all cuz we sure need it!
-- By deucey22 | Reply | (3) replies | Private Message me
May 2th
2008
11:43 AM
I have been on Lamictal for approximately 7 years. The product initially seemed to work a bit on controlling my seizure activity, and did provide a bit more confidence in social situations. At this point I was taking 400mg per day, and had little side effects other than the absent mindedness, and occasional problems with vertigo.
Briefly, about a year ago, I began having an increasing number of partial and general seizures, and was brought up to a dosage of 700mg per day. It was at this point that I began noticing what could only be called "hard-core" side effects. These included days where I was just totally confused, paranoid, suicidal, having an unrelenting feeling of not being able to breath, feeling bloated in my abdomen, and regularly being struck with a very irregular, very scary, rapid heart beat.
At this point, I am taking 600mg per day, and am still having most of these side-effects, but in decreased frequency. My neurologist never mentioned any of these possible symptoms, and doesn't seem overly concerned about any of the problems that I have mentioned in the past. With this in mind, it is somewhat relieving to see that there are others out there who are noticing similar effects.
If anyone can explain the difficulty breathing thing a bit more, it might help me wrap my brain (no pun intended) around this whole mess. I'm not sure if it's related to a decrease in blood pressure - I've been monitoring mine and haven't seen any irregularities. Or if it's related to a decrease in the amount of oxygen in the circulatory system due to the drug itself, or as a side-effect of the shallow breathing I have read about in other posts here.
April 9th
2008
6:27 PM
I have posted in the past about my 9 yr old dd who was taking singulair for 3 yrs. Upon finding all this information about singulair and way before it hit the news .My dd was being tested for many different problems nuerologically wise. Trying to rule out depression,bipolar and ADHD. She had an eeg and labs done a few days after stopping singulair. And just today we went in for results and nuerologist says labs are normal but eeg was not . Meaning that she could possibly be having seizures. BUT NOW I AM WONDERING IF IT WAS SINGULAIR CAUSING THIS? I read somewhere that seizures can go unnoticed if they are very mild. But she did having trouble sleeping and concentrating. And at times even just stared off into space after we spoke to her repeatedly. My question is has anyone had any similar experiences with singulair ? Please respond.
-- By momof3angels | Reply | (3) replies | Private Message me
August 21th
2007
9:26 AM
I have been prescribed Lamictal for seizures, and am currently taking 400mg daily, with my 300mg of Dilantin. Had horrible side effects this weekend-nightmares, exhausted, worsening depression, crying jags, difficulty swallowing. Has anyone else experienced mood changes for the worse while on this drug?
-- By gusgus | Reply | (6) replies | Private Message me
July 19th
2007
6:49 PM
Took mostly for seizures, but have been informally diagnosed with Bipolar II.
Had tremors at night, almost immediately, marked anxiety, weight loss, strange heat flashes, severe headaches (already have a migraine problem), complete w olfactory hallucinations (could have been breakthrough simple seizures, or headache auras).
Felt detached from myself and others. But the most disturbing symptom of all was auditory hallucinations. I have no history of psychosis and this only happened after starting Lamictal. Basically I could hear a constant chirping sound, subtle, but loud enough at night to keep me from sleeping unless my radio was playing to distract me from the sound. Could it have been a new form of seizure? Maybe, but regardless, the sounds started at the time I started this drug. Plus, according to a psychiatrist, I had no signs of psychosis, just the unexplained phantom sounds. One last possibility: Maybe an inner ear problem. Still would like to look into that.
People are right when they say this is still an experimental drug. If I had known what I was getting myself into, I never would have tried this drug to begin with. If any of you have had auditory hallucinations on this drug, without a history of any sort of hallucination or psychosis, PLEASE respond here and let me know about your experience. Thanks!
-- By drugsensible | Reply | (4) replies | Private Message me
October 16th
2005
11:57 AM
My son has been takiing tripeltol for over a year, he is only 11 yeard old; he has been expresing extreme aggresive behavior in the last year or so. He can not communicate very well what he is feeling, but he is in extreme disconfort (unhappy, aggressive, mad, grauchy, etc.) I am starting to believe that trileptol is the cause; he is also taking geodon and abilify, which are suppose to control bal behavior. However, nothing is helping. Am I in the rigth track believing that trileptol is the cause of his bad behavior?
-- By pat94 | Reply | (3) replies | Private Message me
July 1th
2005
7:47 AM
I am sure glad to hear from other people about the side effects of this drug. It did help bring my blood pressure down, also taking furosemide (lasix) and labetalol, synthroid and was diagnosed diabetic and am controlling it with diet mainly. This all started about 5 months ago, when I found out all these things plus I had pneumonia. I've lost about 60 pounds since then, and have been doing pretty well. My doctor stepped my pressure down, not all at once, and only after she upped the lisinpril did I have any negative reactions, and that was what some might call lightheadedness, but someone on here referred to as "not quite right," and that's what I'd call it.
