October 11th
2008
2:24 PM
4 months ago started on preastatin 20mg increased within 1 month to 40mg; could not stand up without help; stopped statins at that time. CPK done 157, this was done to show me I wasn't in danger of rhabdomylysis, I continue to suffer with swelling R leg and severe pain. Leg is still swollen 4 months later.....I am professional RN in ICU ,,can't really do my job as necessary...Should I file for disability; or does someone have an answer to provide relief for this malady???
-- By diana69 | Reply | (3) replies | Private Message me
September 2th
2008
8:12 PM
I think some of the severe symptoms reported here are just that.. severe, and as advised on the drug information insert they can happen, and should be reported to your doctor. We are led to believe our doctors will stop the meds and try something else. If they are not willing to do that, or try to convince us it's all in our heads then... we should stop the meds ourselves and find another dr. These side effects are real, and scary. I've stopped cholesterol meds for that reason. I don't need a dr. to tell me to stop... I know my body, and how I feel and know when something isn't right.
I've been on Lisinopril for two weeks now. I was initially on the diuretic Hydrochlorothiazide, but had so much arrhythmia that I thought my heart would jump out of my throat. The dr. discontinued that after less than a week, and put me on Lisinopril. I am a bit dizzy sometimes, and do have a mild cough, but I had the cough before the meds so I can't really blame it on that. However, for all those with the problem of coughing and headaches... I read at drugs.com that you should take this medication with a full glass of water, and drink lots of water throughout the day. This tip was not in the drug handout and I thought that odd. Something so easy, and yet left out. Luckily, I drink water at my desk all day at work. This weekend while home I didn't drink water and had a horrible headache the entire time. I never connected it until I read that you should drink lots of water. Back to work today and drinking water and my headache is gone. It's worth a try, it might help. My husband is on Lisinopril/HCTZ combo, has been for at least 3-4 years with no adverse side effects.
We are all different, medication effects all of us in different ways. I hope I never experience the kinds of side effects I'm reading about here. If so, I'll be off the drug in short order. My dr. told me there are loads of other medications we can try. While there are side effects to everything we take, mild is ok but no one should put up with life altering and/or life threatening side effects like what I am reading here.
-- By laurel08 | Reply | (5) replies | Private Message me
August 29th
2008
2:21 AM
I am a 54 year old male who started taking Lipitor about 4 years ago. It seemed OK at first, but over the next several years I began to have increasing amounts of joint pain after exercise. Nor muscle pain, joint pain. And it seemed to be a result of exercise. By the time I stopped it, I was hurting after everything, not just exercise. I felt better within the first two weeks, but it took about 4 months for me to be able to exercise vigorously again. Over the years I seemed to have forgotten how much vitality I used to have. I am a physician, and because of the long lag time until I felt better, I wondered whether improvement might have related to other factors, so after about 5 months I decided to restart Lipitor. It surprised me that after just one dose, I got back all of the joint pain and fatigue when I was at my worst on Lipitor. I was really hurting. Needless to say, I didn't take any more.
Coincidentally, a physician friend of mine who had statin induced polyneuropathy had a similar experience. After his symptoms went away he found that after only one dose the entire polyneuropathy came back.
Stopping and restarting the drug is a way to test the correlation between the drug and the side effect. For such a large spectrum of side effects to recur after only a single dose, it argues that the problems that my friend and I had was due to some sort of immune memory response. I have not seen this in the medical literature.
I am off it now for about 8 months and am able to comfortably play singles tennis and jog - much more energy (and I took 200 mg of CoQ10 a day with the Lipitor).
-- By n8healer | Reply | (7) replies | Private Message me
July 26th
2008
5:43 PM
Due to the large amount of people who suffer devastating side effects from Lipitor and other statins, I would like to encourage each and everyone of you to tell your story on home video and post that video on****** This will be one of the best ways to alert the world to the dangers of this drug.
-- By bobby | Reply | (2) replies | Private Message me
July 23th
2008
9:54 AM
I was on the low dose, 100/50, for 2 years. I had blurry vision in my right eye and lethargy. Last week I woke up and could not breathe AT ALL. I was choking for about 45 seconds with no air coming in. I have read that Advair can bring on sleep apnea. After a couple of days of doing research, I stopped cold turkey. My vision cleared up in a day and my lethargy is gone. I am now using apple cider vinegar for my asthma (brought on by my 2 dogs and cat) and so far, all is well. How that stuff is legal, I don't know.
