Seizure disorder symptoms and conditions

I have been on Paxil off and on now for about 5 years.... the current length of treatment for the past 1 1/2 years. I need to be on it ( or something for that matter ) for my panic disorder. I am a 36 year old nurse/ manager and some days was almost debilitated by panic attacks. Depression was part of it, but not nearly as much as panic. I must say, that I have been experiencing memory loss now for about a year.... I thought maybe it was due to overwork/ stress...which I do understand it COULD be. However, I find it interesting that I am seeing so many more people with memory loss than I imagined. Is it due to stress in this type of people's lives, or is it in fact, the drug Paxil?
Keep in mind this is an SSRI ( Serotonin Reuptake Inhibitor ) ~~ even though there is no solid evidence (YET!) this is a side effect of the drug, I would bet my license on the fact that that it is!
I have tried time and time again to wean myself off of Paxil.. ( with and without my Dr's advice )--- I did succeed for a few years to be without the medicine, however being on a slew of other meds in the interim did not help as much for the panic as does the Paxil. Paxil, honestly, scares the hell out of me!
Besides the "numb emotions", memory loss, sexual appetite decrease, yawning, lack of sleep, etc... the side effects of coming off of it are worse! As I read earlier, it IS addictive, indeed! The brain gets used to the drug being there ( as with any addiction ), and the "surges" of dizziness, sweats, and out-of-body-like experiences I experience coming off of the drug are excruciatingly harder to bare than the depression itself. Those above symptoms of withdrawal are just that....withdrawal!
Once your body is "allowed" to reuptake serotonin (as it is supposed to), this is when those symptoms raise their head...sometimes for weeks or months until they subside.
I would welcome anyone with help on this matter---is there another Drug out there that can help with anxiety/depression symptoms, and not cause the plethora of side effects we have all discussed here?
Diane

I have been on Lamictal and Topamax for approximately 4-5 years now. I also take effexor. I have a seizure disorder. At first everything was alright, however now I have been having double vision, staggering, memory loss that has occurred slowly within the last two years or so, and of course as with most meds the usual diarrhea or constipation. I wonder how long does it take being on medication for these side effects to kick in? I read all literature whenever I start a new medication even if it is a OTC drug. (over the counter). I just got out of the hospital and am being sent from one doc to another. I feel like a guinea pig in a lab! Please help!

lamictal controls seizures if you take it at the right time. i am on 200 at night and 200 in the morning plus epilim. sometimes i just sit and cry wen im trying to concentrate on reading books i have to study or trying to remember work i learnt at school which has left my brain. im failing school not matter how hard i try, i study all the time then the next day i have forgotten it. im so young and i havnt even started my future yet and i may have screwed it already. failing exams because i forgot wat i learnt the night before hurts so bad. its hard to say "hey everyone the reason i failed is because lamictal screws my memory" i know thats what it is. i was extremely intelligent before i started taking it, but now im a failure. i guess deep inside i know really im not a failure, but lamictal makes me one. : ( p.s add a constant hand tremor and sudden jerking movements every now and then.

Repeating my post from way down below - IN CASE someone's child with these head drops is looking for someone with similar symptoms.

WELL - Thank God! It is so about time! My son, age 6 now was given a very grim outcome/future by two top pediatric neurologists 2 years ago when he started having not the typical seizures we associate with epilepsy (no epilepsy in our family) - his head would drop forward - like his muscle tone in his neck would collapse for a few seconds and he would literally bang his head on tables (this was when he was 3.5 yrs old) - my husband and I always knew in our heart of hearts it WAS THE SINGULAIR he had been taking for 1 year after he had a bad coughing spell the year before - not formally diagnosed with asthma - but the pediatricians insisted it would only benefit him to continue to take it. When we noticed these head drops and his eyes would at times roll back in a matter of just a second or two and he was the most loving, caring and affectionate child and turned into an aggressive and obsessive compulsive child, who also began to have HALLUCINATIONS at night - he would sit up in bed and be seeing things and scream and cry, WE JUST KNEW IT WAS THE SINGULAIR and we stopped it COLD TURKEY on Oct. 31st 2005 - against the advice of the pediatrician. We took him to a neurologist and we told him about our suspicions about the Singulair he, just like the pediatrician brushed it off, but he had an MRI and an EEG - the MRI came back normal, but the EEG was devastating!!! We were told to get ready and pray a lot - that our little boy would become a vegetable and would require assisted living for the rest of his life. That he had a rare form of seizure disorder for which there was no cure.
We took him then to Duke University Hospital and had him checked by the top pediatric neurologist for a second opinion - he gave him another EEG and the diagnosis from this dr. was even worst - he would probably die an early age due to the severity of his condition and that he would lose all his motor skills and regress to a vegetable. Those were the worst days of our lives. We went back home and put him on anti-seizure medication and prayed A LOT - even strangers added him to their prayer list. Well, the seizures stopped in late January 2006 and just last March of 2007 he had another EEG and it was NORMAL - he was weaned off the anti-seizure medication and is thriving and his a great kindergarten student.
Doctors cannot explain how he was cured - there is just no explanation.
Aside from the faith we have in God's hand in this cure, we just KNOW THAT STOPPING THE SINGULAIR saved him from further damage and probably loss of life.