I woke up Tuesday, went to have breakfast, take my meds, went back to bed as always, maybe nap a bit, or listen to music, dozed off when alarm went off, got up, went to get dressed, then felt the not right feeling only worse, think I sat down, found myself on the floor a minute later, wondering why my face was in the carpet. Luckily,I have only a black eye and some carpet burns. I think it was too much meds, went to my dr, who put me in the hospital, ran ekg, fine, had me on a heart monitor that day, next morning , had a cat scan, found out that was normal this am, but the eeg showed "possible" seizure activity, so I'm waiting to hear about another eeg, when I'm walking around, and to see a neurologist. My dr did cut the lisinopril in half, and seems to be helping. I also have the dry cough, but not too bad.
I'll be checking out the side effects of the other drugs whi;le I wait,too.
Just turned 50 last month, NOT the way to celebrate.
Thanks for being here.
April 13th
2004
12:38 PM
Xanax works really well when I first started taking xanax the only side effects I had was sleepyness. BUt after a couple days it wore off it helps me deal with several issues that I have going on in my life. I have bipolar depression as well as seizure activity and it has helped me come a long way. I used to cry everyday when I first got up thinking I didnt like my life anymore but since I have been on the Xanax I dont feel like crying as much I still have my days but they arent as bad as they were a year ago.
-- By fearisafactor | Reply | Private Message me
April 18th
2003
11:09 PM
To who it may concern,
Hello, my name is christel mahler. I have a question to ask you which I hope you can help me with. I've been getting seiures since 4 years old and i've been taking different kinds of medications until it was under control. I get seiures every week, and my neuroligest is trying on me different medication on me. I'm taking right now, Lamictal 25 mLg and 100 mlg. I'm also taking trilepal 150 mlg which is a new medication and so is keppra 500 mlg, which I'm taking right now. I just got off tegretol XR-400 and 100 mlg, which I took also. I'm taking trileptal now which my DR. subscribed to me, which he just put me on besides keppra 500 mlg. I like to know if the Tegretol that I've been taking,(which I'm off now),if that has side efects like seeing double vision and not be able to see straight and lose balance? Please let me know? Does keppra 500 mlg, trileptol 150 mlg, and Lamictal 100 and 25 mlg also causes that also? Please let me know, Please? My dr. got me off slowly on the Tegretol 100 mlg and increased my Trileptal 150 mlg to 10 pills a day, 5 in the morning, and 5 at dinner time, and seeing double also.
So I told my dr. that I've been getting double vision, and he said to go down to 4 pills in the morning, and 4 pills at dinner time, which I'm taking now at this time. I've been seeing double vision everday when I took 10 pills a day. Since I'm down to 8 pills a day of the Trileptal, I've been seeing double every so often. Why is this happening? Does the medications that I'm taking causes this? Is this side effects of the medication? Let me know. I/m really nervous about this. If this is not the medication thats causing this, then what could it be from? I like to know very much. I hope you can help me? Please get back to me as soon as possible, I really would like to know about this? Thanks for listening to me and being patient with me, I appreciate it very much. Please Respond.
P.S. I hope to hear from you.
My E-Mail is: christelsplace@earthlink.net
Sincerely,
Christel Mahler
Lisinopril (4) Lamictal (3) Trileptal (2) Toprol-XL (2) Boniva (1) PredniSONE (1) Singulair (1) Xanax (1) Qvar (1) Tegretol (1) Gardasil (1)
September 19th
2008
9:15 PM
Listen EVERYONE. A LOT of the pills you are going to take have side affects and A LOT of them react with the other meds you are taking. It is a horrible time because you mostly attribute your feelings to your sickness and you want to trust the "system" to take care of you...Well be VERY CAREFUL HERE. I BEAT HEART FAILURE. I'm 34 years old, I went from transplant list to normal heart because of the research I DID ON MY OWN and today = NO HEART MEDS.. NO SURGERY.. BUT NOW I HAVE SEIZURE ACTIVITY IN MY BRAIN WHICH I KNOW THESE DRUGS DID TO ME!! There is no doubt. I felt so bad for so long, just like you all do... But once my heart function went up I still felt horrible... Only THEN I knew to get off the meds, but by then it was too late. It had done it's damage. Instead of just being a heart failure success story.. I have a new sorry chapter to battle with this seizure garbage. This "seizure" feeling which I had when I first started taking the meds now remain even though I am off. FYI - Did you know Lisinopril is made from SNAKE VENOM??? LOOK AT YOUR SIDE AFFECTS>> SOUND FAMILIAR???..Look it up.. It's true. I know it's a tough call though.. What do you do?? You need to do something to help your heart right? Just listen to your body.. That's the best advice.. Your body talks to you. Listen to what it is saying to you. Some people can handle certain drugs and some can not. Just like some people can handle a bee sting and some can die from one. Simple concept really but for some reason it boggles doctors minds if you have a bad reaction...doctors are not gods... Do your own research like I did. It will give you an edge and help you feel less confused. Know your medication: what it is doing and why... EMAIL ME.. ALL COMMENTS WELCOME_ I Will have a Heart Failure website someday so I can help others... but for now I have to figure out this seizure thing.. Good luck.
-- By deucey22 | Reply | Private Message me