-- By damonff | Reply | (1) replies | Private Message me
July 3th
2008
1:54 PM
I am 31 and I have been on YAZ for a month now. My two friends have been on it for two months and suffered nausea and that was it. They love this BC!! I have not taken BC for two years but with my history of ovarian cancer (diagnosed at 24, been cancer-free for seven years!!) and my horrible periods I decided to get back on something. My oncologist put me on YAZ once I told him how the first day of my period keeps me home from work or I miss out on social activities due to the awful cramps. The only side effects I have experienced are being on my period for a month and bloating. The period is light but I still have to wear a tampon non-stop and that is not so good for the old sex life with my husband. I have never been pregnant, but I feel like I am with the stupid bloating I am having. I am going to give it another two weeks if nothing has changed I am quitting. Good Luck to everyone!!!
-- By durbina | Reply | Private Message me
June 10th
2008
6:44 PM
I have taken toprol for seven years. I never had any bad side effects and it controlled my blood pressure most of the time. However, I suffer from anxiety and depression and was recently put on Lexapro. My heart rate dropped into the 40's and I was exhausted all the time. Turns out Lexapro interacts with Toprol in that the drug (Toprol) does not break down in your system and keeps building up! Because the Lexapro was helping my anxiety I decided to lower the Toprol dosage. Down to 12.5 mg and still extremely low heart rate and fatigue. Decided to go off the Toprol and monitor my blood pressure, which has been amazingly good so far. Went off completely six days ago and it has been rough. Anxiety, insomnia, pounding heart, heart palpitations. This stuff is a real B*tch to get off from. Have talked to both the pharmacist and my doctor and both said to NOT start taking it again. There are plenty of newer medications out there. I also experienced weight gain when I first started taking it...I think because it slows your metabolism down. So now I am on xanax to counteract the Toprol until the Lexapro kicks in more. It it isn't one thing, it's another.
-- By jddupee | Reply | Private Message me
April 11th
2008
2:50 PM
Have any of you seen this site: http://www.askapatient.com/viewrating.asp?drug=20829&name=SINGULAIR - the side effects we all recently began discussing is documented from users and parents of users as far back as seven years ago!
Why is it that the FDA just became concerned and Merck had no clue of these reports?? Interesting and distressing wouldn't you say?
April 6th
2008
8:43 PM
My daughter is seven years old. She was diagnosed with asthma when she was around two years old and, for years, suffered with the night cough associated with childhood asthma.
When Singulair came along, my initial reaction was that of joy. My husband and I could not believe that we no longer heard coughing throughout the night. However, while on this drug, we also noticed that she underwent a change. Sometimes, she seemed terribly sad and withdrawn. Other times, she became angry and even aggressive. We rarely saw her smile. It also seemed like she was in some sort of fog much of the time. About a week ago, I found her on the floor of our office. She had just gotten out of the shower, and I was getting her pajamas for her. The towel was not around her and she was shaking violently and crying. She explained that she had the chills, but it was clear that she didn't even comprehend that her towel was not around her. We all know our kids, and, I'm telling you that this scene was frightening. This was not at all my daughter.
In addition to the mental/emotional changes, she also had physical symptoms including sudden and frequent headaches, fatique, stomach pain, and bed wetting. A day after her "breakdown" in our home office, my husband called me from work and told me that he had just been reading MSNBC and that there was an article about the negative side effects of Singulair. When he listed things that matched what our daughter had been going through since on this drug, it was both comforting and horrifying. I am relieved to know that there is nothing wrong with my daughter psychologically, but I am furious that she and so many others have been treated like guinea pigs. We took out daughter off Singulair the very same night that my husband came across the article on Singulair, and she hasn't had any of the mental or physical symptoms that she had been experiencing...the change was that drastic. Currently, we are only using her inhaler and Benadryl at night. She has a doctor's appointment next month, and I will tell the doctor about our experience.
I have my little girl back, but I can't help but wonder how many families are going through this and do not have a clue that Singulair could be the problem. Other than reporting this to our pediatrician, is their another agency I should contact?
-- By tess42 | Reply | (2) replies | Private Message me
March 27th
2008
7:57 PM
My son was prescribed Strattera for ADD. 25 mg for three days,
but when the dosage increased to 40 mgs, it was a nightmare.
This was the worst medicine I have ever had my 12 yr old son take. He lost his appetite, had insomnia for several weeks and behaved like he was in a stupor when he was awake.
I would NEVER EVER have him take this drug again and I do not
recommend it to anyone else.
