July 9th
2009
11:51 PM
My mother just died from all of the secondary effects of prednisone. She was diagnosed with glaucoma 4 years ago but no one ever did a sed rate blood test to find out that she had giant cell arthritis. So once they found out, they treated her aggressively with 60 mg of prednisone. She swelled up immediately and had terrible pain in her legs. Then she became diabetic with big sugar swings that couldn't be controlled. Then s he got thrush in her mouth and couldn't eat or drink. Then she became dehydrated. For pain they gave her constipating pain meds and this caused a bowel impaction. She had tremors and then she had mental confusion. Then her skin started splitting everywhere but wouldn't heal. Then she started losing fluids from her skin. Then her bowels got impacted again. Then her colon ruptured and she got sepsis. Her sugar levels went haywire. Her heart wouldn't slow down, her skin tore up worse, she lost more fluids. And finally she got pneumonia and fever. She died in my hands after so much s suffering - it was just ungodly.
I hope she's ok now and happy and having no pain and is in God's loving arms.
I will never forgive this doctor.
Please be careful with this drug. It is so incredibly dangerous.
-- By francinelitz | Reply | Private Message me
June 18th
2009
3:30 PM
Hi all! Was just reading through all your experiences with the Mirena IUD, and let me just tell you, I am so happy I found this site! I had my Mirena IUD inserted about 6 weeks after my son was born (he will be turning one next month). I noticed my world literally falling apart within the first week of having it in. Of course when I talk to my Doc about what I've been going through, she says there is absolutely no link between my symptoms and Mirena. So then tell me why I am reading all your stories and it feels like I am reading my story back to myself? We can't all just be crazy here!!! I mean, some of my symptoms are so dead on with what others have shared, and the only thing in common is that we all have/had the Mirena IUD!! I honestly think people think that Doctors are Gods and that what they say is the word. Don't get me wrong, it takes a lot to be a doctor, and there are many many great ones out there, but in the end, you know your body more than anyone else!! So anyways, going back to the hell I have been dealing with: Within a week of having my Mirena put in, I got a MAJOR kidney infection. I have never had any problems with my kidneys whatsoever. The infection got so bad (I had no idea what it was) that I almost got Sepsis from it, which can be fatal. Since then, I have had 2 more kidney infections, as well as passed a kidney stone (which may or may not be related). Also, within that first week, I went from being a happy, active, energetic human being to being depressed, moody, panicked, weak, lethargic, and EXTREMELY fatigued all the time. I look in the mirror and don't even recognize myself anymore: I can't keep up with my son, the housework, cooking dinner and taking care of my family. I have watched my whole world literally fall apart. My partner and I split over a month ago, and I lost my job. I feel like the most worthless person on the face of the planet. I feel so horrible for my son because I just can't do the things he wants to do. All he wants to do is play, and I just can't do it. I can't be a normal mother to my child because I have no energy at all. I feel tired and weak CONSTANTLY, and just getting out of bed in the morning takes an act of God. I have to nap when my son does, because if I don't, I won't make it through the day. Even when I do get my naps in, they are not energizing naps, they are just to keep my head above water so that I can at least do the bare minimum to take care of my son. This is the complete opposite of the person I once was. I used to love life! I used to run and hike, and treat the world like it was my playground. Now all I do is sleep, and schedule my life around sleeping and just try to get by. The depression and anxiety attacks are new to me too. Some days I am in such fear of the anxiety attacks that I don't even leave the house. I have become a total hermit, and it's not fair to my son at all. I have also experienced pretty significant weight gain, and am still gaining. I have always been very fit, active and petite with an average weight of 110, and now here I am pushing 130! That just is not me!! With my small height of 5'3" it just doesn't look right. No wonder why my husband doesn't want me anymore!! I'm chubby, I sleep all day, I'm depressed, moody, and afraid to get out of the house!! I would do anything to have my life back. I would do anything to have my family back!!! That's why I ended up coming across this site in the first place. Like so many others, I have spent hundreds of dollars going to the doctor, and having all these expensive tests done just trying to figure out what the hell is wrong with me! You name it, and my doctor has tested for it, only to have everything come back looking fine. I can't even begin to tell you how