He is the most affectionate and caring little boy you can imagine and I do want to point out that his speech was affected in our hearts, we know it was the Singulair but in the last year his speech has improved dramatically and he is doing just fine.

My husband and I have been struggling to get awareness about the dangers of Singulair and children but the doctors do not believe us. At our last appointment with the pediatric neurologist, I told him, "one day, you will see that we were right about our suspicion regarding Singulair".

I do want to add that it was just too much coincidence that when he went for his first EEG in Dec. of 2005, there was another little boy in the room next door that his parents suspected Singulair as the culprit too.

If anyone wants to email me and if there is anything I can do to help with my own personal testimony - please email me ****** - I will be glad to share any other information.

LET'S RAISE AWARENESS TOGETHER and stop more damage from occurring. Remember, my son (post is far down) almost became a vegetable and was given a grim prognosis by 2 pediatric neurologists including the top one at Duke. No cure we were told. But we always knew it was Singulair. He was cured and there is no medical explanation. Had he continued to take it he would be the vegetable they had predicted he'd become.

Okay, I just emailed DATELINE NBC - please be sure to submit your children's adverse reactions story to them - here is the email address:
*******

I also tried emailing ABC for PrimeTime and 20/20 but they use regular snail mail for story suggestions - please do your part and mail out your story to them at:

To submit a story idea to one of the ABC News shows listed below, write a single page letter including your name, phone number, and address. Include photocopies of backup information. On the outside of the envelope, write "Story Idea." If a producer is interested in your story, he/she will contact you. Here are the show addresses:

20/20
147 Columbus Avenue
New York, NY 10023

Primetime
147 Columbus Avenue
New York, NY 10023

Together we will do something to help avoid more tragedies

I went ahead and reported our experience online to the FDA:
https://www.accessdata.fda.gov/scripts/medwatch/medwatch_online.cfm

FILE YOUR REPORT - TOO.

WELL - Thank God! It is so about time! My son, age 6 now was given a very grim outcome/future by two top pediatric neurologists 2 years ago when he started having not the typical seizures we associate with epilepsy (no epilepsy in our family) - his head would drop forward - like his muscle tone in his neck would collapse for a few seconds and he would literally bang his head on tables (this was when he was 3.5 yrs old) - my husband and I always knew in our heart of hearts it WAS THE SINGULAIR he had been taking for 1 year after he had a bad coughing spell the year before - not formally diagnosed with asthma - but the pediatricians insisted it would only benefit him to continue to take it. When we noticed these head drops and his eyes would at times roll back in a matter of just a second or two and he was the most loving, caring and affectionate child and turned into an aggressive and obsessive compulsive child, who also began to have HALLUCINATIONS at night - he would sit up in bed and be seeing things and scream and cry, WE JUST KNEW IT WAS THE SINGULAIR and we stopped it COLD TURKEY on Oct. 31st 2005 - against the advice of the pediatrician. We took him to a neurologist and we told him about our suspicions about the Singulair he, just like the pediatrician brushed it off, but he had an MRI and an EEG - the MRI came back normal, but the EEG was devastating!!! We were told to get ready and pray a lot - that our little boy would become a vegetable and would require assisted living for the rest of his life. That he had a rare form of seizure disorder for which there was no cure.
We took him then to Duke University Hospital and had him checked by the top pediatric neurologist for a second opinion - he gave him another EEG and the diagnosis from this dr. was even worst - he would probably die an early age due to the severity of his condition and that he would lose all his motor skills and regress to a vegetable. Those were the worst days of our lives. We went back home and put him on anti-seizure medication and prayed A LOT - even strangers added him to their prayer list. Well, the seizures stopped in late January 2006 and just last March of 2007 he had another EEG and it was NORMAL - he was weaned off the anti-seizure medication and is thriving and his a great kindergarten student.
Doctors cannot explain how he was cured - there is just no explanation.
Aside from the faith we have in God's hand in this cure, we just KNOW THAT STOPPING THE SINGULAIR saved him from further damage and probably loss of life.