February 14th
2008
12:02 PM
I've also experienced many of the same side effects. I was on NuvaRing for 3 years and on the pill for 5 years before that. For me I found the changes very subtle. My sex drive was not effected right away, but it just kept getting lower and lower. I was doing grad school so I was getting more and more stressed and thought that that had something to do with it, so I ignored it. I was also much more anxious, depressed, short tempered, unmotivated, fatigued and oh, did I mention depressed! I honestly thought it was all due to the stress I was experiencing in grad school, but I did feel like something may be up. A lot of my symptoms were similar to hypothyroidism (oh yeah, I also gained 30 lbs after switching from the pill to NuvaRing) so I got tested, but my thyroid was fine. I had heard about the increased risk of blood clots for the patch, so I wanted to find out if the risk was also heightened for NuvaRing, so I googled a bit and came across some other sites like this one and saw how similar other peoples situations were to mine. I went off it 3 weeks ago (after only having a new ring in for one week) and I got a really long and heavy period right away. Since then I've been having mild cramps until today where they are the worst I've ever had. On the bright side, everyone has noticed how much happier I am - I really feel like my old self again. I haven't been depressed or stressed since I've been off NuvaRing!! It's so awesome. We've switched to non-hormonal contraceptive methods - I wanted to give my body a break and I may be trying for babies in the next year. Anyway - for those of you considering going off - TRY IT!! It can't hurt (except maybe for some cramping :D) If you don't start to feel better you can always go back on. It has made a huge difference in my life. I too was considering suicide at 26 when I'm normally a really happy person. My mom has also noticed that my moods are much more stable - apparently I was going a bit bipolar before!
-- By cookieb | Reply | (3) replies | Private Message me
February 6th
2008
1:58 PM
My experience with NuvaRing is very similar. I got on the ring last April after being on Depo for seven years. I loved the shot and I loved not having to deal with periods or cramps or emotional issues, but my doctor was concerned about my bone density and took me off of it.
My side effects with NuvaRing are as follows:
- EXTREME irritability and emotional distress to the point where I feel completely out of control.
- Zero sex drive.
- Pain during sex (which on top of the lack of a sex drive makes for a very sad sex life with my fiance).
- Constant yeast infections.
- Odor.
- The type of cramping that keeps you from going to work.
- Extreme breast tenderness.
I have my annual exam next month and will definitely be getting off NuvaRing. I want my life back!
-- By sarajean | Reply | Private Message me
January 28th
2008
11:31 AM
I have been taking Zoloft for over 7 years, Zoloft it might help you when you have \Depression because it seems that it works for a short period of time, or course everybody is different, after seven years taking Zoloft for Anxiety I got to the conclusion that the Science don't really know how the brain works, in my personal experience I notice that Zoloft it keep you thinking constantly so the antidepressants are good only if you take them for a short period of time after that like in my case it just make my life miserable, go down on the medication little by little, do exercise at least 3 times a week, drink water eat properly and pray to God almighty it will go away, change things in you life that affects the way you think, be positive talk to yourself all the time, stay away for the medication at least if your problem is anxiety don't take Zoloft I regret the time when I start taking it, it doesn't over for a long time, the brain doesn't know what to do when are giving serotonin everyday, this year I set a personal goal of get rid of Zoloft for good, if were not born with Anxiety that means for me that you can and you will be like before, our body has the ability of heal itself I believe our recovery from anxiety is life change but basically if you have seen that your medication it's not working don't try another one they just don't work for long treatment, try it's hard but the longer you take it the harder it's to get away, pray to God if you are a believer you will be better, I hope this helps for you.
-- By jc2970 | Reply | Private Message me
December 8th
2007
3:29 PM
Hi! I was on I had chronic daily migraines for about seven years I am now thirty. I have tried everything in the book. I was on Elavil and became headache free for about five years and went off of it an was fine for about two. the cam back and nothing has worked since not even the Elavil. I took Topamax for about three weeks 25mg. a day and my husband thought I was insane!! I could not eat because my stomach was so nauseas and i developed severe depression. Al thought I was almost immediately headache free. But my husband and I could not handle it. Nothing worked for the next year so I am back on it. I have been on it for a month. I am relatively headache free. I am at 75mg twice a day. Lost weight not depressed but extremely nauseas so we will see. Good luck to those our there. I feel your pain and connection. If you have a similar experience and information on the Longevity of Topamax side effect that would me great. Happy holidays!
-- By leigh30 | Reply | (1) replies | Private Message me
September 27th
2007
9:17 PM
I woke up this morning after taking Lisinopril for years and my tongue started swelling and continued to swell. My doctor sent me to the emergency room where they discovered that this was a possible side effect of the drug along with swelling of the entire face and throat - enough that it could cause you to smother to death. He said the side effects could just suddenly flare up as long as seven years after you stop taking this medicine. They put me on an IV for three hours to reduce the swelling and counteract the effect. It brought it almost back to normal but I have to take medication at home for a week to completely return to normal. I was told to never, ever take this stuff again. It makes a person wonder!