extremely frustrating it is to sit there in my doctor's office feeling the way that I do, and knowing something is definitely not right, only to have her tell me, "You're fine. It's all in your head. Take this anti-depressant and you'll feel better." So, my initial intention was to go online and try to find some tips on how to increase my energy level, and suddenly all these links started popping up about Mirena and chronic fatigue. I started reading your stories on here and it was like a light suddenly went on in my head! And for the first time in almost a year, I felt the relief that I have been literally praying and praying for!! I have already called my doctor's office and made an appointment to have the damn thing taken out next week! I am actually excited for it! I keep thinking: What if this is it? What if this is the reason why I have been feeling so bad? What if they take it out and I become ME again? The me who used to camp and hike and fish and run and hold down a freakin job and play with my kids and take care of my family and have passions and hobbies?!!! What if??? Well, I am going to find out! I will post again and let you ladies know how it goes! If it does turn out that it was the Mirena that caused all this, you bet your booty I'm gonna be the world's biggest advocate on getting that thing pulled off the market!!!
-- By afuller03 | Reply | (1) replies | Private Message me
February 17th
2009
11:12 AM
Well on 2-15-09 my sister in law died just shy of turning 39. She had severe depression, As of three years ago she began starving herself. She would go weeks without eating or drinking anything. She was in and out of the hospital through out the years. She started taking Lamictal six days prior to 2-15-09. The Dr. said she had made a mistake and wrote 100mg where it should had been 25mg. The doctor's later stated it didn't matter if they wrote 1mg it would have happened eventually.
Now we had called her on her birthday three days prior to 2-15-09, and she said the medication made her feel weird. That night she fell to sleep and did not wake up but for only a brief minute in the hospital. After being asleep for a day she was rushed to the hospital were a battery of test were run. She had begun to have liver failure and sepsis. The doctor's had her airlifted to a hospital four hours away where liver specialist were available. She arrived there and withing a few hours her lungs collapsed, her kidneys began to fail, and she had two heart attacks where she finally died at 11:10 pm on 2-15-09.
So I am here to make you aware. This is the side affect no one has talked about yet. Now she had no rash. She had weekend her system by not eating. Other than her depression she was OK. The doctor's don't know if she had an allergic reaction or not. The autopsy will be arrive in 40 days. With just some fatigue and weird feelings she continued to take the medication for the six days. I read on and on and I see so many symptoms, this would be a great time to evaluate with a profession because lets face it we really don't know the long term affects. It could be doing damage to your internal organs, or not. I feel if your body is showing you signs that are not normal than it is a good indication that your body is telling you that is cant tolerating it to well. So at least your getting the signs you might want to see what else is out there. As God is my witness we wanted her healthy and to not suffer so I really do have only good intentions for you all.
The funeral is today.
-- By niccomom | Reply | (2) replies | Private Message me
February 10th
2009
9:31 PM
My 17 year old son was diagnosed with MRSA after getting an injury on his knee from playing basketball.After the first does he had a loss of appetite, fatigue, nauseous and severe headache. By the third day he got a fever, chills, neck stiffness and a feeling of doom. We went to the ER because his blood had not been cultured and we were afraid of sepsis in the blood. The ER doctor said it was most likely viral and sent him home. The next night he had a fever of 103, sore throat, trouble swallowing, sun burnt look, swollen eyes and cracked swollen lips.The next day we went to the urgent care and they tested him for mono, strep and the flu...(all negative). He felt awful and was so tired and feverish. The next morning he woke up with a severe rash and itching all over his body and his skin looked like it was scalded. His blood culture came back negative for bacteria and his wound has healed. I have taken him off of this drug Bactrim. This is his first day. His rash is better and his fever was down for a little while. It is 101 tonight and he just feel so tired and achy. I know it will take time for this to get out of his system. Meanwhile he is missing school and is getting depressed because he feels like he will never get better. If someone told me that fever and chills were a side effect from this drug I would not have been so worried that he could die of a blood infection. Ask lots of questions or google this site before taking a new drug.