He is the most affectionate and caring little boy you can imagine and I do want to point out that his speech was affected in our hearts, we know it was the Singulair but in the last year his speech has improved dramatically and he is doing just fine.

My husband and I have been struggling to get awareness about the dangers of Singulair and children but the doctors do not believe us. At our last appointment with the pediatric neurologist, I told him, "one day, you will see that we were right about our suspicion regarding Singulair".

I do want to add that it was just too much coincidence that when he went for his first EEG in Dec. of 2005, there was another little boy in the room next door that his parents suspected Singulair as the culprit too.

If anyone wants to email me and if there is anything I can do to help with my own personal testimony - please email me ****** - I will be glad to share any other information.

Was taking 300mg BID for seizure disorder (complex-partial with occasional progression to generalized) but had to stop because of severity of side effects: confusion, inability to remember words, depression, inability to concentrate, increased frequency of "aura" sensation/absence seizures, fatigue, frequent migraines, short-term memory loss (seems to have been related to medication rather than seizure disorder), dizziness, flushing, "drunk" feeling, insomnia (not sure if due to drug), loss of libido, occasional suicidal thought, etc. (There are others, but because of memory/concentration problems, can't remember them!)

I've been on Lamictal since December, i started out with 25mg, then to 50mg and now at 100mg which is where my doctor said I should be. I am taking Lamictal for a seizure disorder. Now I'm not bashing the drug but when I was taking 25 and 50mgs it was fine, I loved it. Seemed to work instantly. But now that I'm at 100mg the weight gain problem started. I have always tried to watch my weight so the only thing i can blame for not being able to take the weight off now is the Lamictal. I have been eating right, got back into the gym, watch my caloric intake as well as fats and carbs. Seems like for every pound i lose i gain right back in a day, it is awful. I did go thru a bad depression around the beginning of the year which I gained some weight from, but trying to get it off now is the hardest I've ever tried in my life. I am now 20 lbs heavier than I was since December. Has anyone experience this? And please tell me the outcome. I want to know if its me or is that a common effect that is now really greatly expressed as a side effect.

My wife has been on Topamax for 6 months and I feel our relationship is in the gutter. Lack of affection , no sex drive and she zones me out (like a zombie). Doe anyone have the same problems with their loved ones?

hi guys! about four months ago my doctor switched me from ortho tri cyclen lo(which I had been on for two years) to yasmin. It was the worst experience I have ever had in my entire life. About a week into the medicine I started getting horrible headaches, terrible anxiety and suicidal thoughts. I was sooo scared from this medicine that I stopped taking it thinking that everything was going to get better! Well wasnt I wrong. I developed OCD really bad to a point where I would sit and worry that I would hurt someone I loved or that I would hurt myself. and I had disturbing thoughts in my head that made my anxiety worse. I have been off the medicine for like 4 months and I am now taking 50 mgs of zoloft for my OCD, anxiety, and depression. I am unsure that it is working yet it's only been two weeks! I hope and pray eveyday that I finally start feeling myself! It's been horrible! Has anyone had this experience from this medicine? and if so do you think that I should get a hormone test, because I am almost convinced from reading other posts that my hormones are wacky! Well thanks for reading! and I hope everyone feels better! :)

Levaquin caused me to have a seizure.....after being seizure free for many years !!!! The Dr asked me why I didnt tell him I had a seizure disorder? He had just handed me scripts for my seizure meds on them !! Also that was the reason I saw him in the first place. Then he found I had a kidney infection and gave me Levaquin SAMPLES.
I am also feeling jittery, and have had some tremors.
This has me so depressed....he could have given me the package insert to read....then I would not have taken it at all!