-- By davemary | Reply | Private Message me
September 22th
2007
8:14 PM
I started the NuvaRing 2 days ago and since reading this site I have just run to the bathroom and swiped the thing out as fast as I could.
I did not really want to go to another form of hormonal birth control as I have had some severe side effects in the past on the Pill (Loette 28), which I took for seven years. I had no idea that all the symptoms I was having had anything to do with the Pill until I decided to stop taking it about 8 months ago. Since then, I have been a new person, according to my boyfriend. I no longer feel depressed, sad, anxious, or have severe nausea and vomiting. It's sad to think that for seven years I was doing so much damage to my body and my mind because of this.
The one other thing I noticed being off the Pill was an increase in yeast and vaginal infections. I have also been having abnormal PAP smears and have since discovered that I have mild dysplaysia.
So I went to the doctor and he told me that if I go back on the Pill or the NuvaRing, he thinks it might help the yeast infections. I was really skeptical and have been putting it off for months, but finally, I inserted it 2 days ago. The very first day I was having symptoms: Severe headaches (I NEVER get headaches!), nausea, depression, and the worst heart palpitations and dizziness I have ever felt!! I felt weird, like something was taking control of my body. Anyway, after trying to eat something last night and feeling queasy throughout the meal and then vomiting for the first time in 8 months, I am convinced that this is not me!!! It is the NUVARING!!!
Two days was enough for me- I am not going to wait it out this time. I want to be hormone free! If you really think about it, how can putting your body in a constant state of pregnancy be healthy?? We are not made for that. It is completely unnatural!!! We are inevitably playing with fire here.
My advice to any women out there? Seriously watch for ALL symptoms you are having with the Ring or any Pill and if there are any that are similar to this site, then please try and go off it and see what you feel. You may feel like a different person, like I did!!
Good Luck
September 12th
2007
3:12 PM
I took this medication seven years ago. After a couple of days I broke out into hives. When the initial Hives went away I kept itching. Then, the itching began to spread all over my body. I have been turned away by many doctors who wished me luck and said they were sorry but they couldn't help me. Since then, I have become a science project for doctors. I have taken a number of medicines to calm me down and an assortment of creams and lotions. One spray that takes the itchy hives away for awhile is CLOBEX. It's very expensive. It costs me $250 a month (out of pocket). The only medicine that relieves the condition for about a week is prednisolone (another drug that's not so great for you). I now take that once a month for one week’s relief. Each night, I have to scold myself in the shower to relieve the itching for a few hours so I can go to sleep. I'm currently at a new Dermatology Clinic. Guess what they prescribed for me? CEPHALEXIN, the drug that caused the poor quality of my life I now have. Doesn't anyone listen to the patient? The only best medical friend I have is my Primary Care Physician who has greatly supported me all these years. I pray that someone may read this and I have an answer me.
If you have not yet taken CEPHALEXIN, think about it long and hard. It's not for everyone and MAY not be for ANYONE. If you've read this far in my note, I consider you a new friend.
Someone please help!!
Still Itching in New Jersey.
September 10th
2007
10:51 AM
In 10/2001 I was diagnosed with Prostate Cancer and my MD prescribed a Lupron 3 month Injection to reduce the size of my prostate prior to radiation seed therapy. l started having the following symptons immediatetly frequent hot flashes which disrupted my sleeping at night from 4 to 6 times per night and which lasted for 9 months, I was no longer able to achieve an erection, although immediately prior I was able to have sex with an orgasm. I loss muscle and gained weight. Seven years have past and during that time I developed a heart arthymia which I was hospitalised for all this despite forcing myself to stay physically active, by walking, lifting weights and doing manual labor. I have never been able to regain my strength despite my exercising. I am now suffering from an undiagnosed skin disease and low blood platelets which my doctor thinks is an auto immune problem. This drug has had a severe impact on my well being and I tell all my male friends that if they ever have prostate issues to avoid hormone therapy at all cost.
January 10th
2007
6:48 PM
I was prescribed cephalexin for infection in my head and after the third day of using it I broke down into hives and started itching throughout my whole body.