-- By sattledl | Reply | (2) replies | Private Message me
October 20th
2008
10:53 PM
Vertigo, weakness, fatigue, exhaustion, aching numbness in arms, numbness in face arms and legs, extreme pressure in head and neck, burning feeling radiating from the base of my neck through shoulder blades to arms, foggy brain, waking up feeling (for no reason) like I have a major hang over, chills, aching feet, weight gain, feeling very fearful of my symptoms because they feel like nothing I have ever experienced.
THESE LAST 4 WEEKS HAVE BEEN HELL!
I had my Mirena inserted on June 30 2008. I experienced mild discomfort for the first 4-6 weeks. The spotting was the worst of it and that was no more than an inconvenience. I was happy with my choice of birth control.
Then this hell began about three months after insertion.
During the last week of September the symptoms listed above started. They were mild at first but by within a week and a half I felt HORRIBLE. I suspected that it may be the Mirena, but at the same time I thought I was dying.
October 1 or 2nd (it is all a blur) I was home by myself when I started feeling the numbness and head pressure coming on again (my symptoms were coming and going, not constant) so I laid down on the couch to get off my feet. All of a sudden I felt like I was losing consciousness. I grabbed the phone and called my husband to get me to the ER. I thought I was dying. A blood clot or something. Once there, they did blood test after blood test, an EKG, urine tests, and basically I was told that there were no major system problems. I know this sounds a like classic anxiety, but I know it is not. I have to say they were very good there and encouraged me to see my family physician (whom I had already been to earlier that week) again.
I called to make an appointment to have the Mirena removed the very next day. My GYN kind of shrugged off what I was going through saying that it was anxiety and asked if I still wanted the thing removed!!! of course I did. Having that thing removed was very empowering. I was feeling so helpless and it was the one thing that I could do to possibly help my situation. The feeling of relief was amazing.
I did see my family physician again who agrees that what I am going though is related to the Mirena. She did ordered a CAT scan (came back negative) just in case.
Post removal (It has been 17 days) I have been slowly getting better. My "episodes" are getting more and more diminished and further apart. I have noticed that I am flooded with exhaustion after each of these "episodes". I also never know when there going to strike making it hard to make plans. My husband has been very supportive through out and was convinced before I was that it was the IUD. He has volunteered to get a vasectomy.
GOOD LUCK TO ALL YOU LADIES.
If you have stumbled across this because you are desperately searching for answers, all I can tell you is that I believe that the Mirena IUD has had devastating effects on many, many women, but hang in there you are not alone and you are not insane. What you are experiencing is very real. Have it removed ASAP!!!!!!!!!!
August 22th
2008
12:15 AM
i have had mirana since july28 2004. i never had any problem with it i though it was a god'sent UNTIL NOW!! over the last 2 years i have had irregular bleeding,odd pain among other things. the bleeding started normal and but now it is very very dark clots and pain OMG it feels like i am being stabbed all the time. i have been to the doctors over and over and over .. they say it is not a side effect it is all in my head. well let me tell you i am a nurse and i know my body like you all do and something is wrong. i am due for it 2b changed and i want it out. i am so afraid of PID or sepsis. i have weird chalky discharge sometimes. and i have been tested for anything and everything under the sun STD wise so i know the pain and all the problems are from this. i have no energy and i am "sad" most of the time. i do not handle stress the way i used to .. my husband says i have changed. not for the bad per say just different. we have 2 children and thought this would be perfect but we were so wrong. good luck to you all... i know lots of women who have it and are fine. but the ones with a problem with it oh man do we ever have a problem...