since beginning topamax I seem to be very emotional. Can cry at the drop of a hat and am still having headaches. No seizures to report unless they are taking place during the night but have had spells of double vision and forgetfulness. Dr. says to bear with it and it should level out. I have been extremely anxious for some reason and somewhat paranoid. Possibly due to the seizure disorder. I have an MRI and 48 hr. ambulatory EEG scheduled for next week not to mention very supportive supervisors at work that is a great asset. Just don't know where all the tears are coming from.

I have been on dilantin for 20 years for seizure disorder called cortical dysplasia. Didn't even know I had it until 2004 when I had a grand mal seizure that lasted too long and different tests were run by my neurologist. It was suggested at that time that I switch from dilantin to something else due to taking it "too" long but all I knew is that it kept me seizure free and I was unwilling at that time to change. Well now here I am in 2006 with the side effects of the dilantin taking the chance of switching meds. Have been put on topamax, have been taking it for about a month. Very difficult transition for me, expecially when the dilantin was stopped all together. A lot of it was "in my head" I believe as I knew the dilantin did work and was not so sure about the other but I have struggled with feeling "hung over" in the mornings, confused, off balance, slow in answering questions, and anxious regarding these symptoms. My Dr. assures me I will adjust as my dosage is increased. Just when I get used to one I have to go up so it is very stressful times for me at the present but at this point I'm willing to ride it out. I have a MRI and a 24 hr. ambulatory EEG scheduled within the next 2 weeks so we shall see the results from that, but in response to side effects.......yep.....at least for me...but some are mind created

Seizure Disorder
Hello. We are desperate searching for answers. Our 3 yr. old boy was on Singulair for 11 months when we noticed he began having atonic seizures (his head would drop forward - loss of muscle tone). He was a perfectly healthy little boy. Our intuition as parents is that Singulair is responsible for this seizure disorder he has developed. He has been off the Singulair now for 1 month and a half. His seizures have not improved at all - we feel in our hearts that he has had some neurological damage done. He had an EEG done and it shows a generalized atonic seizure disorder. He was completely healthy before. What can you tell me about your child? Any feedback will be appreciated. Thanks so much.

keppra,topamax,zonegran,lexapro,ortho evra.Some of these medications or for my seizure disorder.

I was on depakote from 1982 until 1996 for seizure disorder. I first notice that I was having problems walking straight, I began to stagger needing help climbing stairs. I began falling, difficulty with speech & writing. During this time I was going to Barrows Neurological Group. One doctor diagnosed me with dimentia then the next doctor said I had Ataxia. By 1996 I was no longer able to bathe myself, get in and out of bed, conversation was very limited with answering questions with yes or no. I had been wheelchair bound for 5 years. On my visit to my neurologist in August 1996 my husband talked to the doctor about changing the medication. I was then put on Neurontin. In one month after this switch to the new medication I was talking. When I saw the doctor he told me he wanted me out of the wheelchair and walking again. Let me tell you that this was no easy task. It took me 3 years to learn to walk again. I believe doctors should be made more aware of this reaction. I believe if I had gone on much longer on Depakote I wouldn't be alive today.

I have been on Tegretol since 1999, 800mg daily (2 pills, twice a day, with food) to treat two grand mal and several petit mal seizures I had throughout that year. Since that time I've definitely noticed drowsiness initially, a lack of mental focus, loss of both long and short term memory (I can't remember a thing any more, so I have to write everything down within two minutes otherwise it's just gone) as well as occasional spasms of my right eyelid and calves. I get mild anxiety attacks when I forget to take my meds, so I'm afraid to totally go off it or reduce the dosage myself.

Good luck to everyone else dealing with seizure disorder / epilepsy.

- RQ, Vancouver, Canada

birth defects including,
seizure disorder (uncontrolled at times)
microcephaly (musculoskeletal system disorder)
partial agenesis of the Corpus Collosum(CNS/ Corpus Collosum partially
absent)
cerebral palsy(gross motor delay)
milk allergy & constipation(both trigger seizures)
urogenital malformation