-- By catgar11 | Reply | (1) replies | Private Message me
August 31th
2006
10:27 AM
I have been on Toprol XL (25 mg/daily) for 6 months (F/41). I was really glad to come across this message board in a frantic search of "weight gain with Toprol XL". Have gained 10 pounds in these 6 months and for the life of me I cannot get any weight off, my body is just stuck where it is at. My problem is I have to lose weight since I am overweight about 40 pounds right now so this is so frustrating to me. At least I am not alone, thanks for posting your problems also with weight gain. I take Toprol for my fast beating heart, was having bad palps last January. Toprol does work well in keeping my B/P down (tends to be just a bit high) and the palps are non existent for me on this drug. I do have swollen ankles (at night) ok in the mornings. But the weight gain is really making me go crazy especially when I need to lose weight. This just isn't going to work so this morning I am cutting that pill in half and getting the heck off of it. I do find that if I stay away from sugar/caffeine my palps really don't bother me nearly as much. I went on it because the job I had was very stressful and brought back my palps again after not having them (as bad) for several years. I just hate those "fluttering" heart beats, they are hard to deal with and Toprol takes them away and keeps me "calmer" so I will miss Toprol for those effects, but not the weight gain! Thank you for this message board, it's been so helpful.
-- By 3catage | Reply | (1) replies | Private Message me
March 29th
2006
1:04 PM
Wow,I have been taking toprol for about six years.I was started on it due to a rapid heartbeat and irregular beats..two days ago I just stopped taking it. Im not sure if that was best, but I do feel different. My hope is I will have some energy in a few days.Im going to my Dr to see about a calcium channel blocker. Does anyone know if if topral can cause drug induced lupus..??? I have lupus and I just wonder..Thanks,
-- By gentle-fawn | Reply | (2) replies | Private Message me
August 23th
2005
1:05 AM
I too have been left with a severe indentation from fat atrophy due to Kenalog injections. I have been having Kenalog injections for the last seven years for hayfever allergies. I suddenly noticed this indentation on my right hip last summer and after being referred to a specialist (my doctor didn't know what it was!) she was able to tell me that this indentation was due to the Kenalog injections. I was horrified, I've had seven! I will never have another Kenalog injection again, information should be made aware to the patient before receiving this drug. I shall look to other alternatives for my hayfever alergies in future.
-- By gareth.thomas421 | Reply | Private Message me
July 8th
2005
3:31 PM
I have been taking verapamil for seven years, but I have to watch the dosage. My doctor took me up 3 180mg pills a day but that made me so tired and weak in the legs I could not take my daily short walks
I reduced to 1-1/2 pills and am able to take my walks. If I get a headache and find my pulse quite strong, I will take a additional half or whole pill for just that time. Doctors always want to go by the BP readings they get in the office, but surely by now everyone knows that the reading can be high from the "white coat syndrome" and that BP varies widely all day every day in every person.
July 8th
2005
3:11 PM
I had been taking lisinopril for about a month when I began having nose bleeds and bleeding piles. My doctor insisted that it was not the lisinopril and pointed out the Plavix I was taking is a blood thinner. He didn't say it directly, but I inferred that he suggested I reduce the Plavix, which I did. But the bleeding has stilling continued irregually.
Then about a month ago, I woke up with tinkling in my hands and feet, although I sleep only on my back in my recliner. After several days of this, I check the info sheet that comes with the medication. It states that lisinopril may cause swelling of hands and feet. Since once before, when a pharmacist told me another medication could cause swelling of the extremities and when I got the numbness and tinkling I called and he confirmed it was the same thing.
Any way, I stopped the lisinopril completely and informed my doctor thru his medical assistant, who relayed that although the doctor doublted lisinopril was the cause, he cautioned that I keep checking my BP. (I have been taking Verapamil for seven years to control it, but this new doctor wanted the BP even lower, so he put me on lisinopril in addition.)
I stayed off it for ten days and the numbing of the hands and feet vanished. But to verify that it is the lisinopril, I took one pill two days ago and woke up with strong tinkling in my right hand and lesser amount in my left hand.
Even today, as I am writing this, I still experience tinkling or numbness in both hands.
Lipitor (5) Lisinopril (4) NuvaRing (3) Toprol-XL (3) Advair Diskus (2) Singulair (2) Cephalexin Monohydrate (2) CellCept (1) Betaloc (1) Topamax (1) Yaz (1) Verapamil Hydrochloride (1) Lupron (1) Strattera (1) Zoloft (1) Kenalog (1) Vi-Q-Tuss (1)
October 26th
2008
5:43 PM
I have been on Lisinopril for approx 5 years, during a routine year end blood work-up, I have developed a problems with my creatine levels 1.48 and Glom Filt Rate, Est 37. My physician had me do a 24 hr urine for further testing but insisted that I no longer take the Lisinopril. Several of the tests have come in and he advised me that I have only 50% blood flow to my kidneys. It appears to me that the Lisinopril has caused some kidney damage. I also have a great deal of muscle pain, but do to my age (55 years) I thought it was jus a part of the aging process. What do you think?
-- By dtiffe | Reply | (3) replies | Private Message me