-- By aughasangel | Reply | (1) replies | Private Message me
August 12th
2008
7:12 PM
hi i had the mirena fitted 4 weeks ago,not had any side effects since fitted but is it normal or not to smell a bit down below
-- By danni1984 | Reply | (4) replies | Private Message me
July 2th
2008
8:34 PM
Prednisone is a popular medicine used to treat inflammation, but actually it is close to useless for anything. It can cause infections to flourish so any MINOR infection can blossom into acute wide spread sepsis. PLEASE use with CAUTION!!!
-- By 47140 | Reply | (1) replies | Private Message me
August 10th
2007
4:23 PM
My thoughts on Prednisone are that it is USELESS!!! It is a popular medicine used to reduce inflammation, but other than that it is good for NOTHING!! It can cause ANY infection to flourish which means ANY minor infection can blossom into widespread SEPSIS. There has got to be something better. By all means...REFUSE PREDNISONE!!!!!!!!
-- By 47140 | Reply | (1) replies | Private Message me
August 9th
2007
10:58 PM
Hi there... I have just found this site and I'm very grateful to everyone who has taken the time to sit down and tell us their story mine is very similar. BELIEAVE me I feel like I am pushing my family away and I'm losing my relationship with the one person who used to make me feel like I was the most beautiful woman in the world.
I'm a 40 yr female have or maybe had a great job that I loved... On April 12 I noticed a small red rash on my lower right leg no big deal went to the Dr. gave me some cream and sent me home well I went to work and by the afternoon things just seem to get bad my legs began to swell and little blisters started to pop up so I went to the E.R. they had no Idea what was wrong with me got me an appointment to see a skin DR. so I went home but the pain from the swelling was so bad I could not walk any longer went back to the E.R. they gave me some pain meds and called in some other DR. things had gone from bad to worse my feet had gotten to big I could not put on shoes and I had bruised completely across the bottoms of my feet they put me on 30mg of PRED. and it seem to be under control sent me home after 3 day in the hospital things were good for about a day or so I thought I would go back to work well that was not a very good idea.... My sister had to come and take me back to the ER where they did 2 biopsies and still have no idea what is wrong with me. so now they put me on 60mg of PRED the rash has gone, lots of scaring on my feet because of the blisters once they broke and dried out but I can live with that....
It's the side effects that they don’t tell you about,
MOON FACE I can't look at myself cause really that’s not me anymore,
WEIGHT GAIN I have always been thick but I can't handle the extra 30lbs I've gained,
MOOD SWINGS are unbearable,
PAINFUL JOINTS, CAMEL HUMP, BLOODY NOSE, BRUSING, SORE TEETH/GUMS, DRY EYES, FAITIGE, and worsted of all
I don’t have a support systems in my life so I'm fighting this by myself everyday, I have 3 kids that I have tried to explain all this to but they don't get it and well my boyfriend he tells me he understands that its the meds pushing him away but if I can't figure away to control this I will lose every thing including my job. I cant even get the energy together half the time to make it up and down the stairs which also comes with the pain of just trying to lift each leg up to climb the stairs, I also have the camel hump which I find very painful, The acne and the hair growth that I have to get wax off once a month cause I feel like a man I feel like a loser and as of the last couple of days I just want to give up I am now down to 20mg per day but I find that I am feeling so sick I cant think straight I hope and pray for each and every person out there that has to take this MED that you get better and I do hope that my symptoms wont come back. Thanks for being here and I’m glad I found this site. I know now that I’m not losing my mind completely. Elizabeth.
PredniSONE (5) Mirena (5) Bactrim (1) Lamictal (1) Cubicin (1)
September 29th
2009
12:15 PM
I want to thank all of your ladies posting your Mirena side affects. I am 15 and just had my daughter August 3rd, after her c-section i contracted staph in my uterus, which gave me sepsis and pneumonia, which they said they have never seem before and recommended i get an IUD to prevent having any more children for at least 2 years. After reading about the risk of uterine perforation, i found this site, I cannot believe the number of side effects you can have from the IUD!! I am just shocked.
-- By laurensmommy | Reply | (1) replies | Private Message meI want to thank all your ladies, I am calling the OB and canceling the Mirena order and just sticking with good, old birth control.